Відео

This makes sense y some sleep issues and feelings like my brain is so busy and my gut is so busy when I lay down to sleep and then urinary too

A tetanus shot caused me to have Chronic Fatigue Syndrome back in 2017. A year later, I was misdiagnosed with hepatitis and ended up with 2/3 vaccines for that. I refused the third of that series because it caused more CFS. The Spring of 2021, I had my second Moderna shot and it gave me Myalgic Encephalomyolitis, brain inflammation. I was stuck in bed for about a year. Now I still struggle with energy. I do take B12 every day, but that doesn't help tremendously. I am hoping that taking low dose naltrexone might help. I will be starting that soon. Do you have any other suggestions on how to increase energy??!! Thanks for a great video. Miss Monique 🙂🙏🌷💗

Brilliant video - very helpful & informative. Thank you 👏👏👏😊

I ate 4 tins of sardines a day for a week and I now don't have dry eyes any more and my mouth is no longer dry. I eat sardines about 3 x week now to maintain the tears and saliva. What the body needs is Vitamin A. Not beta-carotene. But real, animal based, Vitamin A. And the omega 3s. I also massage the salivary glands and tear ducts. Vitamin D status is also important. Vitamin D is an immune modulator and adequate Vitamin D levels are crucial to control auto-immune conditions. Check your Vitamin D levels! But the sardines, man that was miraculous! Oh, and I was diagnosed about 25 years ago and only just figured this out this year.

Well explained thank you!

I have an extremely itch for two and a half years I have myself so naked up anything I get from the drs. does not help. .The best I have found that gives me some relief is Frankincense Is this itch caused by sjogrens which I have

I was recently diagnosed with Small Fiber Neuropathy. I have SLE Lupus & Sjögren’s (taking plaquinil). I had horrible full body itch (no rash) for years but recent low dose daily steroid and daily Benadryl stopped it 99%. I don’t cry and my throat is always dry. I’m grateful for the meds. Oh, I also take gabapentin and some anti anxiety meds. Also the past few months a multivitamin (low dose ) which stopped my hair from falling out and the Boh’s lines in my nails to grow out. And aerobic exercising about 60 to 90 minutes per day has stopped much of my body pain.

Excellent overview of Sjogren’s along with neuropathies! I have struggled with both just like my mother and grandmother before me. My grandmother had the symptoms of small fiber neuropathy and autonomic neuropathy. My mother did not have autonomic neuropathy and she did better than my grandmother and me. We also have a genetic muscular dystrophy to make things extra complicated.

Imagine my shock when yesterday the rheumatologist's office called to tell my test results looked very good and that I didn't need to come back in. I tested positive for Sjogren's!!! Apparently they've never heard of it.

I cannot get diagnosed. Positive ANA HEP-2 SPECKLING + STAINING, negative SSA + SSB. PAROTID GLAND swelling with chronic dry eyes and minimal saliva. Pain and fatigue is nearly unbearable. Uk Gps have no idea, I will probably end up with a lymphoma as I've already been trying to get diagnosis for 5 years. Lupus, SS suspected, also OA as well as B12 deficiency.

54:07 ...not in your condition ... so sad :(

Diagnosos alone doesnt help. Patients need symptom relief. Is there anything new on treatments?

These symptoms are a worry for me as I have been diagnosed with hemiplegic migraines + meniers and FND a whole mix of labels yet no help yet all my symptoms are what the good Dr here described

Last week, I was after 5 years of chonic pain, been diagnosed with Sjogren, Fibromyalgie, and arthrose.

Türkçe alt yazı lütfen.

Data analysis will be performed Dec 2023 ?

It's lyme disease and co infections

I am not hearing impaired but found the volume on this video low - had to strain to hear. I am not having any problem with other UA-cam videos.

I live in NW FL. WHO OR WHAT KINDA MD DO I NEED TO SEE

Very informative. Thank you.

Thank you !

Just found this channel-I have RA, PsA, and SS though I’m not sure my rheum has officially diagnosed me with SS. I’ve had horrible dry eye and mouth for 10 years and manage to function, but the fatigue is awful. I don’t have the weight loss 😂

Chciałabym słuchać po polsku.

My fatigue is an overwhelming tiredness. Need to immediately lie down. Weakness in legs more prominent but weakness in all muscles.

Very informative!! Thank you !

I’m RA patient now on Methotrexate and long term steroids for autoimmune disease. I found this interesting because I have neuropathy in my legs. Also dry eyes and mouth and sometimes Reynaulds in my fingers and chilblains on my toes but not as bad as it used to be before meds. It does seem to be some overlap RA and SG. and as you say meds don’t always work or have undesirable side effects 🙄so learning to live with unsteadiness and numbing legs is probably best. I found this vid very interesting thankyou for posting. UK

Interesting presentation

The QR code does not work. Can you give an URL instead? I would like to take the survey.

Is there blood test or tests to diagnose Sjogrens ?

Magyarul szeretnem meghallgatni

Thank you, especially for the reflection at the end! With diffuse symptoms without apparent cause, in my case over decades without a diagnosis, you end up leaving a doctor's office feeling like a neurotic hypochondriac.

Wow this is interesting, thank you for sharing.

Is there any treatment or medication for sjogren

I really wanted to watch this video, but really could not hear the speaker and I had the volume all the way up.

I just watched the Webinar from a year ago. There was mention of a booklet coming out last July by Sjogrens Europe on coping with the disease. Does anyone know how to find the booklet?

Ich habe sehr hohe Sjögren- und Rheumatypische Antikörper und fühle mich sehr antriebslos und geschwächt. Da ich aber keine Entzündungswerte im Blut habe, erklären mich die Rheumatologen für gesund 😢.

I don't know if I have Sjogrens yet, but the fatigue is debilitating.

This is so interesting, although I don't understand all of it. When I had my first child 40 yrs ago something changed. Only about ten yrs ago I was diagnosed with Hashimotos Disease, but even with thyroid hormones I've never felt better. I'm wondering if I I now have Sjogrens. I have all these symptoms, but the fatigue is by far the worst. So far my testing is negative.😊

Excellent presentation. Thank you so much Dr Alunno.

Rituximab could work for small fiber neuropathy/dysautonomia aused by Sjogrens? I will probably try asap.

Is there any known correlation with Low Copper/Copper Deficiency and Sjogren's Disease?

A&W sugar free works as well.

The most common topic for lupus or SS patients discussed and desperate for answers and help. I watched to the end, wonderful interview. Not many info out there talking about the topic in this level. Thank you so much ❤

'Promo sm'

thank you

good job

any updates thank you