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I HAVE DEMENTIA - APHASIA FROM THE INSIDE!
United Kingdom
Приєднався 3 лют 2019
I HAVE DEMENTIA DIAGNOSIS - JOHN TAKES US THROUGH HIS JOURNEY WITH DEMENTIA DIAGNOSIS WITH THESE 5 MUST-KNOW MESSAGES.
DEMENTIA, ALZHEIMER’s, FRONTOTEMPORAL, APHASIA, ARE STILL THOSE DISEASES WITH STIGMA ATTACHED TO IT ALL AROUND THE GLOBE, AND REMINDS US THAT SOME DISEASES CLOSE TO US ALL ARE TERRIBLE VACCUUMS OF HOPE FOR SOME.
THESE LITTLE VIDEOS ARE SIMPLY MY OWN THOUGHTS WHICH HAVE BEEN TRIGGERED BY QUESTIONS RAISED IN SOME STUDIES THAT I HAVE BEEN HUMBLED TO BE INVITED TO PARTICIPATE IN.
THEY ARE FREE TO USE ABSOLUTELY ANYWHERE AND IN ANY CONTEXT THAT COULD HELP GET THIS MESSAGE OUT AND INTO THE EARS OF THOSE NEEDING, WANTING AND WILLING TO BE EDUCATED.
IF YOU ARE A STUDENT STUDYING DEMENTIA & MEMORY LOSS ISSUES PLEASE CONTACT ME ANY WAY YOU FEEL SAFE IF YOU NEED ANY EXTRA OR PERSONAL HELP OR ADVICE/INFO ON WHAT DEMENTIA IS LIKE FROM THE INSIDE?
I HAVE DEDICATED MY REMAINING CAPACITY TO YOU GUYS!
ALSO, MR. SLOOP AND HIS ADVENTURES OILS JOHN’s BRAIN!
BLESSINGS,
JOHN POPS HYDE
DEMENTIA, ALZHEIMER’s, FRONTOTEMPORAL, APHASIA, ARE STILL THOSE DISEASES WITH STIGMA ATTACHED TO IT ALL AROUND THE GLOBE, AND REMINDS US THAT SOME DISEASES CLOSE TO US ALL ARE TERRIBLE VACCUUMS OF HOPE FOR SOME.
THESE LITTLE VIDEOS ARE SIMPLY MY OWN THOUGHTS WHICH HAVE BEEN TRIGGERED BY QUESTIONS RAISED IN SOME STUDIES THAT I HAVE BEEN HUMBLED TO BE INVITED TO PARTICIPATE IN.
THEY ARE FREE TO USE ABSOLUTELY ANYWHERE AND IN ANY CONTEXT THAT COULD HELP GET THIS MESSAGE OUT AND INTO THE EARS OF THOSE NEEDING, WANTING AND WILLING TO BE EDUCATED.
IF YOU ARE A STUDENT STUDYING DEMENTIA & MEMORY LOSS ISSUES PLEASE CONTACT ME ANY WAY YOU FEEL SAFE IF YOU NEED ANY EXTRA OR PERSONAL HELP OR ADVICE/INFO ON WHAT DEMENTIA IS LIKE FROM THE INSIDE?
I HAVE DEDICATED MY REMAINING CAPACITY TO YOU GUYS!
ALSO, MR. SLOOP AND HIS ADVENTURES OILS JOHN’s BRAIN!
BLESSINGS,
JOHN POPS HYDE
"I USED TO HAVE DEMENTIA!” (Said no human ever...!) WHY A DIAGNOSIS IS A GOOD THING! ALZ
SHORT CLIP EXPLAINING YOUR BEST OPTION AS EITHER SOMEONE WITH MILD COGNITIVE ISSUES OR YOU KNOW SOMEONE. GET ON THAT DIAGNOSIS ROAD AS SOON AS YOU CAN. IT IS WHAT IT IS, BUT THERE ARE ANGELS OUT THERE WAITING WITH HANDS OPEN READY TO HOLD OURS...
@alzheimerssociety @joindementiaresearch370
@alzheimerssociety @joindementiaresearch370
Переглядів: 22
Відео
WHY JOIN DEMENTIA RESEARCH? John Pops tells us why...
Переглядів 49Місяць тому
WHAT JOINING DEMENTIA RESEARCH MEANS TO ME… IT’S ABOUT GETTING OUR PURPOSE BACK. ‘DEMENTIA’ IS A NEGATIVE WORD... ‘POSITIVE’ ISN'T! SIMPLY BEING A POSITIVE HUMAN, (LIKE TAYLOR SWIFT, or most ‘Swifties’, acording to my granddaughter Ariana), BALANCES THE NEGATIVE AWAY SOMEWHAT AND ‘LIFTS’ YOU BACK UP TO AS NEAR NORMAL AS IS POSSIBLE, EVEN WITH THIS DISEASE, MAKING YOU FEEL WANTED AND VALUED AGAI...
JOHN POPS & ARIANA - LIVED EXPERIENCE WITH LEEDS BECKETT UNIVERSITY.
Переглядів 232 місяці тому
ARIANA AND I WERE ASKED TO MAKE A SHORT VIDEO EXPLAINING THE BENEFITS AND REASONING FOR ME TO HAVE BECOME A LIVED EXPERIENCE ADVISOR FOR @leedsbeckettuni AND THIS IS THE RESULTING SHORT FILM. LOSING YOUR ‘PURPOSE’ FOLLOWING A DIAGNOSIS OF DEMENTIA IS QUITE A CHALLENGING LOSS TO CONTEMPLATE INTO YOUR LIFE. HOWEVER... ENROLLING AND BECOMING A ‘LIVED EXPERIENCE’ ADVISOR HAS GIVEN ME, IN PART ANYWA...
GETTING OUR PURPOSE BACK...
Переглядів 254 місяці тому
WE LOSE OUR PURPOSE - THIS IS WHAT MOST OF US WITH THIS DISEASE FEEL. SOMETIMES FROM THE MOMENT OF DIAGNOSIS DELIVERY! BUT... WE CAN DO THINGS TO CLAIM IT BACK! WATCH JOHN POPS AS HE EXPLAINS HOW HE COPES...
YOU TUBE VIDEO - DEMENTIA - FAST FACTS!
Переглядів 494 місяці тому
FIRST VIDEO - THIS IS A SHORT VIDEO OF 30SECONDS, (AFTER MANY RE-TAKES AND NUMEROUS EDITS), ABOUT DEMENTIA THAT HIGHLIGHTS SOME OF THE INITIAL FACTS YOU DONT KNOW ABOUT THIS DISEASE! TOLD BY JOHN POPS HYDE - JOURNEYING WITH DEMENTIA FRONTOTEMPORAL PPA. - THANKS FOR VEIWING AND PLEASE LEAVE COMMENTS IF SOMETHING DOESNT LOOK RIGHT FACTUALLY?
WHY ALHZEIMERS SOCIETY? JOHN POPS TELLS US...
Переглядів 2816 місяців тому
@alzheimerssociety UPDATED VIDEO - WITH WORDS FOR HARD OF HEARING…SORRY I DIDN’T HAVE THEM IN THE FIRST ONE…! MASSIVE SHOUT OUT AND THANKS TO ARIANA MY GRAND-DAUGHTER FOR HER ADDED TALK-OVER WORDS, AND HELP WITH THE SCREEN WORDING… IT IMPROVED THE PRESENTATION GREATLY.. LOVE TO YOU ARIANA... POPS X What is the Alzheimer’s Society and what does it mean to us, as people who voyage with some type ...
SHORT - ALHZEIMER’S SOCIETY - HOW DOES IT HELP?
Переглядів 486 місяців тому
HOW DOES ALZHEIMER’S SOCIETY GIVE HELP AND HOPE TO SOMEONE LIVING WITH DEMENTIA? THIS SHORT ‘ADVERT’ ANSWERS THIS QUESTION IN A FUN WAY. POPS HAS DEMENTIA - ARIANA DOES NOT. BUT BETWEEN THEM THEY CONVEY HOW ALZHEIMER’S SOCIETY HELPS THE WHOLE FAMILY, BECAUSE ITS A WHOLE FAMILY THAT LIVES WITH THE DISEASE, NOT JUST THE ONE WITH THE DIAGNOSIS! See also MrSloop.com for John Pops’ children story bo...
SO, YOU HAVE A DEMENTIA DIAGNOSIS. WHAT NEXT..??
Переглядів 346 місяців тому
SO, WE GOT OUR DIAGNOSIS.. I know what I’m doing, what are YOU going to do about it? Some people think we can’t even mow the lawn, make a cup of tea or do anything, other than stare blankly at the wall and drool down ourselves. This is the STIGMA and picture see in their minds when they hear the word ‘DEMENTIA’. Well, you COULD just roll up into a ball and wonder why this happened to you, or th...
MR. SLOOP AND THE PLAYGROUND FILM
Переглядів 457 місяців тому
Hi Guys… well here it is, the second Mr. Sloop Story put out there in You-Tube Land! The full text will appear lower down if you wanted to print it or follow along. Following on from being invited to accompany Sally Townsend from Alzheimer’s Society and Bristol Wellbeing on a few visits to Bristol Schools, Westbury Park Primary School, Westbury On Trym C of E Academy and St. Bede’s Catholic Col...
MR. SLOOP AND THE DOLPHINS FILM
Переглядів 2368 місяців тому
www.mrsloop.com JOHN POPS READS THE FIRST WRITTEN ADVENTURE STORY OF MR. SLOOP. MR. SLOOP WANTS TO GO TO BED TO SLEEP BUT MR. SUN REFUSES TO DISSAPEAR OVER THE HORIZON.. SO, MR. SLOOP GOES TO THE DOLPHINS FOR A BIT OF HELP.. Florence... Is John 'Pops' Grandaughter... When she was small, Florence didnt like to go to bed UNLESS her bedroom light was left on.. sometimes all through the night! ...u...
I HAVE DEMENTIA - THE ONE THEY CALL DEMENTIA!
Переглядів 278 місяців тому
FOR ALL THE STUDENTS AT ST. BEDE’S... Many Blessings, John Pops. YOU STEAL AWAY OUR SECRET PLACES ROBBING OUR FAMILIAR FACES PRECIOUS TIMES THAT NOW ARE GONE WITH SILENCE LEFT OUR ONLY SONG… LOITERING IN THE MASK OF MADNESS HIDDEN WHILE YOU ATE OUR SADNESS GREEDY FOR OUR MEMORIES YOU FED YOURSELF FOR CENTURIES. YOUR STEALTH HAS FUDGED OUR VERY NAMES YES, YOU’RE THE ONE WE ALL CAN BLAME. FOR COW...
I HAVE DEMENTIA - POEM From the Little Ones
Переглядів 258 місяців тому
... and here is John’s Poem; When I was small the world was tall and everyone was older. I never saw them face to face except when on Pops’ shoulder. Then one day he got quite old and didn’t make much sense He’d start to tell us something, then leave us in suspense. His words got mixed and muddled up, and sometimes none came out, I didn’t know what I’d done wrong that made him huff and shout. O...
DEMENTIA HAPPENDS TO A FAMILY... NOT ONE PERSON!
Переглядів 339 місяців тому
As John continues to visit schools with Sally Townsend from Bristol Wellbeing and Alhzeimers Society, he was asked to refresh our thinking as to why we do this... Here is the entire transcription and a poem he made for this project; EVERY FAMILY STARTS WITH A CHILD! DEMENTIA HAPPENS TO A FAMILY, NOT JUST ONE PERSON! I like to think myself as a fierce advocate of educating people about dementia,...
I HAVE DEMENTIA - ATTITUDE IS LIFE! JOHN POPS THROWS THIS INTO YOUR DAY! Alzheimer's PPA APHASIA ETC
Переглядів 6211 місяців тому
Dementia is caused by diseases of the brain... Getting through it is caused by your ATTITUDE!!! THIS SHORT VIDEO REFLECTS ON SOMETHING THAT REALLY HELPS ME GET THROUGH THE DAYS... ...MY ATTITUDE TOWARDS MYSELF AND ALL ITS ‘ATTACHMENTS’... (Dementia, Spinal issues, Baldness etc..). SO, AS IN THE WORDS OF ABRAHAM LINCOLN; "EVERYONE IS AS HAPPY AS THEY MAKE UP THEIR MIND TO BE...” Have a nice day,...
I HAVE DEMENTIA - PART5 - THERE IS MORE TO THE PERSON THAN DEMENTIA - Alzheimer’s PPA Disease causes
Переглядів 70Рік тому
I have dementia, but I still have a life, given to me to use whichever way I choose. The first part of that life was spent in pursuance of things that pleased me, and I could do. Driving cars, jumping of piers and things, climbing mountains and writing poetry and children’s stories. I built gardens, laid patios and planted more trees and flowers than stars in the sky. But that all fades into no...
I HAVE DEMENTIA - PART4 - IT IS POSSIBLE TO LIVE WELL WITH DEMENTIA - Alzheimer’s PPA Disease causes
Переглядів 27Рік тому
I HAVE DEMENTIA - PART4 - IT IS POSSIBLE TO LIVE WELL WITH DEMENTIA - Alzheimer’s PPA Disease causes
I HAVE DEMENTIA - PART3 - DEMENTIA IS NOT JUST ABOUT LOSING MY MEMORY - Alzheimer’s PPA causes Etc.
Переглядів 16Рік тому
I HAVE DEMENTIA - PART3 - DEMENTIA IS NOT JUST ABOUT LOSING MY MEMORY - Alzheimer’s PPA causes Etc.
I HAVE DEMENTIA - PART2 - DEMENTIA CAUSED BY DISEASES OF THE BRAIN - Alzheimer’s PPA Disease causes
Переглядів 41Рік тому
I HAVE DEMENTIA - PART2 - DEMENTIA CAUSED BY DISEASES OF THE BRAIN - Alzheimer’s PPA Disease causes
I HAVE DEMENTIA - PART1 - DEMENTIA IS NOT A NATURAL PART OF AGEING - Alzheimer’s, PPA causes Etc.
Переглядів 37Рік тому
I HAVE DEMENTIA - PART1 - DEMENTIA IS NOT A NATURAL PART OF AGEING - Alzheimer’s, PPA causes Etc.
I HAVE DEMENTIA - DEMENTIA? ITS LIKE DRIVING A BUS, RIGHT? Alzheimer’s PPA APHASIA
Переглядів 11Рік тому
I HAVE DEMENTIA - DEMENTIA? ITS LIKE DRIVING A BUS, RIGHT? Alzheimer’s PPA APHASIA
I HAVE DEMENTIA - Inclusive Research Practice Video.. 14mins. RE Alzheimer’s PPA Disease causes etc.
Переглядів 9Рік тому
I HAVE DEMENTIA - Inclusive Research Practice Video.. 14mins. RE Alzheimer’s PPA Disease causes etc.
I HAVE DEMENTIA - WHY SHOULD CHILDREN BE EDUCATED ABOUT DEMENTIA…? Alzheimer’s Disease PPA causes
Переглядів 82Рік тому
I HAVE DEMENTIA - WHY SHOULD CHILDREN BE EDUCATED ABOUT DEMENTIA…? Alzheimer’s Disease PPA causes
I HAVE DEMENTIA - The Impact of educating children about dementia - Alzheimer’s PPA STIGMA AWARE.
Переглядів 15Рік тому
I HAVE DEMENTIA - The Impact of educating children about dementia - Alzheimer’s PPA STIGMA AWARE.
I HAVE DEMENTIA - JOHN HYDE LIVING WITH DEMENTIA RE; Alzheimer’s Disease PPA causes etc.
Переглядів 1752 роки тому
I HAVE DEMENTIA - JOHN HYDE LIVING WITH DEMENTIA RE; Alzheimer’s Disease PPA causes etc.
Thank you Lesley… I feel blessed I still have capacity to be able to do this at the moment! I love taking dementia into the schools as well.. this brings me fantastic worth and validation that I am still part of society. Manyvthanks for taking the time to mention with your kind words.. blessings, john
This is SO great John, great advice, thanks for sharing.
😔 Promo'SM
Hi Hermann, I’m very sorry but i do not understand what your comment means? Blessings, John
Just a wee message to say what a fantastic, honest video. I’m a student nurse and watched this as a recommended link and it was a really insightful video and hope I can take your feelings about dementia town with me on my new career and bear them in mind when dealing with anyone with dementia in the future.
Hi Lynn, very many thanks for these kind words. Journeying with Mr. Dementia as my co-driver is a little like this sometimes. One day Dementia and I will swap seats and i will become the passenger being chaufered through the final part of my life, sat there experiencing life’s things go past my window, but not having much input to the direction of travel? Blessings for all you do in the future and I thank you for taking this time to comment. Whatever you experience on your own journey, never give up! John.