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National Scleroderma Foundation PNW Chapter
United States
Приєднався 31 тра 2020
This is the official UA-cam channel for the National Scleroderma Foundation Pacific Northwest Chapter!
We know that no two journeys are the same. That's why we're here to help you find your best path.
Serving Oregon, Washington, Idaho, and Alaska.
We know that no two journeys are the same. That's why we're here to help you find your best path.
Serving Oregon, Washington, Idaho, and Alaska.
Every Journey Matters: Pam Christiansen
In this video, we hear from Pam Christiansen about her journey with scleroderma. #everyjourneymatters #scleroderma
Переглядів: 99
Відео
2023 Scleroderma - CAR-T cell & New Therapies: What the Heck is a CAR-T? Dr. Mark Wener
Переглядів 6309 місяців тому
Dr. Mark Wener of the University of Washington discusses CAR-T cells and the potential for future treatments in scleroderma. Presented by the National Scleroderma Foundation Pacific Northwest Chapter. November 18, 2023
2023 Mitochondrial Calcification as a Novel Mechanism in Calcinosis Pathogenesis- Dr. Christian Lood
Переглядів 2959 місяців тому
Dr. Christian Lood of the University of Washington discusses the pathogenesis of calcinosis in scleroderma. Presented by the National Scleroderma Foundation Pacific Northwest Chapter. November 18, 2023
2022 CBD & THC - Are They Right for Me? (Oregon Edition) - Dr. JoAnna Harper
Переглядів 1702 роки тому
Dr. JoAnna Harper discusses cannabis, CBD, and THC as relating to scleroderma. Q&A session has been removed due to the sensitive nature of the topic. National Scleroderma Foundation Oregon Chapter 21st Annual Cheri Woo Scleroderma Education Seminar May 14, 2022
2022 Mental Wellness and Scleroderma - Dr. Ginny Maril
Переглядів 432 роки тому
Dr. Ginny Maril discusses staying mentally well with scleroderma or other chronic illness. National Scleroderma Foundation Oregon Chapter 21st Annual Cheri Woo Scleroderma Education Seminar May 14, 2022
2022 Scleroderma and the Lungs - Dr. Daniel Seifer and Dr. Jeffrey Robinson
Переглядів 1952 роки тому
Dr. Daniel Seifer and Dr. Jeffrey Robinson discuss interstitial lung disease and pulmonary hypertension in systemic scleroderma. National Scleroderma Foundation Oregon Chapter 21st Annual Cheri Woo Scleroderma Education Seminar May 14, 2022
2022 Cheri Woo Opening Announcements
Переглядів 302 роки тому
Opening announcements for the National Scleroderma Foundation Oregon Chapter's 21st Annual Cheri Woo Scleroderma Education Seminar. May 14, 2022
2021 Stepping Out to Cure Scleroderma - Printable finish medal
Переглядів 113 роки тому
Print out and assemble this medal to show you've participated this year's Stepping Out to Cure Scleroderma! It's a fun and quick craft project. Find the medal and register at: www.scleroderma/org/steppingoutoregon
2021 Stepping Out to Cure Scleroderma - Printable race bibs
Переглядів 303 роки тому
Print a race bib, decorate it, and attach it to your shirt or carry with you when you Step Out to Cure Scleroderma! Register and print the bib at www.scleroderma.org/steppingoutoregon
2021 Elaine Furst, R.N. - Sexuality in Scleroderma
Переглядів 1683 роки тому
20th Annual Cheri Woo Scleroderma Education Seminar March 13, 2021 Elaine Furst, R.N., B.S.N., M.A. speaks on the topic of: Sexuality in Scleroderma. www.scleroderma.org/oregon
2021 Dr. Daniel Furst - Changes in Scleroderma Treatment: Then (2000) to Now (2020-2021)
Переглядів 5013 роки тому
20th Annual Cheri Woo Scleroderma Education Seminar March 13, 2021 Dr. Daniel E. Furst speaks on the topic of: Changes in Treatment: Then (2000) to Now (2020-2021) www.scleroderma.org/oregon
2021 Dr. Christina Zampitella - Disenfranchised Grief
Переглядів 1903 роки тому
20th Annual Cheri Woo Scleroderma Education Seminar March 13, 2021 Dr. Christina Zampitella speaks on the topic of: Disenfranchised Grief. www.scleroderma.org/oregon
2021 Dr. Tracy Frech - Systemic Sclerosis Digestive Issues
Переглядів 5583 роки тому
20th Annual Cheri Woo Scleroderma Education Seminar March 13, 2021 Dr. Tracy Frech speaks on the topic of: Systemic Sclerosis Digestive Issues. www.scleroderma.org/oregon
2021 Opening Announcements - Cheri Woo Scleroderma Education Seminar
Переглядів 503 роки тому
Missed the beginning of our annual Cheri Woo Scleroderma Education Seminar? Oregon Chapter President Christina Fidalgo opens the event with some important information and a very special announcement from the board of directors.
20th Anniversary Cheri Woo Tribute
Переглядів 413 роки тому
This year marked the 20th Anniversary of the Scleroderma Foundation Oregon Chapter's annual Cheri Woo Scleroderma Education Seminar! But... who is Cheri Woo? Why is our event named after her? Former Oregon Chapter president and current board member Liz Orem-Bedel shares memories of Cheri, as we learn more about the wonderful woman who is the namesake of our patient education event. Music from B...
2020 Oregon Stepping Out to Cure Scleroderma Virtual Walk
Переглядів 574 роки тому
2020 Oregon Stepping Out to Cure Scleroderma Virtual Walk
Ojalá sea pronto disponible y que no sea excesivamente cara. Sea aplicable para Scleroderma diffuse, Limited, etc y todas. 🙏🏽🙏🏽
Shared to multiple Facebook groups.
Shared to multiple Facebook groups.
Anyone here with systemic scleroderma that has tried any THC CBD oils with any improvement especially for the ones with bad intersticial lung disease? If so which brands could you recommend ?
Do you know there are root and herbs which can eliminate Autoimmune, Scleroderma and Lupus Symptoms slowly in 2 weeks Roots and plants like; Anise , aralia,basil chamomile with little seamoss and a lot others my dear, this my herbs cure are without no side effects at all. I came on UA-cam seeing others making comments in herbs and Dr Steven. Really his herbs are effective and natural 100%, I got it delivered to me and took it warm for 2 weeks , 2 times daily. The Symptoms slowly went away and a week after I got a negative results for both incurable diseases. Herbs is really good way of approaching a definite cure meet him here for more herbs Information ( orderherbs.steven@gmail.com )
Do you know there are root and herbs which can eliminate Autoimmune, Scleroderma and Lupus Symptoms slowly in 2 weeks Roots and plants like; Anise , aralia,basil chamomile with little seamoss and a lot others my dear, this my herbs cure are without no side effects at all. I came on UA-cam seeing others making comments in herbs and Dr Steven. Really his herbs are effective and natural 100%, I got it delivered to me and took it warm for 2 weeks , 2 times daily. The Symptoms slowly went away and a week after I got a negative results for both incurable diseases. Herbs is really good way of approaching a definite cure meet him here for more herbs Information ( orderherbs.steven@gmail.com )