Відео

❤🎉

❤

•

ua-cam.com/video/W_h2qXjIpE8/v-deo.html

ua-cam.com/video/W_h2qXjIpE8/v-deo.html

DMD treatment

'Promosm' 💦

Please invent new medicines to cure DMD ducenne muscular Dystrophy

When you invent new medicine to cure the DMD god help us

Please DMD ducenne muscular Dystrophy cure medicine invented as early as possible god save our child

When will get New medicine to cure DMD ducenne muscular Dystrophy God please help us

X-men, here we come lol

Curable or not curable DMD ducenne muscular dystrophy tell us

Jack Willis?

OK

Fair play to you man

You know what as a player, not keen. As a man, top 👌

shiv was in my high school and his formwas in 7HEB. sadly, shiv has now passed away in may. Rest in peace.

Excellent 🥰

❤

❤❤

Me India se hu

My son's DMD patient 😢😢 please help me

Since the honeymoon stops at age 7 moreless, I wonder how it is related to the fact that corticosteroids damage the membrane. SO that becomes the overarching process that endls this period of progress. Since Vamorolone stabilizes the membrane, it seems fair to wonder of from age 7-10 years Vamorolone will distance itself and may continues the honeymoon period. I don't think much data is available yet (?) Also: since weight gain is a thing in kids with duchenne, predn and emflaza makes things a lot worse. SO weaker muscles, more weight, more damage etc. I wonder how the diminshed chance of weight gain affects the outcome with Vamorolone.

#mrbeast helps #people he is the best #youtuber

pewdiepie has connections with MrBeast

#pewdiepie

#EndDuchenne

❤

Happy birthday Pixie Lott Love from Australia

Has this girl ever aged ?

Our son won't be using steroid treatment but there was only emergency information related to those on steroids. Could you please point to emergency treatment without steroids

Thank you! AND KEEP IT GOING MATE. Not many people have heard of DMD and My son Anthony has it, he'll be 7 in 2weeks. My mission is to get it out there too, To make people aware of this illness,as it's quite rare, life really is a race against time for these boys, its shocking how fast this life limiting illness takes ahold of these boys, And the most shocking thing is, that there is no cure!! We are Mighty Red Fans, and i got Anthony's logo printed on a top: ANTHONY'S FEARLESS MINI MO'S DMD CLUB. unfortunately It's very hard to get a ticket to our games, But I have managed to go to a few LFC Foundation legends matches, and waved Anthony's top around like a lunatic! I hope to get as many people as I can to notice it and ask what it is, And a few people have! But we need to raise awareness of DMD a lot quicker, to enable funding for research into a cure. I'm even willing (Planning) to sit smackbang in the middle of Goodison, in between all the blue fans, Proudly wearing Anthony's red top!! I'm quite looking forward to doing that actually 🤭. Joking aside when it comes to it, Liverpool red an blue will stand together!! So in the near future, I'm going to sew half a red an half a blue top together, and get my fearless son's logo printed on the back, hoping that one day I can start a charity up for these boys . . . . To Walk on. . . . We are so lucky, and I'm so thankful too,to Anthony's specialists Dr Madhu and Alison Brown,(mostly for putting up with me!!) and the rest of the neuromuscular team at Alder hey hospital, already they have gone above and beyond their job rolls in supporting us not just Anthony, i really don't know what I would of done without them,these past few years have been though, having to adjust and take everything inn,even harder to do alon. I really don't know how they do it, heartbreaking tough job! It's really comforting and helpful for me, knowing that these people "will be there from now until the end" no matter what. AND "They will make sure Anthony goes through his life, as smoothley and painlessly ,as they possibly can". And I think, Dr Madhu is Absolutely Amazing! And that's just talking about me. He's the only person I've ever come across who can stop me talking within seconds!! AND You've got to be good to do that! LOL

First time I met someone with Duchenne was nearly 3 years ago, this boy at one point told me he didn't want to live anymore because of his condition; I had such a huge bond with him and it was the first time he said something, where I didn't have an answer, I really didn't know what to say, I remember saying to him I'm going to give him some privacy because if I stayed in the room I'd have cried. I spoke afterwards with him, once I'd thought about his comments; and he had CAHMS involved. He used to be able to run, like Alex in this video, now he's in an electric wheelchair, loosing the ability to use his arms, and contemplating a breathing machine for overnight due to lowering breathing quality when asleep. He's so much stronger than me, I know I couldn't walk in his shoes, not for one minute. He beat his issues around wanting to die and never mentioned it again. He's in adult care now, I miss everything about him; I wouldn't wish Duchenne on anyone. I pray one day they find some sort of cure or ability to reverse damage done to all Exon deletions.

ᑭᖇOᗰOᔕᗰ 👍

Hi pixie Lott I am coming to see you on Saturday woooooh bye

Happy marry Christmas and happy December ma love😍

She is very kind ♡♡ LET'S help guys!!

Absolute class act! What an amazing group!

PIXIE LOTTTT

Repeat date successfully gym therapy

My nephew has dmd, plz share any new info

Have the trials ended?

Where in India may get muscular dystrophy patient treatment sir

Best wishes for gene therapy innovation

এই রোগ কি চিকিৎসাতে সুস্থ হয়?

Thank you joined from India mam

I also strong age 23 para shooter in shooting sport where we need lot of strength in hand. With duchene muscular dystrophy. This is extra ordinary. When my age 13 i suffer thigh bone fracture And now compete in shooting in standing position Please anyone raise my voice

I am para shooter in shooting sport in india, with dmd, bmd. I doing something extra ordinary. Can anyone help me

I am para shooter with duchene muscular dystrophy. Any one hearing me. Please help I want this gene therapy at any cost😔