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April’s health & more
Приєднався 8 лют 2018
Come join me for therapy, fun, laughs, outtakes on real my health and living with CIDP by me! Ever since my life took a 180* on me, We’re going to talk about all different topics facing people with limitations, and how I want to share my journey with you by what things I’ve done as a real person struggling with life’s daily activities.
Update video on how I’m doing. Struggling says it best but I will become human again. 
Update video on how I’m doing. Struggling says it best but I will become human again. 
Переглядів: 222
Відео
IVIG hospital admit
Переглядів 281Рік тому
Here’s just a short video, trying to keep everyone updated, I have been quite ill for the last 5 to 6 months and got too sick and had to be admitted 
Seizures, IVIG infusions hospital stay
Переглядів 2972 роки тому
Come tour my room with me ! My continued journey of my health, seizures, CIDP & health update
Seizures with CIDP
Переглядів 5393 роки тому
Diagnosed !!! Hair loss, weakness non epileptic seizures ( myoclonic) follow me on my journey in search of healing ! Subscribe, comment & share watch my other videos for more insight
Hear me out CIDP myoclonic seizure
Переглядів 2223 роки тому
Come along and hear me talk about my journey with having CIDP and fighting for help, therapy and healing.
Oh no my toes
Переглядів 4423 роки тому
Not sure what’s happening here but I woke up this morning and on my right foot it felt different and so when I moved my toes on my left foot the toes go like an accordion ,but my right foot toes will not. I can’t even get them to move the way I want them to move! Watch the video totally interesting maybe you guys can answer it for me of why this happens
Seizure (non epileptic)while taping
Переглядів 2 тис.3 роки тому
I’m ugly crying, raw material! My myoclonus jerking & seizures once again came out
Why would they randomly record at someone cooking🤔💀
omg I have that stove!! hopefully u feel better!!
Had my first today. Glad I could come here. Somewhat similar to mine.
Thank you for recording. newly diagnosed with epilepsy this year after 3 years of stroke. I'm paralyzed on right side of my body and I have Aphasia. Thank you ❤
Fake stop doing this for content
Fake for views
I have epilepsy and my parents told me that your brain is still set on what you’re doing before actually having a seizure. They recorded me which was really embarrassing (for me at least I mean I don’t want to see what I don’t want to have) and I did the same thing before they called my name, I wasn’t answering, I paused they pulled me away and they lied me on my side when I had a seizure for 1 minute I didn’t know who my parents were before saying it. At least thats what I saw on the video. When I seize, Im *gone* . I don’t know what happened it’s a full blackout for me. But my brain is still functioning/seizing.
correct me if I'm wrong, but shouldn't you be there to help in case she falls instead of just filming? again I might be wrong
As a person who suffers with myoclonic seizures, i can honestly say... It really sucks to have and its VERY painful when you're having them... I really hope you get treatment for your seizures 🫶
I got a question?? Why don't you have a service dog?? If you don't please get one for your and our sake
Ok what you call twitching a seizure if you have a seizure you dont move until you fall over then begin shaking violently ypu must get someone to punch you in your stomach to help you breathe to soothe the seizure and live life
I take baclofen twice a day and it helps my spasms so much. Methocarbamol has been really helpful in the past as well. I'm on ivig as well. I hope you're doing better!
Prayers
I’m so sorry
My dad had just experienced this last month, we were both at my school just going to an open house meeting to see my teachers. We started walking to one of my classrooms but we couldn’t find it. We went to the janitor to see if she could lead us there. That’s when the seizure began, he was about to ask and then he froze, couldn’t speak, couldn’t hear, and couldn’t move. It scared me to death and the janitor thought he was having a heart attack. Luckily he seems to be doing a lot better now that he is on meds.
I had a seizure and then i stood up and i was slowly moving like an unflexible robot AND i was using all my strength to stop myself from hurting myself when i was alone then my hero lil bro named ryan came and helped and now i know how it feels your unconscious for a short amount of time and vibrating and you will see no dreams your just in a void seeing nothing not even yourself and after a minute or 30 seconds you will wake up but still suffer from it so you can control yourself and attempt to protect yourself and stop the seizure from controlling you if your dumb enough to just do your own thing while suffering the seizure will hurt you more and make your body lose more control so seek help and fight of the seizure if you regain concicness and also when i had concicness but woke up then i tried walking up my big bro and my big bro said stop being drunk and then walked away and my lil bro saw me when he went to the kitchen for food and helped me
I'm having these since childhood and i was normalising it until i see ur video. Btw tc
Blessings for complete healing in Jesus Name
Sending u Health Prayers 🙏💚💚🙏
Porygon
I experienced my younger uncle having a seizure. While he was showing me his Ninja Turtles toys. I originally thought it was a joke (I was 7-8) and he was just laying on his chair eyes closed completely shut down for 2 minutes. I started to cry then went to my mum and nanny and showed them. After maybe 5 minutes an ambulance came and saved my uncle. It was a horrible day
Waking up from a seizure is so scary and confusing. Especially if you’re alone.
Instead of sitting there recording help her
why do you record instead of helping
Wait how did u know that she was gonna get a seizure and why ru already recording her
0:00
I go through the same thing
So sad
Dang so
My grandma had these when I was younger and I wish I had known what it was back then. Her cancer was too far along by the time they found it. Thank you for sharing your vulnerable experience to help educate people. Knowledge saves lives. ❤
Wait a minute this happens to me too. I noticed things have changed a little since I don't fall to ground and shake up. My head tilted up and down like this too.
It was probably because I saw her head snap into place while she was looking down, and that probably made her kind of dizzy. Also, I heard a pop sound exactly when her head snapped into place. All of this is just my evidence
"Im not acting at all and dont mind the cameraman"
*spastica subhumanous*
That is do hard to watch i hope your doing OK❤
as a person with epilepsy i have these as well mine start off as a staring seizure then i get up and roam around and i got lost in a airport once because of it. i also have jerking seizures in my sleep and i had one so bad once that my foot knocked a hole in the wall
Seizure disorder is a challenge
I googled porygon and saw the seizure episode. Crazy she’s wearing the same colors
Why didn’t the person filming try to make sure she didn’t fall
The fidgeting at the beginning stages of a myoclonic seizure kinda seem like the brain running a few automatic settings before freezing up and needing a hard reboot
that looks fake ngl
This is fake u can tell
I suffer from my seizures
Oh wow she shouldn't be standing long then thats dangerous
my mom has seizures bc she had me it is her 2 year mark of not haveing a sizures and i like to call this one a clening sizures
Wait i thought she was cooking-
Why are they filming?
Jesus Christ. I was waiting for a dog seizure. That is what a searched for.
Kitchens and bathrooms for me are the most dangerous when I have seizures, one time I cut my legs up with razors as I fitted and a had disposable razors in the bathtub … Yeahh
I hope you get better
IHave these everyday I hate it 😢