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James Parkin - living life, DMD style!!
United Kingdom
Приєднався 30 жов 2021
Hi my name is James Parkin, i am 31 years old and i have Duchenne Muscular Dystrophy (DMD)
Duchenne Muscular Dystrophy is a muscle wasting condition, so over a period of time my muscles weaken over time. It is 100% fatal with no cure. The average life expectancy is about mid 20's.
I started walking late. I was always last in the egg and spoon race at school. I lost the ability to walk aged 10. Couldn't stand a bit later. Was introduced to a ventilator at 15 and two years later was wearing it all night every night. When I was 18 I lost Thomas. My brother. He was 16 and had exactly the same disability.
however i want to show people that it is possible to live the same life as anyone else. i like to go out and do things and make the most of life. so i will be posting as much content as i can. if it helps people it will be well worth it
Duchenne Muscular Dystrophy is a muscle wasting condition, so over a period of time my muscles weaken over time. It is 100% fatal with no cure. The average life expectancy is about mid 20's.
I started walking late. I was always last in the egg and spoon race at school. I lost the ability to walk aged 10. Couldn't stand a bit later. Was introduced to a ventilator at 15 and two years later was wearing it all night every night. When I was 18 I lost Thomas. My brother. He was 16 and had exactly the same disability.
however i want to show people that it is possible to live the same life as anyone else. i like to go out and do things and make the most of life. so i will be posting as much content as i can. if it helps people it will be well worth it
Halfway through my MARATHON CHALLENGE!! A Big THANKYOU to everyone that's DONATED so far!!
in this video i talk about how my marathon challenge (to raise money for @ANDYSMANCLUB and @pathfindersalliance) is going and i tell you how much money ive raised as well!!
The links for my just giving pages are below if you want to donate!!
www.justgiving.com/page/james-parkin-andysmanclub?Fjames-parkin-andysmanclub&Link&
www.justgiving.com/crowdfunding/james-parkin?MNNGy8
The links for my just giving pages are below if you want to donate!!
www.justgiving.com/page/james-parkin-andysmanclub?Fjames-parkin-andysmanclub&Link&
www.justgiving.com/crowdfunding/james-parkin?MNNGy8
Переглядів: 58
Відео
I Started My November Marathon Challenge.....ON BLACKPOOL SEAFRONT!!
Переглядів 7114 днів тому
In this video i started my challenge to drive a marathon distance (26.3 miles) during November. to raise money for @ANDYSMANCLUB and @pathfindersalliance This is a major challenge because my hands tend to stop working when they get cold, so driving can be difficult. i start from the iconic Blackpool seafront. links to my 2 JustGiving pages are below if you want to donate. it would be great if y...
I WENT UP BLACKPOOL TOWER and then Down the TOWER DUNGEONS!!
Переглядів 8914 днів тому
In this video i went to Blackpool Tower, i talk about its history, my history of the tower and show you the view from the top. i also talk about the @theblackpooltowerdungeon-hr1tzBlackpool Tower Dungeons and my experience there. it was good fun!!
Went to this AMAZING Place for a few days!! BRICKHOUSE FARM (near Blackpool)
Переглядів 13221 день тому
in this video i talk about where i stayed on my recent holidays, Brickhouse Farm. i give a tour of the accommodation, and show you the hydrotherapy pool they have on site. I also show you how great the environment is at Brickhouse Farm!! brickhousecottages.co.uk/
I MADE A HALLOWEEN FILM: THE CURSE OF THE WHEELCHAIR!!
Переглядів 15228 днів тому
This is a short film about a man who gets struck with a unidentified curse and has to rely on an unlikely source to break the curse!! This is my first attempt at a fictional film so hope you like it!! happy Halloween everyone!!
I've Challenged myself to drive a marathon distance (during November)
Переглядів 67Місяць тому
I've Challenged myself to drive a marathon distance (during November) to raise some money for 2 important causes @ANDYSMANCLUB and @pathfindersalliance Both of these organizations are very important to me and they both do very good work. in this video i explain what they both do! i also explain how the challenge is going to work!! ive set up two just giving pages up to try and raise some money!...
I HAVE A NEW HEADREST FOR MY WHEELCHAIR!! Hopefully it'll improve my posture!!
Переглядів 105Місяць тому
in this video i talk about the new headrest that got fitted to my wheelchair a few days agp. the aim is to improve my posture by supporting my head a bit more!! Its taking some getting used to!
I WROTE MY FIRST EVER POEM!! 'A Cup Of Tea (A Taste Sensation)
Переглядів 155Місяць тому
In this video i talk about poetry and how im going to have a go at writing some poetry!! Ive wrote my first poem and i read it in this video!! i hope you like it!!
My Football Match Routine!! LEEDS Vs COVENTRY!!
Переглядів 457Місяць тому
In this video i show you what the typical routine is when I go to the football!! @LeedsUnited are playing @CoventryCityFC, so it was a perfect opportunity to show you the routine. ive been doing this regularly since 2013!!
Struggling with something that i call "Video Block" (Writers Block)!!
Переглядів 792 місяці тому
in this video i explain why i haven't made any videos for a while, im struggling for ideas, like Writers block but with videos. AKA What I call Video Block. So i did this video basically to ask if anyone has any suggestions or ideas on what i should do next!!
All About The Paralympics And Why Its So Great!!
Переглядів 672 місяці тому
In this video i talk about the @paralympics and explain how great it is and how great it is to see disability sport on mainstream television on @Channel4. i also give ideas on how it could be even better!!
OASIS ARE BACK TOGETHER!! So to celebrate i decided to cover/mime to "WONDERWALL"
Переглядів 983 місяці тому
In this video to celebrate the fact that @oasisinetofficial have got back together. i decided to do my own version of Wonderwall. i can't sing well so i mimed instead. i looked the part with the glasses and bucket hat!! THIS IS THE BIGGEST THING TO HAPPEN TO MUSIC FOR YEARS!!
I Went To The GREAT BRITISH FOOD FESTIVAL!! So Much Food To Choose From!!
Переглядів 1053 місяці тому
in this video i went to the GREAT BRITISH FOOD FESTIVAL!! Which was at @OfficialWentworthWoodhouse. There was lots of different food stalls a food vendors, so much choice!! there was other things such as a challenge stage and cooking demos etc. so here's what i got up to!!
I Baked Some Chocolate Chip Cookies (to bring to Andy's Man Club)
Переглядів 1193 місяці тому
in this video i decided to bake some chocolate chip cookies, i baked them to bring to my local @ANDYSMANCLUB session which is on a Monday night!! www.bbcgoodfood.com/recipes/vintage-chocolate-chip-cookies andysmanclub.co.uk/
I BOUGHT THE NEW LEEDS AWAY KIT!! The Best Kit Leeds Have Had In Years!!
Переглядів 1873 місяці тому
I BOUGHT THE NEW LEEDS AWAY KIT!! The Best Kit Leeds Have Had In Years!!
I'VE PASSED THE 1000 SUBSCRIBER MILESTONE!! A Great Achievement, Thankyou For Your Support!!
Переглядів 953 місяці тому
I'VE PASSED THE 1000 SUBSCRIBER MILESTONE!! A Great Achievement, Thankyou For Your Support!!
Ferry Across The Mersey!!.....ON MY BIRTHDAY!!
Переглядів 1474 місяці тому
Ferry Across The Mersey!!.....ON MY BIRTHDAY!!
I Went Down Into THE CAVERN CLUB And Up To ST JOHN'S BEACON!!
Переглядів 904 місяці тому
I Went Down Into THE CAVERN CLUB And Up To ST JOHN'S BEACON!!
I Stopped in a hotel room THAT HAS A CEILING TRACK HOIST!!
Переглядів 2754 місяці тому
I Stopped in a hotel room THAT HAS A CEILING TRACK HOIST!!
i went to ANGLERS COUNTRY PARK!! it has a CHANGING PLACES!!
Переглядів 1285 місяців тому
i went to ANGLERS COUNTRY PARK!! it has a CHANGING PLACES!!
Examples Of Muscular Dystrophy In Animals!!
Переглядів 1255 місяців тому
Examples Of Muscular Dystrophy In Animals!!
Return To CANNON HALL FARM!! A Great Place To Visit!!
Переглядів 4775 місяців тому
Return To CANNON HALL FARM!! A Great Place To Visit!!
I WENT TO WEMBLEY TO WATCH LEEDS IN THE PLAY-OFF FINAL!!
Переглядів 2336 місяців тому
I WENT TO WEMBLEY TO WATCH LEEDS IN THE PLAY-OFF FINAL!!
ALL ABOUT CARBOCISTINE!! The Drug That Enabled Me To Enjoy Food Again!!
Переглядів 786 місяців тому
ALL ABOUT CARBOCISTINE!! The Drug That Enabled Me To Enjoy Food Again!!
I Went to PIEMINSTER in Sheffield!! As a Pie lover, i recommend this place!!
Переглядів 1186 місяців тому
I Went to PIEMINSTER in Sheffield!! As a Pie lover, i recommend this place!!
I Went to London for the day!! ON THE TRAIN!!
Переглядів 1246 місяців тому
I Went to London for the day!! ON THE TRAIN!!
THINGS I HAVE PLANNED THIS SUMMER!! I Can Do More Things When Its Warmer!!
Переглядів 1186 місяців тому
THINGS I HAVE PLANNED THIS SUMMER!! I Can Do More Things When Its Warmer!!
How I keep "STAYIN ALIVE" A unique way to show what helps me live my life
Переглядів 1247 місяців тому
How I keep "STAYIN ALIVE" A unique way to show what helps me live my life
❤
You were possessed! I was possessed? Oh dear! Had me in kinks
Well done James! Keep up the good work! So proud of you xx😊
You definitely deserved the hot tub after that
How did you get in and out of the pool please?
There was a ceiling track hoist through to the changing rooms and changing bed
That's my cousin ☺️ I didn't realise he had a yt channel
😱😱SCARY 👻 🎃
this was really fun to watch
Share some of your struggles & victories. Do you take your chair out shopping or out into the public? Document some of your adventures, get a cam attached to your chair and educate the public about what it's like living in a chair with MD
The headrest on my power chair is useless, it keeps on a dropping down anytime I hit a bump or lean my head against it too much.
Spoooooky! That was great James!
Don't worry Dino. Your brother realised your dreams.
What kind of powerchair you getting?
Love it James! And totally agree with you, you can’t beat a good cup of tea. Look forward to hearing more poetry from you 😊
Great stuff. Beautiful poem, and beautifully read. Thank you James.⭐📚⭐
Love your poem, you're so talented. Good job!
Wow! Nice one James!
Bang on James mate, awesome 😎
Nice poem
Love it! Well done James
ALAW ❤
This was good to know. Do you do any mental prep before heading out? Is it mainly a positive experience?
Thanks for sharing, James. I'm glad - if a little jealous - that you got to see such a great match in person!
Great vlog mate, let’s hope for another win tonight. #mot
I'll be in Sheffield next year for the snooker. So I hope I'll get to this place.
Top 10 fav Leeds players ever!
Frustrated for you James, thanks for asking for ideas. Interested in how you go about dealing with public services for identifying needs/replacements - could be equipment or your medicines. Maybe a couple of stories where things have gone wrong - e.g. hoist breakdown/WAV issues, and how you change things to avoid happening again. Likes and Dislikes about things in your local areas. Discussing any local facilities/communities that you get to join in with. Typical match day for you when at Leeds and how you have to prepare, what you do on the day Looking at calendar and things that you look forward to and why / or why not - Halloween/Bonfire night/Christmas Places that you would like to go to and why What a typical overnight routine looks like - are you able to sleep right through or do you need support to routinely move and what works best for you Joint call or interview with another UA-camr Good luck compiling !
Ten lists do well on youtube, top 10 things you shouldn't say to a disabled person and why, maybe? top 10 places you like to go? If that's not your style, maybe a challenge of some sort, document doing something difficult, set yourself a task you're not sure you can do
Music stuff with James
Is love to see a video of: Tips with equipment Who is your carer and how they get on What are your favourite movies and games Winter is coming how do you keep warm
Cheers mate 👍
were you on enalapril before?
👏👏
This is one of the weirdest videos I think I’ve ever watched😂I loved it! Next is head & shoulders shampoo! 🧴
head and shoulders or even a fragrance advert 😂😂😂
Looks amazing! Great video, sir 😊
Those cookies look yummy 🍪
That's one of the best shirts released this season. Love the retro badge.
Well done James! Cooking and helping plan meals is one of my 8 y/o Grandsons' favorite things to participate in with our families.
MOT!
Congratulations James
Phenomenal job James. Congratulations! Looking forward to seeing your new content mate.
Congratulations James! Awesome achievement🎉you’ve given me the courage to start my own channel about life as a wheelchair user! ❤♿️
Congratulations 🎉🎉🎉🎉
Congrats James.....thanks for showing families and younger DMD boys that life can be lived well!
Well done!! Your content is helping me finding more accessible places!
I never got to Liverpool. I feel I have now. Thank v much James. Loved the maritime museum. Im reading about Elias Ball's family, Charleston Sth Carolina, where slave traders docked. Good decision not to film.
Great video! Thank you for uploading James. I enjoyed it.
Birthday Greetings and Best Wishes, enjoy thus video
Really great channel you have here James. Very educational and well explained. You should be proud of it.
Thanks for making these videos James. Everytime I see one it lifts my spirits and you're such an insightful and inspiring person! 🤌🤘❤