Відео

Also is there any correlation in central sleep apnea and memory issues?

So taking suboxone can't cause central sleep apnea?

100mg three times a day controls mine beautifully

Mine feels like needles poking my legs on top of the uncontrollable urge to move my legs. I don't know what I did but it's flairing up something crazy and the last 3 nights I've been unable to sleep. I'm also feeing the same needle feeling in my arms and hands now.

How can I start Gavapentin while weaning off of Ropinirole?

Can Ventolin inhaler be the trigger of Rls?

I wish you were my doctor!

I forgot i get bad allergies during the night and with meds my nose still gets stuffed by the morning.

I have used a full-face mask. But I am a grinder, so I need use a mouth gard to save whatever teeth I have left. Is it difficult to use the cpap at times. Is there is a mask for me or something I can do to help this issue?

Thank you for all you do. Would you happen to have a connect with a doctor in India who could help? We have consulted 10+ doctors and all are out of touch with augmentation

Mine is so low. The rls is horrendous. I’m outside walking it off. The mirapex is working barely after months. Dread night.

Ache and pulling accompanied by compulsion to move, all alleviated by moving. About an hours sleep a night if we are lucky

Iron is so gd dangerous. How many years of formal education propaganda does it take to program someone to recommend iron supplements? Take b1 for RLS. And for the slow learners, NEVER trust doctors in the post Covid era.

I keep one of my clocks on standard time all year.

I’m with you 💯

I was diagnosed with type one narcolepsy back in 2015. I can not understand why the hell anyone would want to have it. It sucks ass, it is life changing, thinking about all the things you may want to do in a day and not being able to accomplish between ¾ to ⅔ of those planned tasks even with medication. I wish I didn't have it. I wish that I didn't have to lube with the narcolepsy, cataplexy, sleep paralysis and restless syndrome. Medusa definitely helps, but it is far from perfect.

I have to comment. I need to send you videos of my plmd. I can’t even believe you would dismiss this and speak about it as if we are all just making it up! Check your self! You are one of the reasons why people hate going to doctors, have problems even talking about anything that is wrong with them out of fear of being ridiculed. I have suffered since I was a child. Stop with your videos.

I have painful RLS since a kid. My mom used to tell me it was growing pains, but I'm only 4'11" and 48 yrs old! I'm on gabapentin enacarbil and it helps, but not always. I also seem to have a caffeine sensitivity. I drink 1 cup of coffee, and hurt for 48 hrs. Energy drinks are torturous. I'm also severely low in iron. Right now haven't slept all night bc I'm in pain. The skin on my legs feel like it's on fire, and it feels like my leg bones are breaking. It's awful. Plus caffeine causes the excessive movements. Luckily I found a good neurologist who diagnosed my pseudotumor cerebri and helps me with the RLS.

Thanks

Your RLS must not be bad. 34 years here. Trumpbtook my meds away. So I'm thinking about Switzerland.

Why isn't the blood test done more often in cases of suspected narcolepsy?

As a type 1 narcoleptic, this video does a very poor job characterizing cataplexy, especizlly while driving, standing, or mid setence. Some of us can go straight down for 3-5minutes with very low bp, hr, and electrical activity. I am a theraoist for young kids, they all get informed about my condition in the first session, including when to use and where is the panic button in my office.

Please do a video on trigger medications (SSRIs, H1 antihistamines, Melatonin, antipsychotics). Thank you.

Opioids for rls, you should revaluate your treatment, Primum non nocere….. who funded these studies and who’s payroll were they on? Science so called is extremely muddy due to conflicting interests regulating themselves through kickbacks, favors, job promises to the ones that “regulate” their industry. Our life span has been reduced ever since a certain “safe and effective” medical intervention (gene therapy) was rolled out on mass. We now have an epidemic of young people passing of undiagnosed heart issues and rapidly progressing cancers.Buprenorphine also has an affinity for bone marrow, and causes physical dependence. It absolutely slows a patients heart rate and respiration…. Idk there’s got to be a safer option for antsy legs then a synthetic opioid that binds/blocks receptors in the brain and body with a ridiculous half life. How bout looking for the cause of the symptom rls, and addressing the cause rather than masking the symptom with narcotics

Husband dx with narcolepsy repeatedly, has no cataplexy but has definite sleep attacks. It's been a hallmark struggle through his life; so hear it dismissed as "not really existing" is just rude. Acknowledge poorly understood pathology and that it may need to be recategorized -- but dont just dismiss peoples lived realities as not real. Very unhelpful. Ironically i have had cataplexy all my life -- with no narcolepsy dx even after a sleep study.

This is 5 minutes of my life I can't get back. What a waste of my time.

If doctors had to take most of the Trash medicines they peddle, 50% of them would be fat as blood filled ticks and other 50% would be unemployed because they could not function at their job, don’t believe me I went from 175 to 235 in 3 months with a dose that started at 300 mg 2 times a day. it was like being falling down drunk.

I noticed you said NOT buprenorphine… my providers seem to have the idea that my primary central sleep apnea (176 out of 179 events were central on the first study, 162 out of 162 on the second) is because of my chronic suboxone use. Even though I’m on a very low dose, 2mg/day. Could you possibly provide any sources showing that buprenorphine does not cause central sleep apnea, or point me in the direction in which to look? Thank you for sharing this information. 😊

Thank you Doc!

My mouth opens automatically when i fall asleep, relax, tried chin straps, full face masks, my mouth in the morning is bone dry and sticks together. So Now i tried mouth tape, that's working great and mouth can't fall open anymore, but, don't know what's the downside of it. Why don't they recommend this. It's cheap and easy

I wonder what your thoughts are on patients for whom more common causes of hypersomnia HAVE been investigated and ruled out? Or patients whose MSL score is much lower than the eight minute threshold?

Please do a video on Bupropion for treating restless legs...

What other pharmaceutical options are there outside of melatonin and Klonopin (and other BZD/hypnotics)? What class of medications need to be re-assessed (reduced/eliminated/substituted) when RBD is diagnosed?

I have been on Suboxone for about 10 years now. I have always been OCD about mouth health. So when I had to be on the sublingual film I made sure I took extra care of my teeth I rinsed my mouth out after each time of taking my Suboxone and still my teeth are just crumbling. I have constant mouth infections my tongue underneath is red hot and sore My gums flare up. Pretty much every tooth I have is decayed with cavities. I've already had six teeth removed and I need about six root canals done and three fillings. My mouth is in constant pain. I live off of Advil and Tylenol which is messing up my stomach. I'm only 40 years old. I don't eat sweets but I sure as heck get cavities extremely simple. Suboxone although it saved my life and helped me get clean. Now that I am clean my health is awful. Because when our oral health isn't well nothing is well mind body and soul. I don't know what to do. I want to find a lawyer and I want compensation I want new teeth. I don't want stupid dentures I want teeth that I started taking Suboxone with teeth that were strong white and healthy. Now my teeth are tinged yellow and weak! All I can do is eat soft foods that are filled with carbs because I cannot eat healthy foods My teeth will break. It is like 85,000 to be able to get my teeth back to good. Who on earth has that kind of money to spend on teeth? Dentures are not good for young people. Our jawbone needs to be stimulated and when it isn't The bone on your jaw starts to deplete. By the time I'm 60 years old I don't want to have barely any jaw bone left. I feel disgusting I feel like I look disgusting. This isn't fair! I worked my butt off to get where I am today in order to have my health fall apart because of a medication that has destroyed my mouth health ! It's very disappointing

I am about to get my equipment - I am a retired physician… thanks so much for this information- very helpful

Medone really works for restless can i switch metadone to another opioid?

My husband went in for infed but started having intense pain in his back. They stopped the infusion and gave him a rescue drug along with a bag of saline. He’s going back for the one that takes 5 different infusions, sucrose. Is there anything we can do to keep this back pain from happening again?

I had an infusion about 1 week ago and don’t feel anything yet. I was a bit nervous it didn’t work, just hopefully it will take a little longer. My Primary doc who doesn’t specialize in this said I would feel better in 72 hours or it’s not RLS. That was extremely discouraging

Okay so I have adhd. Smoked weed. When I don’t smoke for a while my symptoms go away. I’m not sure if it’s cataplexy, it’s like my anxiety triggers this but my whole body just starts to twitch. I sometimes do fall to the ground or sometimes I just take it and get all stiff standing up.

Can you give any treatment or advice? I sleep 11 hours at night yet still nap throughout the day.. I am always tired. I have tried caffeine, stimulants, and even cocaine. Yet, I am still tired and can instantly fall asleep. I feel like I’m existing and not living.. I can’t do any of the things I want to do because I am either too tired or I fall asleep without realizing. I around 15 hours a day. I could honestly sleep all day if I did not force myself to wake up. When my kids were away for a weekend and I didn’t have work.. I didn’t even wake up to eat or use the bathroom. I am literally begging for some help. I don’t want to sleep my life away.

I had this but my dr didn’t hv a diagnosis. 😢 I would hv muscle twitches as well

Just had 510mg of FerraHeme , hoping it works well. Been having terrible insomnia and restless legs after a double blood donation.

I have these fits where if i laugh hard enough i lose muscles control and i feel my body tingle would this be comsider that

I had clonazepam prescribed a long time ago for I believe depression, I had some mental issues going on for a while. I took if for a week & had no problems until I was at my child’s softball game & had to be helped walking to the field, later that night my wife took me out to dinner & I was shaking so bad I couldn’t eat with a fork. So she took me to the emergency room & basically they said I was high from a week long build up of taking the drug , so I quit taking it & everything was fine. I’ve had sleep problems all my adult life I’m 66 now. Since I was 25 I’ve lived out my dreams hitting walls with my fist & my wife occasionally. Now I jump out of bed frequently it can be every night for a week or once a week. I was once diagnosed with Ondines Curse & am now on Oxygen 24 hours. I haven’t pushed for this rem disorder as I’m on a bi-pap now, but I guess I should as this jumping out of bed is quite annoying & even dangerous & I am scared about a Parkinson’s syndrome diagnoses in my future.

I knew it but was assured over and over it doesn’t ruin your teeth, I finally quit and within a month it was amazing how strong my nails and hair got . It’s rotting you

i have type 12 cataplexy i accidentally spilled hot coffee while laughing on a midget and he screamed and punched me in the balls

you arent a doctor. John butler is better than you. this is making me laugh so im losing controlllllllllll of mygttyy hansadfgad.

Is there a risk in using an ASV machine to manage complex sleep apnea, even if the central apnea might not be pathological? I seem to fall into that category, as I definitely have obstructive apnea with some central apnea, but there is no medical reason why I should have central apnea. The ASV machine definitely helps me get better sleep, but is using the ASV in this case a bad idea?

Resmed bipap ST-A saved my life

I have an active lawsuit going right now because of sublingual buprenorphine causing me to have all my teeth pulled. Buprenorphine literally caused all my teeth to start breaking apart and falling out. I had a few bad teeth before i started taking Suboxone, but after i started taking 2 a day is when i noticed my teeth literally falling out of my head. I just signed the lawyer agreement yesterday and i couldn't be more happy. I've been living without teeth for over a year now.