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Autistica
United Kingdom
Приєднався 25 лют 2019
We are the UK’s leading autism research and campaigning charity . We focus on giving autistic people the opportunity to live long, happy, healthy lives. We do this by funding research, shaping policy and working with autistic people to understand their needs. With your help we can make more of a difference.
We know that every autistic person is different. And we know that autism comes with both strengths and challenges.
But there’s lots we don’t know.
Research is the best way to improve understanding, find new ways to support people and families, and change lives for the better.
We are making more of a difference by identifying problems, finding solutions, then advising and influencing key partners who can implement change.
We know that every autistic person is different. And we know that autism comes with both strengths and challenges.
But there’s lots we don’t know.
Research is the best way to improve understanding, find new ways to support people and families, and change lives for the better.
We are making more of a difference by identifying problems, finding solutions, then advising and influencing key partners who can implement change.
Our World, 2030
Autistica is the UK’s leading autism research and campaigning charity. Our vision is a world where every autistic person lives a happy, healthy, long life. Our mission is to enable breakthroughs by working with autistic people, funding research and shaping policy to make more of a difference.
Learn more about us and connect with us:
www.autistica.org.uk
Twitter: Autistica
Facebook: AutisticaCharity
Insta: AutisticaUK
Linkedin: www.linkedin.com/company/Autistica
Learn more about us and connect with us:
www.autistica.org.uk
Twitter: Autistica
Facebook: AutisticaCharity
Insta: AutisticaUK
Linkedin: www.linkedin.com/company/Autistica
Переглядів: 1 574
Відео
EC webinar: Deconstructing diagnostic categories: Shifting the narrative on neurodivergence
Переглядів 170Місяць тому
Embracing Complexity are organising a series of webinars to discuss topics related to the Top 10 Research Priorities. The Top 10 Research Priorities report can be found here: www.autistica.org.uk/downloads/files/Embracing-Complexity-2024_2024-03-14-155013_wvts.pdf The first webinar will explore how deficit-based framing of neurodivergent traits within diagnostic categories contributes to the pa...
Webinar: New training toolkit - Sensory-Inclusive Spaces for Autistic People
Переглядів 3265 місяців тому
In partnership with Autistica, researchers and community partners have developed a new, freely available evidence and lived experience-based e-training package for business owners, managers, and employees. We are pleased to officially launch this tool to support spaces becoming more sensory-inclusive for autistic people. NeuInsight Training provides free online training to help businesses and o...
Webinar: Findings from the Strengths and Needs Profiles project
Переглядів 2715 місяців тому
Over the last 12 months, Autistica has been exploring the use of a digital strengths and needs assessment toolkit to help autistic people get ongoing personalised support by helping them understand their talents and the areas where adjustments may be beneficial. We looked at how the toolkit might be used in three different settings: education (for children in schools), employment (to inform rea...
Webinar: Exploring autistic/non-autistic romantic relationships
Переглядів 5107 місяців тому
In the past, it has been believed that autistic people don't want romantic relationships. This is a myth. Many autistic people do want romantic relationships but can experience challenges in developing and maintaining them and may hold different perspectives on romantic relationships. In this webinar, we will present recent research that explores the ways couples maintain and understand their r...
Webinar: Understanding eating behaviour in autistic people
Переглядів 1,7 тис.7 місяців тому
Researchers and experts by experience join together to bring you a deeper understanding of eating patterns in autistic people of all ages. We will discuss how eating patterns vary, how autistic people experience eating disorders, and how Avoidant Restrictive Food Intake Disorder (ARFID) is different from both autistic eating and anorexia nervosa. We bring you the latest research to consider, ov...
Webinar: Influencing Suicide Prevention Policy in Partnership with Autistic People
Переглядів 4007 місяців тому
Autistic people are at a higher risk of suicide than non-autistic people, prompting the need for autistic people to set the agenda for research-informed policies to prevent suicide. Dr Sarah Cassidy and team identified the autistic community's priorities for suicide prevention, and their priorities were integrated into the Department for Health and Social Care's 2023-2028 suicide prevention str...
Webinar: Autism and menopause
Переглядів 2,5 тис.Рік тому
Menopause can be a time of changes and challenges. Emerging research suggests that autistic people may find it especially difficult. Very little is known, however, about ways that menopause might differ for autistic and non-autistic people, why some individuals might have a harder time than others, and what can be done to help them through. In this webinar, we will explore the state of current ...
Webinar: Co-designing online platforms for sensory processing
Переглядів 345Рік тому
The moderation of user-generated content on online platforms is key to protecting people online. But it is also a perpetual challenge - as the question of what the "right" guidelines are depends on the online community that they aim to govern. This is particularly important for autistic people, as research shows that they can particularly benefit from online communities - but are also more like...
Webinar: Do we need to think differently about suicide prevention for autistic people?
Переглядів 2,3 тис.Рік тому
Suicide rates are shockingly high amongst autistic adults, and autistic adults often report negative experiences when trying to access support. This webinar, organised to coincide with World Suicide Prevention Day 2023, provides an urgent call to action. In the first part of the seminar, we will provide an overview of research findings from several recent studies on self-harm and suicidality. T...
Webinar: Social anxiety in autistic adults
Переглядів 3,3 тис.Рік тому
Autistic people often report anxiety in social situations. However, there is limited research on the nature of social anxiety in autistic people and how to support autistic people when they seek therapy for social anxiety. We investigated similarities and differences in social anxiety in autistic and non-autistic people. We also heard from autistic people about their experiences having therapy ...
Webinar: How do autistic children learn words
Переглядів 1 тис.Рік тому
Autism is often characterised by delayed vocabulary development, and many autistic children have difficulty learning words. This talk will present research investigating how autistic children learn words, highlighting their strengths and environmental conditions that can help them. The talk will focus on three important word-learning abilities: identification, retention, and generalisation of m...
Webinar: Supporting early executive function development
Переглядів 491Рік тому
Attention, emotion regulation and thinking skills (sometimes called executive functions) are important for mental and physical health and also help with academic success, friendships and general quality of life. In this webinar, we will explain what research tells us about the executive function strengths and difficulties associated with autism and ADHD, and why toddlers with a family connectio...
Webinar: Anxiety in autistic people who speak few or no words
Переглядів 926Рік тому
Anxiety is often experienced by autistic people and can be overlooked in those who have a diagnosis of an intellectual disability and speak few or no words. This talk will discuss why anxiety is overlooked, discuss ways to spot the behavioural signs of anxiety, and describe what we have learnt from developing interventions to reduce anxiety in autistic children who speak few or no words. It wil...
Webinar: Levelling the employment playing field
Переглядів 657Рік тому
This webinar is sponsored by Fujitsu. In this webinar, UCL-based researcher Mel Romualdez will be discussing disclosure and recruitment for autistic job seekers, and the barriers that make it difficult for autistic people seeking employment to succeed. She will also be discussing ways in which recruitment processes, and workplaces in general, can be made more inclusive. Rose Matthews, an indepe...
We need to rethink how we hire #HireDifferent
Переглядів 1,9 тис.Рік тому
We need to rethink how we hire #HireDifferent
Embracing Complexity: Research Into Neurodevelopmental Conditions Beyond Diagnostic Categories
Переглядів 664Рік тому
Embracing Complexity: Research Into Neurodevelopmental Conditions Beyond Diagnostic Categories
Autistic Adults’ Experience in Mental Health Services
Переглядів 2,2 тис.Рік тому
Autistic Adults’ Experience in Mental Health Services
Autistica Research Festival 2022: Symposium: autism and open research practices
Переглядів 1862 роки тому
Autistica Research Festival 2022: Symposium: autism and open research practices
Autistica Research Festival 2022: Employment part 1 & 2
Переглядів 3062 роки тому
Autistica Research Festival 2022: Employment part 1 & 2
Autistica Research Festival 2022 - Keynote Sven Bölte: Support from Day 1
Переглядів 6032 роки тому
Autistica Research Festival 2022 - Keynote Sven Bölte: Support from Day 1
Autistica Research Festival 2022: Eating and diet
Переглядів 3052 роки тому
Autistica Research Festival 2022: Eating and diet
Autistica Research Festival 2022: Poster presentations part 1 & 2
Переглядів 5702 роки тому
Autistica Research Festival 2022: Poster presentations part 1 & 2
Autistica Research Festival 2022: Diagnosis and acceptance
Переглядів 2862 роки тому
Autistica Research Festival 2022: Diagnosis and acceptance
Autistica Research Festival 2022: Diagnosis and autistic women
Переглядів 8002 роки тому
Autistica Research Festival 2022: Diagnosis and autistic women
Autistica Research Festival 2022: Social care
Переглядів 912 роки тому
Autistica Research Festival 2022: Social care
Autistica Research Festival 2022: Underserved groups
Переглядів 912 роки тому
Autistica Research Festival 2022: Underserved groups
Validation. The menopause absolutely broke me, my cognitive functioning broke! I couldn't put a sentence together, short term memory and working memory was non existent, psoriasis broke out on my head and face, random rashes and allergies, emotional rollercoaster, migraines, visual problems, nerve pains, Burnout, 8 years of chaos and hell. My daughters youngest years saw me at my worst. Im on HRT now and the change is amazing, I'm not back to who I was but I don't expect to be, I also have autoimmune disease. Doctors need to listen, its a wonder that medicine has gotten to where it is!!!!
👏👏👏
So - yeah - don't be so confusing!
A yearly health check would be amazing for me, I used to be on the learning disability check register and they’d catch stuff that I didn’t realise because I struggle with that but now I moved I don’t get that.
I find it very hard to make phonecalls to people I don't know. It takes me months to finally be able to call a repair person for example.
My nephew is exactly like this. Too much overload can cause him a huge meltdown. I wish there was a way for him to not be overburdened by all the senses around him.
Headphones help. Earplugs are available too, that stop a lot of noise.
So thankful for this video, but REALLY concerned about two things: minute 39 a man describes what "causes" ADHD. He lists "genes" first...( Huge problem with this being listed at all, but ESPECIALLY listing it first) He then says, It can be caused by "environment" With RIDICULOUS pictures (a building which may or may not be understood as a factory [presumably seeping ADHD-causing chemicals into the environment??], a cigarette, an image of food.... But we are not even getting close to anything that's very very key here... The environment is as number #1 factor -the cause of developmental damage (trauma)...but main aspects of "environmental factors" are,, for Pete's sake, chronic exposure to EFFING ABUSE by a narcissist/sadist/boarderline/dark personality Father (or mother). You MUST discuss environment first. You MUST include an image of 'Family' and images of a child with symbolic visual representations of childhood trauma, like an 'X' on the child's mouth (no ability to express needs, or protest, etc) with the older person (the effing narcissist or sadist or pschopathic PARENT!!!) yelling at the child,, Crossing arms intimidating the child, the parent turning back on the child, ( silent treatment is BRUTAL!! Dehumanizing, And activates the same area of the brain responsible for physical pain producing the equivalent PHYSICAL PAIN of a sucker-punch to the stomach in victims (Williams, 2011). So a parent turning his back on a pleading child, shamed, An image of an older person hitting the child, sexually abusing the child (represented by a bed??) And we must write gaslighting "it's just a joke!" "Dont be so sensitive!" subjecting the child to (deviant, repeated, INCULCATING) verbal abuse in form of sarcasm, "just jokes", verbal abuse... Gaslighting MUST be symbolized. The child's PERCEPTION denied/warped, dehumanizing SILENT TREATMENT MUST BE Illustrated/listed. THAT is the cause of DEVELOPMENTAL DAMAGE --TRAUMA!!. COMPLEX trauma. Research needs to look into what percentage of autistic and a d h d kids have a parent who has NPD, or what % of ADHD and autstic children have a pathological narcissist, sadist, or psychopath for a parent. THIS must be researched. AND, At a minimum, it must be integrated into any presentation about what causes AD.H.D or autism.. This is often child developmental TRAUMA caused by a effing abnormal parent!!!!!
imagine a world so broken that "honesty" need be a labeled trait of a different type of human being
❤
Really appreciate this video, and very much appreciate the shared experiences in the comments section!!!
Thanks, now I understand how my friends feel like🎉
I subscribed due to how good this is
Thank you for this well made video!!
Great, well done to all involved! I’m especially pleased that employment was mentioned, and the sum is to double that, but it’s a shame the actual current percentage of autistic adults actually in employment wasn’t mentioned, as it’s horrendously shocking in the UK. But you can’t possibly include everything, so this video was a great summary, and I believe the 2030 vision is achievable, and by liking and sharing this, we can all help to play our part in this, which involves making autistic voices loud and visible! From child and adult peers, to small and large company employers, to the developers of schools, playgrounds and work spaces, to the local MP’s who can make changes in their local areas, right to the acting government, who have the power to make and enforce changes. It’s not much to ask that autistic people are treated with the same amount of kindness and dignity that everybody expects , and to be given the same opportunities as everybody else, and the help and support that may be needed in order for this to happen.
This is so well done!! Well put together, I applaud the team behind this, the actors and actresses, the whole team! What a great initiative.
People should realize that a more inclusive world will benefit everyone. Just look at ramps for wheelchairs for exampld - suddenly if you have heavy luggage, a pram or are on crutches, you, also, have an easier time getting around, not to mention we all get old... So it goes with making public spaces more accessible in other ways as well. Great work you're doing
commenting for the algorithm so more people see this
I love this video, it doesn’t infantilize autism at all. It not only acknowledges autistic people being a part of the world, but it also shows that they are PEOPLE, grown adults who are after the same things in society as everyone else.
Excellent!
🙌🙌🙌
Love this! Believe in change!! ❤
A shame I missed this in real time, but it's so good to see that *finally* some research is being undertaken regarding peri/menopausal autistic people. It absolutely led to me seeking my own diagnosis earlier this year as it's been so overwhelming, and I seem to have had way more symptoms (and more severity of symptoms) than other people I know. HRT has been useful but, maaaan, it's been hard! 😩
Symptons usually last for years after the menopause,they don't disappear as soon as she said.Expect pure hell.
You do not represent me.
Devy treasure
I came here after looking at resouces for ladies with autism and in perimenopause. I am late diagnosed with autism, adhd recently and dyslexia and dyspraxia in my 30s. I started aged 42 years and in the last 4 years has been a roller coaster ride with other comorbidity. I am adapting strategies like pacing, managing sensory overwhelm, triggers, miscommunication. I am on hrt but noticed huge changes in increase in sensitivity, emotional changes, fatigue. I am looking to be less hard on myself. I have had trauma support. I would love to help others going forwards. I put myself forward for research in autism and other studies. I am glad this is being talked about.
I cried so much I can't believe my 2 years boy deal with that.
Yes yes and yes. First I am super body adware. So anything that changes makes me nervous and I feel it earlier. Emotions all over the place and it gives me more meltdowns. I also have more sensory issues. Menopauze or premenopauze is hell for me. Tried HRT but it made me lose sleep and I need that so hard. No without HRT but struggeling so hard to just relax.
Have you seen the article in the BJPsych Bulletin? "Severe mental illness and the perimenopause" by Sophie Behrman and Clair Crockett? "Oestradiol has a role in the modulation of serotonin, and serotonergic pathways are thought to be involved in the neurobiological basis of depression. When oestradiol levels fluctuate during the perimenopause and menopause, destabilising effects on mood can therefore occur."
I think its me when it comes to someone shouting and insulting at me even family not at all and its makes me neglective is it called autism right? And i wasnt diagnosed since i was a kid and im trying to be cool and normal person it didnt work because of my anxiety attacks and so many fail and masturbate until thinking a suicide when i have feeling neglect and negativeb and im not, because ill keep always pray and pray
Shiver me timbers
I feel sad : ( I have PTSD, autism, and Schizoaffective as a mixed black boy this is lonely
❤️
My current employer said that autism is not a valid reason to be exempt from business model/business needs. I asked for my hours not to be changed and they said I had to change them. I moved my hours and they ended up not being the best for my mental health. I got a letter from my doctor saying could i start at 8am instead of 7am? It was refused. They have now forced me to drop a shift for 12 weeks paid. after the 12 weeks if i accept the reduced hours i will lose money. the company I work for have shown their true colours and i have been with them for 9 years!
Да что они могут предложить?Попытки исковеркать мир нормальных людей под себя? Ну уж нет,вы,ребята,лучше изолируйтесь в отдельных резервациях,и не мешайте ПОЛНОЦЕННЫМ людям жить!)
haha autistic people is funny
Haven't had an autism diagnosis, but perimenopause has been so unbelievably debilitating that the signs are all there - emotional dysregulation, heightened sensitivity issues, the meltdowns. The last time I spoke to a GP about the fact that I needed something to help my hormones because I was suicidal each month, he laughed at me. It's hard to ask for help.
That is absolutely disgusting behaviour from your GP! I am so sorry he has been so insensitive and unprofessional. Are you able to transfer to a different doctor who will take your concerns seriously?
There are some utterly awful doctors out there. I’m so sorry for your experience.
The UK is way ahead of North America.
I had to watch this video all to find information about I’m autistic curious I get everyday and seeing that video I do attend to stroke peoples dogs to communicate so I can show I’m not rude to people so here it is why I let people on the bus first before I get on to hide my feelings and problems aside even thou I have autism and to see that video that just proves it all for me. The truth I do get anxious to go outside and to see other people and have trouble of learning lost many jobs cause managers misunderstand me when don’t understand the instructions they give me. In the meantime I’m still unemployed and do occasionally volunteer and pay visits to the job center not fun at all.
My sensory issues are not as bad as what’s common for autistic people, and I’m really grateful for it. I just struggle with eye contact, certain clothes and being addicted to certain textures.
Same! I have really quite mild sensory issues for an autistic person and I didn't know anyone else that did. It sounds like you could be hyposensitive to some things rather than hypersensitive - for me I am hyposensitive to light and noise but hypersensitive to textures, smells and tastes. All of this is fairly mild although it still affects me a bit. Every other autistic struggle makes up for it 😂 but I am so grateful to not have this huge barrier and constantly be in sensory overload if I go out.
Arrr, there be treasure here
Idk if my sensory issues are alot, I don't like more complex textures, I hate loud and/or accumulated sounds, and I hate eye contact.
Video quality is good Bellow we found your channel issues : 1. Video not SEO Friendly 2. Video Views Low 3. Video not Tags
I’m on the autism spectrum and it’s cool seeing the world differently ♾️❤️😁
Thank you, this was very interesting and useful
you mention it's distinct from "dependence", but there's nothing wrong with dependence to begin with. Our society fetishizes independence too much, nobody is really independent and interdependence has always been the way all humans live, not independence.
We & us? Speak for yourself. This is not how I experience autism. At all.
ok? good for you i guess
I am 66 years old. I was diagnosed with ADHD late in life. I used to drive my mother mad because of hyperactivity, but in the presence of strangers, I used to become still. None of us were socialised because both parents worked, and I hardly saw my mother until the age of 6 when she got pregnant for the third and last time. Then she stopped working so my little sister didn't suffer the absence like my sister and I. I wanted to break out of isolation, so I thought I was learning to sicialise. But I used to go off line from time to time, especially if a pattern changed. I was generally a good student except during these strange off line periods when I became unable to learn anything and suddenly my grades would dive for apparently no reason at all. That made me feel scared. I also had periods getting oversensitive when I would suddenly develop sensitive skin or sense of smell. Then I was sent to boarding school where after a period of quick adjustment I became restless and finally escaped. My family never understood me and always thought that I was lying or pretending. That strange suspicious by my mother was picked up by my sister whom I really loved. Even though I did everything for her, she would never trust me. It has been a strange and confusing life. I started suffering from bouts of depression in my late teens until I had a severe breakdown after a surgery went wrong and I developed a bad infection that made me so weak that I used to break into sweat just standing up to open the door. It was a long time before I was diagnosed with borderline Asperger's and ADHD but even then my family didn't believe it because it had become a harmless habbit not trusting me for them while I kept asking for understanding. Before that I was given ECT because I had developed a resistant depression that again went wrong when I developed post anesthetic palpitation and the nurse forced me to have a very large dose of venleefaxine. When I called for a doctor no one came. So, I crawled out of the room and saw that the ward was empty and even the lights had been turned off. I couldn't move. So I collapsed in the corridor hoping someone would pass by. I tried to control my breathing and I don't know if that helped but after what seemed ages the palpitation stopped. I left the hospital. I was worried that it might return. So, I went to my mother's house. The next day I went to hospital and reported it. They took an ECG, and after examination, I was asked to leave the hospital. I went home and tried to call my doctor in hospital but was told that no such person worked there. So, I went to my GP, who told me that I had a heart murmur. At the time I didn't understand the significance and my GP said that I might need aortic valve replaced at some stage when I got old. I didn't realise that by older he meant within four years time when it got so bad that I had to have an open heart surgery. But that wasn't even half of it. In the end I paid to have a VNS implant when it first came out but it didn't help until I stopped taking Olanzapine that was prescribed for me that turned me into a zombie. My wife left me and I didn't seem to be able to stay with anyone and in the end I gave up. It was only then that I started reading everything that I managed to put all the strange events together and make sense of it but on the way I lost everything and everyone. My daughter is not interested, neither are my siblings. I have a dog that I am waiting for to die before I join him since he has been the only thing that I felt love from. 1:36
Thank you all!
In the general context of the debate about neurodiversity and depression, especially as someone who is considering suicide/euthanasia this is an important video. I've added this to my autism playlist. Thank you.
Your username reminded me of my little brother, Xeric. Mrninjafish sounds like something my brother would use as a name. It's very cute. He took his life in 2021. I felt compelled to reply to you and just tell you, I hope that you are still here today. And tomorrow. And the next day. And so on. ❤
@@meowinde I get the feeling that the rest of my life isn't going to be good, but I have to carry on for the sake of it. Ultimately I know my life will be a failure if I don't have children but I will have to see it through.
@MrNinjaFish I wrote a long reply but I don't see it anymore
@@meowinde split it into multiple replies
Excellent presentation. Thank you!
The music in this makes me anxious lol