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Jasmine Sturr
Приєднався 30 січ 2013
Welcome to my channel!
I'm Jasmine, I'm 21, and I live a pretty strange life. But a charmed one!
I have Juvenile Onset Parkinson's disease. That basically means that my nervous system is breaking down. Its caused some pretty messy complications, it paralyzed my stomach which means I depend on a feeding tube to live. That makes me a parkie-tubie! Oh, and I had brain surgery to save my life. twice. while awake. It was actually terrifying, but it makes a cool story.
With the continuous medical crap, you would think that I would be a bitter old lady. But nope, I am full of sunshine and butterflies (most of the time, everyone is entitled to a minute or two of this stinks every now and then). So this channel is for a few different things. I want to make videos that can help the PD and dystonia community, particularly about the miracle that has been my DBS surgery. I would also love to be able to share little glimpses into my life, interesting things happen to me, after all.
I'm Jasmine, I'm 21, and I live a pretty strange life. But a charmed one!
I have Juvenile Onset Parkinson's disease. That basically means that my nervous system is breaking down. Its caused some pretty messy complications, it paralyzed my stomach which means I depend on a feeding tube to live. That makes me a parkie-tubie! Oh, and I had brain surgery to save my life. twice. while awake. It was actually terrifying, but it makes a cool story.
With the continuous medical crap, you would think that I would be a bitter old lady. But nope, I am full of sunshine and butterflies (most of the time, everyone is entitled to a minute or two of this stinks every now and then). So this channel is for a few different things. I want to make videos that can help the PD and dystonia community, particularly about the miracle that has been my DBS surgery. I would also love to be able to share little glimpses into my life, interesting things happen to me, after all.
Jasmine's October 2022 Update!
Hello lovely friends,
I have been away for a long time and this is an update on where I have been and what I have been doing, and what is coming up next. I look forward to reconnecting with everyone here online!
I have been away for a long time and this is an update on where I have been and what I have been doing, and what is coming up next. I look forward to reconnecting with everyone here online!
Переглядів: 602
Відео
COVID 19 and Parkinson's- What You Need to Know- Jasmine Sturr
Переглядів 3,1 тис.4 роки тому
Hello all, this is what you need to know about Parkinson's and COVID-19! What the virus is, what it does, and how concerned you should be about PD and COVID-19. For those who do not know me, I am 25 and have had Juvenile Onset PD for 11 years, and have a Bachelors of Science in Chemistry. I am involved in citizen science projects and have published a peer reviewed article with other science min...
Parkinson's Phenome Project Announcement-Jasmine Sturr
Переглядів 6035 років тому
Hello Everyone! Big news! I am FINALLY announcing my next steps. Coming soon, my non profit research project-The Parkinson's Phenome Project!
Jasmine Sturr's 2019 lunch talk at the Stanford Anesthesia Summer Institute (SASI)
Переглядів 4685 років тому
Jasmine Sturr's 2019 lunch talk at the Stanford Anesthesia Summer Institute (SASI)
Medical PTSD. What it is and what I am doing about it
Переглядів 2,4 тис.6 років тому
This is part one of a series I am making on my struggle with Medical PTSD and my treatment and the process of it. Medical PTSD is not talked about enough, so I decided to share.
Turning my Deep Brain Stimulation On and Off Two Years Later
Переглядів 3,9 тис.6 років тому
It has been over two years now since I had my DBS fully set, and I wanted to see what my life would be like without my DBS. I had not turned it off since the last video I did of it two years ago . I was amazed to find out just how severe things were with it off! I am so thankful that DBS lets me live my life with Juvenile Onset Parkinson's. I also discuss my recent program setting change from a...
Learning to accept the inability to have children
Переглядів 5436 років тому
This is a topic that has been on my heart for a while, that I feel so led to share, because it was something that I really struggled with. I am speaking out because if it makes one woman feel less alone, it was worth sharing.
Parkinson's and mental and emotional health
Переглядів 1,5 тис.6 років тому
I get real in this video about my struggles with PD Dementia, Medical PTSD, Parkinson's Apathy, and the anxiety and depression this disease causes.
Why tube feeds are more ideal than TPN
Переглядів 5016 років тому
Hello! I have gotten this question a ton of times, so I felt it needed to be explained! Why TPN isnt exactly ideal, and even though last time tube feeds made me crazy sick it is worth trying again! *Re-emphasizing that TPN saves lives and while it is a last resort if that is the only way, you can live an awesome life on it! if i cant switch i have made my peace :)
Stanford Medicine X 2017 oral ignite talk-Jasmine Sturr
Переглядів 1737 років тому
'The Patient Turned Scientist- Making My Life Saving Medicine In My Kitchen' Jasmine Sturr Stanford Medicine X 2017 Oral Ignite Talk
Parkinson's: More Than A Movement Disorder
Переглядів 7377 років тому
2017 #NGU Denver Meet Up Speech~Jasmine Sturr A talk on how patients can get better care, by advocating and knowing about their disease. The importance of getting treatment for the non motor symptoms of PD.
Parkinson's 101 #3: How to get the most out of your DBS appointment
Переглядів 3,2 тис.7 років тому
Welcome to Parkinson's 101! In this video I explain how to get the most out of your DBS programming to get your perfect setting faster! I explain how DBS and programming works, and how you can make sure your doc is trying everything. I also talk about how you can be a more active participant in your programming. I recommend watching if you have DBS or are getting it in the future!
A Rock Steady Boxing Review!
Переглядів 5187 років тому
Hello everyone! Sorry for not being around too much, I have been busy! One of the things keeping me occupied is Rock Steady Boxing, a program all over the country available for PWP's. I was skeptical at first of the program, but I have come to really love it. In this video I interviewed my RSB instructors at Kaizen Monrovia here in Los Angeles. I truly think that this is a wonderful program tha...
2 am thoughts, 2 weeks post surgical jujenostomy tube
Переглядів 6818 років тому
Hey guys, its been a while since I uploaded anything. Life has been a little crazy. Okay a lot crazy. 2 weeks ago I had a major abdominal surgery. Following that I had a major PD flare, was given medication that made me lose two days of my life, sent home, had my PD get so bad I was hospitalized 1 week post op. Told that I had zero bowel sounds, meaning total failure of my GI tract, and that th...
Packing for world parkinsons congress!
Переглядів 2118 років тому
Packing for world parkinsons congress!
The perfect storm of Gastroparesis and Parkinson's
Переглядів 1,3 тис.8 років тому
The perfect storm of Gastroparesis and Parkinson's
What I want of my MDS neuro appt: DBS programming, duopa, meds and more
Переглядів 5978 років тому
What I want of my MDS neuro appt: DBS programming, duopa, meds and more
The Latest in my Life: Speech Therapy, Pain Management, Failing Digestive Tract, Surgery and More!
Переглядів 4758 років тому
The Latest in my Life: Speech Therapy, Pain Management, Failing Digestive Tract, Surgery and More!
The 9th infusion of TPN, some of my thoughts
Переглядів 6248 років тому
The 9th infusion of TPN, some of my thoughts
Parkinson's 101 #2: How to get the most out of your doctors visits
Переглядів 9388 років тому
Parkinson's 101 #2: How to get the most out of your doctors visits
A fairly spazzy life update. TPN day 1
Переглядів 2418 років тому
A fairly spazzy life update. TPN day 1
Some thoughts on the night I got my picc line
Переглядів 5328 років тому
Some thoughts on the night I got my picc line
Life update from the # nevergiveup PD and Dystonia Meetup!
Переглядів 1,4 тис.8 років тому
Life update from the # nevergiveup PD and Dystonia Meetup!
Feeding tube formula change update 7~ this time with super exciting news!
Переглядів 3188 років тому
Feeding tube formula change update 7~ this time with super exciting news!
Hot
Many would say this is too good to be true, I must say this real quick that it is very good and very true how Dr Madida Sam on UA-cam cured my Parkinson Disease with their PD treatment protocol🌱🌱🌱…
That's amazing. I've been looking at DBS info for a while. It's incredible to see this technology at work. I'm happy that this has helped you so much.
I am patient of yopd , good on medicine since two years Your video is very promising and hopeful to see myself in near future Thanks for sharing ❤
Don’t care
I am using my husbands account here, but It is amazing to see what good DBS does! I was diagnosed at 32 with yopd. Six years in, I am now being evaluated on if I am a good candidate. I just did my psych test today. Your video amazed me <3
Hi Jasmine. Finally got my Dbs😊
Another false narrative that nicotine is “brain poison”?
Thanks for this video.
Ive been sexually violated by 2 different doctors. Anytime im "REQUIRED" to disrobe, I go into fight or flight. Usually both. I am a mess.
That was pretty dramatic
After switching on the pace maker for first time can person have dyskinesia?
Ive done aloy of research on dbs. As an athlete, I hope that I can push it to current maximum. If not....I will be not happy lol. For me stiffness, slowness and rigidity when off.
I am going for a dbs assesment on the 27th, 14hrs with no meds...gonna be tough
I wonder if the nicotine vape you were using six years ago has been helpful, cause you look a lot better now in comparison. My brother has Parkinson's too and is trying to cope like all. All the best to you and your efforts.
Never forget you have friends, life with Parkinson's is never dull. I still don't believe I'm still living with Parkinson's since "You have all the classic symptoms of Parkinson's, but you are too young to have an old Person's disease. That was in 1983. Forty years later, still here, still doing my best to keep up with my boxing classes and yoga.
Please give your Facebook link
My father is suffering with Parkinson's
She is a brave young woman. As a man with Dystonia since 1978 and a recipient of DBS surgery in 2012 you'd have to fight me to turnoff my device. 😂
Amazing ❤
You give me hope. They keep postponing my Dbs surgery Perth au
Hi Jasmine! I hope you are well, happy Valentine’s Day to you ! I think you may have the same Medtronic device as mine , at least judging by the patient programmer you had in a prior video. I have had mine 4 years. Have you ever tried tweaking your pulse width or other settings ? of corse working with your dr. to find a “sweeter spot”? I’m wondering if I am taking advantage of all the capabilities of my DBS. I’m 63 and have had Parkinson’s about 8 years
You are very brave. Thank you. I'm looking forward to getting dbs
Hey Girl! Missed you tons!!! Happy to see your beautiful smile. Let’s catch up soon!
Jasmine. Hi. Glad you’re well and back 😊. I’m having DBS soon and am hoping that it improves my sleep. Did you have sleep issues and did your DBS improve it much? Thanks
🕊
Happy your feeling good and are back. Yes, the pandemic has been really hard on us Parkies, the added stress exacerbates our symptoms. I was hoping for a silver lining in the covid cloud, but it just is not to be. Keep us up with postings please and take care of yourself..
It is lovely to see and hear you. Happy Birthday, Jasmine!
Wow. How has this been working for you in the long run??
YAY for Mad Scientists!
So happy to see you back,
Happy Birthday
Soooo glad to see you Jasmine. So glad you have been busy.
Happy birthday Jaz!!!
Exciting for this medication for you! Sounds like it's definitely doing something!
Sooooo happy to see this video and your cute face!!! Missed you and really excited for your new adventures!!!!!
Thanks for Sharing 😊
I always enjoyed watching your videos, thanks for sharing ❤️
Thanks so much jasmine for posting this. Congratulations hope you are still doing well I'm on the waiting list for dbs but covif delayed it and then the surgeon stopped doing public surgery
I get constipated and i have parkinsons .
Jasmine are you still around with this channel?
You're such an inspiration! I am 27, was diagnosed with YOPD at 24 and with dystonia as a side affect. Your story inspires me and what a better way to turn pain into power by bringing spotlight to the subject! God bless you and so happy to see you doing well! I have the candidate appointment on July 29th for the DBS surgery! Hope I respond well
Thank you. Today I had a panic attack triggered by being given a prescription I didn't understand or agree with, and I felt so silly for all that happening "over a pill", even though I know the pill is not the cause only the trigger. Even you shared about your experience with signing your name, it really resonated with me, and helped me so much to feel less alone. Thank you for sharing <3
It's so weird to hear this information 2 yrs later. So many agree that there are very few memory markers to go by in the 2 yrs of Covid. For me as an older adult it was like losing everything I ever knew, like someone erased all the generations before the pandemic and we stepped into another world 🌍
Can you please share where you had your DBS done please, thank you 😊
This is an outstanding video of Kaizen Martial Arts owner Jody Hould at the start of her amazing Rock, Steady Boxing at Kaizen. I joined in 2017 and think the program amazing! Jody continues to enhance the program and keeps it fun and interesting. In addition to Jody, her son Zac is a now a RSB certified coach and adds much to the program. I cannot say enough positive things about Jody and Zac, supported by Jody's husband Tom. Except to say, "Thank you" for your innovation and dedication to the program even during Covid lockdown through daily Zoom classes!
Thank you for your contribution to a better world! You are a beautiful soul! We have OSDD and ASD and our story is absolutely heartbreaking. We feel we were left for dead. We were gaslit, abused and even raped in MULTIPLE MEDICAL FACILITIES because our ASD and OSDD prevented us from remembering the trauma or being able to express what happened. We thought about starting a movement in which ppl share their medical trauma stories, just like ppl shared sexual assault stories with #metoo. We’re thinking of calling it #leftfordead. . . What do u think!?!
i'm apart of a did system and honestly your comment is so reassuring. we formed after our caretakers neglected the onset of pneumonia and ended up doing so until it became life threatening. we were induced into a coma and later overdosed on steroids seven times the healthy amount for a four year old. our bpd & did prevented us from remembering anything crucial about our hospitalization but since it was so long ago, we had to ask to find out the truth. thank you so much for this comment, i hope you have a great day and i wish you luck with your integration (if that is a goal of yours)
i didn't realize how many others had this as well, i know many others that do but never realize so many people do. It should not be like this. Some days i would rather let something go really wrong and not get help for it than walk into another medical setting. I had a skull fusion in 2016, and since then it has been one trauma over another. And these simple things now - they terrify me. I am panic every time i even have a small appointment. I think our souls are just tired. we cant live without medical care when we are sick or permanently injured. at the same time we can't handle it anymore after a while. it is just one thing after the other. it is never ending. and i can not see a life and future full of this can continue. I feel for you so much as you are so young. mine happened when i was 39. we can not live with it , and we can not live without it. it has given me a nervous breakdown before, i can never find a day of peace because there will always be another shoe that drops. and then dealing with the pain and sickness on top of it. I understand wanting to be done with it. As long as you have people to help you , hang in there. THere are those of us who dont have anyone anymore, they are dead and gone, friends move on. We are doing this alone. utlize the xtra help as long as you have it and hopefully this stops for you
Please always share with us your videos because they motivate us a lot
After dbs do you still have gastroparesis?
Thanks a lot for sharing. Please tell us where did you do the operation?