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MND Victoria
Australia
Приєднався 6 гру 2018
Community Access
The following information resources are designed to help people living with MND to get out and about in the local community and visit local attractions.
Переглядів: 97
Відео
Travelling with MND
Переглядів 1355 годин тому
MND Victoria is mindful that everyone’s experience of MND is different and not all people are able to travel interstate or overseas. This video is designed to help people living with MND who are planning travels.
Lorraine's Story | Treat Age Equally
Переглядів 5921 день тому
Lorraine was diagnosed with MND at age 70. Because she was over 65 when she was diagnosed, she’s been placed on a My Aged Care plan, which doesn’t come close to covering the level of care and support she currently requires. People under 65 diagnosed with MND have access to NDIS, meaning they have an average of $300,000 worth of government-funded support each year. Lorraine, on My Aged Care, onl...
Managing Comfort in Bed | MND | Carers Can Project
Переглядів 85Місяць тому
Comfort in bed is highly individualised and may change over time for those living with MND. Challenges such as reduced mobility, unsuitable bedding, and communication difficulties can affect rest, but there are many practical strategies to help. From adjusting pillows and temperature to upgrading mattresses and using supportive equipment, small changes can make a big difference. The "Managing C...
Managing Fatigue | MND | Carers Can Project
Переглядів 122Місяць тому
Fatigue can be a challenge for some people living with MND. It’s important to remember that everyone’s experience is unique, and it can vary greatly from person to person. The "Managing Fatigue" video covers the following information regarding fatigue management: - Why someone with MND may have fatigue - The difference between fatigue and tiredness - Simple strategies to try in the beginning to...
Taking Care of the Carer | MND | Carers Can Project
Переглядів 187Місяць тому
Caring for someone with MND is a journey that influences both the carer and the person living with MND. Self-care is essential, not indulgent. It’s about recharging so you can continue to provide the best support. The "Taking Care of the Carer" video covers the following information regarding self-care and reducing carer burnout risk: - Discussing the invaluable role carers play - Strategies to...
Managing Eating & Swallowing Changes | MND | Carers Can Project
Переглядів 80Місяць тому
Eating difficulties in MND can arise for many different reasons and may impact appetite, swallowing, and overall nutrition. Early signs - like prolonged chewing or coughing during meals - highlight the need for proactive management. The "Managing Eating & Swallowing Changes" video covers the following information regarding changes to communication: - Why someone with MND may experience changes ...
Managing Communication Changes | MND | Carers Can Project
Переглядів 47Місяць тому
Communication changes are unique to each person living with MND and may evolve over time, impacting speech and social interactions. These challenges can affect relationships and participation in daily activities, but there are strategies to help. The "Communication Changes" video covers the following information regarding changes to communication: - Why someone with MND may experience changes t...
When Would You Stop Caring? | Treat Age Equally
Переглядів 131Місяць тому
When it comes to care, should age really count? Martin and Lorraine live less than 15 minutes away from each other in Bendigo. After experiencing weakness in their muscles, and noticing their arms and legs failing to move as they should, they were diagnosed with MND. Diagnosed just 13 months apart, they were both told that this disease will progressively take their movement, their speech, and t...
The Great MND Relay 2025 | #MakeItMatter
Переглядів 1242 місяці тому
The Great MND Relay is BACK in 2025! Join us at our biggest event of the year, where 1000 families, fitness enthusiasts and MND community supporters will come together for an epic day at Lakeside Stadium, Albert Park. Whether you run, walk or roll, you'll be acknowledging the 2.5-year average life expectancy after an MND diagnosis. Every step, every lap and every dollar counts, as we unite at L...
Shut Up! For MND 2024 | Take on the Challenge!
Переглядів 685 місяців тому
Go without your voice to support those who have lost theirs to motor neurone disease (MND) 💙 Choose to give up speaking for 6 or 12 hours in the week of 16 - 22 September to help raise awareness and funds for people living with MND now. Are you up for the Challenge? Sign up for free today: www.shutupformnd.org.au
A Letter to Dad | Amy's Letter
Переглядів 5556 місяців тому
Amy lost her dad, Michael, to MND over five years ago. A lot has changed since he passed, but his memory still lives on. Michael was a great influence in Amy's life, so much so that she is now dedicating her career to helping people just like him by leading the Equipment Service at MND Victoria. Amy has written a letter to her dad updating him on everything he's missed in the past five years. P...
The Great MND Relay 2024 Wrap Up
Переглядів 9726 місяців тому
We're thrilled to share some inspiring and exciting moments caught on camera from The Great MND Relay this year! 🤩 We couldn't have wished for a more spectacular day to take on the 251 minute challenge at the beautiful Lakeside Stadium, Albert Park on Saturday 27 April. We're incredibly grateful to everyone who came along on the day, those who participated in the Virtual Challenge, and everyone...
A Letter to Dad | Sarah's Letter
Переглядів 3327 місяців тому
Sarah lost her dad, Graham, to MND eight years ago. A lot has changed since he passed, but his memory still lives on. His death ignited a fire within Sarah, inspiring her to help others whose lives have also been rocked by MND. Sarah now works as an MND Advisor and Support Coordinator, supporting people from the beginning to the very end of their MND journey. Sarah has written a letter to her d...
A Letter to Dad | Daniel's Letter
Переглядів 2418 місяців тому
Daniel lost his dad, Geoff, to MND five years ago. A lot has changed since he passed, but his memory still lives on. Daniel continues to honour Geoff's legacy by using his position at MND Victoria to help support so many people and their families going through what his dad and family did. Daniel has written a letter to his dad updating him on everything he's missed in the past five years. Pleas...
A Letter to Dad | MND Victoria's 2024 Tax Appeal
Переглядів 5418 місяців тому
A Letter to Dad | MND Victoria's 2024 Tax Appeal
'Support, Care & Love' - Bruce and Natalie's Story | MND Victoria's 2023 Christmas Appeal
Переглядів 2,1 тис.Рік тому
'Support, Care & Love' - Bruce and Natalie's Story | MND Victoria's 2023 Christmas Appeal
Shut Up! To Support People Like Carolyn
Переглядів 972 роки тому
Shut Up! To Support People Like Carolyn
Dear Lorraine, Thank you for being so honest. Keep painting. I pray that you get more care. I agree with you. Elaine 💕🙏🏻
Sad death. He is an example of anyone with the depth of understanding of who and what runs this world, are being assassinated by the many tools if the. Cabal... God bless our God Jesus, heavenly Father - the HOLY SPIRIT, who are coming to end all governments and to bring justice for His people.
So, so very sorry. It’s a horrible disease
Good on you Sarah, it wouldn’t be an easy job but your Dad would be proud of you, I’m very sure of it.
Good on you Amy, your Dad would be proud. Typical Aussie bloke RIP Michael.
Oh man thats hard Amy. All the very best going forward.
May Allah bless you both Ameen!!
I’m so sorry.
The connection and love between Amy and Simon is beautiful. They speak to each other without words, and when they look at each other during the interview, they look with their whole hearts. I wish them well.
A hoyer lift and bidet toilet are indispensable. ❤
Slam brother just listen to Quran all the time inshallah you can get better soon inshallah
Passed away 2023
New here God bless you.
What a beautiful couple ❤pls update us on how Khairul is doing ?
He is no more, its been 2years
I'm going to say it once only. Panacur dog dewormer or any other brand containing fenbendazole has cure many people from cancer. Take it or leave it.
Beautiful family. God bless you all ❤❤❤❤xxxx🙏🙏🙏🙏
I my heart goes 💔 out to you and your wife your family I pray for you that the Father give you the strength and courage and faith 🙏 to endure what you are going through I pray He helps you with your pain and struggles you are going through that GOD GIVES YOU EVERYTHING YOU NEED .JESUS THREW THE HOLY SPIRIT IS WITH YOU ,STAY STRONG IN THY FAITH FOR YOU ARE A CHILD OF GOD AND HE LOVES YOU. HE SAID I WILL NEVER LEAVE NOR FORSAKE YOU I HAVE YOU IN MY THOUGHTS AND PRAYER❤ YOUR FIGHTING THE GOOD FIGHT ❤
😢🙏💕
Worked with these 2 legends for years. The lives they saved is immeasurable. Stay strong.
Worked alongside both these wonderful gentlemen for many years. Just heartbreaking.
Always heart breaking to see people diagnosed but there's always help to make everyday counts
MND support group are excellent.
I am praying for you. This condition is Known as ALS in the country I live in. We hope we will find a cure soon. Remember God is the God of the impossible, seek him he will reward you. Put your trust and faith in God, he is your helper. He is faithful. Praise the Lord
🤩 promo sm
Do you also support people with MND from other countries?
Hi @laylihamida807. Only people who live in Victoria, Australia are eligible for our services. Many other countries have their own MND/ALS associations who provide care and support to their residents.
anyone know his latest update?
Passed away June 2023
God bless you
It breaks my heart such a cruel disease destroys so many people, and one of them was my husband, which I can never recover after his death, my heart bleeds continuously😢
Beautiful story and genuine compassion of the interviewer. Such an unfair and awful disease.
❤
God bless him
May God bless you with a happy long life
May Allah guide through your journey and grant you jannat.
Just not yet, he’s so young and they appear so much in love.
@@annettehenry2083he is no more, its been two years
Lovely couple, so wish this horrible disease can be cured.
Bless you both my heart goes out to you ❤
My best wishes to you and your wife.
So sad so unfair.
i miss you dave you were a great uncle
Prayers
So unfair and cruel.
Prayers
Wonderful couple. Just so unfair.
May god bless him for recovery
Allah plz help
Jehovah god found in psalms 83:18 is the almighty
I wish him and his wife the best. What a personable and smart person he his and really brave. With best wishes from Germany
Passed away June 2023 😢
@@thres34All I have to say about that is at least he’s not suffering any more. Bloody awful disease, especially for all these really young people who seem to be coming far more common. All the very best to his widow. I cannot imagine how hard it was and is for her….
What a lovely upbeat man, they appear to be so happy together, I hope there is some sort of medical advance that comes in time to help you.
PRAYERS" LOVE" BLESSINGS "
A fantastic episode of Zooming with Dan! It's a privilege to work with you, Peter!
MND Victoria provide an amazing service to people with MND. No other agency provides this type of support specifically for people with MND. Liz is a great Advisor who is very dedicated to supporting the people with whom she works
Poor guy. I know what he means about being fatigued from lack of breathing capacity. I have had issues for many months with breathing even though never smoked and get very fatigued doing hardly anything in the garden. I thought I may have had MND as I started falling over several times a day and dropping things because of weak limbs but 5 years on I fall over less. This was a great relief and I can still work driving my semi trailer.