MND Victoria
MND Victoria
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Community Access
The following information resources are designed to help people living with MND to get out and about in the local community and visit local attractions.
Переглядів: 97

Відео

Travelling with MND
Переглядів 1355 годин тому
MND Victoria is mindful that everyone’s experience of MND is different and not all people are able to travel interstate or overseas. This video is designed to help people living with MND who are planning travels.
Lorraine's Story | Treat Age Equally
Переглядів 5921 день тому
Lorraine was diagnosed with MND at age 70. Because she was over 65 when she was diagnosed, she’s been placed on a My Aged Care plan, which doesn’t come close to covering the level of care and support she currently requires. People under 65 diagnosed with MND have access to NDIS, meaning they have an average of $300,000 worth of government-funded support each year. Lorraine, on My Aged Care, onl...
Managing Comfort in Bed | MND | Carers Can Project
Переглядів 85Місяць тому
Comfort in bed is highly individualised and may change over time for those living with MND. Challenges such as reduced mobility, unsuitable bedding, and communication difficulties can affect rest, but there are many practical strategies to help. From adjusting pillows and temperature to upgrading mattresses and using supportive equipment, small changes can make a big difference. The "Managing C...
Managing Fatigue | MND | Carers Can Project
Переглядів 122Місяць тому
Fatigue can be a challenge for some people living with MND. It’s important to remember that everyone’s experience is unique, and it can vary greatly from person to person. The "Managing Fatigue" video covers the following information regarding fatigue management: - Why someone with MND may have fatigue - The difference between fatigue and tiredness - Simple strategies to try in the beginning to...
Taking Care of the Carer | MND | Carers Can Project
Переглядів 187Місяць тому
Caring for someone with MND is a journey that influences both the carer and the person living with MND. Self-care is essential, not indulgent. It’s about recharging so you can continue to provide the best support. The "Taking Care of the Carer" video covers the following information regarding self-care and reducing carer burnout risk: - Discussing the invaluable role carers play - Strategies to...
Managing Eating & Swallowing Changes | MND | Carers Can Project
Переглядів 80Місяць тому
Eating difficulties in MND can arise for many different reasons and may impact appetite, swallowing, and overall nutrition. Early signs - like prolonged chewing or coughing during meals - highlight the need for proactive management. The "Managing Eating & Swallowing Changes" video covers the following information regarding changes to communication: - Why someone with MND may experience changes ...
Managing Communication Changes | MND | Carers Can Project
Переглядів 47Місяць тому
Communication changes are unique to each person living with MND and may evolve over time, impacting speech and social interactions. These challenges can affect relationships and participation in daily activities, but there are strategies to help. The "Communication Changes" video covers the following information regarding changes to communication: - Why someone with MND may experience changes t...
When Would You Stop Caring? | Treat Age Equally
Переглядів 131Місяць тому
When it comes to care, should age really count? Martin and Lorraine live less than 15 minutes away from each other in Bendigo. After experiencing weakness in their muscles, and noticing their arms and legs failing to move as they should, they were diagnosed with MND. Diagnosed just 13 months apart, they were both told that this disease will progressively take their movement, their speech, and t...
The Great MND Relay 2025 | #MakeItMatter
Переглядів 1242 місяці тому
The Great MND Relay is BACK in 2025! Join us at our biggest event of the year, where 1000 families, fitness enthusiasts and MND community supporters will come together for an epic day at Lakeside Stadium, Albert Park. Whether you run, walk or roll, you'll be acknowledging the 2.5-year average life expectancy after an MND diagnosis. Every step, every lap and every dollar counts, as we unite at L...
Shut Up! For MND 2024 | Take on the Challenge!
Переглядів 685 місяців тому
Go without your voice to support those who have lost theirs to motor neurone disease (MND) 💙 Choose to give up speaking for 6 or 12 hours in the week of 16 - 22 September to help raise awareness and funds for people living with MND now. Are you up for the Challenge? Sign up for free today: www.shutupformnd.org.au
A Letter to Dad | Amy's Letter
Переглядів 5556 місяців тому
Amy lost her dad, Michael, to MND over five years ago. A lot has changed since he passed, but his memory still lives on. Michael was a great influence in Amy's life, so much so that she is now dedicating her career to helping people just like him by leading the Equipment Service at MND Victoria. Amy has written a letter to her dad updating him on everything he's missed in the past five years. P...
The Great MND Relay 2024 Wrap Up
Переглядів 9726 місяців тому
We're thrilled to share some inspiring and exciting moments caught on camera from The Great MND Relay this year! 🤩 We couldn't have wished for a more spectacular day to take on the 251 minute challenge at the beautiful Lakeside Stadium, Albert Park on Saturday 27 April. We're incredibly grateful to everyone who came along on the day, those who participated in the Virtual Challenge, and everyone...
A Letter to Dad | Sarah's Letter
Переглядів 3327 місяців тому
Sarah lost her dad, Graham, to MND eight years ago. A lot has changed since he passed, but his memory still lives on. His death ignited a fire within Sarah, inspiring her to help others whose lives have also been rocked by MND. Sarah now works as an MND Advisor and Support Coordinator, supporting people from the beginning to the very end of their MND journey. Sarah has written a letter to her d...
A Letter to Dad | Daniel's Letter
Переглядів 2418 місяців тому
Daniel lost his dad, Geoff, to MND five years ago. A lot has changed since he passed, but his memory still lives on. Daniel continues to honour Geoff's legacy by using his position at MND Victoria to help support so many people and their families going through what his dad and family did. Daniel has written a letter to his dad updating him on everything he's missed in the past five years. Pleas...
A Letter to Dad | MND Victoria's 2024 Tax Appeal
Переглядів 5418 місяців тому
A Letter to Dad | MND Victoria's 2024 Tax Appeal
Shane and Bryan's Story
Переглядів 2,4 тис.9 місяців тому
Shane and Bryan's Story
The Great MND Relay 2023 Wrap Up
Переглядів 1,4 тис.9 місяців тому
The Great MND Relay 2023 Wrap Up
The Great MND Relay 2024
Переглядів 56810 місяців тому
The Great MND Relay 2024
'Support, Care & Love' - Bruce and Natalie's Story | MND Victoria's 2023 Christmas Appeal
Переглядів 2,1 тис.Рік тому
'Support, Care & Love' - Bruce and Natalie's Story | MND Victoria's 2023 Christmas Appeal
Who is MND Victoria?
Переглядів 1,2 тис.Рік тому
Who is MND Victoria?
Shut Up! For MND | Sofia Levin
Переглядів 329Рік тому
Shut Up! For MND | Sofia Levin
Amy's Story
Переглядів 10 тис.Рік тому
Amy's Story
The Great MND Relay 2023
Переглядів 358Рік тому
The Great MND Relay 2023
The Beauty of the Larapinta Trail
Переглядів 702 роки тому
The Beauty of the Larapinta Trail
Trekking Larapinta 2022
Переглядів 1272 роки тому
Trekking Larapinta 2022
Shut Up! To Support People Like Carolyn
Переглядів 972 роки тому
Shut Up! To Support People Like Carolyn
The Great MND Relay Wrap Up
Переглядів 2192 роки тому
The Great MND Relay Wrap Up
Trevor's Story
Переглядів 3,2 тис.2 роки тому
Trevor's Story
Anne's Story
Переглядів 2,8 тис.2 роки тому
Anne's Story

КОМЕНТАРІ

  • @elainerobertson1988
    @elainerobertson1988 23 дні тому

    Dear Lorraine, Thank you for being so honest. Keep painting. I pray that you get more care. I agree with you. Elaine 💕🙏🏻

  • @RonaldrubynDominguez
    @RonaldrubynDominguez 3 місяці тому

    Sad death. He is an example of anyone with the depth of understanding of who and what runs this world, are being assassinated by the many tools if the. Cabal... God bless our God Jesus, heavenly Father - the HOLY SPIRIT, who are coming to end all governments and to bring justice for His people.

  • @fernemcallister6774
    @fernemcallister6774 4 місяці тому

    So, so very sorry. It’s a horrible disease

  • @NJSMKMMS
    @NJSMKMMS 6 місяців тому

    Good on you Sarah, it wouldn’t be an easy job but your Dad would be proud of you, I’m very sure of it.

  • @NJSMKMMS
    @NJSMKMMS 6 місяців тому

    Good on you Amy, your Dad would be proud. Typical Aussie bloke RIP Michael.

  • @NJSMKMMS
    @NJSMKMMS 6 місяців тому

    Oh man thats hard Amy. All the very best going forward.

  • @anna-sq6st
    @anna-sq6st 6 місяців тому

    May Allah bless you both Ameen!!

  • @fernemcallister6774
    @fernemcallister6774 6 місяців тому

    I’m so sorry.

  • @lauranorwar
    @lauranorwar 6 місяців тому

    The connection and love between Amy and Simon is beautiful. They speak to each other without words, and when they look at each other during the interview, they look with their whole hearts. I wish them well.

  • @jntb3000
    @jntb3000 7 місяців тому

    A hoyer lift and bidet toilet are indispensable. ❤

  • @sanadarwish843
    @sanadarwish843 7 місяців тому

    Slam brother just listen to Quran all the time inshallah you can get better soon inshallah

    • @thres34
      @thres34 6 місяців тому

      Passed away 2023

  • @belindascountryliving
    @belindascountryliving 7 місяців тому

    New here God bless you.

  • @fatehabegum7210
    @fatehabegum7210 8 місяців тому

    What a beautiful couple ❤pls update us on how Khairul is doing ?

  • @whitemandarin2043
    @whitemandarin2043 8 місяців тому

    I'm going to say it once only. Panacur dog dewormer or any other brand containing fenbendazole has cure many people from cancer. Take it or leave it.

  • @holliethomson6147
    @holliethomson6147 8 місяців тому

    Beautiful family. God bless you all ❤❤❤❤xxxx🙏🙏🙏🙏

  • @dianalarkin9892
    @dianalarkin9892 8 місяців тому

    I my heart goes 💔 out to you and your wife your family I pray for you that the Father give you the strength and courage and faith 🙏 to endure what you are going through I pray He helps you with your pain and struggles you are going through that GOD GIVES YOU EVERYTHING YOU NEED .JESUS THREW THE HOLY SPIRIT IS WITH YOU ,STAY STRONG IN THY FAITH FOR YOU ARE A CHILD OF GOD AND HE LOVES YOU. HE SAID I WILL NEVER LEAVE NOR FORSAKE YOU I HAVE YOU IN MY THOUGHTS AND PRAYER❤ YOUR FIGHTING THE GOOD FIGHT ❤

  • @judymcgowan2881
    @judymcgowan2881 8 місяців тому

    😢🙏💕

  • @email6557
    @email6557 9 місяців тому

    Worked with these 2 legends for years. The lives they saved is immeasurable. Stay strong.

  • @juliebackas3255
    @juliebackas3255 9 місяців тому

    Worked alongside both these wonderful gentlemen for many years. Just heartbreaking.

  • @tracyhe7636
    @tracyhe7636 9 місяців тому

    Always heart breaking to see people diagnosed but there's always help to make everyday counts

  • @jacobgeorge8273
    @jacobgeorge8273 9 місяців тому

    MND support group are excellent.

  • @sylivia-p8e
    @sylivia-p8e 9 місяців тому

    I am praying for you. This condition is Known as ALS in the country I live in. We hope we will find a cure soon. Remember God is the God of the impossible, seek him he will reward you. Put your trust and faith in God, he is your helper. He is faithful. Praise the Lord

  • @markleblanc6590
    @markleblanc6590 Рік тому

    🤩 promo sm

  • @laylihamida807
    @laylihamida807 Рік тому

    Do you also support people with MND from other countries?

    • @mnd_vic
      @mnd_vic Рік тому

      Hi @laylihamida807. Only people who live in Victoria, Australia are eligible for our services. Many other countries have their own MND/ALS associations who provide care and support to their residents.

  • @sabihazabin8043
    @sabihazabin8043 Рік тому

    anyone know his latest update?

    • @thres34
      @thres34 6 місяців тому

      Passed away June 2023

  • @DEEPAKKUMAR-xq7vb
    @DEEPAKKUMAR-xq7vb Рік тому

    God bless you

  • @melaniebail
    @melaniebail Рік тому

    It breaks my heart such a cruel disease destroys so many people, and one of them was my husband, which I can never recover after his death, my heart bleeds continuously😢

  • @dpatrick2071
    @dpatrick2071 Рік тому

    Beautiful story and genuine compassion of the interviewer. Such an unfair and awful disease.

  • @sniperreddragon2782
    @sniperreddragon2782 Рік тому

  • @nikhilchotara9168
    @nikhilchotara9168 Рік тому

    God bless him

  • @RupanjaliHazarika
    @RupanjaliHazarika Рік тому

    May God bless you with a happy long life

  • @parvinsultana2596
    @parvinsultana2596 Рік тому

    May Allah guide through your journey and grant you jannat.

  • @fernemcallister6774
    @fernemcallister6774 Рік тому

    Lovely couple, so wish this horrible disease can be cured.

  • @gloriawaters1455
    @gloriawaters1455 Рік тому

    Bless you both my heart goes out to you ❤

  • @cassn8725
    @cassn8725 Рік тому

    My best wishes to you and your wife.

  • @njsmkmmsthatsit3518
    @njsmkmmsthatsit3518 2 роки тому

    So sad so unfair.

  • @cadencesteele8416
    @cadencesteele8416 2 роки тому

    i miss you dave you were a great uncle

  • @thresiammajose6384
    @thresiammajose6384 2 роки тому

    Prayers

  • @wendyqallab6906
    @wendyqallab6906 2 роки тому

    So unfair and cruel.

  • @lorenmol9071
    @lorenmol9071 2 роки тому

    Prayers

  • @MDSamim-ny5ph
    @MDSamim-ny5ph 2 роки тому

    Allah plz help

  • @cornelia3048
    @cornelia3048 2 роки тому

    I wish him and his wife the best. What a personable and smart person he his and really brave. With best wishes from Germany

    • @thres34
      @thres34 6 місяців тому

      Passed away June 2023 😢

    • @NJSMKMMS
      @NJSMKMMS 6 місяців тому

      @@thres34All I have to say about that is at least he’s not suffering any more. Bloody awful disease, especially for all these really young people who seem to be coming far more common. All the very best to his widow. I cannot imagine how hard it was and is for her….

  • @annettehenry2083
    @annettehenry2083 2 роки тому

    What a lovely upbeat man, they appear to be so happy together, I hope there is some sort of medical advance that comes in time to help you.

  • @debraouellettr3709
    @debraouellettr3709 2 роки тому

    PRAYERS" LOVE" BLESSINGS "

  • @thelensproductioncompany7571
    @thelensproductioncompany7571 3 роки тому

    A fantastic episode of Zooming with Dan! It's a privilege to work with you, Peter!

  • @kathynightingale3435
    @kathynightingale3435 4 роки тому

    MND Victoria provide an amazing service to people with MND. No other agency provides this type of support specifically for people with MND. Liz is a great Advisor who is very dedicated to supporting the people with whom she works

  • @bornfree7788
    @bornfree7788 5 років тому

    Poor guy. I know what he means about being fatigued from lack of breathing capacity. I have had issues for many months with breathing even though never smoked and get very fatigued doing hardly anything in the garden. I thought I may have had MND as I started falling over several times a day and dropping things because of weak limbs but 5 years on I fall over less. This was a great relief and I can still work driving my semi trailer.