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PWS Australia
Australia
Приєднався 28 кві 2015
We are a small not-for-profit support group that provides awareness, education and support to enhance the quality of life of people living with Prader-Willi Syndrome and their families. Our website is www.pws.org.au.
We're on Facebook (PWS Australia) and Instagram @go_orange_for_pws.
We're on Facebook (PWS Australia) and Instagram @go_orange_for_pws.
Prader-Willi Syndrome - What does it all mean?
Prader-Willi Syndrome - What does it all mean?
Переглядів: 3 199
Відео
Unique Behavioral Features of Prader-Willi Syndrome.
Переглядів 1,1 тис.6 років тому
Unique Behavioral Features of Prader-Willi Syndrome.
Newborn Diagnosis
Переглядів 8847 років тому
Informative video for medical and allied health professionals to raise awareness of PWS, outlining common traits to look for when considering a diagnosis. Early diagnosis is critical, enabling therapeutic and medical plans to be put in place.
PWS - Beyond a Diet
Переглядів 4577 років тому
This video speaks about the role and relationship of a dietician in supporting a person with Prader-Willi Syndrome. Produced by the PWS Association of Australia, with funding from the National Disability Insurance Scheme (NDIS).
PWS - The Medical Perspective
Переглядів 2817 років тому
This video provides advice for doctors who are caring for a patient with Prader-Willi Syndrome. Produced by the PWS Association of Australia, with funding from the National Disability Insurance Scheme (NDIS).
First steps to understanding and managing Prader-Willi Syndrome (PWS)
Переглядів 5407 років тому
This video provides an overview of PWS. It outlines the causes and characteristics, plus the many health and wellbeing issues associated with PWS. This resource is designed for those who support people who have PWS. Supporters include medical professionals, allied health professionals, residential and day program support staff and other workers. The information and practical advice will help th...
Learning with Prader-Willi Syndrome
Переглядів 3,9 тис.8 років тому
A special education teacher, experienced with Prader-Willi Syndrome (PWS) explains some of the characteristic behaviours relevant to a classroom situation. Useful management techniques are described to help children and young people gain skills for social interactions and greater independence. Funded by the National Disability Insurance Scheme (NDIS), Australia.
Sleep Complications ASSOC PROF G NIXON
Переглядів 469 років тому
Sleep Complications ASSOC PROF G NIXON
Complications of Obesity DR T OMOORE SULLIVAN
Переглядів 839 років тому
Complications of Obesity DR T OMOORE SULLIVAN
The Prader-Willi Syndrome Oxytocin Anomaly PROF S EINFELD
Переглядів 2389 років тому
The Prader-Willi Syndrome Oxytocin Anomaly PROF S EINFELD
Growth Hormones for infants DR E SCHEERMEYER
Переглядів 809 років тому
Growth Hormones for infants DR E SCHEERMEYER
Overview of PWS including Phenotypes J FORD
Переглядів 909 років тому
Overview of PWS including Phenotypes J FORD
Bariatric Surgery for People with PWS PROF G WITTERT
Переглядів 1969 років тому
Bariatric Surgery for People with PWS PROF G WITTERT
Welcome and Conference Open T PERCEVAL T MAGUIRE
Переглядів 959 років тому
Welcome and Conference Open T PERCEVAL T MAGUIRE
Growth Hormones for adults ASSOC PROF C HOYBYE
Переглядів 299 років тому
Growth Hormones for adults ASSOC PROF C HOYBYE
Growth Hormones for children ASSOC PROF P HOFMAN
Переглядів 999 років тому
Growth Hormones for children ASSOC PROF P HOFMAN
Insulin-mediated signalling pathway is defective in primary fibroblasts DR E FORTUNATI
Переглядів 299 років тому
Insulin-mediated signalling pathway is defective in primary fibroblasts DR E FORTUNATI
Paravertebral muscles and scoliosis in PWS DR N MURAKAMI
Переглядів 1869 років тому
Paravertebral muscles and scoliosis in PWS DR N MURAKAMI
PWS Genetic Subtypes and Clinical Neuropsychiatric diagnoses DR N WEISENSEL
Переглядів 839 років тому
PWS Genetic Subtypes and Clinical Neuropsychiatric diagnoses DR N WEISENSEL
Living with an adult with PWS Part 1 H ANDERSON
Переглядів 1569 років тому
Living with an adult with PWS Part 1 H ANDERSON
Housing and Accomodation 02 K MCNAMARA
Переглядів 369 років тому
Housing and Accomodation 02 K MCNAMARA
Inclusion in a mainstream school S HIGGINS
Переглядів 1349 років тому
Inclusion in a mainstream school S HIGGINS
Housing and Accomodation 04 C ADAMS VINING 1
Переглядів 409 років тому
Housing and Accomodation 04 C ADAMS VINING 1
My sister has PDS and she will turn 40 this year. My sister is blessed to have my parents.
Such a good 'first' video - so well presented! Well done!
I don’t have PWS. But I do have optic nerve hypoplasia associated with panhypopituitarism, which is how I have hypothalamic obesity. I don’t have any lesions are tumors in the hypothalamus. But that my hypothalamus is Ectopic. Have you ever looked at results with the sleeve gastrectomy for patients with PWS?
Has to be sleeve gastrectomy and saxenda or ozempic.
Very informative. Thank you.
I have only just recently heard bout this syndrome .. And was wondering if people gravitate towards the same types of food ?? I mean such as carbs or high sugar or salt ?. Is their bodies craving a particular protein or something ?. I couldn't help but notice on the videos I have seen when the kids did manage to get into a pantry carbs seemed to always be on the list .. Anyways thanks for the information. I learnt a lot .
Fantastic presentation Erin ! Congratulations we're very proud of you. Marj and Schimma
por que todo en ingles avemos latinos solo abla hispana y que no somos importantes ni siquiera se puede subtitular a el español......