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Chaos, Love and Multiple Sclerosis
Приєднався 31 сер 2021
This channel is about my journey with #multiplesclerosis.
Not only having to find out wat it means, but also having to experience how it will affect my life and those of my loved ones.
Being a 34 year old husband and father of 3 boys aged 13, 4 and 2, this should be a time of my life where I am settled and comfortable with who I am and what I have become, but this is not the case. Multiple Sclerosis is pushing me to get to know myself again and see the world and other people in a different light.
I hope that you will enjoy this journey with me and that it will be helpful with whatever it is you may find yourself in.
The WORST part for me is the ADJUSTMENT to my new life.
Not only having to find out wat it means, but also having to experience how it will affect my life and those of my loved ones.
Being a 34 year old husband and father of 3 boys aged 13, 4 and 2, this should be a time of my life where I am settled and comfortable with who I am and what I have become, but this is not the case. Multiple Sclerosis is pushing me to get to know myself again and see the world and other people in a different light.
I hope that you will enjoy this journey with me and that it will be helpful with whatever it is you may find yourself in.
The WORST part for me is the ADJUSTMENT to my new life.
Multiple Sclerosis and memory loss
MS is beginning to scare me. I am finding it very challenging to navigate through these uncertainties
Переглядів: 302
Відео
Depression and MS_ Multiple Sclerosis Awareness
Переглядів 2652 роки тому
It is never easy to open up and be vulnerable, but if that doesn't happen, how else will we grow? I find it difficult to describe how it is living with MS, but I hope that video is helpful to someone in some way. #ms #multiplesclerosis #chaosloveandMS #depression #denial
Lesions are getting smaller_Multiple Sclerosis
Переглядів 3972 роки тому
We are still really trying to figure out what that means for us a family and for me as an individual, but we are taking it one day, one moment at a time. MS is a very unpredictable condition that leaves you with mixed emotions (most of the time) and the adjustment is often the hardest part. I really hope that this video is helpful in some way. #MS #Multiplesclerosis #chronicillness
Anxiety and MS - I sometimes don't want to be around people
Переглядів 2762 роки тому
It is really not easy for me to navigate through these changes, because it is the total opposite of what I am used to. I sincerely hope that this video is helpful in some way! #chaosloveandMS #anxiety #multiplesclerosis #ms
Just a sincere thank you to EVERYONE!!!!
Переглядів 1642 роки тому
I hope I'm making sense and I hope that this video is helpful in some way! #chaosloveandMS #multiplesclerosis #MS
Insecurities and MS_Multiple Sclerosis
Переглядів 4002 роки тому
I have developed new insecurities because of the affect of my symptoms. But the knowledge of what I am going through, does not take away the reality thereof. This is a tough journey that can sometimes make you feel alone and I can see how a loss or traumatic experience can break families. I am grateful to have a support structure with individuals who intentionally want to be there. Please share...
Am I losing my mind? - Multiple Sclerosis
Переглядів 1 тис.3 роки тому
How do I deal with the unpredictability of this disease? You never know what to expect and you never know when to expect it. This is me today (10 Nov 2021), a hour before my son's open day at school, but I promise you, there is no way that I am going to miss it. MS has my body, but not my spirit! I hope that this video is helpful in some way. #multiplesclerosis #MS #chaosloveandMS
We are planning a #walkforMS (Atlantis - Saldanha) - Multiple Sclerosis
Переглядів 3393 роки тому
I am not sure if I'll be able to complete this walk, but I know that I will give it my best! This is for everyone who is a #mswarrior! I am walking for those who lost the ability to walk due to MS and to raise funds for the MS society of South Africa. If you'd like to be a part of this initiative, please leave a comment. I hope that this walk will be helpful to the #MSsociety #chaosloveandMS #w...
"I was unable to move my legs..." - Multiple Sclerosis
Переглядів 7403 роки тому
Another bad day with MS. Things are getting more challenging by the day and as hard as it is, I am trying to not put too much strain on my body. Even typing this description is quite a task. I hope that this video is helpful in some way. #ms #multiplesclerosis #chaosloveandMS
I can't mix music and I can't express my feelings - MS
Переглядів 6053 роки тому
Multiple Sclerosis is an ongoing journey of rediscovering who I am turning into. Everything is slower than usual, which has its pro's and con's, but for most of my life (NOW) , I'm realising the importance of support and unconditional love. I hope that this video is helpful in some way :'( #multiplesclerosis #ms #chronicillness #chaosloveandMS
MS and Parenting - At the hospital with our son
Переглядів 5563 роки тому
Life goes on after the diagnosis. Yes, we obviously need to take time to deal with certain things, but on the other hand there responsibilities and obligations that need to be taken care of. I am intentional about being a present father and want my 3 boys to know that I will always be there for them. Having a life-altering condition is not easy and sometimes I feel like I'm going insane, but th...
Experiencing Memory Loss - Multiple Sclerosis
Переглядів 1,3 тис.3 роки тому
It is not very easy for me to expose myself to this extent, but I believe that people can only truly relate to AUTHENTICITY! This journey is turning my whole life upside down and I don't always know how to deal with my thoughts and emotions. I hope this this video is helpful in some way #multiplesclerosis #grief #emotions #chaosloveandMS #vulnerable
Wife told me to take a hike, after being diagnosed with MS
Переглядів 4023 роки тому
I know how it sounds, but that is exactly what happened. I went on my first hike after being diagnosed and it was not how expected it to be. I initially wanted to climb TABLE MOUNTAIN, but thankfully I have a wise and observing wife who knew that I would not have made. LOL I hope that this video is helpful in some way. Please like and subscribe to help raise awareness about this incurable, auto...
How my wife handles me and my MS
Переглядів 5823 роки тому
This is my wife Tamaryn. She is my biggest and best support(er). I really don't know how I'd get through this journey without her. I hope that this video is helpful in some way:) *The swing sound might be annoying to some but please TRY to concentrate on the content* #chaosloveandMS
"there's nothing negative about being REAL..." Multiple Sclerosis
Переглядів 3313 роки тому
I understand where the pressure is coming from, but it is sad that we are subtly forced to NOT be honest with ourselves and those around us. It is my desire to create a space for others to feel comfortable and accommodated for, when in my presence. I hope that this video is helpful is some way. #multiplesclerosis #safespace #support
Today is NOT a good day_ Multiple Sclerosis Symptoms
Переглядів 1,1 тис.3 роки тому
Today is NOT a good day_ Multiple Sclerosis Symptoms
In denial about Multiple Sclerosis (coming to terms with it all)
Переглядів 1,1 тис.3 роки тому
In denial about Multiple Sclerosis (coming to terms with it all)