John Carlin
John Carlin
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Episode 121 | Wade Tomlinson needed a lung transplant
Source:
www.podbean.com/eau/pb-zkxse-16c793a
The combination of Sarcoidosis and Covid proved too much for Wade Tomlinson. His lungs were wracked with damage from sarcoidosis. So when he got covid it was the punch his body couldn't handle and he needed to take drastic action. Wade got on several waiting lists for a lung transplant and then waited for the call. In episode 121 of the FSr Sarc Fighter Podcast, Wade recounts the moment the call came in and the series of events that led to him becoming a recipient. Let's just say it wasn't clear-cut. Listen in as Wade tell his story and brings up to date on how he is feeling six months after his surgery.
Also in this podcast -- FSR's Stephanie Mizell joins me for a quick explaination of the Foundation's most recent fundraiser!
Show Notes:
Sign up for FSR's 100-Mile Challenge: givp.nl/register/MGEluUUb
Wade's Go Fund Me: www.gofundme.com/f/support-wade-allie-medical-life-expenses?attribution_id=sl:1bcda970-9100-46d6-884b-82c1a3ee4239&
Support Mark Steier's wife, Caeleigh: stopsarcoidosis.rallybound.org/2024-team-rally-for-sarc/Team/View/193889/Team-Sarc-Mark
MORE FROM JOHN:
Cycling with Sarcoidosis carlinthecyclist.com/category/cycling-with-sarcoidosis/
Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. stopsarcoidosis.rallybound.org/MarkSteier
The Foundation for Sarcoidosis Research www.stopsarcoidosis.org/
Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
My story on Television www.stopsarcoidosis.org/news-anchor-sarcoidosis/
email me carlinagency@gmail.com
Переглядів: 130

Відео

Episode 120 | Dr. Kamal Bharucha is a researcher who found himself a heartbeat away from real troubl
Переглядів 16Місяць тому
Source: www.podbean.com/eau/pb-cnm52-16aa8eb Dr. Kamal Bharucha is a Pediatrician-Scientist, Clinical Development Leader and Biotech Startup Advisor in the rare disease space. And suddenly he found himself dealing with a rare disease - sarcoidosis. He says he was feeling fine and went for a routine check-up and discovered everything was far from fine. Dr. Bharucha describes his journey through ...
Episode 119 | Jessica Soules deals with Neurosarcoidosis
Переглядів 122 місяці тому
Source: www.podbean.com/eau/pb-ikptm-1697a38 When it comes to sarcoidosis, one of the rarest forms is neurosarcoidosis or sarcoidosis in the nervous system. That's what Jessica Soules is dealing with. A long-time fitness instructor, sarc has taken the bounce out of her step. In addition, Jessica is trying to spread the message of another rare disease that claimed the life of a friend. In this e...
Episode 118 | Mark Steier -- Who wrote the Sarc Fighter theme song has an unpdate, and his wife Cael
Переглядів 153 місяці тому
Source: www.podbean.com/eau/pb-hssjx-1675e86 Zombie is the theme song for the FSR Sarc Fighter podcast. If you listen, you know. Shortly after I launched the podcast Mark Steier e-mailed me to say he had sarcoidosis and had written and recorded a song about it. I didn't expect much. But the song blew me away, and Mark quickly agreed to allow me to use it as the theme song. You've been hearing i...
Episode 117 | Renwick Brutus tried to write his own insurance policy. But sarcoidosis intervened.
Переглядів 143 місяці тому
Source: www.podbean.com/eau/pb-f3xq5-165ce81 Renwick Brutus has an unusual name and a story to match. He discovered he had sarcoidosis long ago now he's working through the disease and its complications. Including the time doctors were ready to perform surgery on his brain only to... Well, I'll let Renwick finish the story. Donate to Royce and Cycle4sarc: stopsarcoidosis.rallybound.org/Team/Vie...
Episode 116 | Xentria has a drug - XTMAB-16 that shows promise in fighting Sarcoidosis
Переглядів 283 місяці тому
Source: www.podbean.com/eau/pb-gzv86-164c42f XTMAB-16, a drug now in clinical trials has been developed by Xentria. In this episode of the FSR Sarc Fighter podcast, Noopur Singh, Vice President of marketing & Patient Affairs, and Tom Matthews, Vice President for Clinical Development join me to explain how XTMAB-16 works in the body as a "referee" to control our body's immune responses. Listen i...
Episode 115 | Sarc Fighter Andrea Maione has both sarcoidosis and long COVID. It's no party.
Переглядів 364 місяці тому
Source: www.podbean.com/eau/pb-f8vvr-163139c In Episode 115 of the Sarc Fighter Podcast, Andrea Maione fights to keep things going as she deals with the aftermath of the pandemic while dealing with the increasing onset of Sarcoidosis symptoms. Show Notes Participate in the aTyr Clinical Trial: bit.ly/3EUOxNq More on the Efzofitimod study: sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmo...
Episode 114 | Influencer Jonathan Carlin uses YouTube and other social media for an FSR Fundraiser
Переглядів 225 місяців тому
Source: www.podbean.com/eau/pb-zdgsa-16193ab In Episode 114 of the FSR Sarc Fighter Podcast, a member of the Super Carlin Brothers shares how he is using his significant social media presence to raise money for the Foundation for Sarcoidosis Research. Yes, that's Carlin the same name as mine. In this case it's my oldest son Jonathan whose UA-cam channel has more than 2-million subscribers. Add ...
Episode 113 | Kinevant Sciences makes progress with its drug Namilumab
Переглядів 225 місяців тому
Source: www.podbean.com/eau/pb-bhzen-1600516 In Episode 113 of the FSR Sarc Fighter podcast, John is joined by Kinevant Sciences CEO Bill Gerhart and the Senior Director of Patient Advocacy Rayne Rodgers. The team at Kinevant is excited to share the news of the progress they are making with their drug, Namilumab as a potential new therapy for sarcoidosis patients. SHOW NOTES Kinevant Sciences: ...
Episode 112 | ATyr is getting closer to a new drug to fight sarcoidosis.
Переглядів 1026 місяців тому
Source: www.podbean.com/eau/pb-ppxiq-15ef45a Joining me today on the FSr Sarc Fighter Podcast is Sanjay Shukla, CEO of aTyr Pharma. Sanjay returns to the podcast with a promising update on Efzofitimod, the most promising candidate to become the first drug developed specifically to fight sarcoidosis. Sanjay joins the podcast from Brazil, just one of the countries around the world, where the drug...
Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!
Переглядів 196 місяців тому
Source: www.podbean.com/eau/pb-5g6c8-15d5928 Episode 111 is a special episode of the FSR Sarc Fighter podcast. It's sarcoidosis awareness month and the folks who are fighting for us at FSR want to get the word out. So Angela O'Malley and Cathi Davis join me for the show to talk about how they are working behind the scenes to get people to "Say Sarcoidosis." But also on the show is fellow sarc f...
Episode 110 | Walgreens is helping to fight Sarcoidosis
Переглядів 86 місяців тому
Source: www.podbean.com/eau/pb-mxrwr-15c0244 In this Episode of the Sarc Fighter podcast, we learn how Walgreens is making Sarcoidosis a priority for its customers. Not only is Walgreens doing a fundraiser for the Foundation for Sarcoidosis Research the chain is talking about the disease and spreading the word that sarcoidosis is out there, that patients need help, and that the disease needs to...
Episode 109 | Sarcoidosis has not been kind to Laura Runge-Gordon
Переглядів 377 місяців тому
Source: www.podbean.com/eau/pb-d5h25-15a66a8 In this episode of the FSr Sarc Fighter Podcast, Dr. Laura Runge-Gordon talks about how neurosarcoidosis crept into her life after years of misdiagnosis. She has seen every kind of complication you can imagine not to mention doing it all with a stressful job during the pandemic. Meanwhile, Royce Robertson returns with another ambitious fundraiser for...
Episode 107 | Mark Simbrowsky has a racing heart. Even when he's sitting still.
Переглядів 127 місяців тому
Source: www.podbean.com/eau/pb-nwbzi-1592cee Mark Simbrowsky is a big-time runner. He runs marathons. But Sarcoidosis said, "Not so fast." Mark suffers from cardiac sarcoidosis. He went from being the fittest person in the room to a hospital bed, and nobody knew why. Now after a long journey, he is returning to his old form but it hasn't been easy. This episode of the Sarc Fighter Podcast is pr...
Episode 106 | Rachelle DeMaria just wants to launch her life
Переглядів 108 місяців тому
Source: www.podbean.com/eau/pb-8tjem-157a9c1 Rachelle DeMaria lives in Colorado Springs, where the scenery is beautiful and as they say, life is worth living. Rachelle had just finished cosmetology school and was getting ready to open her business. Then one day something in her back didn't feel right. After exhaustive testing doctors diagnosed her with Sarcoidosis. Her diagnosis came at the hei...
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
Переглядів 328 місяців тому
Episode 105 | Perry Montoya has traveled the world, but now he's on a new journey.
Episode 104 | John Martin thought it was time to get his affairs in order.
Переглядів 209 місяців тому
Episode 104 | John Martin thought it was time to get his affairs in order.
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
Переглядів 139 місяців тому
Episode 102a | Sherron Fantauzzi Is fighting the good fight.
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
Переглядів 1510 місяців тому
Episode 102 | Sherron Fantauzzi Is fighting the good fight.
Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
Переглядів 1811 місяців тому
Episode 101 | Andy Lacher has sarcoidosis in his lungs and his heart. Put he’s pushing on.
Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
Переглядів 2211 місяців тому
Episode 100 | John Mockovciak is a caregiver and philospher when it comes to Sarcoidosis
How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis
Переглядів 1411 місяців тому
How to meet NY Yankees great Bernie Williams, and FSR’s Manny Lozano on the power of the sarcoidosis
Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
Переглядів 39Рік тому
Episode 98 | Dr. Nancy Lin is looking deep in our cells to find a way to diagnose Sarcoidosis
Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
Переглядів 15Рік тому
Episode 97 | Joel Rosen is fighting sarcoidosis and fighting for you at the same time.
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cau
Переглядів 34Рік тому
Episode 96 | How effective is methotrexate? And Royce braves the miles and the weather for your cau
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoid
Переглядів 21Рік тому
Episode 95 | FSR awards Dr. Christen Vagts $150,000 for critical research, and John puts his sarcoid
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc pat
Переглядів 24Рік тому
Episode 94 | Tony Haskel returns to the podcast after a rough few months. And do pulmonary Sarc pat
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Gu
Переглядів 26Рік тому
Episode 93 | John tests his Sarcoidosis on assignemt on the U.S.- Mexico border with the National Gu
Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
Переглядів 39Рік тому
Episode 92 | Researcher Dr. Stephen Tilley on where we got sarcoidosis
Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.
Переглядів 19Рік тому
Episode 91| Promise from a new drug - and diagnosing neurosarcoidosis is hard.