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Walmart has it- They even have the walmart brand for like 97 cent a piece

It's a Japanese product. I have used it before, it is nice. Thanks

I completely understand I'm going thru it 2

🌞sending you courage and thanks for sharing🌈

How do you deal with family that doesn't believe you have lupus? or the symptoms that make it hard to be more active ?

I had an easy time being diagnosed by blood work, wolf face rash, extreme shortness of breath, chest pain, extreme burning in fingertips and swollen, burning feet. BRAIN FOG. stabbing pain in one eye. I was relieved and happy that they knew what was wrong after labs and could treat me. Now it's been a year and anger, sadness and depression have taken over. The reality has set in that I will probably never be my old self ever again. Right now...I really don't know who I am.

praying things get better for you

hay

thank u so much it is so important to say it as it is we have to put on a brave face for family and friends at times it is relentless pain you go to bed with it and walk up with it, but look so well.

You touched my heart. God is gonna strengthen you. You finally are gonna get the help you need. I'm praying for you. I have recently been diahnosed with rheumatoid arthritis. I have my 1st appt with a rheumatologist tomorrow. People just don't understand what you have been going through. The best is yet to come for the both of us.

I was just diagnosed with lupus at the age of 10 and I am a boy who is white (witch is very rare) and I am lucky because there is a girl at school who has lupus and she's very pretty. I've known her my whole life and I'm gonna make my move soon before she's taken.

I had a 30cm ovarian tumor discovered in August of 2012. It 'ate' my uterus, and was borderline Ovarian Cancer. I absolutely understand what you're talking about, Hun. They took everything out in order to treat the cancer. Don't be embarrassed about what's happening in your body :) those of us who have gone through it not only understand, but won't judge. I know it's been a couple years since you posted this, and I can only hope that you're doing much better. I'm 38 now and fully plagued by menopause. I keep hope close to my heart...I hope and pray that the borderline cancer will not become something more. Hang in there, doll...I'll keep you in my thoughts and prayers. You're not alone!

It's hard, but as long as there is understanding arround you, you will overcome the bad days. I wish you strenght and many good days. It is almost spring, that helps if the cold stays away we feel some better i know it.

Awww your so young and cute! I like your attitude about lupus! Boy I hate this disease and what it does to young women like you. People like you are the reason why I speak up and speak out as an advocate for lupus awareness. Hope your having more good days then bad! Much Love and HUGS, Julie ps. Did anyone ever tell you that you look like Katie Holmes?

Thank you so much.. I really appreciate that. We will see what happens! If you havent seen my latest video, you should check out the news I shared!

It's such a good book! Let me know what you think of it!!

I hope you are going to be ok. I have had cyst on ovaries too. I know it's really painful. Good luck with everything

Excited to read this now!

Thank you <3

SO precious!

I know what you mean about letting chronic illness run your life and there are days where I know I can force myself out of the house, but lately I have been on my back with severe dizziness and severe fatigue. All I can do when I get that bad is rest but then I feel like a slug and so useless. How do get through those days?you

pooooooooossssssseeeerrrrrrr

I am so sorry that you are going through this, but hopefully your ultrasound will show nothing. I am praying for you, Steph, I really am. Just wondering, do you have Endometriosis? Also, have you been screened for Lyme's disease? I was just tested and it came back 'borderline' so they are retesting me. Lyme's can cause Lupus, MS, Fibromyalgia, SO many things. HANG IN THERE, okay? I'm hanging in too.

We haven't gone over it yet.. I have been through alot with this doctor so we keep in touch quite frequently.. about once or twice a week through email or the phone. I will let you know what she says when I talk to her next!

Yes, it's true.. I never quite understood it either but the way my rheumie explained it was that the reaction of lupus as a disease is like a peanut allergy. If you think about it this way, when a child eats an allergen, the body goes into overdrive to attack the substance. Our Lupus is one in the same.. Our body fights off itself because it sees it as a foreign invader;because our immune system is over actively attacking healthy cells,it cannot distinguish between foreign invaders like bacteria

I was just wondering because you seem to catch everything which would make sense if you were really immune supressed like I am. But I have heard that Lupus in general can do this as well which I've never understood since if our immune systems are overactive you'd think they'd fight off colds big time. lol I'm thinking of asking about Benlysta as well. I've hard it's good for fatigue and joint pain which sounds right up my alley. What did your Dr. say about it?

I'm so sorry you are going through this.. i wish none of us had to live another day in pain :( I will keep you in my thoughts until you get your results - be sure to let us know, ok! I do, I do.. I know it all too well.. I'll make sure to do a help video on how I get through the pain.. I'm no veteran yet, but I'd like to think that I've found some ways of coping with the crappy days. I will hopefully be posting 2 videos tonight, one of which I think you should watch.. it might help :) big hugs!

Thank you. I will look forward to that video. My CT is for a numb bottom left chin...and to look at my lymph in neck. So scared... :( Thank you for the feedback, Steph. I'm having a very, very bad day and I know you know what I mean. :(

Yes, it is true.. Low grade fevers are prevalent in Lupus patients - I've just never had it this bad and this frequent. You will have to let us know how your CT comes back. What was the CT scan done for? {in reply to one of your comments about your negative ANA, I'm going to do a video for you.. I think it will be easier to explain in a video than in a comment. Look for that video soon:)}

I have read on Lupus message boards that a lot of Lupies have this off and on. Mine are really bad right now...waiting on CT... :/

I have been taking anti-malarials.. I'm hoping that my rheumie starts me on some more once all of my bloodwork comes back. I also discussed the Benlysta infusions with my doctor.. there are so many options, we just need to find a cocktail that works best for my disease.

Yes, sometimes I do.. not all the time but I do get them. Is there a link between the two?

lol.. that's definitely another way to do it :) For me, it's just easiest to go into something small.. I can't imagine trying to fit that big container into the toilet.. That's why I love having this channel - we can all share our experiences and help one another!

Oh no.. seriously! I don't know why that's happening...I've put the link in my description for you guys :)

I know, right! He is constantly making me laugh.. I'm very lucky :)

Are you taking immune suppressing drugs Steph?

When I did mine I had to keep it in the fridge and I'd just go right into the bottle. The opening to the bottle was huge so there was no way of missing lol and I never had an issue.

I searched for your new channel and I couldn't find it.

Do you get swollen lymph in your neck? Chills?

Any feedback would be appreciated. I did a 24 hr. collection a while ago and my output was double normal range and my creatnine was elevated. This was when I was being screened to see if I had Cushing's years ago (did not have it). Now that I'm being screened for Lupus the thought came to me after watching this... I am wondering if this high output result has anything to do with Lupus? My ANA came back negative, but my SED rate was slightly elevated. Also checked 4 Lyme, said 'borderline'.

Nothing like a man that can make a woman laugh, it's MEDICINE! It looks like you got a good guy, Steph!

How strange, eh! If you end up finding out, please let me know because it is super annoying! You know what sucks about our disease.. it doesnt matter what time of year it is or what day it is - we feel like we have the flu 24/7.. It's so hard to plan things when you just never know how you're going to feel.. to some, we may seem unreliable but.. walk a day in our shoes and we'll show you just how hard it is! Hope you two are having a pain free day xoxo

Hi Steph I am getting them too, everyday right now. I get them through the night and I have one when I wake up. I am also having a pain in my right side lower abdomen and trouble swallowing dry foods. Wish I knew what it is too. I have a lot of inflammaion right now in my arms and hips so I think that sometimes brings on a fever. Lupie hugs girl XX

Thank you so much for your suggestion Tremia! I will definitely ask next time I have to have it done.. Something tells me they dont give them out here but I will ask just incase! I remember having to do one about 8 months ago and all they gave me was one of those little urine tester cups.. who knows, we'll see if they do!

When I do my 24hr urine they give me a "hat" to catch the urine. It's that thing they use to measure your urine when you are in the hospital. It sits under the toilet seat and then you just pour it into your jug. Also, I am required to refrigerate my specimen for the whole time and it must be delivered within one hour of taking it out to turn it in. Next time make sure they give you the hat.. it will make it a lot easier for you.

You are so awesome! Thank you so much! To be quite honest, I had a few emails over my time away from UA-cam but it was your email that inspired me again.. So, always remember.. Sometimes, it does only take 1 person to make a difference! I think I stopped because I didn't think my videos were anything people enjoyed watching, it was more just for information purposes BUT I'm so much more than my disease and you inspired me to share that.. So, Thank YOU!! Don't worry, we all have our days.. I st

Totally slow! Keep with it.. It does get better, I promise.. Just not as good as people are making it out to be.. Ya know? Let me know what you think about it when your done!

Thank you! It was a very low key weekend but I enjoyed it! How was your Easter weekend? Well, I hope! Definitely pass along the link if you believe in my channel :) I'm only starting out.. Thanks so much your support, it is so very much appreciated!

Thank you so much - you're too kind! I totally understand why.. The initial smell you put on is divine.. It reminds me of my childhood - it smells like freezies! The after taste of it can be a tad annoying if you don't like the smell. I would recommend the Nivea lip balms.. Even better as far as moisture is concerned.. Smells beautiful too! They even come in tinted shades.. I like the original one though, especially before makeup to make my lipstick apply perfectly. I'm just not sure if they h

Yes! You do have it in the states! I actually heard about it from ALoveTart who lives in the states. If you go to the section where they keep their new BB Cream and the beloved rollerball - you will find it. I can't tell you how beautiful it is on the skin.. My skin looks beautiful and glowing because of it :)