Hi Cameron. All the best with getting HSCT. The sooner you have the treatment the better from what I can understand. Let me know when your booking in. In the meantime stay strong & try to look after your diet as it will also help you.
Hi Thanks for asking. I am 4 years post now. Most things are stable bar my ability to stand or walk for any length of time. Which I am happy with. I am still looking into other Stem Cell treatments to see if they will help get improvement in other areas.
Marcus Nicholls thank you for replying I’m also looking into getting it so I’m trying to get as much feedback as possible What condition were you in before? And have any other conditions (AVN, organ failure, etc...) come up post treatment? My EDSS is 1.5 right now Never taken any meds but i need to decide soon
@@abq9203 I had my first attack when I was 23 but not diagnosed until 34. By the time this happened, I was secondary progressive. When I had the treatment I had an EDSS of around 4.5. The treatment itself did not affect me very much & have had no bad side effects since, not like some people. I put this down to being pretty healthy in the first place. I am a vego & have been for 23 years. I wish you well with your decision. I do feel if I had known about this treatment early I would have got more benefits from it. The sooner the better from what I understand, but there is some great things coming through with Stemcell research so it wont be long before there are lots of other options as well.
At this stage I am stable. I have had no reversal of systems but feel the treatment may not have worked so well for me but i am still glad I gave it a go.
@@marcusnicholls8014 many people have said that exact same thing. It's scary to think about doing but I want to go to Mexico for treatment. Just need to find some money
thank you my friend I have no problem flying out of country. I'm blessed I have family willing to help me. I wish you all the best in your new life and I hope I get mine back good luck and thank you
I'm 23 I'm early in my DX I was DX last year with ms I'm trying to see if I can get this treatment done with Dr Burt in Chicago I think I'd be a perfect candidate as I'm young and if be getting worse on my first drug copaxone. any reccomendations on how to get it done if they deny me?
+Much2 Faded Hi Not sure which country you are live in but there is only about 4 countries in the world that take people who have not failed at least 2 drugs. All 4 you have to pay. Russia, Israel, Mexico or the Phillipines. There may now be more now. If you are on facebook go to this site facebook.com/groups/hsctawareness/ as they will help you & may now any other countries you can look at. all the best with your journey.
+RadarAshwood Hi Radar At this stage it is hard to say as it has only been 6 months since I got my stem cells back & I feel I would need a couple of years to feel that it has stopped the progression. At this stage I am feeling confident that it has worked for me but in the scheme of things it's still very early on so it's a wait & see. Are you considering having it?
+Marcus Nicholls I am undiagnosed, but I believe I likely have ms. Thankfully cutting out wheat has helped tremendously. I wouldn't be able to afford HSCT, but I find any progress to be exciting. I have recently started Helminthic therapy which has a very high success rate putting MS into remission. I will know if it works for me within 6-9 months I hope. If you'd like to learn more just google MS and Helminthic therapy or feel free to ask me any questions. We also have a group called Helminthic Therapy Support on Facebook.
Hi Kelly Thanks for your message, sorry for the delay in responding. Good luck with your fund raising for Mexico & I hope your treatment goes as planned. I'm sure you will be fine with everything when you get home the main thing will be to careful around the kids if they have a nasty cold & if you working in the garden just wear gloves & wash your hands well when you finish. The thing I believe about your immunity is that if you worry about getting sick you are more likely to get sick, be careful just don't over think it. You will do great.
Hi Marcus! I'm on the waiting list for Mexico, fundraising like mad and hope to get there next year. So, you don't know me but I'm following you! Be careful with your immunity. I have 4 kids, pets and a big veggie garden, so I'm not sure how I'm going to handle this phase of recovery. I'm just kind of hoping for the best. Keep on trucking. We're rooting for you!
Wish you all the best!! Stopping the Progression will be the first step. Second step is repairing which may soon be possible with meds like Anti Lingo-1 in the final laps.
Hi Kelly Thank you so much for watching my videos. I am happy that you have found them enjoyable. I hope your are successful in raising the money to get this treatment, I'm sure you will benefit from the treatment. Best of luck Marcus
Hi Marcus! My name is Kelly from NY and I'm hoping to have HSCT for my RRMS (as soon as I collect the money). I've just watched all of your Mexico videos and I really appreciate what you're doing. Keep up the good work and good luck growing those stemmies back! Good job! We're all rooting for you!
Hoping to get hsct in Mexico. About a year - 2 in to Ms. I just hope for no progression. Hope you are doing well.
Hi Cameron. All the best with getting HSCT. The sooner you have the treatment the better from what I can understand. Let me know when your booking in. In the meantime stay strong & try to look after your diet as it will also help you.
Hi, how are you doing after all this time? Thank you.
Hi Thanks for asking. I am 4 years post now. Most things are stable bar my ability to stand or walk for any length of time. Which I am happy with. I am still looking into other Stem Cell treatments to see if they will help get improvement in other areas.
Marcus Nicholls thank you for replying I’m also looking into getting it so I’m trying to get as much feedback as possible What condition were you in before? And have any other conditions (AVN, organ failure, etc...) come up post treatment? My EDSS is 1.5 right now Never taken any meds but i need to decide soon
@@abq9203 I had my first attack when I was 23 but not diagnosed until 34. By the time this happened, I was secondary progressive. When I had the treatment I had an EDSS of around 4.5. The treatment itself did not affect me very much & have had no bad side effects since, not like some people. I put this down to being pretty healthy in the first place. I am a vego & have been for 23 years. I wish you well with your decision. I do feel if I had known about this treatment early I would have got more benefits from it. The sooner the better from what I understand, but there is some great things coming through with Stemcell research so it wont be long before there are lots of other options as well.
How are you doing right now?
At this stage I am stable. I have had no reversal of systems but feel the treatment may not have worked so well for me but i am still glad I gave it a go.
@@marcusnicholls8014 many people have said that exact same thing. It's scary to think about doing but I want to go to Mexico for treatment. Just need to find some money
I want to thank you for your post. Please follow me. I hope to say I have improved physically. strongformario.wordpress.com
Hi Luis Thanks for your message. I am coming up to 11 years but I know I have had it for 22 years. I now have SPMS but started as RRMS
Thanks for share How long you have ms ? What type it is? Cheers Luis
thank you my friend I have no problem flying out of country. I'm blessed I have family willing to help me. I wish you all the best in your new life and I hope I get mine back good luck and thank you
I'm 23 I'm early in my DX I was DX last year with ms I'm trying to see if I can get this treatment done with Dr Burt in Chicago I think I'd be a perfect candidate as I'm young and if be getting worse on my first drug copaxone. any reccomendations on how to get it done if they deny me?
+Much2 Faded Hi Not sure which country you are live in but there is only about 4 countries in the world that take people who have not failed at least 2 drugs. All 4 you have to pay. Russia, Israel, Mexico or the Phillipines. There may now be more now. If you are on facebook go to this site facebook.com/groups/hsctawareness/ as they will help you & may now any other countries you can look at. all the best with your journey.
Much2 Faded hsct is also available in Sweden. I'm currently going through this treatment :). What are your symptoms so far?
Did you get the treatment?
So did HSCT at least put you into remission and halt the progression of the disease?
+RadarAshwood Hi Radar At this stage it is hard to say as it has only been 6 months since I got my stem cells back & I feel I would need a couple of years to feel that it has stopped the progression. At this stage I am feeling confident that it has worked for me but in the scheme of things it's still very early on so it's a wait & see. Are you considering having it?
+Marcus Nicholls I am undiagnosed, but I believe I likely have ms. Thankfully cutting out wheat has helped tremendously. I wouldn't be able to afford HSCT, but I find any progress to be exciting. I have recently started Helminthic therapy which has a very high success rate putting MS into remission. I will know if it works for me within 6-9 months I hope. If you'd like to learn more just google MS and Helminthic therapy or feel free to ask me any questions. We also have a group called Helminthic Therapy Support on Facebook.
I wish you well the treatment Radar & hope that it works for you. I will look into the treatment you are having to understand more. Thanks Marcus
Hi Kelly Thanks for your message, sorry for the delay in responding. Good luck with your fund raising for Mexico & I hope your treatment goes as planned. I'm sure you will be fine with everything when you get home the main thing will be to careful around the kids if they have a nasty cold & if you working in the garden just wear gloves & wash your hands well when you finish. The thing I believe about your immunity is that if you worry about getting sick you are more likely to get sick, be careful just don't over think it. You will do great.
Hi Marcus! I'm on the waiting list for Mexico, fundraising like mad and hope to get there next year. So, you don't know me but I'm following you! Be careful with your immunity. I have 4 kids, pets and a big veggie garden, so I'm not sure how I'm going to handle this phase of recovery. I'm just kind of hoping for the best. Keep on trucking. We're rooting for you!
good job man. thx for sharing
Chansito Chansito Thanks for watching
Wish you all the best!! Stopping the Progression will be the first step. Second step is repairing which may soon be possible with meds like Anti Lingo-1 in the final laps.
000GunterGabriel000 Thanks that is what we are aiming for. I also believe targeted stem cell treatment could work.
Hi Kelly Thank you so much for watching my videos. I am happy that you have found them enjoyable. I hope your are successful in raising the money to get this treatment, I'm sure you will benefit from the treatment. Best of luck Marcus
Hi Marcus! My name is Kelly from NY and I'm hoping to have HSCT for my RRMS (as soon as I collect the money). I've just watched all of your Mexico videos and I really appreciate what you're doing. Keep up the good work and good luck growing those stemmies back! Good job! We're all rooting for you!