- 5
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Ashwati Nair
Приєднався 19 тра 2022
4 years post hsct (Episode 5)
7 years post Rahul's birth and diagnosis with 22q, our family is in Vancouver and things have improved in my health. What and how things changed to get us to where we are now. My experience with HSCT, the recovery and the changes and improvements my health has gone through, despite of course a surgery for Rahul, his sister joining us and the pandemic.
Переглядів: 94
Відео
The Pregnancy (Episode 4) - the EDSS journey and pregnancy
Переглядів 672 роки тому
The story of my first pregnancy, my decision to get pregnant 9 ish years into MS, my experience with an IVF pregnancy, an emergency birth on my 30th birthday, a diagnosis of 22q for my son, the challenges with healthcare leading up to my holding my son post partum, the MS post partum.
The Mini Strokes Special (Episode 3) mini strokes, vestibular migraines, silent migraines, TIA
Переглядів 1002 роки тому
Recurring episodes of mini strokes, including paralysis, migraines with aura, visual disturbances, pain, confusion, dizziness. How these episodes manifested in addition to MS and worsened my physical and mental function and left me mentally and physically "migraine hungover" for days.
The Decline (Episode 2) - 20 something with MS (Multiple sclerosis)
Переглядів 2552 роки тому
The story of my decline with MS, RRMS, optic neuritis at 18 years old and finding a cure. Through trial and error finding the right treatment, HSCT and relearning based functions like walking, talking and blogging! Reversing symptoms, exploring neuroplasticity and regaining independence. In this second episode, I talk about how I got diagnosed and how MS manifested itself in the years after dia...
The Fall (Episode 1) -diagnosed at 18 years with MS (Multiple sclerosis)
Переглядів 5182 роки тому
The story of my diagnosis with MS, RRMS, optic neuritis at 18 years old and finding a cure. Through trial and error finding the right treatment, HSCT and relearning based functions like walking, talking and blogging! Reversing symptoms, exploring neuroplasticity and regaining independence. In this first episode, I talk about how I got diagnosed and how MS manifested itself in the first year aft...
Im so happy to hear youre doing okay now! ❤ so proud of you 👏
Nice video, keep sharing! ❤
Thank you for your support 🙏🏽
What'up.Ashwati,wow-you did outstanding -catch you later.
I did my best like any mother would.. Thank you for your encouraging words and support! It means a lot :-)
Your doctor really wasn’t helpful. There are over 20 medications for MS. She should have discussed the risks and benefits of all of those and discussed non-drug lifestyle changes to try simultaneously.
I’m not so good at these replies! I didn’t know where to go to reply.. im learning. Agreed I didnt get the help I needed and agree 200% with all the useful lifestyle + diet changes that should have been talked about… I follow these now strictly at the same their negligence is what eventually led me on the path to stop this disease for good and I am a believer that life sends you what you need for your journey.
Good to hear you're doing better. I said it before and I"ll say it again, Avoid All Inflamatory Food n Drinks + Excercise Often (walks, push ups, stretching, jogging, etc) and Sleep. Give your body what it needs in order to heal itself. Man made drugs are not full proof in this MS arena. A friend who makes the drugs confided in me that "they don't work" and he expressed a lot of interest in how I was doing without drugs/"medication". It sucks, but at least I got rid of fatigue, attacks, and other issues people with MS experience. (and that's not to say I haven't experienced it. I've experienced almost all the horrifying events MS dishes out. Stay Strong. Stay Positive.You're no drug companies stastic or ghini pig.Remember, if you eat something and it gives you a por reaction, stop eating it. Last night I had popcorn and it made my stomach hurt. That will be the last time I cheet and eat popcorn (with salt and butter).
Agreed on the diet and listening to your body. Quite disturbing about your friend although I suspected that for a long time. The data is very much manipulated in the studies
Wow these sounds intense! So interesting too that they went away after aHSCT!
So grateful they went away!
Hearing that the Doctor didn't offer any valuable guidance (besides pushing the drug they probably profit on) reminds me of how my nuerologists didn't ever bring up foods, exercise, and sleep as an important factor. Just the drug, and then if I said yes, they drug company would be calling me by the time I got home! They failed my questions. Lots of red flags with drug companies, especially ones for MS. - As someone with MS, I stopped having attacks as soon as I adobted the mshop diet (best bet diet) . Most importantly, learn about what you CAN and CANNOT eat. Our human bodies are amazing, but with MS we change a little and become extra vulnerable to certain foods. Like MILK. Stop Drinking Milk and all dairy.
Hi Dave! Thanks for your input yes I agree with you on many levels! ESP the diet and dairy- I have also completely cut all cow derived foods and limit processed wheat in North America. I have found it helps tremendously. We really have to listen to our bodies, we hear the feedback first and they are truly marvelous machines. I have also dealt with my fair share of drug reps. Take care!
Thank you thank you, and well done on managing to put your story out there despite all the obstacles! People struggling with MS today really need to hear this, they will not get this perspective from their doctor.
Please try Ocrevus if it is available for you .It helps.
Thank you but I no longer use any medication for MS and am doing much better now.
@@ashwatinair1537 great to know that.where did you do your hsct.if you are in India would suggest ayurveda.Ayush prana is one of them. It helps with some symptoms.Happy to know you are doing better
@RS actually my family is from very nearby and my father has also been telling me to go to kotttakal Arya vaidya- another old Ayurveda center. I will keep both in my mind.. as of now I have two young kids and it’s not so easy to get extended time to go from Canada due to work etc.. I hope when they are older!! Thank you for this recommendation 🙏🏽!!
Very brave of you!!! Your attitude of gratitude is so praiseworthy.....looking forward for the next episode....want to hear your healing journey....you look so back to normal...i am also msp...so good to see msp bounce back and cheerful like you.....please share what is the secret of your strength...will wait
Thank you Shalini for these words of kindness and encouragement! Am working on getting the next episode out asap!