EpLink - The Epilepsy Research Program of the Ontario Brain Institute
EpLink - The Epilepsy Research Program of the Ontario Brain Institute
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Ask the Experts - Purple Day for Epilepsy Webinar
Event: Ask the Experts - Purple Day for Epilepsy Webinar held on March 25, 2022
Speakers:
-Dr. Elisabeth Simard-Tremblay, Pediatric Neurologist and Epileptologist at Montreal Children's Hospital
-Dr. Evan Cole Lewis, Neurologist and Assistant Professor with the Department of Pediatrics at SickKids Hospital and the University of Toronto
-Dr. Kathy Speechley, Epidemiologist and Professor in the Departments of Pediatrics and Epidemiology & Biostatistics at the Schulich School of Medicine and Dentistry of Western University
Moderated by Dr. McIntyre Burnham, EpLink Co-Director
Hear from experts about the latest in epilepsy clinical care/research, emerging new treatments, & more!
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Connect with us:
► Website: www.eplink.ca
► Twitter: EpLinkON
► Facebook: EpLinkON/
Переглядів: 104

Відео

Webinar - Glucose Transporter Type 1 Deficiency Syndrome (GLUT1-DS): Early Diagnosis & Treatment
Переглядів 7492 роки тому
Event - Glucose Transporter Type 1 Deficiency Syndrome (GLUT1-DS): Early Diagnosis & Treatment - March 11, 2022 Speaker: Dr. Juan Toro-Perez, MD, Pediatric Epilepsy Fellow at the Children’s Hospital of Eastern Ontario Moderated by Dr. McIntyre Burnham, EpLink Co-Director Dr. Perez presented on the clinical features, diagnosis, and treatment of GLUT1-DS, a rare metabolic disorder that may be cha...
Webinar - Managing Behaviour Issues in Pediatric Epilepsy
Переглядів 2673 роки тому
Event: Managing Behaviour Issues in Pediatric Epilepsy - October 6, 2021 Speakers: -Heather Olivieri, MSW, RSW, Social Worker at SickKids Hospital -Kristi Nylen-Burns, a parent/caregiver -Dr. Mary Lou Smith, PhD, CPsych, Neuropsychologist at SickKids Hospital Moderated by Dr. McIntyre Burnham, EpLink Co-Director Connect with us: ► Website: www.eplink.ca ► Twitter: EpLinkON ► Faceboo...
Purple Day 2021 Live Stream Event
Переглядів 213 роки тому
Purple Day, held each year on March 26th, is an international grassroots initiative that aims to raise epilepsy awareness. This event, hosted by entertainer Mat Ricardo, featured performances by artists, lived experience talks, and videos submitted by the epilepsy community. Along with the Power of Purple webinars, this Purple Day celebration was a result of collaboration between EpLink, Epilep...
The Power of Purple Webinar Series - Webinar #3: Meet the Experts
Переглядів 693 роки тому
This event was the third in a series of Power of Purple webinars held in March 2021, in collaboration with Epilepsy Toronto and the Neuron2Brain lab at Krembil Research Institute. The month of March is epilepsy awareness month in Canada. Speakers/topics: Genetics (Dr. Danielle Andrade), Women’s Issues & Epilepsy (Dr. Esther Bui), SUDEP (Dr. Peter Carlen), Mental Health & Epilepsy (Dr. David Gol...
The Power of Purple Webinar Series - Webinar #2: Memory Issues and Epilepsy
Переглядів 853 роки тому
This event was the second in a series of Power of Purple webinars held in March 2021, in collaboration with Epilepsy Toronto and the Neuron2Brain lab at Krembil Research Institute. The month of March is epilepsy awareness month in Canada. Speakers: Dr. Mary Pat McAndrews, Wendy Morris Event: Memory Issues & Epilepsy- March 12, 2021 Moderator: Dr. Mac Burnham Connect with us: ► Website: www.epli...
The Power of Purple Webinar Series - Webinar #1: Epilepsy Surgery & Other Treatment Options
Переглядів 813 роки тому
This event was the first in a series of Power of Purple webinars held in March 2021, in collaboration with Epilepsy Toronto and the Neuron2Brain lab at Krembil Research Institute. The month of March is epilepsy awareness month in Canada. Speakers: Dr. Taufik Valiante, Gary Collins, Jordan Shuler Event: Epilepsy Surgery & Other Treatment Options - March 5, 2021 Moderator: Dr. Mac Burnham Connect...
Know Epilepsy: A Call to Action to Reduce Stigma - Ms. Mary Secco
Переглядів 3535 років тому
This talk was recorded during our A Conversation About Epilepsy and Stigma event. This event examined stigma from different historical and global perspectives, and provided ways to address stigma in our communities and around the world. Presentation: Know Epilepsy: A Call to Action to Reduce Stigma Speaker: Ms. Mary Secco Event: Moving Beyond the Myths: A Conversation About Epilepsy and Stigma ...
Taking Charge of Your Life - Ms. Cheryl Mendes
Переглядів 2825 років тому
This talk was recorded during our A Conversation About Epilepsy and Stigma event. This event examined stigma from different historical and global perspectives, and provided ways to address stigma in our communities and around the world. Presentation: Taking Charge of your Life Speaker: Ms. Cheryl Mendes Event: Moving Beyond the Myths: A Conversation About Epilepsy and Stigma - March 18, 2019 Co...
Epilepsy-Associated Stigma: What is it and why does it matter? - Dr. Melissa Elafros
Переглядів 6855 років тому
This talk was recorded during our A Conversation About Epilepsy and Stigma event. This event examined stigma from different historical and global perspectives, and provided ways to address stigma in our communities and around the world. Presentation: Epilepsy-Associated Stigma: What is it and why does it matter? Speaker: Dr. Melissa Elafros Event: Moving Beyond the Myths: A Conversation About E...
Q&A - How to Cope with Epilepsy, Depression and Anxiety
Переглядів 2837 років тому
This talk was recorded during our How to Cope with Epilepsy, Depression and Anxiety event co-hosted with CAN-BIND. This event aimed to provide information and resources for people living with epilepsy and depression and give them an opportunity to ask questions. Panel: Dr. Sherese Ali, Mr. Andrew Kcomt, Dr. Kathryn Hum, Ms. Wendy Morris Moderator: Dr. Mac Burnham Event: How to Cope with Epileps...
My Journey - How to Cope with Epilepsy, Depression and Anxiety
Переглядів 6927 років тому
This talk was recorded during our How to Cope with Epilepsy, Depression and Anxiety event co-hosted with CAN-BIND. This event aimed to provide information and resources for people living with epilepsy and depression and give them an opportunity to ask questions. Presentation: My Journey with Epilepsy and Depression Speaker: Ms. Wendy Morris, Lived Experience Expert Event: How to Cope with Epile...
Treatments - How to Cope with Epilepsy, Depression and Anxiety
Переглядів 4,4 тис.7 років тому
This talk was recorded during our How to Cope with Epilepsy, Depression and Anxiety event co-hosted with CAN-BIND. This event aimed to provide information and resources for people living with epilepsy and depression and give them an opportunity to ask questions. Presentation: Coping with Epilepsy: Treatment of Depression and Anxiety in Epilepsy Speaker: Dr. Sherese Ali, Neuropsychiatrist Event:...
Research & Resources - How to Cope with Epilepsy, Depression and Anxiety
Переглядів 2657 років тому
This talk was recorded during our How to Cope with Epilepsy, Depression and Anxiety event co-hosted with CAN-BIND. This event aimed to provide information and resources for people living with epilepsy and depression and give them an opportunity to ask questions. Presentation: Epilepsy & Depression: Research & Resources Speaker: Dr. Kathryn Hum, Program Manager of EpLink Event: How to Cope with ...
Clinical Management of Post-Traumatic Epilepsy - Dr. Jorge Burneo
Переглядів 1,9 тис.7 років тому
October 21, 2016 - Dr. Jorge Burneo, Neurologist at London Health Sciences Centre and Co-Director of EpLink, discusses his research on the risk of developing epilepsy after head injury. Connect with us: ► Website: www.eplink.ca ► Twitter: EpLinkON ► Facebook: EpLinkON/
Prolonged EEG After a First Unprovoked Seizure in an Adult - Dr. Michelle Shapiro, MD
Переглядів 1,7 тис.7 років тому
Prolonged EEG After a First Unprovoked Seizure in an Adult - Dr. Michelle Shapiro, MD
Open Forum: Mortality in Epilepsy - April 8, 2016
Переглядів 2878 років тому
Open Forum: Mortality in Epilepsy - April 8, 2016
Cannabis as an Emerging Medicine - Mr. Alexander Repetski
Переглядів 1878 років тому
Cannabis as an Emerging Medicine - Mr. Alexander Repetski
Marijuana & Seizure Management - A Personal & Practical Perspective
Переглядів 1798 років тому
Marijuana & Seizure Management - A Personal & Practical Perspective
Marijuana & Seizure Management - A Personal Perspective
Переглядів 938 років тому
Marijuana & Seizure Management - A Personal Perspective
Marijuana & Seizure Management - A Physician's Perspective
Переглядів 9028 років тому
Marijuana & Seizure Management - A Physician's Perspective
Marijuana & Seizure Management - A Historical Perspective
Переглядів 2038 років тому
Marijuana & Seizure Management - A Historical Perspective
What is EpLink?
Переглядів 1,5 тис.8 років тому
What is EpLink?
My Life with Epilepsy
Переглядів 9009 років тому
My Life with Epilepsy
About EpLink
Переглядів 839 років тому
About EpLink

КОМЕНТАРІ

  • @BeatrizMartinez-dy3oy
    @BeatrizMartinez-dy3oy 4 місяці тому

    The amazing cbd ua-cam.com/video/w-dxMTDzMLY/v-deo.htmlsi=HdJ0_OcS3lOZANOs

  • @BeatrizMartinez-dy3oy
    @BeatrizMartinez-dy3oy 4 місяці тому

    ua-cam.com/video/w-dxMTDzMLY/v-deo.htmlsi=HdJ0_OcS3lOZANOs 7 years no side effects

  • @BeatrizMartinez-dy3oy
    @BeatrizMartinez-dy3oy 4 місяці тому

    This miraculous medicine ❤ ua-cam.com/video/w-dxMTDzMLY/v-deo.htmlsi=HdJ0_OcS3lOZANOs

  • @johnmacleod2923
    @johnmacleod2923 9 місяців тому

    Took seizure october 2022 first one after about 30 years I was 61 then took one on April 10 2023 anyone have similiar experience.

  • @FredrickGreen-db3ug
    @FredrickGreen-db3ug 11 місяців тому

    I have seizures and eegs done I am an adult and I have had eegs done on me and they still cannot find what's going on

  • @faizeljamaluddin5841
    @faizeljamaluddin5841 Рік тому

    This is an amazing video..I am suffering from severe anxiety and fear thinking of the next seizure and Chronic fear and anxiety does produce another seizure. A truthful and strong attitude of I don't want to exit any feeling or emotion in mind has reduce a lot of seizures and enhanced my life. I stopped my medication recently and got another , now i have to build my strength and courage again.

  • @geoffreyhhill
    @geoffreyhhill 2 роки тому

    Acceptance is what allowed me to give myself permission to take time off work to focus on my health. Epilepsy has completely flipped my world upside down. But you know what they say, “when one door closes, another opens.”

  • @davidr4523
    @davidr4523 2 роки тому

    Whitney, thank you for sharing your story which gives hope to people suffering from epilepsy that there is a cure through surgery. I just wish you could have done your surgery much sooner. You look and sound very healthy!

  • @samiislam1685
    @samiislam1685 2 роки тому

    This is the total story of my life. It explained all the downsides I have in life due to epilepsy and also game me hope that maybe i can stop thinking of it as punishment and start hoping

  • @sarahgabeya4965
    @sarahgabeya4965 2 роки тому

    Am in Uganda, northern but most of the epileptic cases are on the streets and taking a lot of liquor then convulse later

  • @sarahgabeya4965
    @sarahgabeya4965 2 роки тому

    Thank you for the study but what can we do apart from sensitizing about the myths, anyway I accepted the situation and take my medication well

    • @robertdeffenbaugh9004
      @robertdeffenbaugh9004 Рік тому

      Have you asked a Neurologist about the possibility of surgery or ketogenic diet? I had my Seizure Tumor surgically removed when I was a Kid.

  • @sarahgabeya4965
    @sarahgabeya4965 2 роки тому

    It was not one year but six years, then the community who know you, had to reject you not to be friends with their children

  • @sarahgabeya4965
    @sarahgabeya4965 2 роки тому

    I was rejected by the whole school and I couldn't tell my parents or report anywhere, am working but still healing from the wounds of rejection, no friends, no husband, only family, I still prefer seating alone because of the stigma, fortunately thanks to medicines and God for reducing the fits

  • @timothythompson8379
    @timothythompson8379 2 роки тому

    Whoever is whispering in vid needs to learn to shut the fk up ty for ruining another important vid

  • @nicholas4853
    @nicholas4853 2 роки тому

    I'm 29 today hearing this story living your life to the fullest. Its really hard when everyone leaves you.

  • @GhostOfAces
    @GhostOfAces 2 роки тому

    So for my Aura i will hear conversations i have had in the past, or like voices ive heard in the past just before I have a seizure. If i am walking from one room to another or if i am standing up when i start hearing them my body freezes and i have to stand there and listen to the voices of hell (what i call them) till my body seizes up and blacks out. I have recently been having them multiple times a week for a year straight and sleep about 24 to 48 hours after one. It has been the worst year of my life. Had to move back in with my parents and my Girlfriend now ex, left because she couldnt handle my worsening condition.

  • @jonroberts6518
    @jonroberts6518 2 роки тому

    I am in this situation, never had seizures in my life before , til after turning 39 yrs old and been out of army service for 9 years, driving is not a option for me and is limiting my employment , going on two years this may 2022 , and still dont know why I all of a sudden I have these seizures.im experiencing all forms - tonic-clonic, focal partial and focal complex now nocturnal my 12th seizure in the two yrs was a few days ago in which was a nocturnal one.they seem to occur every 4 months , not every day or multiple in a day ... Just one every 4 months or so..i am stumped?

  • @brianschroeter2105
    @brianschroeter2105 3 роки тому

    Can the wrong foods induce a seizure?I ate some macaroni With plenty black pepper in it and from I ate it I felt bad instantly and I went to lay down AND fell asleep and hours later I had seizures in my sleep

    • @moniquedewyk6341
      @moniquedewyk6341 2 роки тому

      The only dietary concern I have heard about was when a neurologist told me that I should drink a maximum of 4 cups of coffee a day.

  • @benmeek3411
    @benmeek3411 3 роки тому

    This is a really helpful video, and a great place to get started . Thank you 🙏🏻

  • @livin-247
    @livin-247 3 роки тому

    Extreme!

  • @Luke-pd7xj
    @Luke-pd7xj 3 роки тому

    I had this really scary moment where my mind and body both froze up and it felt like a combination of an aura and a panic attack. My breathing was out of control and my body stiffened up, afterwards my body felt exhausted as if I just ran a 5k. Scary and I couldn’t tell if it was anxiety or an aura.

  • @ronnieleerainwater
    @ronnieleerainwater 3 роки тому

    Wonderful & very helpful information! Needed this.

  • @chris7987
    @chris7987 3 роки тому

    I tried Keppra with absolutely zero results, then I tried Trileptal, which helped but I still had grand mal seizures and the side effects were horrible. After about 5 years my neurologist finally agreed to "recommend" marijuana, CBD. It changed my life. I’ve been seizure free for the longest period ever. My memory and abilities are coming back, it is an amazing feeling. If you have seizures please try CBD, it won't get you high. I buy a small bottle via the net, 30ml's (1 fl oz) with 2500mg total CBD, 83mg per serving and drip about half a dropper (half a serving) under my tongue twice a day, morning and night. The bottle cost me a little over $100 and lasts about a month. This is a lot more than the pharmaceutical drugs cost, but I would pay 10 times that, because it has had such a positive result for me. Please make sure you buy it from a reputable supplier, with consistent quality. I hope it will help you, like it has helped me.

  • @cryingbroken8824
    @cryingbroken8824 3 роки тому

    He finally said my beurrer condition MAY be relatéd To your volvo's demise!

  • @cryingbroken8824
    @cryingbroken8824 3 роки тому

    Toi ma y WISH To semé à neurologie a bout THAT accident with your Volvo, even all these years later!😉🤔 what thé gay! Either des of BEING à freak!

  • @waitersluvhjy66
    @waitersluvhjy66 3 роки тому

    Try to heal with Weedborn CBD products :)

  • @prisciliaakhigbe7675
    @prisciliaakhigbe7675 3 роки тому

    Life is always beautiful when you have good health. i have be in pain for almost 2 years my son had epilepsy & seizure and I was lonely and sad luckily I was directed to a very kind and Great (dr joseph herbal home) who helped me cure my son and today he is free.

  • @xKessa
    @xKessa 3 роки тому

    If they left you when you had a seizure, they are terrible. I know one person, that died from seizure because he was alone. :(

  • @livin-247
    @livin-247 5 років тому

    💜 Epilepsy Awareness 💜 You did a very good job. Thank you for your support.

  • @kodicebiankopacific9998
    @kodicebiankopacific9998 5 років тому

    epilessia-info.forumfree.it/?t=76621803

  • @livin-247
    @livin-247 5 років тому

    I am 54 years old.l have smoked marijuana since the age of 15. I have had epilepsy since I was 10. It helps to control my body's stress and this helps my other medication work efficiently. 💜 Help raise Epilepsy Awareness 💜

  • @livin-247
    @livin-247 5 років тому

    💜💜💜👏👏👏👏 Epilepsy is hard.You are stronger than you know. 💜 Epilepsy Awareness 💜

  • @kodicebiankopacific9998
    @kodicebiankopacific9998 5 років тому

    epilessia-info.forumfree.it/?t=76609908

  • @twintrickster5004
    @twintrickster5004 7 років тому

    I'm 15 with severe epilepsy disorder and I just want a normal life

    • @eplink-theepilepsyresearch9475
      @eplink-theepilepsyresearch9475 7 років тому

      Dear Aaron, We are very sorry that you are having a difficult time. You are not alone. Please visit goo.gl/EtKZ2B to find your local Community Epilepsy Agency. They can offer support and guidance. Sincerely, EpLink

  • @marcmcdonald48
    @marcmcdonald48 7 років тому

    Did Charlotte's Web have consistent results?

  • @waichinhwang4061
    @waichinhwang4061 9 років тому

    Very interesting video!