Відео

Hello Bryan..so happy for you, congrats..but this is a desperate cry from a mother of a 26yr old who has bn having seizures all his life in Nigeria..only just hearing about this VNS, do u hv a guide to it in Nigeria..thks

Thanks for this. I get mine next year and will make some videos for information too 😊

Im soo happy for you ur siezure free wish i was siezure free i have siezures n i hate them , i know everyone hates thems

long did you get ur voice back

I'd love to get rid off my Seizures and have a bit of a better life

Thanks so much! I’m glad you are doing well! You’ve been very helpful!

I know that alot of taiking and don't focus on your body and spirit and havnt privacy and quiet place for Living can hurt your brain more, try to eat walnut and broccoli and also planet tea like camomile tea lavendel tea،take care of your head with hat in cold weather don't stay on sun, avoid from hard working or too much thinking......god bless you.....he is my sheapered and put me in his green places......Amen .......

Where you live??

Hey Bryan, thanks for sharing your story. Im considering getting a VNS. Can you show us how the scars and implant now? Have you had any joaesene of voice or physical discomfort from the device?

Hi Bryan May Allah give us ling lasting health and seizure free life Iam also suffering from tonic cloncs

After watching you videos. I had mine put in 5yrs ago. Seizures have slowed down alot. From 5-7 a day now 1 every 3-4mo. I just had my new battery replaced a few months ago. Still going strong!!

Did you still have your VNS device in you after 2 years ago ? I have a VNS device in me and im getting it turned on in a week and thanks for your videos!

Hello Bryan. Did you have seizure after 6 months of your VNS surgery? Thanks

After 4 years, I’m still trying to get my vns implant. All insurance denied me. My neurosurgeon actually ended up donating surgery to me! And the vns device is being donated too!! I just need prayers that the hospital also allows the surgery to be donated to me. It’s crazy expensive. Plz pray for me. I get my answer around Monday. 5/20/2024 🙏

I don't have epilepsy but treatment resistant major depression. I found out about it, by looking into ECT. I'm hoping I can get approved for it but, I'm not getting my hopes up. Do you find it helps your mood at all? Do you deal with the 'Robot voice' at all? (I'm definitely not looking forward to that). If it controls my TRD then, I'll just deal with it. Hope you are doing better with the epilepsy.

You’re so brave!

You know you’re handsome huh

I love how you talk

Bryan, are you there brother?

I have jme juvenile myoclonic epilepsy and since September I've been weight lifting and my seizures has been really good but since January and February I've had alot of seizures I have generalised seizures and three types and am I wondering if its the excercises I'm doing thats making it worse ? I weight lift 5 days a week and walk twice a day 7 days a week and I also ride horses to

There is a difference between exercise and overworking yourself. U have to move slow at your own pace. I exercise alot. But then it came a time. I was having siezures in the gymn. It was because of over working and struggle to breath. U need to be careful and mindful for your health. They motivate u in the gymn to dont stop. Keep going. But u need that break. Lifting weights. Execising on your own is dangerous. My advice. Find a exercise that is best for you. That u can get out easy. Dont do any bench presses. Especially alone.

my daughter takes tons of meds i want to know more about the procedure please. 🙏

I was searching for a positive video like this. Thank you for sharing your experience.

Hi Bryan, my husband just had a week long EEG at the hospital and he did not have any seizures of course. All they could see is that he had generalized epileptiform on both sides of the brain. Two days after he came back home his clonic tonic seizure cluster came on. I was a bit discouraged until I found some information on VNS and found your journey. I guess I too was wondering how things have worked out for you with VNS over the years. The way you described your experience with the medications is similar to how my husband has described things. His trouble with the medications sound a bit worse though.

My five year old just got this device on 12/11/2023

How are u now

How are u now

I'm a athlete and just got diagnosed and I didn't know if it would even be safe to exercise but this just motivated me even more now Thank You🙏

Thanks for sharing but a bit confused. How did you donit exactly I thought you mentioned a therapy?

I don't bing on food or junk food. I do four sets of 8 every four days. I take melatonin at night and i take Gaba to calm the mind and if i forget to take one dose of medication, i'm done 😢 this is all new to me

Hi sir Bryan, I do have epilepsy it's hard for me to find a good job coz of this. I really want to earn coz i am also a single mom.

What a waste of time, said the old 62 year old seizure guy.

Please what is the VNS Therapy

i was 16 years old when i got my first seizure after taken anti epllepsy for 20 years i stopped taken them :depakine and did not had an seizure for over 18 years but unfortunally after 18 years i got seizure again and now im again on meds

Thank you so much for the help

How can i start my dieting process

Thanks for sharing your experience. I am going through a similar experience with my son right now! He was drug free for the last four years without seizures, but after two recent generalized seizures, he is now back on the meds, and with side effects. One neurologist suggested surgery. I know that it can be successful, but it also sounds like a scary thought!

Whoever created Keppra, let’s step outside for a second, I need a word with you. 😕

I had a vns fitted DID NOTHING

Vagas

4 brain surgeries down. Luckily just got VNS thank you for the video. Keep fighting brother.

I'm already on a seizure free path after i stopped meds during secondary school days now i get to travel freely without worrying about when's the next seizure going to take place 😅

Are you still seizure free? Do you still have your VNS implant? We are currently starting the process of meeting with the neurosurgeon to discuss VNS for my 12 yr old daughter. She started having seizures at 9 yrs old without any explanation.

What’s the name of the girl you said you watch on UA-cam?

I just had mine installed two days ago. It’s pretty tender still, but I’m hoping it will subside soon. Your post is 9 years old. I’m wondering what kind of success you’ve had?

If my sleep cycle is 12:30 am to 8 am.. Is that okay?? Or do I have to sleep early likearound 11 pm?

How early in night I need to sleep?

I love your channel..thank you for your effort and everything you do to help others who are under this epilepsy..my son is 18 when this seizure attacks him but it only comes during his sleep and please do message me the steps to his recovery especially without taking medications..Love this courage and effort in helping out those out there who undergo the same as you.

And I take 50 mg of trokendi a day

I just got the VNS. I’m currently on 4,000 mg of keppra and 400mg of vimpat a day. I sure hope this gets me where you are. I am home most of the time now. I have partial complex epilepsy