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Marfan Warrior
Austria
Приєднався 22 січ 2024
E33: I'm in Pain - Life with chronic headaches
With deep gratitude, I welcome you to episode 33 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you.
I share with you the most vulnerable side of myself. I show you in real life what it's like for me to experience a severe headache due to dural ectasia. I suffer from chronic headaches, but sometimes they're just so unbearable, as you can see for yourself.
#pain #chronicpain #chronicpainwarrior #headache #chronicheadache #headaches #chronicheadaches #duralectasia #marfan #marfansyndrome
**********************************
ABOUT ME AND THE MARFAN WARRIOR PODCAST
I was born with Marfan Syndrome, a potentially life-threatening, rare genetic connective tissue disorder. In August of 2021, I had a spontaneous aortic rupture and I had to have emergency open-heart surgery to replace the torn section of my aorta with a prosthetic as well as a bypass and stent inserted into my descending aorta. During the operation I had a type of near-death experience, and as a result I went through a spiritual awakening following the operation.
I have decided to document my story and start this podcast. In addition, I will focus on the many aspects of healing and talk about my own life-long healing process, as well as talk to other warriors about their chronic and invisible illnesses and healing experiences. From time to time, I will also invite guests onto the podcast who are well-versed in various healing modalities such as meditation, psychotherapy, physical therapy, Reiki, quantum healing, and theta healing, just to name a few.
**********************************
Marfan Syndrome and other connective tissue disorders are no walk in the park. If Marfan Syndrome is new to you, you can learn more about this rare genetic connective tissue disorder by visiting this website: marfan.org.
You're welcome to follow me: themarfanwarrior podcasters.spotify.com/pod/show/marfanwarrior www.youtube.com/@MarfanWarrior
Interested in collaborating with me somehow or simply want to reach out?
marfanwarrior@gmail.com
FEELING GENEROUS?
ko-fi.com/marfanwarrior
**********************************
DISCLAIMER
The content presented in this podcast is for informational and educational purposes only and should not be construed as medical advice. While I strive to provide accurate and up-to-date information, the topics discussed should not replace the personalized care and guidance of a licensed healthcare provider. Always consult your doctor or another qualified health professional before making any changes to your diet, exercise routine, or treatment plan. The host and guests of this podcast are not responsible for any adverse effects or consequences resulting from the use of or reliance on the information provided.
The thoughts, ideas, and opinions expressed in this podcast are solely my own and do not reflect the views or positions of my employer. This content is created independently and is not affiliated with, endorsed by, or representative of my employer in any way.
I share with you the most vulnerable side of myself. I show you in real life what it's like for me to experience a severe headache due to dural ectasia. I suffer from chronic headaches, but sometimes they're just so unbearable, as you can see for yourself.
#pain #chronicpain #chronicpainwarrior #headache #chronicheadache #headaches #chronicheadaches #duralectasia #marfan #marfansyndrome
**********************************
ABOUT ME AND THE MARFAN WARRIOR PODCAST
I was born with Marfan Syndrome, a potentially life-threatening, rare genetic connective tissue disorder. In August of 2021, I had a spontaneous aortic rupture and I had to have emergency open-heart surgery to replace the torn section of my aorta with a prosthetic as well as a bypass and stent inserted into my descending aorta. During the operation I had a type of near-death experience, and as a result I went through a spiritual awakening following the operation.
I have decided to document my story and start this podcast. In addition, I will focus on the many aspects of healing and talk about my own life-long healing process, as well as talk to other warriors about their chronic and invisible illnesses and healing experiences. From time to time, I will also invite guests onto the podcast who are well-versed in various healing modalities such as meditation, psychotherapy, physical therapy, Reiki, quantum healing, and theta healing, just to name a few.
**********************************
Marfan Syndrome and other connective tissue disorders are no walk in the park. If Marfan Syndrome is new to you, you can learn more about this rare genetic connective tissue disorder by visiting this website: marfan.org.
You're welcome to follow me: themarfanwarrior podcasters.spotify.com/pod/show/marfanwarrior www.youtube.com/@MarfanWarrior
Interested in collaborating with me somehow or simply want to reach out?
marfanwarrior@gmail.com
FEELING GENEROUS?
ko-fi.com/marfanwarrior
**********************************
DISCLAIMER
The content presented in this podcast is for informational and educational purposes only and should not be construed as medical advice. While I strive to provide accurate and up-to-date information, the topics discussed should not replace the personalized care and guidance of a licensed healthcare provider. Always consult your doctor or another qualified health professional before making any changes to your diet, exercise routine, or treatment plan. The host and guests of this podcast are not responsible for any adverse effects or consequences resulting from the use of or reliance on the information provided.
The thoughts, ideas, and opinions expressed in this podcast are solely my own and do not reflect the views or positions of my employer. This content is created independently and is not affiliated with, endorsed by, or representative of my employer in any way.
Переглядів: 8
Відео
E 32: Signs from Spirit: Coins and a Feather Flock Together
Переглядів 5День тому
With deep gratitude, I welcome you to episode 32 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. In this episode I dive into the story about how I began asking Spirit, the Universe, Source, God...for signs, and I tell you some very specific details about 4 times that I stumbled upon some very unique coins, two instances upon request. #signs #signsfromspirit #s...
E31: The Benefits of Grounding (Earthing) & My Barefoot Phobia
Переглядів 1514 днів тому
With deep gratitude, I welcome you to episode 31 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. In this episode I talk about how I learned about the benefits of grounding (earthing), and I discuss how I overcame my phobia of walking barefoot on grass this past summer. I'm going to put grounding (earthing) to the test and see if it will bring any benefits to m...
E30: Animals as Spiritual Messengers
Переглядів 521 день тому
With deep gratitude, I welcome you to episode 30 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. In this episode I talk about what I find to be another synchronicity that I experienced while I was at rehabilitation following my open-heart surgery due to an aortic rupture in August of 2021 (which led to my spiritual awakening). More specifically, I'm left wonde...
E29: The Awakened Brain and My Experience with Synchronicities
Переглядів 5Місяць тому
In episode 29 of the Marfan Warrior Podcast I introduce you to a book that made a big impression on me, The Awakened Brain by Columbian University professor on spirituality in psychology, Lisa Miller. Among the topics that she discusses in her book, she also talks about the significance of synchronicities. I felt inspired by Miller to discuss a few of my own experiences with synchronicities. #s...
Episode 28: Two Peeps on a Podcast - Interview with Adrian Nelson on Theta Healing
Переглядів 4Місяць тому
With deep gratitude, I welcome you to episode 28 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. In this episode, I had the honor and pleasure of speaking with Theta Healing practitioner (amongst other things), Adrian Nelson. Adrian tells us all about Theta Healing. If you're interested in reaching out to Adrian, you can find him on: UA-cam: www.youtube.com/@U...
Episode 21: Timo, Twenty One Pilots, the Tattoo and Thrombosis Tablets
Переглядів 8Місяць тому
Welcome to episode 21 of the Marfan Warrior Podcast! Just when you thought you heard all about my aortic dissection...Join me in my conversation with Timo, one of my oldest yet youngest friends in Vienna, and find out how he played an important role in my aortic dissection experience. ABOUT ME AND THE MARFAN WARRIOR PODCAST I was born with Marfan Syndrome, a potentially life-threatening, rare g...
Episode 27: Embarking on My Journey to "Becoming Supernatural" (by Joe Dispenza)
Переглядів 11Місяць тому
With deep gratitude, I welcome you to episode 27 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. I'm about to set off on a journey to becoming supernatural, and in this episode I talk about that. In 1986, chiropractor Joe Dispenza was in a cycling accident and was left with six crushed vertebrae. Doctors told Dispenza that he might not ever be able to walk aga...
Episode 26: Did My Intuition Guide Me toward My Spiritual Awakening
Переглядів 11Місяць тому
With deep gratitude, I welcome you to episode 26 of the Marfan Warrior Podcast! It's an honor and pleasure to cross paths with you. In this episode I talk about a few experiences that occurred which I feel guided me toward my spiritual awakening following my second open-heart surgery due to a spontaneous aortic rupture in August of 2021. These instances include clairvoyant and clairaudient expe...
Episode 25: My Path to Becoming a Reiki Master
Переглядів 9Місяць тому
Welcome to episode 25 of the Marfan Warrior Podcast! This past March, I became a certified Reiki master, and in this episode, I tell you about my path to becoming a Reiki master, which all started after I went through my spiritual awakening after my second open-heart surgery in August 2021. I also introduce you to one of my Reiki masters, Bruce Taylor of www.rootsoflife.org. You can follow him ...
Episode 24: My Spiritual Awakening after Open-Heart Surgery
Переглядів 242 місяці тому
Welcome to episode 24 of the Marfan Warrior Podcast! Okay, so the cat's out of the bag now. I had a spiritual (re-) awakening after I had my second open-heart surgery in August of 2021. In this episode, I tell you how this experience unfolded. Marfan Syndrome and other connective tissue disorders are no walk in the park. If Marfan Syndrome is new to you, you can learn more about this rare genet...
Episode 23: Mourning My Younger, Healthier Self
Переглядів 82 місяці тому
Welcome to episode 23 of the Marfan Warrior Podcast! Just as the title suggest, in this episode, I talk about how I sometimes mourn my younger (healthier) self, which I believe might be something that many people with chronic illness might do. Marfan Syndrome and other connective tissue disorders are no walk in the park. If Marfan Syndrome is new to you, you can learn more about this rare genet...
Episode 22: Being Brave Enough to Be Bad at Starting Something New
Переглядів 102 місяці тому
Welcome to episode 22 of the Marfan Warrior Podcast! I lay myself bare. In this relatively short(er) episode, I explain to you why I'm being brave enough to be bad at starting something new, namely - producing this podcast. Marfan Syndrome and other connective tissue disorders are no walk in the park. If Marfan Syndrome is new to you, you can learn more about this rare genetic connective tissue...
Episode 19: Interview with Cam Isaac - Two Marfan Warriors on a Pod(cast)
Переглядів 153 місяці тому
Welcome to episode 19 of the Marfan Warrior Podcast! I had the great honor to have an incredibly inspiring conversation with Cam Isaac, a fellow Marfan Warrior. He’s a two-fold warrior, as he too was not only diagnosed with Marfan Syndrome, but also Lymphoma just days prior to the Marfan diagnosis. Despite the hardships that he has had to face and overcome, he’s been able to use them to fuel hi...
Episode 18: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 3
Переглядів 93 місяці тому
Episode 18: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 3
Episode 17: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 2
Переглядів 123 місяці тому
Episode 17: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 2
Episode 20: Meet Magdalena Steinrück - Type 1 Diabetes Mom Warrior
Переглядів 163 місяці тому
Episode 20: Meet Magdalena Steinrück - Type 1 Diabetes Mom Warrior
Episode 16: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 1
Переглядів 183 місяці тому
Episode 16: Tear in My Heart (or aorta, actually) - All about my aortic dissection - part 1
Episode 15: Astounded by Abdominal Adhesions
Переглядів 614 місяці тому
Episode 15: Astounded by Abdominal Adhesions
Episode 14: Interview with Abigail Kaiser - My Childhood Home and a Sense of Closure
Переглядів 3404 місяці тому
Episode 14: Interview with Abigail Kaiser - My Childhood Home and a Sense of Closure
Episode 13: My Misadventure with the Meningocele
Переглядів 94 місяці тому
Episode 13: My Misadventure with the Meningocele
Episode 12: Kasia Kuzmicz-Kowalska on Her Rheumatoid Arthritis Diagnosis
Переглядів 484 місяці тому
Episode 12: Kasia Kuzmicz-Kowalska on Her Rheumatoid Arthritis Diagnosis
Episode 11: Yin, Yang and the Grey Serpentine Path
Переглядів 265 місяців тому
Episode 11: Yin, Yang and the Grey Serpentine Path
Episode 10: Exploring the Soul and Past Lives
Переглядів 225 місяців тому
Episode 10: Exploring the Soul and Past Lives
Episode 9: Shamanism and the Labyrinth of the Inner Self
Переглядів 225 місяців тому
Episode 9: Shamanism and the Labyrinth of the Inner Self
Episode 8: Interview with My Dad!!! - On spirituality
Переглядів 685 місяців тому
Episode 8: Interview with My Dad!!! - On spirituality
Episode 7: C is for Cancer and All the Crap That Follows
Переглядів 186 місяців тому
Episode 7: C is for Cancer and All the Crap That Follows
Episode 6: Bloody Frickin' Hell (part 2) - How menstruation made my life a living nightmare
Переглядів 246 місяців тому
Episode 6: Bloody Frickin' Hell (part 2) - How menstruation made my life a living nightmare
Episode 5: Bloody Frickin' Hell (part 1) - How menstruation made my life a living nightmare
Переглядів 156 місяців тому
Episode 5: Bloody Frickin' Hell (part 1) - How menstruation made my life a living nightmare
Episode 4: My High-Risk Pregnancy and a Double-Fault Victory
Переглядів 366 місяців тому
Episode 4: My High-Risk Pregnancy and a Double-Fault Victory
Thank you for being so open and vulnerable about your journey with Marfan Syndrome and sharing your real-time emotions. Like the book you found in Switzerland, your channel reaches out to those facing this difficult diagnosis, offering immense comfort and connection. Just knowing someone else is out there, navigating the same challenges (whatever they may be), brings so much comfort. I especially loved hearing how you met your husband-such a beautiful story of Divine Intervention! May God richly bless you with His healing power. Wishing you all the best and praying for your healing and strength. 🙏✨
Thank you for your lovely feedback! Your words offer so much encouragement in a time when I've been highly considering giving up the channel. The universe, God, spirit, source... sends us the right messengers at just the right time. Wishing YOU a successful journey in life and with your channel. 🫶🏽✨💖
I watched this episode It was G R E A T arinya 😍😍😍😍❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
Thank you so much, Saeed! 🙏🏽
Love you my darling @@MarfanWarrior
@@MarfanWarrior❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤
I’m constantly in communication with spirit through animals and insects. I just saw a bobcat in the yard a few days ago. I’ve had a scorpion 🦂 in my room and I’ve made friends with a black ant 🐜 that visits me daily…. Deer, turkey, 🦎 pheasant, eagles 🦅 woodpeckers, Vultures and ground squirrels 🐿️ come by daily, and I’m grateful because I feel it’s the universe loving on me. I’m in Oregon, USA. The scorpion and Bob cat proceeded different but notable occurrences, too lengthy to explain here.
Wow! That's amazing! I appreciate how observant you are and how you care about our neighbors in nature. I'm sure they sense that from you and that's why you receive so many visits from them.
@@MarfanWarrior I’ve been on a long self healing journey with spirit. My focus has been to heal myself and to find ways to communicate with spirit. I’m proud to say I’ve been successful at both but it’s still a work in progress, of course.
I would be very interested in hearing more about your healing journey. That's really my cup of tea You're welcome to reach out to me via email as well. My email address is in the description of the episode, if you feel called to share.
@@MarfanWarrior I would love to share.
I l forward to hearing from you then!
Dear heart, I came across your video because I am researching spiritual awakenings for a talk. I noticed no likes which disappointed me for you, but as I listened I could hear your genuine sincerity so I persisted and at the end I heard about what you went through. During that time I cooked dinner and chatted with a friend but still felt it was too long and dragged out. Please remember to keep your talk to what the subject is and have a structured plan, so viewers don't get put off, wasting their time. I hear you when you said you were not focused this day as it showed. I still don't understand what the neurologist had to do with reincarnation or your spiritual awakening, because you kept going back and forth, but I got the lovely tree and leaves experience. Please don't be disappointed or angry at my comments - they come in love and helpfulness. I hope you do well on your channel in the future. Always remember to keep that memory. Having a family makes it hard to stay awakened but your journey has only just started and there is a lot of personal work to be done. Please consider my comments with the kindness that I hope to pass over for you.
Dear Carole, thank you for your very kind and constructive message. I (still) don't have many many followers, but I hope that as my podcast improves the right people will continue to find me. I'm very uncomfortable speaking to an audience and have poor communication skills, but I'm hoping that will all change in time. I want to remain raw, genuine and honest throughout the whole development process. I want to be proof that despite fears, insecurities and lack of skills and knowledge, one can still take on difficult and overwhelming tasks. Thank you for persisting and listening to the end. All the best in your research! I would be interested in hearing more about it, too be honest. Feel free to reach out to me by email if you want to.
@@MarfanWarrior You will be fine, but practice is always the best way to go. Keep doing it and always remember to be yourself. Videos hide no secrets so you must always be you! Once on your journey the sun will shine brighter and you will love what you are doing. I learnt the hard way, starting with doing readings at Spiritualist church, then addresses and some medium ship but about then I was asked to take over President so I ended up taking the services instead for about five years. Now I am a speaker at the Theosophical Society. They were very helpful for me and taught me how to do presentations. I have done about eight hour-long ones to date and have found that I love sharing my subjects of interest. I have considered UA-cam but technology confounds me, lol... Good luck with your journey, Marfan Warrior! ❤️
Thank you for sharing your story, Arinya. Your strength and courage in facing aortic dissection and Marfan syndrome are truly inspiring.
Thank you so much for your kind words! They're very uplifting. Heartfelt greetings from my heart to yours 💞
Woow ari I just received this video It's gonna be interesting conversations After watch share my idea kansas city 😍😘😘😘😘
Sure 😊
@@MarfanWarrior hooray 😍😘😘😘😘😘
All our best and all our love to you from Ken & Wai...keep on fighting. I can relate to the surgery...had a mitral valve repair & a partial colectomy two summers ago..within 2 months.
Thank you, Ken. I hope you have fully recovered by now! I'm glad you wrote. It means a lot. 🙏🏽
What a beautiful conversation to have with your dad. Thank you for sharing. ❤️
Thank you, Gina! 🙏🏽💞
Thank yallllll 🥲❤❤❤❤❤❤🧡
This was very enlightening and educational for me! Your Dad is a good, honest person just like YOU! Our spiritual journeys are more alike than different, no matter the circumstances in many ways. We're all very blessed, ifin' we can recognize it ✨
Thank you for joining us in this episode! 🙏🏽💓💓💓
Love this man He is a legend Legend of the modern West
Ari Uncle ross is a clear example of mystic philosopher and introvert person Please send my best and love to him His like the great poet of iran is hafez or saadi
Look at this 😍 ari and uncle ross again 😍😍😍😍😍😍🥲🥲🥲🥲
Such amazing purely southern accent,I love that Such a sweet great dad 😘😘😘
😊 thank you! 🙏🏽
@@MarfanWarrior your welcome 🙏 I shared my thoughts a bout this episode in your DM ari Thank you and my lovely great uncle ❤️
Such a gorgeous episode Great honor to meet this special great man (texan hero ❤)
I think many things are beyond faith But don't know exactly what should be named? Thanks for your podcasts ari I love them Honestly I feel solidarity with them 🥲🥲❤❤❤❤❤❤
Thanks so much for your support! 🙏🏽 It means so much to me!
Wow, your voice! Great song, I love the blues!
Thank you so much! 🙏🏽
Wow I listened to 20 minutes I'll listen to the rest when I get home But question is how could you control stress caused by it?
Thank you! 🙏🏽 There was no control over the stress. My body and mind were simply on autopilot.
But first i have to finish the previous one cause i was very busy 🥲🥲💞💞💞
Another amazing episode ❤❤❤
Thanks ari for this audio file Honestly it would be much better if there was a video certainly with your amazing locations and natures😂😘 but anyway this episode and your perfect sound ❤❤❤❤❤whenever I finished I'll share my question in dm with you Kansas 🙏🙏🙏❤❤
Sorry... The next few episodes will be audio only. But thanks so much for listening! 🙏🏽
Another shocking episode 😢❤❤❤❤❤❤❤thank you ari ❤️
You're welcome, Saeed! Thanks so much, and keep listening. There's still a bit more "shock factor" to come!
@@MarfanWarrior ari I couldn't control my emotions 🥲🥲😪it was very tough Tomorrow I'll talk with you about this episode God bless you kansas girl 💞💞💞❤❤❤❤
🤗
I gotta go to watch that 😘😘💯💯❤
Please do!
@@MarfanWarrior it's my duty dear ari to watch that Because this disease is big threat against us and people like us need awareness I want to thank you again and again and again for this green positive job I want to thank you for sharing your hard experiences And I want to thank you Because you tolerate my poor English But I bet you my English better than your persian (farsi_iranian language)😂🤣😘😘😘😘😘😘😘😘😘😘😘😘😘😘😘😘😘🤠🤠🤠🤠🤠🤠🤠❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤💯💯💯💯💯💯
Sorry! I just saw your comment this morning! Thank you for your uplifting comments. They mean a lot.
@@MarfanWarrior my honor dear ari (Legendry warrior)❤❤💯💯💯🙏🙏🙏🙏🙏🙏🙏
Hip hip hurray another episode released 🎉🎉🎉🎉🎉🎉❤❤❤❤
🥳
😘😘😘😘😘😘😘🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉🎉@@MarfanWarrior
💯💯💞💞🙏👌👌👌
First of all what a wonderful lovestory ❤💯💯and what a amazing view 👌👌👌and I'm still in shock about threats of this diagnosis certainly you mentioned age and I think its very important for ppl who have this signs and they are unaware of the existence of this disease. Thank you alotttttt mam ❤❤❤❤💯💯💯💯
Thank you very much! 🙏🏽✨
@@MarfanWarrior your welcome dear ari ❤❤❤❤🙌🙌💯💯💯💯
It was awesome thank you ❤💯💯
Thank you! Glad you enjoyed it! 🙏🏽✨
@@MarfanWarrior your welcome mam I'll be waiting for next epidods 💞💞❤it was very useful for me personally as a tall person who have this issue a little bit 💗💗
Great first episode! Can’t wait to listen to you more! 💕 thank you!!
Thank you so much, Dear. Just wait until you see my "magnificent" color grading in episode 2. 🙈 Still so much to learn!
❤❤❤💯💯
Thank you! 🙏🏽
@@MarfanWarrior your welcome mam❤❤