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ERKucation
Germany
Приєднався 29 вер 2022
This is the official channel of the ERKNet Postgraduate Curriculum in Rare Kidney Diseases. The ERKNet Postgraduate Curriculum is a structured 3-year online programme consisting of webinars and case-based eLearning covering the whole spectrum of rare kidney diseases. The webinars are presented twice a month by outstanding paediatric or adult nephrologists, nephropathologists and geneticists.
ERKNet/ERA Webinar - Hereditary Leiomyomatosis and Renal Cell Carcinoma HLRCC by Jan Degenhardt
ERKNet/ERA Webinar on Hereditary Leiomyomatosis and Renal Cell Carcinoma HLRCC. Presented by Jan Degenhardt, an assistant doctor in Nephrology (Germany), on July 30, 2024.
⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars
🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars
🌐 If you want to learn more about ERKNet, please visit www.erknet.org/
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⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars
🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars
🌐 If you want to learn more about ERKNet, please visit www.erknet.org/
📱Follow us on our social networks!
EuRefNetwork
linkedin.com/in/erknet
erknet_ern
Facebook: profile.php?id=61554174384011
Переглядів: 209
Відео
ERKNet/ESPN Webinar - Renal Tubular Acidosis by Detlef Böckenhauer
Переглядів 26021 день тому
ERKNet/ESPN Webinar on Renal Tubular Acidosis. Presented by Detlef Böckenhauer, a Pediatric Nephrologist at University Hospitals Leuven (Belgium), on July 09, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 If you want to learn m...
ERKNet/ESPN Webinar - Familial Hypomagnesemia by Karl Peter Schlingmann & Susana Carvajal Arjona
Переглядів 500Місяць тому
ERKNet/ESPN Webinar on Familial Hypomagnesemia. Presented by Karl Peter Schlingmann, a Pediatric Nephrologist at University Hospital Münster (Germany), and patient voice Susana Carvajal Arjona (Spain), on July 02, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/ed...
ERKNet/ESPN Webinar - ADPKD in children by Djalila Mekahli
Переглядів 2422 місяці тому
ERKNet/ESPN Webinar on ADPKD in children. Presented by Djalila Mekahli, a Pediatric Nephrologist (Belgium), on June 05, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 If you want to learn more about ERKNet, please visit www.erkn...
ERKNet/ESPN Webinar- Biostatistical approaches in clinical research of rare diseases by Ralf Hilgers
Переглядів 1213 місяці тому
ERKNet/ESPN Webinar on an overview of biostatistical approaches in clinical research of rare diseases. Presented by Ralf-Dieter Hilgers, the director of the institute for Medical Statistics at RWTH Aachen University (Germany), on May 14, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars...
ERKNet/ESPN Webinar - FAQ on TMA by Johan Vande Walle and Aleksandra Vujovic
Переглядів 2533 місяці тому
ERKNet/ESPN Webinar on FAQ on TMA. Presented by Johan Vande Walle, a Pediatric Nephrologist (Belgium) and Aleksandra Vujovic, a Pediatric specialist (Slovenia), on May 07, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 If you wa...
ERKNet/ESPN Webinar - Rickets in children and adults by Dieter Haffner
Переглядів 2754 місяці тому
ERKNet/ESPN Webinar on rickets in children and adults. Presented by Dieter Haffner, a professor of pediatrics and head of the Department of Pediatric Kidney (Germany), on April 09, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 ...
ERKNet/ESPN/ERA Webinar- C3G and IC-MPGN:an Update by Marina Vivarelli and Marianne Silkjaer Nielsen
Переглядів 1,1 тис.5 місяців тому
ERKNet/ESPN/ERA Webinar on C3G and IC-MPGN: an update. Presented by Marina Vivarelli, Pediatrician (Italy), and patient voice Marianne Silkjaer Nielsen(Denmark), on March 19, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 If you...
ERKNet/ESPN/ERA Webinar - TSC Guideline by John Bissler
Переглядів 3615 місяців тому
ERKNet/ESPN/ERA Webinar on TSC Guideline. Presented by John Bissler, Medical Director of Nephrology and Professor of Pediatrics at University of Tennessee Health Science Center and Le Bonheur Children’s Hospital (USA), on March 05, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here:...
ERKNet/ESPN/ERA Webinar - Impact of RNAi medication on PH1 Management by Jaap Groothoff
Переглядів 3046 місяців тому
ERKNet/ESPN/ERA Webinar on Impact of RNAi medication on the management of patients with Primary Hyperoxaluria typ1. Presented by Jaap Groothoff, Pediatric Nephrologist at Amsterdam University Medical Center (Netherlands), on February 20, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars...
ERKNet ESPN Webinar - Update on Lipidapheresis Guideline by Doortje Reijman
Переглядів 1388 місяців тому
ERKNet/ESPN Webinar on an Update on Lipidapheresis Guideline. Presented by Doortje Reijman, Pediatric Nephrologist(Netherlands), on December 19, 2023. Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars If you want to learn more about ERKNet, please visit www.erknet.org/
ERKNet/ESPN Webinar - Lowe Syndrome by Arend Bökenkamp and ePAG representative Tina Verschuere
Переглядів 2419 місяців тому
ERKNet/ESPN Webinar on Lowe Syndrome. Presented by Arend Bökenkamp, Pediatric Nephrologist(Netherlands) and Tina Verschuere(ePAG representative), on November 21, 2023. Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars If you want to learn more about ERKNet, please visit www.erknet.org/
ERKNet/ESPN Webinar - Predict Trial Results by William Morello
Переглядів 1889 місяців тому
ERKNet/ESPN Webinar on Predict Trial Results. Presented by William Morello, Pediatric Nephrologist(Italy), on November 07, 2023. Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars If you want to learn more about ERKNet, please visit www.erknet.org/
ERKNet/ESPN/ERA Webinar - Basic Genetics Concetps and Clinical Practice by Beata Lipska-Ziętkiewicz
Переглядів 28510 місяців тому
ERKNet/ESPN/ERA Webinar on Basic Genetic Concepts and Clinical Practice. Presented by Beata Lipska-Ziętkiewicz, Clinical Geneticist at University Clinical Centre Gdansk (Poland), on October 10, 2023. Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars If you want to learn more about ERKNet, please visit www.erknet.org/
ERKNet/ESPN Webinar - Galloway Mowat Syndrome by Guillaume Dorval
Переглядів 26611 місяців тому
ERKNet/ESPN Webinar on Galloway Mowat Syndrome. Presented by Guillaume Dorval, Pediatric Nephrologist (France), on September 14, 2023. Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars If you want to learn more about ERKNet, please visit www.erknet.org/
ERKNet/ERA Webinar - Managing Immune Glomerulopathies by Paola Romagnani
Переглядів 590Рік тому
ERKNet/ERA Webinar - Managing Immune Glomerulopathies by Paola Romagnani
ERKNet/ERA Webinar - Physiology of Podocytophathies by Tobias Huber
Переглядів 542Рік тому
ERKNet/ERA Webinar - Physiology of Podocytophathies by Tobias Huber
ERKNet/ERN-Eye Webinar - Syndromic Ciliopathies Bardet Biedel by Jens König & Hélène Dollfus
Переглядів 199Рік тому
ERKNet/ERN-Eye Webinar - Syndromic Ciliopathies Bardet Biedel by Jens König & Hélène Dollfus
ERKNet/ERA Webinar - Disorders of renal calcium handling by Pascal Houillier
Переглядів 588Рік тому
ERKNet/ERA Webinar - Disorders of renal calcium handling by Pascal Houillier
ERKNet/ERA Webinar - Adenine Phosphoribosyltransferase Deficiency by Aude Servais
Переглядів 242Рік тому
ERKNet/ERA Webinar - Adenine Phosphoribosyltransferase Deficiency by Aude Servais
ERKNet/ESPN Webinar - Dysplasia and LUTO Guideline by Stefan Kohl and Valentina Capone
Переглядів 360Рік тому
ERKNet/ESPN Webinar - Dysplasia and LUTO Guideline by Stefan Kohl and Valentina Capone
ERKNet Webinar - Cystinuria by Pietro Manuel Ferraro
Переглядів 475Рік тому
ERKNet Webinar - Cystinuria by Pietro Manuel Ferraro
ERKNet Webinar - Challenges in Kidney Transplantation in Infants by Burkhard Tönshoff
Переглядів 236Рік тому
ERKNet Webinar - Challenges in Kidney Transplantation in Infants by Burkhard Tönshoff
ERKNet Webinar - Non Cystinotic Renal Fanconi Syndrome by Francesco Emma
Переглядів 395Рік тому
ERKNet Webinar - Non Cystinotic Renal Fanconi Syndrome by Francesco Emma
ERKNet Webinar - XLH: New Recommendations by Dieter Haffner
Переглядів 87Рік тому
ERKNet Webinar - XLH: New Recommendations by Dieter Haffner
ERKNet Webinar - Genetics - Basic Concepts and Testing by Beata Lipska-Ziętkiewicz
Переглядів 84Рік тому
ERKNet Webinar - Genetics - Basic Concepts and Testing by Beata Lipska-Ziętkiewicz
ERKNet Webinar - Nephronophthisis by Marijn Stokman
Переглядів 634Рік тому
ERKNet Webinar - Nephronophthisis by Marijn Stokman
ERKNet Webinar - Embryology of the Kidney and Urinary Tract by Jacqueline Ho
Переглядів 102Рік тому
ERKNet Webinar - Embryology of the Kidney and Urinary Tract by Jacqueline Ho
So happy to see Dr Christoph in this video, I have known him as my nephrologist for over 10 years now. Was first seeing him at SickKids hospital, then after turning 18 and being shifted to TGH, having appointments with him whenever he is available. He is someone I am forever grateful to as he has greatly helped me and my family in our fight with my rare condition C3GN. Thank you to all doctors, nurses, and researchers for everything that you do. ❤
Thank you. I have Gitelman's. I was diagnosed 6 years ago but only told I have CKD. I had no idea the reality of this thing until April this year (2024). A new med I started for a different issue caused a crisis which I had to weather with just the help of an overwhelmed but deeply concerned general practitioner as I couldn't get in to my nephrologist for weeks. I kept being urged to go to the ER but I knew that would make things even worse. Fortunately I saw a much more knowledgeable, new NP at my nephrologist's office and I'm sticking with her. Now I have my brain and energy back, I'm learning. This video is very helpful and I will be sharing it with all my docs. Thank you.
Hi.. I'm from Indonesia. My daughter was diagnosed SIOD from lab result Cantogene. Now, my child is being treated in hospital at RSCM Jakarta. Can you help me and the doctors in Indonesia for my child? Thank you.
Thank you!
can i have more information on WRD4 please?
Is Rituximab useful
3:44
Does that mean my life is running on 50% chance ?
While doing a full body checkup for the Navy i came to know that I've Lt. Renal Agenesis. I felt normal for my whole life until now 😔.
Most disorders of excess uric acid generation and/or too little uric acid elimination are a direct result of the chronic intermittent hypoxemia of sleep apnea. Resolving the sleep apnea usually solves the problem,
Hi. Im from South Africa. My late daughter was diagnosed with this disease with the confirmation of SIOD from Dr Boerkoel in Canada. Her story already has been entered into the medical journal and a biopsy of her kidney was sent to Canada for further studies...I can assist if there is any thng more u would like ti know of her diagnosis and symptoms. Thnk u kindly
She was the only known case in south africa living with siod