ERKucation
ERKucation
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CKD mineral and bone disorder after TX - ERKNet/ESPN Webinar with Agnieszka Prytula
ERKNet/ESPN Webinar on Ciliopathies by Agnieszka Prytula, a Paediatric Nephrologist (Poland), on November 26, 2024. The webinar was moderated by Elena Levtchenko (Belgium).
⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars
🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars
🌐 If you want to learn more about ERKNet, please visit www.erknet.org/
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Переглядів: 259

Відео

Highlights from the KDIGO Guideline for ADPKD - ERKNet/ERA Webinar with Olivier Devuyst
Переглядів 352Місяць тому
ERKNet/ERA Webinar on Highlights from the KDIGO Clinical Practice Guideline for ADPKD by Olivier Devuyst, a Belgian nephrologist and professor at the University of Zurich (Switzerland), specializes in kidney physiology and hereditary diseases, on November 19, 2024. The webinar was moderated by Jens König (Germany). ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org...
ADTKD - ERKNet/ESPN/ERA Webinar with Jan Halbritter & patient voice Christian Scheidler (ePAG)
Переглядів 353Місяць тому
ERKNet/ESPN/ERA Webinar on ADTKD by Jan Halbritter, a Professor of Internal Medicine and Nephrology at Charité Berlin (Germany), and patient voice Christian Scheidler, a member of the ERKNet European Patient Advocacy Group (ePAG), on November 12, 2024. The webinar was moderated by Jens König (Germany). ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-tr...
Ciliopathies - ERKNet/ESPN/ERA Webinar with Marijn Stokman
Переглядів 3632 місяці тому
ERKNet/ESPN/ERA Webinar on Ciliopathies by Marijn Stokman, a Clinical Geneticist at Radboud University Medical Center (Radboudumc) (Netherlands), on October 09, 2024. The webinar was moderated by Tom Nijenhuis (Netherlands). ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.o...
Primary hyperoxaluria by Groothoff & Methylmalonic acidemia by Luciani | ERKNet/ESPN Symposium
Переглядів 2813 місяці тому
Explore the ERKNet/ESPN Symposium on "Innovative Therapies for Rare & Inherited Kidney Diseases," held on November 24, 2022. Experts from across Europe share insights and advancements in the field, making this a must-watch for those interested in kidney health and innovative therapies. For a comprehensive learning experience, a playlist of all symposium presentations is available. Timestamps: 0...
Complement Kidney Disorders by Fakhouri & GSD Therapies by Trepiccione | ERKNet/ESPN Symposium
Переглядів 1953 місяці тому
Explore the ERKNet/ESPN Symposium on "Innovative Therapies for Rare & Inherited Kidney Diseases," held on November 24, 2022. Experts from across Europe share insights and advancements in the field, making this a must-watch for those interested in kidney health and innovative therapies. For a comprehensive learning experience, a playlist of all symposium presentations is available. Timestamps: 0...
MDR nephrotic syndrome by Vivarelli & Podocytopathies by Saleem | ERKNet/ESPN Symposium
Переглядів 3973 місяці тому
Explore the ERKNet/ESPN Symposium on "Innovative Therapies for Rare & Inherited Kidney Diseases," held on November 24, 2022. Experts from across Europe share insights and advancements in the field, making this a must-watch for those interested in kidney health and innovative therapies. For a comprehensive learning experience, a playlist of all symposium presentations is available. Timestamps: 0...
Dent‘s disease by Gallop and Simons & Cystinosis by Emma | ERKNet/ESPN Symposium
Переглядів 2893 місяці тому
Explore the ERKNet/ESPN Symposium on "Innovative Therapies for Rare & Inherited Kidney Diseases," held on November 24, 2022. Experts from across Europe share insights and advancements in the field, making this a must-watch for those interested in kidney health and innovative therapies. For a comprehensive learning experience, a playlist of all symposium presentations is available. Timestamps: 0...
Nephronophthisis by Saunier & Hypomagnesemia by Houillier | ERKNet/ESPN Symposium
Переглядів 1853 місяці тому
Explore the ERKNet/ESPN Symposium on "Innovative Therapies for Rare & Inherited Kidney Diseases," held on November 24, 2022. Experts from across Europe share insights and advancements in the field, making this a must-watch for those interested in kidney health and innovative therapies. For a comprehensive learning experience, a playlist of all symposium presentations is available. Timestamps: 0...
Gene Therapies by Forsythe & Regulatory Aspects by Larsson | ERKNet/ESPN Symposium
Переглядів 973 місяці тому
Explore the ERKNet/ESPN Symposium on "Innovative Therapies for Rare & Inherited Kidney Diseases," held on November 24, 2022. Experts from across Europe share insights and advancements in the field, making this a must-watch for those interested in kidney health and innovative therapies. For a comprehensive learning experience, a playlist of all symposium presentations is available. Timestamps: 0...
Monoclonal gammopathy of renal significance - ERKNet/ESPN Webinar with Roberta Fenoglio
Переглядів 4003 місяці тому
ERKNet/ESPN Webinar on MGRS by Roberta Fenoglio, an Associate Professor at the University of Turin (Italy), on September 10, 2024. The webinar was moderated by Marina Vivarelli (Italy). ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 I...
Hereditary Leiomyomatosis and Renal Cell Carcinoma - ERKNet/ERA Webinar with Jan Degenhardt
Переглядів 3115 місяців тому
ERKNet/ERA Webinar on HLRCC. Presented by Jan Degenhardt, an assistant doctor in Nephrology (Germany), on July 30, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 If you want to learn more about ERKNet, please visit www.erknet.or...
Renal Tubular Acidosis - ERKNet/ESPN Webinar with Detlef Böckenhauer
Переглядів 5635 місяців тому
ERKNet/ESPN Webinar on Renal Tubular Acidosis. Presented by Detlef Böckenhauer, a Pediatric Nephrologist at University Hospitals Leuven (Belgium), on July 09, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 If you want to learn m...
Familial Hypomagnesemia - ERKNet/ESPN Webinar with Karl Peter Schlingmann and Susana Carvajal Arjona
Переглядів 6216 місяців тому
ERKNet/ESPN Webinar on Familial Hypomagnesemia. Presented by Karl Peter Schlingmann, a Pediatric Nephrologist at University Hospital Münster (Germany), and patient voice Susana Carvajal Arjona (Spain), on July 02, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/ed...
Autosomal Dominant Polycystic Kidney Disease in Children - ERKNet/ESPN Webinar with Djalila Mekahli
Переглядів 4037 місяців тому
ERKNet/ESPN Webinar on ADPKD in children. Presented by Djalila Mekahli, a Pediatric Nephrologist (Belgium), on June 05, 2024. ⏯ Please have an overview of our other past ERKNet Webinars here: www.erknet.org/education-training/past-webinars 🖊 Register for upcoming ERKNet webinars here: www.erknet.org/education-training/next-webinars 🌐 If you want to learn more about ERKNet, please visit www.erkn...
Biostatistical Approaches in Rare Diseases Clinical Research - ERKNet/ESPN Webinar with Ralf Hilgers
Переглядів 1627 місяців тому
Biostatistical Approaches in Rare Diseases Clinical Research - ERKNet/ESPN Webinar with Ralf Hilgers
FAQ on TMA - ERKNet/ESPN Webinar with Johan Vande Walle and Aleksandra Vujovic
Переглядів 3347 місяців тому
FAQ on TMA - ERKNet/ESPN Webinar with Johan Vande Walle and Aleksandra Vujovic
Rickets in children and adults - ERKNet/ESPN Webinar with Dieter Haffner
Переглядів 3668 місяців тому
Rickets in children and adults - ERKNet/ESPN Webinar with Dieter Haffner
C3G & IC-MPGN: an Update - ERKNet/ESPN/ERA Webinar with Marina Vivarelli & Marianne Silkjaer Nielsen
Переглядів 1,3 тис.9 місяців тому
C3G & IC-MPGN: an Update - ERKNet/ESPN/ERA Webinar with Marina Vivarelli & Marianne Silkjaer Nielsen
Thrombotic Microangiopathies Guideline - ERKNet/ESPN/ERA Webinar with John Bissler
Переглядів 53110 місяців тому
Thrombotic Microangiopathies Guideline - ERKNet/ESPN/ERA Webinar with John Bissler
Impact of RNAi medication on PH1 Management - ERKNet/ESPN/ERA Webinar with Jaap Groothoff
Переглядів 37110 місяців тому
Impact of RNAi medication on PH1 Management - ERKNet/ESPN/ERA Webinar with Jaap Groothoff
Update on Lipidapheresis Guideline - ERKNet/ESPN Webinar with Doortje Reijman
Переглядів 157Рік тому
Update on Lipidapheresis Guideline - ERKNet/ESPN Webinar with Doortje Reijman
Lowe Syndrome - ERKNet/ESPN Webinar with Arend Bökenkamp and ePAG representative Tina Verschuere
Переглядів 301Рік тому
Lowe Syndrome - ERKNet/ESPN Webinar with Arend Bökenkamp and ePAG representative Tina Verschuere
Predict Trial Results - ERKNet/ESPN Webinar with William Morello
Переглядів 202Рік тому
Predict Trial Results - ERKNet/ESPN Webinar with William Morello
Basic Genetics Concetps & Clinical Practice - ERKNet/ESPN/ERA Webinar with Beata Lipska-Ziętkiewicz
Переглядів 317Рік тому
Basic Genetics Concetps & Clinical Practice - ERKNet/ESPN/ERA Webinar with Beata Lipska-Ziętkiewicz
Galloway Mowat Syndrome - ERKNet/ESPN Webinar with Guillaume Dorval
Переглядів 352Рік тому
Galloway Mowat Syndrome - ERKNet/ESPN Webinar with Guillaume Dorval
Managing Immune Glomerulopathies - ERKNet/ERA Webinar with Paola Romagnani
Переглядів 683Рік тому
Managing Immune Glomerulopathies - ERKNet/ERA Webinar with Paola Romagnani
Physiology of Podocytophathies - ERKNet/ERA Webinar with Tobias Huber
Переглядів 629Рік тому
Physiology of Podocytophathies - ERKNet/ERA Webinar with Tobias Huber
Syndromic Ciliopathies: Bardet-Biedl Syndrome - ERKNet/ERN-Eye Webinar with J. König & H. Dollfus
Переглядів 258Рік тому
Syndromic Ciliopathies: Bardet-Biedl Syndrome - ERKNet/ERN-Eye Webinar with J. König & H. Dollfus
Disorders of renal calcium handling - ERKNet/ERA Webinar with Pascal Houillier
Переглядів 670Рік тому
Disorders of renal calcium handling - ERKNet/ERA Webinar with Pascal Houillier

КОМЕНТАРІ

  • @DonatStratos
    @DonatStratos Місяць тому

    I really appreciate your efforts! Could you help me with something unrelated: My OKX wallet holds some USDT, and I have the seed phrase. (alarm fetch churn bridge exercise tape speak race clerk couch crater letter). Could you explain how to move them to Binance?

  • @Nephseeker
    @Nephseeker Місяць тому

    Thank you for this wonderful talk. Please comment that what is the significance of checking Mg levels in ckd-mbd profile?

  • @NatashaStory-p6r
    @NatashaStory-p6r 3 місяці тому

    Miller Dorothy Anderson Amy Jackson Melissa

  • @NatashaStory-p6r
    @NatashaStory-p6r 3 місяці тому

    Williams Frank Martin Linda Miller Michael

  • @NatashaStory-p6r
    @NatashaStory-p6r 3 місяці тому

    Martinez Susan Robinson Karen Moore David

  • @NatashaStory-p6r
    @NatashaStory-p6r 3 місяці тому

    Miller Michelle Jackson Joseph Perez Patricia

  • @NatashaStory-p6r
    @NatashaStory-p6r 3 місяці тому

    Clark Larry Smith Amy Johnson Jeffrey

  • @MaryLee-r2v
    @MaryLee-r2v 3 місяці тому

    Hall Mark Williams Kimberly Gonzalez Eric

  • @sarahmansoor6173
    @sarahmansoor6173 3 місяці тому

    I have been battling a rare kidney disease, C3G for the last 10 years and for 8 years had nephrotic syndrome, but then my proteinuria got lower to be around 1.5g per day and my doctor says I have now what they call subnephrotic range proteinuria.

    • @jaykalra-hb3cz
      @jaykalra-hb3cz 2 місяці тому

      @@sarahmansoor6173 my son is diagnosed with C3GN and treated by Dr Licht first at Sickkids and now at TGH - What meds are you on?

  • @jutublizard
    @jutublizard 3 місяці тому

    Hello :) . Slc34a1 mutation, undetectable fgf23, a bit higher active vitamin d, muscle spasms, hypercalciuria, hypermagnesiuria, too much phosphorus in the urine as well. Does it all make sense? :)

  • @sarahmansoor6173
    @sarahmansoor6173 4 місяці тому

    So happy to see Dr Christoph in this video, I have known him as my nephrologist for over 10 years now. Was first seeing him at SickKids hospital, then after turning 18 and being shifted to TGH, having appointments with him whenever he is available. He is someone I am forever grateful to as he has greatly helped me and my family in our fight with my rare condition C3GN. Thank you to all doctors, nurses, and researchers for everything that you do. ❤

  • @adoxartist1258
    @adoxartist1258 7 місяців тому

    Thank you. I have Gitelman's. I was diagnosed 6 years ago but only told I have CKD. I had no idea the reality of this thing until April this year (2024). A new med I started for a different issue caused a crisis which I had to weather with just the help of an overwhelmed but deeply concerned general practitioner as I couldn't get in to my nephrologist for weeks. I kept being urged to go to the ER but I knew that would make things even worse. Fortunately I saw a much more knowledgeable, new NP at my nephrologist's office and I'm sticking with her. Now I have my brain and energy back, I'm learning. This video is very helpful and I will be sharing it with all my docs. Thank you.

  • @astrianjani719
    @astrianjani719 7 місяців тому

    Hi.. I'm from Indonesia. My daughter was diagnosed SIOD from lab result Cantogene. Now, my child is being treated in hospital at RSCM Jakarta. Can you help me and the doctors in Indonesia for my child? Thank you.

  • @GabrielSouza-we4tr
    @GabrielSouza-we4tr 9 місяців тому

    Thank you!

  • @RichardJackson-i5g
    @RichardJackson-i5g 11 місяців тому

    can i have more information on WRD4 please?

  • @pamidinageswarreddy5705
    @pamidinageswarreddy5705 Рік тому

    Is Rituximab useful

  • @eduardotripi1039
    @eduardotripi1039 Рік тому

    3:44

  • @williamsstalin3566
    @williamsstalin3566 Рік тому

    Does that mean my life is running on 50% chance ?

  • @williamsstalin3566
    @williamsstalin3566 Рік тому

    While doing a full body checkup for the Navy i came to know that I've Lt. Renal Agenesis. I felt normal for my whole life until now 😔.

  • @burtonabrams7476
    @burtonabrams7476 2 роки тому

    Most disorders of excess uric acid generation and/or too little uric acid elimination are a direct result of the chronic intermittent hypoxemia of sleep apnea. Resolving the sleep apnea usually solves the problem,

  • @sharmainjaglal5643
    @sharmainjaglal5643 2 роки тому

    Hi. Im from South Africa. My late daughter was diagnosed with this disease with the confirmation of SIOD from Dr Boerkoel in Canada. Her story already has been entered into the medical journal and a biopsy of her kidney was sent to Canada for further studies...I can assist if there is any thng more u would like ti know of her diagnosis and symptoms. Thnk u kindly

    • @sharmainjaglal5643
      @sharmainjaglal5643 2 роки тому

      She was the only known case in south africa living with siod