Get Up & Run Podcast
Get Up & Run Podcast
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Heart on Your Trail
Filmed at the 2022 Beautifully Brutal Winter Coast 2 Coast Ultra Marathon Huw talks openly about his life with stage 4 Neuroendocrine Cancer. Diagnosed in 2019. Inoperable tumours in his bowel and secondary in his liver, he also had to have life saving heart valve replacement due to the excreted hormones from the tumours on 3 of his heart valves. At the time of filming in 2022 we was having Targeted Radiotherapy called PRRT.
He loves all the events he organises at Beautifully Brutal and especially this one as his diagnosis in 2019 was only weeks before the race which provided the pain killer and distraction for what was ahead.
Fast forward to 2025 and the Winter Coast 2 Coast Ultra is one of the stand out ultras in the Uk that everyone can take part in, walkers and hikers to the racing snakes among you!
As well as solos we’ve now a teams option for those that enjoy shorter distances
Find out and sign up here:-
penllyn.niftyentries.com/Pen-Llyn-Ultra-Winter-Edition-2025
This documentary was filmed by the talented and local film maker Cai Pritchard #beautifullybrutal #trailrunning #ultrarunning #cancer
Переглядів: 75

Відео

Post Algarve Ultra Trail SheUltra™️update
Переглядів 521 день тому
Post Algarve Ultra Trail SheUltra™️update
Get Up & Run Podcast...Get Up TEST!!!!
Переглядів 32Місяць тому
bigger and better than before is not what we would use to describe this! but we are back! after a 8 month break! maybe dont subscribe yet but keep your eyes peeled ready for the new version! Focusing on the Beautifully Brutal and SheUltra Universe and those that take part and behind the scenes! hints and tips that do work! Banter and Basmati! GEEEEEEETTTTT UP. Thanks again for listening and any...
Legends of Ras Y Wyddfa
Переглядів 255 місяців тому
Legends of Ras Y Wyddfa
SheUltra™️
Переглядів 5738 місяців тому
……The Women’s Cancer Charities Fundraisers Event SheUltra™️ 2025 Entries Now Open💃 penllyn.niftyentries.com/SHE-ULTRA-2025 Press Play. Sign Up. See you 12th April 2025 🌅 penllyn.niftyentries.com/SHE-ULTRA-2025 Start: Pwllheli Finish: Abersoch 50KM Start Time: 7am Cut Off: No,Just Smiles APRIL 12th 2025 Women, unite to push beyond your limits! The She Ultra™️is open to women of all fitness level...
SheUltra - Intro with Huw #womenempowerment
Переглядів 3648 місяців тому
Stephen Edwards from @creadcyf.9585 caught up with me at the first of the SheUltra 2024 Recces in January this year. A crisp morning and the vibe of the SheUltra was already apparent with the excitement from the women walking and running the first segment of the SheUltra event. www.justgiving.com/crowdfunding/She-Ultra1?XY7dEWWb The SheUltra is the first in the world all women’s cancer charitie...
Top Ten Tips & Experienced packing advice for the MDS
Переглядів 708 місяців тому
Leon Clarence shares some really handy tips as he literally is about to leave for. the marathon des sable for the 4th time. Pen and paper with this one, to make sure all eyes are on Leon and his kit during this podcast Mr Elon Muck made sure Huws Starling Connection froze several times...they won't be freezing in the marathon des sables!!!!! best of luck Leon and everyone at the MDS
Bruno Rodrigues from ALUT - AlgarveUltra Trail chats on the show
Переглядів 298 місяців тому
Bruno chats with Huw & Racheal about the stunning race across the Algarve which takes place this November 2024. Entries have just opened and here are the details :- alut.pt 308km from West to East of the length of the Algarve and as Bruno says you go back in time and visit white washed villages where not much has changed in the last 50 years. A very doable 72 hours to complete makes it an adven...
The Get Up Podcast with moving pictures and colour vision
Переглядів 319 місяців тому
...and Walter eats a carrot
SHE Ultra webinar - KIT #ultrarunning
Переглядів 5889 місяців тому
SHE Ultra webinar - KIT #ultrarunning
Tour de Bean 🫘 🚴🫘🚴 @GetUpAndRunPodcast
Переглядів 2010 місяців тому
Tour de Bean 🫘 🚴🫘🚴 @GetUpAndRunPodcast
SheUltra - Womens Cancer Charity Ultra Marathon
Переглядів 42410 місяців тому
SheUltra - Womens Cancer Charity Ultra Marathon
Get Up Coffee is now a thing! #coffeelovers
Переглядів 1010 місяців тому
Get Up Coffee is now a thing! #coffeelovers
WORLD CANCER DAY - 4th February 2024
Переглядів 3210 місяців тому
WORLD CANCER DAY - 4th February 2024
Coastal Ultra Marathon - WAUT - WALES ULTRA TRAIL 🗺️🏃🏻‍♂️🏃🏻‍♀️🏴󠁧󠁢󠁷󠁬󠁳󠁿
Переглядів 3110 місяців тому
Coastal Ultra Marathon - WAUT - WALES ULTRA TRAIL 🗺️🏃🏻‍♂️🏃🏻‍♀️🏴󠁧󠁢󠁷󠁬󠁳󠁿
Put Yourself on the Map
Переглядів 3910 місяців тому
Put Yourself on the Map
Sbrint Stiniog 🏃🏻‍♂️🏃🏻‍♀️🏴󠁧󠁢󠁷󠁬󠁳󠁿
Переглядів 8910 місяців тому
Sbrint Stiniog 🏃🏻‍♂️🏃🏻‍♀️🏴󠁧󠁢󠁷󠁬󠁳󠁿
SHE Ultra Webinar - Nutrition 24/01/24
Переглядів 47311 місяців тому
SHE Ultra Webinar - Nutrition 24/01/24
The National Running show Runners & Slurpers #coffeelovers #thenationalrunningshow
Переглядів 4711 місяців тому
The National Running show Runners & Slurpers #coffeelovers #thenationalrunningshow
What is Your Slurp?
Переглядів 2611 місяців тому
What is Your Slurp?
Park Run Wins The Making a difference Community Running Impact Award - Sponsored By GET UP COFFEE
Переглядів 7511 місяців тому
Park Run Wins The Making a difference Community Running Impact Award - Sponsored By GET UP COFFEE
SheUltra: The First Ever All Women Ultra Marathon Event of its kind in the World! #SheUltra
Переглядів 79611 місяців тому
SheUltra: The First Ever All Women Ultra Marathon Event of its kind in the World! #SheUltra
Sorry I’m making tea can you title this yourself please
Переглядів 1411 місяців тому
Sorry I’m making tea can you title this yourself please
7 January 2024
Переглядів 3611 місяців тому
7 January 2024
SheUltra - Recce - SheUltra Countdown has begun
Переглядів 43111 місяців тому
SheUltra - Recce - SheUltra Countdown has begun
Get Up Podcast with Hannah Beecham MBE
Переглядів 4Рік тому
Get Up Podcast with Hannah Beecham MBE
Get Up Coffee Tasting
Переглядів 6Рік тому
Get Up Coffee Tasting
Oladance Wearable Review
Переглядів 36Рік тому
Oladance Wearable Review
Today I find this at the UTMB #utmb #art
Переглядів 36Рік тому
Today I find this at the UTMB #utmb #art
Journey to the UTMB #vlog #trailrunning #cancer #photgraphy #neuroendocrinecancer
Переглядів 38Рік тому
Journey to the UTMB #vlog #trailrunning #cancer #photgraphy #neuroendocrinecancer

КОМЕНТАРІ

  • @falconbright661
    @falconbright661 Місяць тому

    Hummingbird-hawk add me please to friend on oladance.

  • @MarkSouthee
    @MarkSouthee 8 місяців тому

    Awesome!

  • @thewreathmeshine
    @thewreathmeshine 9 місяців тому

    Thank you for stating this. I say the same thing on my video. Prayers for strength and healing.

  • @vanessabeentjes
    @vanessabeentjes 9 місяців тому

    Thank you for sharing this, I feel you, I hope you can manage it and enjoy life in between those flushes. I have carcinoid syndrome as well. Stay strong.

  • @CharleneTaylor-kz8lz
    @CharleneTaylor-kz8lz 9 місяців тому

    That not good

  • @rebekahcarton
    @rebekahcarton 9 місяців тому

    Surely you need to take your pack off to put a waterproof on anyway?

  • @sheenponte1470
    @sheenponte1470 9 місяців тому

    Do you have a video sharing the symptoms leading up to your diagnosis?

  • @carver3052
    @carver3052 10 місяців тому

    Honey...im facing this dx. Ive been flushing for 2 yrs . I just want to rip my skin off. Its just horrible.Stay srong

    • @jaysee4447
      @jaysee4447 9 місяців тому

      I have a question as I've flushed off and on for 2 weeks. Drs are saying I have extreme anxiety which I do. But does the sunburnt feeling stay after a flush? Bc I can stay reddish and stingy for quite a while after. There's so little info on this

    • @gracebottrell8945
      @gracebottrell8945 7 місяців тому

      @@jaysee4447 I’m dealing with the same thing, severe anxiety at all. I’m so scared

  • @brantley7831
    @brantley7831 11 місяців тому

    ☹️ Promo`SM

  • @fleurleslie9893
    @fleurleslie9893 11 місяців тому

    Thank you, it was such a good run and that sunrise was amazing

  • @EmmadeHaas-o8c
    @EmmadeHaas-o8c 11 місяців тому

    I feel you. I too have carcinoid syndrome. I refer to the flushing and hormonal lurching as my ninjas misbehaving. We have very little control. It’s shot but we battle on. Much love to you xx

  • @dawn6954
    @dawn6954 Рік тому

    Omg you explain it to a tee! The heart palpitations the throbbing in the neck and necessity to rest! I really really hope youre better! ❤

  • @nicoleh7165
    @nicoleh7165 Рік тому

    Hi! How long did each one of your flushing episodes last?

  • @carroinferno62
    @carroinferno62 Рік тому

    Good afternoon, my language is Portuguese. How are you at the moment, are you ok without pain? I'm sorry for not understanding you, I hope you are better

  • @jcbslytherin269
    @jcbslytherin269 Рік тому

    Bless you. Sounds like you live near me from your accent. I have surgery on Tuesday.

    • @jaysee4447
      @jaysee4447 9 місяців тому

      I have a question as I've flushed off and on for 2 weeks. Drs are saying I have extreme anxiety which I do. But does the sunburnt feeling stay after a flush? Bc I can stay reddish and stingy for quite a while after. There's so little info on this. How did your surgery go?

  • @erinnorwood6124
    @erinnorwood6124 Рік тому

    Thanks for sharing

  • @deborahbutcher624
    @deborahbutcher624 Рік тому

    Thanks for uploading, this is so helpful. Wishing you all the best and hope you feel better very soon.

  • @CreativeLittleHearts
    @CreativeLittleHearts Рік тому

    I want to thank you so much for creating Couch to 5k the fun way and sharing it on Spotify. Changed my life, loved your positive attitude, encouragement, and funny dialogue. Now I'm A RUNNER and loving going for runs 3-4 times a week. Ran my first 5k, and never thought it'd be possible. Now I'm training for a 10k. I tell everyone I can about your series. Thank you!

  • @jessielemke465
    @jessielemke465 Рік тому

    P R O M O S M

  • @woganjones2012
    @woganjones2012 Рік тому

    Ardderchog Huw😊

  • @Runningcolin
    @Runningcolin Рік тому

    Hope the dentist goes well I keep putting mine off lol😂

  • @nikkiboza4237
    @nikkiboza4237 Рік тому

    Im so glad u are doing okay i came across A american cancer society Exercise video Hope you are doing well

  • @markahobbs1967
    @markahobbs1967 Рік тому

    I may be about to embark on the same journey - this series of videos is a great comfort in seeing your attitude and how you deal with it!

  • @MarkSouthee
    @MarkSouthee Рік тому

    🤣🤣🤣

  • @sportpicturescymru
    @sportpicturescymru Рік тому

    Da iawn Huw ;o)

  • @runner1984
    @runner1984 2 роки тому

    Endurance running..nothing better.

  • @Loftydsm
    @Loftydsm 2 роки тому

    Sorry you're going through this. Feel better!

  • @yourintrouble6296
    @yourintrouble6296 2 роки тому

    Love you Hugh. I’m on week 6 run 2 and your Pod has helped me hugely. Your a real inspiration mate go easy on the shortbread x

  • @SatumainenOlento
    @SatumainenOlento 2 роки тому

    Thank you so much for uploading! This can save people's lives!!! Extremely useful information! Sending many hugs ❤❤❤

  • @thebasiclife4319
    @thebasiclife4319 3 роки тому

    3 heart valves replacement bro??, so u got 3 mechanical valves

  • @josedondero6428
    @josedondero6428 3 роки тому

    it's really fit to body? sttech like a fisrt layer or more like a Hoodie (2° layer)? 185 cm, 46 chest and 100 kg jeje

  • @MarkSouthee
    @MarkSouthee 3 роки тому

    Sending lots of hugs Huw c

  • @toniwright9163
    @toniwright9163 3 роки тому

    Sticky ball weed too for stings and bites

  • @realand1985
    @realand1985 3 роки тому

    tomorrows a new day Hugh, just take every day as it comes, as long as you fight you'l be ok, just stay positive, for yourself, wife and kids, your doing great and still upbeat with your humour, stay strong , keep the faith up, keep doing what your doing :) all will be well, you take care.

  • @lizziebeggimbo
    @lizziebeggimbo 3 роки тому

    That flush looks awful, it's very similar to what I get. When I get the flush my heart pounds and I get bad anxiety. I have terrible heat intolerance now too. Used to love sunning myself and now I hate it haha.

  • @guidotheguru
    @guidotheguru 3 роки тому

    Huw I'm only 5.9, I'll get lost in that grass.😂😂

  • @realand1985
    @realand1985 3 роки тому

    iawn huw, i love your videos, me and my family love the llyn peninsula, although im from anglesey i always take my fam to Pwllheli, Aberdaron, Llanbedrog and Nefyn, we camp and glamp in Llwyndyrys a few times a year ( until basdud covid :( )bloody lovely places, were so bloody lucky to be born in north wales, i work in pwllheli 2 times a week, if you ever hear a beep and see a grey van with a bloke waving, thats me saying hiya, keep up the videos, all the best to you and your family

    • @GetUpAndRunPodcast
      @GetUpAndRunPodcast 3 роки тому

      Iawn Ricky. Brilliant thanks very much, Anglesey is fantastic. Yes very lucky and a great distraction,will do 🕺🏻🕺🏻🕺🏻🕺🏻

  • @lizziebeggimbo
    @lizziebeggimbo 3 роки тому

    Why don't you get long acting octreotide?

    • @GetUpAndRunPodcast
      @GetUpAndRunPodcast 3 роки тому

      Hiya.im on the monthly Lanreotide injection and was only requiring a 100mg subcut up until I was in A&E with sickness and vomiting due to a virus but brought on very bad carciniod crisis. The NET nurse advised the 200mg 3 times a day since then. I’m there a week tomorrow for a tumour marker scan and bloods so I’ll ask about the long acting octreotide. Is that what you take? And thanks for the reply

    • @lizziebeggimbo
      @lizziebeggimbo 3 роки тому

      @@GetUpAndRunPodcast ahhh okay, I wondered why. Sounds like you've had a terrible time. Would you be up for doing a short video on how you were diagnosed? No I'm still at diagnosis stage, lesion found in liver and high chromogranin A along with the symptoms. Waiting on a PET 68 dotatate. I'm in Scotland so it's taking time. Best wishes.

    • @GetUpAndRunPodcast
      @GetUpAndRunPodcast 3 роки тому

      @@lizziebeggimbo yes of course. I’ll put one together this week. Are you in a NETs centre of excellence? Early stage I asked for second opinions. The Ronny Allen FB page is very good with fact based topics.

    • @lizziebeggimbo
      @lizziebeggimbo 3 роки тому

      @@GetUpAndRunPodcast aw thank you. I found you via Peter Riley's videos. I wasn't initially as we don't have one where I am so I had been referred to Glasgow on second opinion too. They are a centre of excellence thankfully. :)

  • @lizziebeggimbo
    @lizziebeggimbo 3 роки тому

    You do not sound dramatic at all, you are a walking miracle! 👏👏 bless you

  • @CraigWilliamsUltra
    @CraigWilliamsUltra 3 роки тому

    God bless ya Huw. I know you’re not doing these for sympathy but bloody hell me you’ve been through the wringer and I really feel for you buddy. Incredible that you can talk so openly about all this. 🙏🙏

  • @lizziebeggimbo
    @lizziebeggimbo 3 роки тому

    It's Emla isn't it! Emla was a friend of mine years ago 😅 then I ended up in hospital so much that I'm so used to it.

    • @GetUpAndRunPodcast
      @GetUpAndRunPodcast 3 роки тому

      Yes! I had a toothpaste size tube on me yesterday. I do wish they used it at the start of the diagnosis as the student nurses used me as a dart board which made me develop a phobia of needles. Best cream ever

  • @lizziebeggimbo
    @lizziebeggimbo 3 роки тому

    Just came across your page from Peter Rileys. Sorry to hear you have been having a hard time. I am under investigation for this and something was found in my liver recently. Waiting on a pet 68 dotatate scan. What you said about the mask wearing struck a chord with me as I get the exact same. Do you ever find you have panic or anxiety symptoms with your carcinoid attacks?

    • @markahobbs1967
      @markahobbs1967 Рік тому

      How did it go as I am being looked at now for same thing

    • @lizziebeggimbo
      @lizziebeggimbo Рік тому

      @@markahobbs1967 Hi Mark, so I had various mri's and CTs and now have what they are calling focal nodular hyperplasia. I have 6 hypervascular lesions in the liver. Part of me is still a bit skeptical as I've been so symptomatic and differential for hypervasuclar liver tumours is carcinoid. But my biochemical results are all normal so they aren't worried. It did get picked up I have sleep apnea and also inflammatory arthritis in my neck with some cord compression so this explains a lot of the flushing, heart issues and problems with bowels. I really hope you get to the bottom of your troubles and I hope that it isn't a neuroendocrine tumour but if it is then get in with a centre of excellence for the best care. Best wishes.

    • @markahobbs1967
      @markahobbs1967 Рік тому

      @@lizziebeggimbo wow that sounds like a mouthful! I had to look it up and I see what you mean about being skeptical. Have to trust the doctors! My main issue is feeling unwell with all the classic carcinoid symptoms and doctors on a go slow, they look at obvious first but have not found anything obvious! The flushing is really what woke me up as the abdominal pain I have had before, just not as long or protracted. MRI, pet scan, bloods, colonoscopy all clear. But the more I read about NETs the more I scare myself that they are hard to find. Will try to get more answers this week. I hope all is good for you and I also hope Huw is doing well too

    • @GetUpAndRunPodcast
      @GetUpAndRunPodcast 10 місяців тому

      @@markahobbs1967 sorry for the delay! How are you mark? I’m on fb if that’s easier

    • @markahobbs1967
      @markahobbs1967 10 місяців тому

      @@GetUpAndRunPodcast no worries….i am still in a place of no diagnosis. Face red almost 100% of the day and gets worse after eating…stomach aches too but tests have not shown anything. Love your channel and podcast and the way you are dealing with it hence reaching out. Still no ideas for me which is pretty stressful as not knowing can almost be worse IMO. How are you doing now?

  • @tvo2563
    @tvo2563 3 роки тому

    a thumbs up seems to be a really trite comment on your struggles Huw. Dal Dy Dir!

  • @rachaelpatricia9865
    @rachaelpatricia9865 3 роки тому

    Thanks for sharing these Huw xx you are the most positive motivated person I know even when you don’t want to be you find a way xx

  • @CraigWilliamsUltra
    @CraigWilliamsUltra 3 роки тому

    Pate, chicken soup.. no thanks... got any Octride 😂😂😂😂

  • @CraigWilliamsUltra
    @CraigWilliamsUltra 3 роки тому

    Very humbling watching your struggles Huw. Good effort dragging yourself out for a walk on such a rough day.

  • @GetUpAndRunPodcast
    @GetUpAndRunPodcast 3 роки тому

    Test

  • @Soraremaxwell3500
    @Soraremaxwell3500 3 роки тому

    Chwarae teg! Wedi rhoi ysbrydoliaeth i mi fynd i rhedeg a neud y mwyaf o’r awyr agored! Dal ati!

  • @europa1387
    @europa1387 3 роки тому

    Nice mate. Just wondered what size you got? and what height you are? I'm 5'11 and think I might go for the large. Cheers.

    • @GetUpAndRunPodcast
      @GetUpAndRunPodcast 3 роки тому

      I’m 6 foot and medium frame. Went for the medium which fits well

  • @kruegs1fan322
    @kruegs1fan322 3 роки тому

    Hey your video was great! My friend also makes running videos like this on UA-cam. Check him out if you get the chance, JK Running Productions!