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Dr Sanaz Halvaei shares an update from the PSPA funded QOLAPS study. This study is looking into the utilisation of health services and quality of for people living with Atypical Parkinsonian Syndromes.

PSPA Research Fellow, Dr Rob Durcan, is our second speaker. Dr Durcan shares details of a clinical trial he is working on that is being running across a seven sites in the UK. Focusing on improving apathy and impulsivity in people living with PSP, Dr Durcan and the team at Cambridge at administering Noradrenaline in the hope of improving symptoms and thus quality of life and prognosis. The stud...

PSPA Trustee Jon Garrard talks about why he is supporting the charity's efforts to raise £2 million appeal to help propel PSP & CBD froward. The Understood Research Appeal aims to unlock: - Quick and accurate diagnosis - Consistent standards of care providing symptom management within two months - drug trials to delay degeneration and extend life expectancy. Learn more about the appeal at www.p...

The last speaker for our Research Information Session is Mark Jackson, PSPA Director of Policy and Influencing. Mark has joined the event to talk about the #MyNeuroSurvey being delivered by The Neurological Alliance which PSPA is a member of. This is the largest survey of people living with neurological conditions in the UK and is an important way of collecting experiences and data about care. ...

Professor Kate Flemming shares details of her study looking at how palliative care can help improve quality of life for people diagnosed with neuro-degenerative conditions. Although Professor Flemming's study focuses on Motor Neurone Disease, many of the challenges and findings are transferable to conditions including PSP & CBD. The importance of planning ahead and symptom management around end...

Our third speaker is Professor Chrystalina Antoniades. Professor Antoniades is sharing details of her study OxQuip which aims to develop new ways of measuring PSP symptoms as a way to help distinguish the condition from Parkinson's, progression of the disease, and aid drug trials. During the study participants are asked to perform some simple tasks wearing body worn sensors, while the researche...

The first speaker at our Research Information Session today is Dr Boyd Ghosh. Dr Ghosh shares details of his research which looks at improving quality of life for people living with PSP & CBD as well as their carers. As part of this study, Dr Ghosh and his team are looking into the impact of multidisciplinary team support on people living with the conditions and their carers. And also, how diff...

Professor James Rowe talks about why PSPA has launched a £2 million appeal to help propel PSP & CBD froward. The Understood Research Appeal aims to unlock: - Quick and accurate diagnosis - Consistent standards of care providing symptom management within two months - drug trials to delay degeneration and extend life expectancy. Learn more about the appeal at www.pspassociation.org.uk/research/un...

The final speaker for this edition of the Research Information Session is Dr Edwin Jabbari. Dr Jabbari gave an update on his current research which is looking into developing tau seeding assay techniques as an early diagnostic test for PSP.

The fourth speaker at the Research Information Session was Professor Alana Terry. Professor Terry shared details of her study looking into Molecular Imaging of Synaptic loss in PSP.

The third speaker at our Research Information Session was Riona Fumi. Riona shared an update from the PSPA funded PROSPECT study and details of the ExPress Study.

The first speaker at our Research Information Session was Dr Maura Malpetti. Dr Malpetti shared details of her research which uses brain scans and blood tests to track inflammation in the brain.

The second speaker at the Research Information Session was Professor Dan Smith. Professor Smith shared preliminary findings from his research looking at visual attention and it being a possible cognitive marker for PSP.

Dr Quaegebeur shares details of her study into PSP & CBD.

Dr Maura Malpetti, Research Fellow, Cambridge University

PSPA's achievements across 30 years

Inside Neurology: Our Unique Brain - focus on CBD

PSPA 30th Anniversary - first research fellow

Reflecting on 2023 and looking forward to 2024

PSPA Study Day for healthcare professionals 2023

Become a PSPA Corporate Partner

Research Information Day 23 Session 5: Patients voices using surveys and focus groups

Research Information Day 23 Session 3: Clinical Trials update

Research Information Day 23 Session 4: Navigating and improving the health and social care system

Research Information Day Session 2 Causes and cures: how technologies can help

Research Information Day 23 Session 1 Observational studies - what are they and what have we learned

Creating a better future for everyone affected by PSP & CBD.

Choices and decisions about care when living with PSP & CBD

Ask the expert: How can PSP & CBD impact daily living?