Відео

Lost my dad this week to PSP 😢 was with him on this journey for 7 years

Thank you for this video.

My husband was diagnosed 4 years ago but we think he’s had it for a couple of years before that. A horrific disease. I have watched him disappear from a bright intelligent physically able man to a shell. Loved his family so so much. He is still in there, just very occasionally there are signs of my husband as he was. The one thing that helps keep me going is he is unaware of what’s has happened . He falls a lot, no balance. His swallowing muscles are deteriorating so he can only eat soft foods. To all the fellow carers out there, take care of yourself. 😢

Such a moving and difficult clip to watch, I’m not best with words but I’m currently seeing my dad go through this now and it shows this devastating path psp takes your loved one’s through Thank you for posting it

Good to hear about PSPA's brief history. You were the first consultant who diagnosed my mother with CBD. She passed away last week with this horrible illness. A lot more work needs to be done obviously to find a cure for this condition. Keep up the good work. God Bless!

Hey there a loved one had this condition is there anyway to take part in this treatment. Would be greatly appreciated

𝚙𝚛𝚘𝚖𝚘𝚜𝚖 😣

Is there any undergoing clinical trials for psp? My father is suffering from psp since 6 years.please help

What is PSP?

I did it with Weedborn CBD products!

A really great video that is very informative 🤍amazing family 🤍

My brother in law died of this disease a year n a half ago. He was so sweet, always had a big grin n loved life. Then like snapping your finger, he was angry, he would throw items, he would down grade people, everyone that knew him ask, what is wrong with him? After about 5 yrs then other thins started to show up. Balance problems, falling, I saw a change in his face. By his mouth it looked real tight n not normal. This is a ugly, heartbreaking disease. It took his speech, his mobility, his eye sight, his coordination, but what rips your heart out in pain is, he sat there in muscle pain n the whole loss of his body really, but his brain was clear. He knew how he was deteriorating, felt and saw everything that was happening to him. Right to his death. His anger only stayed till he was falling, n getting worse. He was so crippled, had such loss of body movements, n yet he still showed his loving side. His death was horrid. Took him 4 days to die, he was litterly bone n skin, he was turning black n his heart was still beating. His body was decomposing n he was still alive. This disease really needs to be studied, n figured out. It is a horrid ugly disease.

Although falls seem to be the most common early symptom, my partner had speech difficulties and one lazy eye which were the things which caused her to go to the doctor.

Hi, Unfortunately my partner passed away with PSP in October 2019 after being diagnosed in September 2018. She like me took part in UKBiobank when it started. My question for the researchers is would you first of all have notified that she died of PSP and secondly would you have been able to have access to her data from UKBiobank? I hope so.

Thank you Ashton, Tonya , Paula and Sheila for sharing your story about Tracy's battle with PSP. My father had CBD which is closely related to PSP and I know how difficult this is for you all. Please know lots of people who are part of the PSP/CBD community are thinking of you and offering you all the support we can.

Enjoyed listening and watching your study on PSP....

I'm diagnosed with PD, but I am thinking I may have an atypical kind. I have only been diagnosed a little over a year, but I'm starting to have more atypical symptoms like not being able to open my eyes after closing them and other such things that are making me think not idiopathic Parkinson's. I hope I'm wrong.

how to cure Parkinson's disease help me I'm also suffering with the same disease I'm 33 now

How to cure psp please help me, any adv treatmets are available?.. my father suffering from psp since 2015..

My husband Ben started out with Parkinson then 5 years latter he was dignosed with supranuclear Palsy He lived 2 months after being diagnosed PSP then he gave up and passed away He had to go into nursing home 10 months before but I got him home and he died at home Wife Carol