Відео

How's your baby now ..? Everything is ok

I can relate to this my baby was diagnosed at my 20week scan with tga I was terrified as he were my 1st poorly baby outta him being my 7th, my labour ran smoothly obviously tests and regular scans, he were brought 5 days early but apart from 1 mishap with my baby everything went smoothly for him, it is scary I won't lie looking at all tubes in your baby seeing all drains after the operation scared me but once I knew what they were fir I were fine, my baby is now 5month old this month he as check ups every 3 month but is doing fantastically in himself, he as however got a heart murmur which iv been told not to worry about coz they go in their own time , but honestly it is a scary experience but your baby will come out like its never been through awt , good luck x

Hi… I had a baby TGA+ Vsd+pulmonarystenosis ..age difference Btwn my hubby and me is 13 yrs .. blood is mine Oneg and husband AB positive

Mam how is your son now? What is the age difference between you and your husband?

What is the age difference between TGA baby,s mom and dad?

simpu s 20 & 20

@@rhimax814 I am Also same age. My son also born in TGA . So which parents are got a marriage in same age, one year, two year and three year old difference that babies are getting faced so much problem. Please get marriage with 7 years different.

simpu s I don’t understand your comment, sorry.

Marija Burcar All the best to your and your little warrior! I’m glad this video has helped you and has brought some sort of comfort to you during this time. I remember that feeling all too well like it was yesterday. You and your little boy are stronger then you know. I’ll be thinking of you both and sending healing heart hugs. An update on Jack - he is turning 8 in June! He plays hockey, baseball and basketball and nothing gets in his way :) Heart Warriors are AMAZING! ❤️💙

Daile Torres so sorry you are having to go through this. We are there with you and will be praying for your baby’s recovery. Our grandson just had 1 of the 2 surgeries he will need.

Same here. 5 months pregnant and doctor told me she suspect TGA on baby girl. I am devastated i have been crying all day... i dont know what to do. I need emotional support. Shirleyveronica05@yahoo.com...

Shirley Ramos so sorry to hear. Stay positive. I’m new to the TGA world but I wish there was more support available.

@Daile Torres i have the appointment tomorrow at 11 am with the specialist... i am devastated crying not eating i dont want to loose my baby girl. I am dying alive

What is the age difference between TGA baby,s mom and dad?

simpu s im 32, my wife is 35 and my daughter now is almost 4! She never been so perfect! :)

@@viniciusscarsetto1147 thank you .l asking this question Many TGA parents. They are all said 2 years old different. Yes. Parents Age different must be causing this problem. Please share and finding this matters

simpu s where you from?!

@@viniciusscarsetto1147 in India sir

Hi Donna. So after his arterial switch operation while he was in the CCU the nurse noticed his feet were ice cold and his pulse in his femoral and feet arteries were very weak. They could barely feel them at all. They ordered a bedside Echo and sure enough there was the coarctation of the aorta :( At that point his chest had already been closed and they told me that this happened as the ductus closed. He was discharged 8 days after his switch but was closely monitored twice a week and then it was time to open him up as they were worried about heart failure as his left ventricle was working so hard. His blood pressure was pretty high as well. I remember they were going to see if they could try to avoid another open heart surgery and go through his side but for whatever reason (can't remember) they couldn't. I remember his surgeon telling us that he hadn't seen a TGA baby with CoA in fourteen years or so. He also showed us a pic of the narrowed piece they cut out. It was a pinhole

Now he's battling pulmonary stenosis in his branches....which is pretty common after the switch. He had a cath balloon dilation when he was 17 months old but it wasn't successful. Since then he's been watched every 6 months and at one point the narrowing wasn't getting any worse but about 6 months ago they were getting tighter. He just had an echo and lung perfusion test a few weeks ago and they are still pretty tight but the blood flow in his lungs is the same as it was when he was 17 months. So now we are waiting again. All this up and down is killing me. Open up little arteries!! I remember them telling me if a second attempt at the balloon dilation doesn't work then he may need another open heart. He's 3 1/2 now and you'd never know. His breathing gets a little heavy at times, but he's so active so it's hard to keep track.

+Paula White I am in awe of your strength and courage! He is truly a tiny miracle!

+Paula White I would LOVE to see a picture of him...what a story! I am fascinated!

+Donna Ruby I tried to post a pic link to the comments but it's not working.

***** Thank you both for sharing : ) It gives me a great sense of relief knowing there are adult survivors out there that are healthy and strong. He's 2 1/2 now and full of so much energy but I'm still a nervous wreck at times. He will possibly need some more surgeries in the future but for now we are waiting to see how his heart/arteries grow. Thank you for your comments, makes me breath a little easier :)

Paula White thank you for sharing this, my fiance is 26 weeks along and we just found out our little man has TGA and will have to have surgery after birth. your story made me cry but also gave me a little hope.

Hi Brent, I shared his story to give others hope. I remember the long drive home in a daze staring at a piece of paper with the letters TGA written on it. The first thing I did was a youtube search looking for some hope and success stories. It's been quite a journey as he's had other CHD's but there's no stopping this little man. He will be three in June :) Good luck to you all and sending lots of strength to your little heart warrior.

Hello again. I recently joined a Facebook group dedicated to people with TGA. Until then I'd never even spoke to somebody else with my condition. It's very helpful and it's also for families of TGA too.

+del80y yes it has definitely helped me meeting other families and talking to other CHD survivors. I still can't believe we lived this, and I have a hard time looking back at pics and videos. It all seems like a dream. He's possibly facing more surgery soon if his pulmonary arteries don't open up but they've been watching closely after the first attempt when he was 17 months didn't work. He's 3 1/2 now and one wildly energetic boy always trying to keep up with his brothers. Who knows what the future holds, but my mind is at ease knowing there are many survivors out there! Thank you for reaching out!!

From which you perform her surgery i m worried about my son he is also tga,vsd and severe PS

@@littlechamps2181 Sir, what is the age difference between you and your,s wife?