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Myeloma Patients Europe
Приєднався 2 жов 2014
Myeloma Patients Europe (MPE) is an umbrella organisation of multiple myeloma patient groups and associations from across Europe. MPE was formed following the recent merger of the European Myeloma Platform and Myeloma Euronet.
MPE is registered as a non-profit organisation (AISBL) under Belgian law.
MPE is registered as a non-profit organisation (AISBL) under Belgian law.
MPE webinar: ASH 2024 myeloma and AL amyloidosis highlights
Watch the MPE webinar about the myeloma and AL amyloidosis highlights presented at the 2024 American Society of Hematology (ASH) Annual Meeting, Dr. Charlotte Pawlyn. Learn about the latest research, treatment advancements and clinical trials.
Переглядів: 555
Відео
ASH24 | IFM2017-03 clinical trial
Переглядів 7421 день тому
In this interview, Dr. Laurent Garderet, co-author of the IFM2017-03 Phase 3 trial abstract, shares insights into a groundbreaking study presented at ASH 2024. The trial focuses on a dexamethasone-sparing regimen combining daratumumab and lenalidomide for frail patients with newly diagnosed myeloma.
ASH24 | iMMAgine 1 trial
Переглядів 24621 день тому
Interview with Dr. Ciara Freeman who explained the phase 2 clinical trial iMMagine-1 clinical trial presented at ASH 2024.
ASH24 | The Aquila study
Переглядів 16821 день тому
Interview filmed with Dr. Meletios Dimopoulos, Chairman of the Department of Clinical Therapeutics at the National and Kapodistrian University of Athens School of Medicine, Athens, Greece, and Dr. Albert Oriol, Head of the Clinical Research Unit, Institut Català d’Oncologia (ICO) to summarise the most important data of the Aquila study, presented at the American Society of Hematology (ASH) Annu...
ASH24 | Treatment free intervals in myeloma patients
Переглядів 1,2 тис.28 днів тому
Interview with Dr. Anna Fleischer, Department of Internal Medicine II, University Hospital Würzburg, Germany, about the abstract " Balancing treatment intervals and quality of life in myeloma patients: patient perspectives and recommendations", presented in the American Society of Hematology (ASH) Annual Meeting 2024.
The Myeloma and AL Amyloidosis European Clinical Trial Navigator
Переглядів 32Місяць тому
The Myeloma and AL Amyloidosis European Clinical Trial Navigator is an online search tool to learn about and find clinical trials for myeloma, monoclonal gammopathy of undetermined significance (MGUS), smouldering myeloma (SMM) and AL amyloidosis in Europe.
Webinar EYMPG | Importance of good nutrition and healthy diet for young myeloma patients
Переглядів 3892 місяці тому
This webinar, organised by the MPE European Young Myeloma Patient Group (EYMPG), was given by Inês Almada Correia, Nutritionist specialising in Oncology and Autoimmunity, from Portugal.
European Myeloma Day 2024
Переглядів 973 місяці тому
Myeloma Patients Europe (MPE) holds European Myeloma Day on 27 September each year. This important day is dedicated to raising awareness about myeloma, addressing key issues facing European patients and driving discussions and solutions. This year, our focus is on clinical trials, how crucial they are for advancing myeloma treatments and how many patients in Europe don't have access to these tr...
Join us for European Myeloma Day 2024
Переглядів 703 місяці тому
Join us this 27 of September 2024 for European Myeloma Day. The focus for 2024 is on clinical trials, how they are crucial for advancing myeloma treatments and how many patients in Europe don't have access to these trials.
MPE webinar | Disease and treatment specificities for young myeloma patients
Переглядів 6305 місяців тому
Recording of the webinar "Disease and treatment specificities for young myeloma patients" organised by the MPE’s European Young Myeloma Patients Group. The webinar was given by Prof. Dr. Michel Delforge, Clinical Head of Haematology at the University Hospital UZ Leuven, Belgium, and Professor of Medicine at the KU Leuven, on 9 July 2024.
MPE Webinar | EHA 2024 myeloma highlights
Переглядів 7116 місяців тому
Myeloma Patients Europe (MPE) hosted a webinar on 2nd July 2024 summarising the most important myeloma updates presented at the European Hematology Association (EHA) Annual Meeting held from 13 of June to 16, 2024, in Madrid, Spain. Prof. Dr. Hermann Einsele, Director of the Department of Internal Medicine II at the University Hospital Würzburg, Germany, presented key updates and insights follo...
MPE and ALAN webinar | Patient and clinician involvement in the EU HTA regulation
Переглядів 5556 місяців тому
Recording of the webinar held on 26 June 2024 on patient and clinician involvement in the EU HTA regulation. The webinar was organised by Myeloma Patients Europe (MPE) and Acute Leukemia Advocates Network (ALAN) and counted with the participation of the following speakers: • Anke-Peggy Holtorf, moderator, Steering Committee member and project coordinator for the Patient and Citizen Involvement ...
Day four of MPE´s coverage at EHA 2024
Переглядів 1896 місяців тому
Patricia Matamoros, Communications Officer, Myeloma Patients Europe (MPE) highlights the key moments from day one of the 2024 European Hematology Association annual congress in Madrid, Spain
Day three of MPE´s coverage at EHA 2024
Переглядів 896 місяців тому
Patricia Matamoros, Communications Officer, Myeloma Patients Europe (MPE) highlights the key moments from day three of the 2024 European Hematology Association annual congress in Madrid, Spain
Day two of MPE´s coverage at EHA 2024
Переглядів 1036 місяців тому
Patricia Matamoros, Communications Officer, Myeloma Patients Europe (MPE) highlights the key moments from day two of the 2024 European Hematology Association annual congress in Madrid, Spain
Day one of MPE´s coverage at EHA 2024
Переглядів 996 місяців тому
Day one of MPE´s coverage at EHA 2024
EHA 2024 | Whose needs exactly? Unmet medical need in the EU pharmaceutical legislation
Переглядів 1346 місяців тому
EHA 2024 | Whose needs exactly? Unmet medical need in the EU pharmaceutical legislation
EHA 2024 | Fair pricing: Does the value of new medicines in hematology justify the high prices?
Переглядів 1716 місяців тому
EHA 2024 | Fair pricing: Does the value of new medicines in hematology justify the high prices?
Masterclass 2024 | Supportive care for myeloma and AL amyloidosis patients (Christine Skeet)
Переглядів 3307 місяців тому
Masterclass 2024 | Supportive care for myeloma and AL amyloidosis patients (Christine Skeet)
Masterclass 2024 | Supportive care for myeloma and AL amyloidosis patients (Surabhi Chaturvedi)
Переглядів 2307 місяців тому
Masterclass 2024 | Supportive care for myeloma and AL amyloidosis patients (Surabhi Chaturvedi)
Masterclass 2024 | Shared decision-making
Переглядів 4467 місяців тому
Masterclass 2024 | Shared decision-making
Masterclass 2024 | EU Health Technology Assessment Regulation
Переглядів 1647 місяців тому
Masterclass 2024 | EU Health Technology Assessment Regulation
MPE Masterclass 2024 | Cross border medicine and trials access
Переглядів 6887 місяців тому
MPE Masterclass 2024 | Cross border medicine and trials access
Masterclass 2024 | Real World Evidence
Переглядів 2657 місяців тому
Masterclass 2024 | Real World Evidence
My dad died of this 10 yrs ago. Had every test known to man and Drs couldn’t find out why he’d lost so much weight. Had all cancer tests done and all came back negative. A Dr who had seen these symptoms before in another country did a liver biopsy and it showed up positive for Amyloydosis Found out he had it October 8th 2014 by November 6th he died. We need a cure for this as it’s very well known now.
Y'all are going to be held accountable for being involved in the illuminati Freemason's Epstein Network too
The pronunciation of the word at, 0:03, sounds nothing like how it is spelled.
No , it’s not curable unfortunable
No it is no
👏🏽👏🏽👏🏽👏🏽
Amiloidosis, imprescindible una correcta identificaciòn del tipo de proteiпа responsable del depósito, ya que los diversos tratamientos difieren en función de que tipo de amiloidosis. La importancia de un diagnóstico certero y evitar los daños que pudieran ser en los órganos diana de la amidoilosis. Afectaciòи renal Depòsitos en el tubo digestivo Depòsitos en el sistema nervioso periférico. . *Proteiinuria* *Cardiomegalia* *Insuficiencia cardiaca* *Y alteraciòп de la мотilidad del tubo digestivo* Eskerrik asko Espainiako Kardiologia Elkarteari. Beti zuekin.
Good
20 years ago it's not curable!
Now it is?
Dealing with Amyloidosis was tough, but Planet Ayurveda's treatment made it so much easier. Their approach is the best!
U
It is curable
How are you saying this is it curable
@@thenmozhikrishnamoorthi7099 Bone Marrow Transplant or Car T Cell Therapy. Its 2024 now.
What's the cure?
Big pharma has declared it incurable. Because that would end their billions of dollars in income from this disease alone. It's a racket. And innocent people are unfortunately the victims of toxins being deliberately introduced into our society.
No I have had for 10 years now cure
thank u so mcuch sir for making such beautiful video My mother have same issue. Now she is totally fine because we are using planet ayurveda medicines.thank u sir once again
The video is well-made and informative.
The video is well made and informative.
Paga la consulta y te van a contestar. La medicina es un negocio entre los médicos y los laboratorios. Los pacientes somos sólo material de investigación. 😢
Me hicieron una 2a biopsia y se determinó que tengo amiliodosis primaria. Actualmente estoy en tratamiento de quimioterapia ya llevó 10 sesiones. Y me están programando para transaplante de médula osea. Tengo 52 anos ya con marcapasos por la hipertrofia septal asimetrica izquierda. Y ya mis riñones están arrojando proteínas.
En Argentina habrá algo para tratamiento para Amiloidosis AL?
💞😍💞😂 9
Dra. Gracias por tan buena explicación, yo solo por curiosidad busque información sobre esta enfermedad que nunca había escuchado
Great Information.Thanks
Soy de Guatemala y con biopsia de espalda me diagnosticaron amieloidosis hace un mes. En tratamiento únicamente tengo hicet y crema. Como participar
¿En Salamanca hay ensayos clínicos de amiloidosis?
Buenas que es amiloidosis macular
Hola Beatriz. Te recomiendo que contactes con la Asociación Española de Amiloidosis a través de este enlace: www.amilo.es/#contacto Ellos podrán darte más información sobre los distintos tipos de amiloidosis. Muchas gracias
Me acaban de diagnosticar amiliodosis. Tengo hipertrofia auricular izquierda. Dolores en los tobillos. Hipotiroidismo. Y me pregunta es la amiliodosis da éstos síntomas????
Muchas gracias por compartir toda esta información, realmente es muy difícil lidiar con la enfermedad, mi esposo la padece y q duro es todo
Doctora buenos días, soy de Lima Perú, el 1 de diciembre me dieron el resultado de una biopsia de glándula salíval. No pensaron encontrar Amiloidosis. El doctor me dijo q regrese en enero porque no tiene experiencia en el tema y q va a estudiar mi caso. Pero me preocupa tener un tratamiento pronto. No tengo realmente síntomas o bueno eso quiero creer yo, por favor orienteme, no quiero dejar pasar más tiempo. En mi país no hay especialistas
Como se cura tengo en la espala en la piel
Muy informativo el vídeo. Mi madre tiene Amiloidosis al. Gracias
In the description, it is mentioned that CAR-T is recently approved. Can I please ask when this was approved in the US and Europe and where I can find the sources for this? Love this video- Thank you so much!
Hello! thank you for your feedback on this video 😊 there are two CAR-T approved drugs, idecabtagene vicleucel in US and Europe and cilta-cel that was approved by the US Food and Drug Administration (FDA) a couple of days ago. Please, find below some information about these drugs: • Idecabtagene vicleucel: www.mpeurope.org/2021/03/31/the-u-s-food-and-drug-administration-fda-approves-the-first-anti-bcma-car-t-cell-therapy-for-myeloma-idecabtagene-vicleucel-abecma • Cilta-cel: www.mpeurope.org/2022/03/02/fda-approves-cilta-cel-for-relapsed-or-refractory-myeloma/ Drug approvals and reimbursements are different processes and there are several challenges we face in making CAR-T therapies widely available in Europe. Should you need more information, please, contact us at info@mpeurope.org
Excelente presentacion! Concisa y clara! Gracias por tan valiosa aportación. Dios le bendiga!😍😍👍👍👍👏👏💥💫🙏🙏🙏
Thanks very much for this excellent video which very clearly explains what SISAQOL-IMI is all about.
Good and easy explanation to chare whith patients an doctors.
Hola!! Cómo puedo hacer para poder adquirir un tratamiento médico
Gracias mi esposo de 52 años fue diagnosticado con Amiloidosis de cadenas ligeras ,ha sido muy difícil y triste, al parecer mi esposo ya empezara Dios mediante ... vivimos en Veracruz en México, ojalá ubiese en mi país una asociación como esta, es una enfermedad que requiere mucha atención... sera posible compartir o recibir alguna orientación.
No te preocupes los médicos no saben nada sobre ella---en ningún lugar del planeta ,ojala tengas suerte ,de corazón te lo deseo .
Whith MPE since 2.017 and proud to be Members from Spain and gratefully for your great support.
Y pensar que todo esto se puede evitar con una alimentacion sana!!!
Como poder hablar con usted Dra
Hola buenas tardes, yo y mi hijo de 12 años fuimos diagnosticados con amiloidosis hereditaria por TTR, hay alguna forma de tratarlo??
Buenas tardes Litha, muchas gracias por tu comentario. Desde MPE cubrimos solo la amiloidosis AL que es la más parecida al mieloma. Sin embargo, me gustaría ponerte en contacto con uno de nuestros miembros en España, la Asociación Española de Amiloidosis (AMILO). Ellos podrán ofrecerte más información sobre la amiloidosis HTTR y sus tratamientos. Encontrarás más información sobre ellos así como la forma de contacto en su página web www.amilo.es. También puedes ponerte en contacto con MPE a través del correo electrónico info@mpeurope.org. Un saludo
@@MyelomaPatientsEurope muchas gracias por su ayuda y por la información.. 😘
Como tenerla cerca
Con una alimentacion sana y ejercicio regular puedes evitar todo este infierno de enfermedades.
Mi esposa le sacaron la células car-t y supuesta mente no se reproduciendo.¿eso pude pasar oh algo isieron mal en labaroratori ???
Hola mi nombre es Erica paz fuy diagnosticada con amiloidosis cutanea q tratamientos hay
También me acaban de diagnosticar amyloidosis cutanea en los brazos y espalda . Digame su tine ya tratamiento
What fun! 😂😂😂
nice presentation
Happy 10th MPE Anniversary from Amilo's team and we hope cellebrate whith all of you for a long time! ❤🎊🎉❤
Happy birthday!!
Greeting from me, how I was able to survive coldsore through a friend that direct me to Dr alamale on UA-cam healed hi gave me his product that get me cure6 y.,
Greeting from me, how I was able to survive coldsore through a friend that direct me to Dr alamale on UA-cam healed hi gave me his product that get me cure......
thanks
S/O to Dr.ademiso on youtube who came to my rescue when suffering bitterly from the genital herpes and everything was possible using his natural roots and herbs remedy
May God bless Drokoborlala on UA-cam who cured me from HSV with his effective herbal product which has no side effects.if you are interested contact him