Відео

Best Sci-Fi show I ever watched.

Hi John, Im a 17 year old girl in the US with this problem. When i was 15 i was diagnosed with NDPH and have gone to so many doctors and nothing has worked. Im terrified that this is the rest of my life. It has only gotten more painful. Im trying to get into college right now but NDPH has taken my joy for life away and makes me feel like its not even worth trying because IM always in so much pain. Im jealous of all my peers who dont have this pain. Nobody understands and I feel so alone. Just thought id leave a message since i dont know what else to do.

We have wandered, we have laughed, we have cried.........we have song the songs of our ancestors. We will find the 13th colony and we will have peace.....so say we all!

So Say We All 2024

Hey have you tried venlafaxine? I read it reduces TNF alpha levels, which play a role in NDPH related to a prior infection

Is there a recording of this concert available anywhere?

So say we all 2024

Have been having NDPH for 19 1/2 years. It started a year and a half after I had my daughter. I have tried any and everything you could imagine and nothing has worked. I’m currently in a headache study getting Botox and this is the only thing that is giving me a little relief. I know all your pain. Every day the pain level varies. I find the weather makes it worse when it rains. It so frustrating. Nobody understands like we understand each other. I feel like people don’t believe it when I say I have a 24/7 headache. The pain NEVER goes away!!! The pain level just ranges from 1 to 10 each and ever day!!! I hope we can find relief one day. I say they should have called this a suicide headache!!! 😢

Hi John chin up you are a brave soul Have you tried NMN / Vit B3 B5 B12 all relieve headache when received in the right dosages these are water soluble vitamins that are excreted daily and not stored in our body by required for our daily functioning Also Magnesium helps repair nerves Theres a Dr Jacob who explains about scar tissue and fascia release techniques that may be tried at home his webpage is ASTR advanced soft tissue release himself being a survivor of headaches gives a good insight into alternative treatments I believe you're having these headaches daily and I'm sure you're family will too . If not I'm happy to email them

Look into TMS and books by Dr John Sarno. Your issues are chronic, your brain has learnt them. Our brains are neuroplastic, meaning we can change them. Just look into TMS (Tension Myositis/Myoneural Syndrome) and see if anything resonates with you.

Hey thank you for making this. Mine started on 25th September 2023. It's a stabbing kind of pain bilateral. On flare-up days I can not get out of bed and that sucks in general and especially at 15 years of age. The brain fog not even to mention, with school and everything. I'm forgetting things as simpe as my own adress which freaks me out. I'm glad knowing this is not nearly as lonely as it feels, though it's kind of scary hearing all this at the same time. I hope to find something that helps me eventually. Anyway I wish you all the best of luck and endurance. 🫂 -Feli

I live in Turkey and I have ndph. Walking won't heal you, don't try in walking

Wtf with that basson ?

Aimovig is very much a subcutaneous injection, not intramuscular

Dr. Carlton Perry in Texas, USA says most of NDPH is nerve compression. Check out his website, hes cured many people.

So much...life.

Anyone know what the magic wand waving does? I cant see a rhythem in common with the music

It hasn't been diagnosed, but I have had something exactly like this for 18 months now, after a car accident. I just started sixth form (at 16 yo), and already feel a great cognitive decline. For the entire school day, and any time I need to concentrate, the pain ranges from 8/10 to 11/10.

I love the last few minutes of this

I believe I have had NDPH since feb 2021. I am curious if anyone is a Nicotine user. I initially had a sinus infection and was taking sudafed for the few months before onset, which came very suddenly while I had used a THC vape. at first it was intense stabbing migraine like pain in my temple for about 2 weeks, until cts and mris revealed nothing significant, the pain settled into a Pressure/Discomfort which expanded to my forehead and across the left side of my face. I have been told by every neurologist that nicotine shouldn’t have anything to do with it, however the few times I’ve quit I have experienced some days of relief and then the pain seems to come back. I wear hats all the time now because the compression gives me some, not relief, but help in dealing with the pressure/discomfort. At the time of the onset, I was worried I had a minor stroke, although no signs of stroke were seen in imaging and I have no cognitive symptoms, just a constant discomfort and pressure in my face, forehead, and temple. I have wondered if I could be experiencing mild trigeminal nueralgia, but NDPH seems to make more sense. I feel similar to you as I have never been depressed at all, I am able to pretend that everything is fine when I work and am in public, but it is very difficult. I have trained myself to fight through even though I am in constant discomfort. Have seen many neurologists and have tried topamax, verapamil, indomethacin, amitryptiline, gabapentin, several other anti depressants, and none seem to give me any relief at all. Some days I feel it is much more manageable than others. It seems to happen in waves, where I will have a week or so that is easier to tolerate, followed by some days where it gets really bad. I am religious and I pray every day to find answers and eventual relief. I will continue to pray, not only for myself, but for you and all others experiencing this type of pain from NDPH and other rare headaches. We cannot give up, and we are too young to have to suffer through this for the rest of our lives. God Bless and let’s all pray for each other.

Un serie, que no sólo era de ciencia ficción, iba más allá, explorando el espiritu humano, ya no hacen guiones así.

So say we all Today is 2023

I came, I listened, and I cried, just like more than ten years ago when I first watched the show.

What do you take for pain ? How are you today? Have you found anything that makes you feel better or helps you live Better, I too feel like this agonizing pain has taken my life away I don't wanna live live this I wish there was a cure

I relate to you so much I had a sinis infection had got lots of antibiotics and then 3/24/23 I got the most severe pain I've ever had and it's never went away I am not depressed person but this makes me wanna disappear

We are all in this together ❤

Hey this is me for past 2.5years pretty strange because mine started with an ear infection&sinus infection.. I don't know where to go from here it's every second of everyday i can't hack the pain! 😢😢

Look into tension myosotis syndrome and pain reprocessing theory. Im now cured so ignore at your own risk.

I just got my diagnosis lately, I had an aneurysm coilled in November 2021 woke next morning with headache, tingling over the body could not handle noise or light. Eventually I now have found out I have ndph triggered from the aneurysm. I'm trying to get information but can't see much in Ireland. My whole life has changed I'm feeling low in mood as well.

Watched a couple of your videos. It's like your thoughts are inside my head. I feel like no one understand how hard life is with this shit. I can't even think back of memories before the headache, cuz I just get extremely sad realizing life will never be as good as it used to be. But yeah, I'm pretty sure you've dived into philosophy and mindset since you talked about David Goggins and been through all of this, but stoicism helped me a lot on how to think. So I thought maybe that can help you a tiny tiny bit at least in case you're reading this. Thanks for your video, not many people I can relate to tbh.

Happened to me 15th October 2019 and it lasted about 18 months of constant headaches and throbbing that would vary. I came across ur video a few years ago and it made me feel so much better bc I felt like no one knew what I was going through or could understand. I’ve been on a 40mg propranolol dosage twice a day for over a year and at first nothing worked but it’s given me so much relief for the last months I hope everyone can find something that helps them

I have had NDPH for almost 23 years. I take topomax and zoloft which makes it better, but it doesn't eradicate it. I have found that pain medications help, but you cannot take those all the time. Edibles (1/2 THC and 1/2 CBD) help. Clearly, you need to take those after work. I was also asked 100 times if I was depressed - not. I have found meditation also helpful. I live in MA and we have excellent healthcare, but it is intractable and there is no cure. I have tried everything: herbs, accupuncture, massage, different meds, etc. I also suffer from short-term memory issues, but I do the best I can. Dwelling on it makes it much worse.

Have been dealing with NDPH since August '21, fellow Irishman here too. You're not alone with this condition. Keep the head up and keep going.

"Launch Alert Vipers!" "I'm getting my Men."

Do you feel lightheaded like you're going to pass out or black out?

Hi John, so late to comment :)) First of all I'm glad I'm not alone in this shit My headaches started 7 years ago and suddenly with leech therapy it stopped completely! Then after 7 month it started to hurt me again after that i tried every doctor but one day some indian doctor gave me some fat burning pills!! And my headache gone for good! But the bad part is my neck is stiff and my scalp is numb and spasming! I really don't know what is the root cause but after so many researches i came to conclusion that it has might have many factors and it is what makes it impossible to cure becuse its complex situation right? So try to fix bad factors in your body as many as you can Seriously if you smoke or smth put it out or if your vitamin B12 is low try to fix it Good luck

I miss Battlestar

Yes , me too!

I am so sorry I never got to see this live.

I suffered from headaches most days, constantly taking panadol, finally i learnt to stop them

I came here from the rings of power harfoot song to remind myself that Mr mcreary has been making me cry for a long time. 😂😍😍

Did u get an MRIs

Hi John, great to see your beautiful / honest and heartfelt expression of your journey shared on UA-cam. Everything you said resonated, although I’ve only been under the reality of NDPH since 2018 ( post a work accident) . The medical fraternity have a huge responsibility for the ignorance of headaches / migraines ( catalogued to the realm of psychology-psychiatry or Malingering) unless your journey brings you, or you bring it, to the door of competent physicians. The truth you speak on the difficulties is so important to share, so that the good moments - days can be celebrated and the bad days used as a lesson in mitigation. Just 30days into a Aimovig trial, have the same confusion on whether its effects are real or imagination. The key point I’ve tried to reference is moments of being clear in mind, either from sleep / activity / medications or just distraction, and use these points as a reference for the gray - unsure or really bad days. A salute all on this difficult journey 🙏

J

What’s his full name? Does he have any videos?

I'm very tired. NDPH is hell on earth. You are alive, but you are dead at this time. Every day begins and ends with pain. Like Something eats your brain.

Hey please I’m in Nigeria we don’t have good healthcare here what am I going to do and how will one handle this ndph