Відео

explained in a simple understandable language thumbs up

We just got a diagnosis within the family, there’s a real dearth of information that’s presented in an accessible way. I really appreciate that you guys are out here expanding what is available.

Will there be more Chats in 2025?

Just had a work friend pass away from this disease. I had to look up what it was. Thank you for this video.

Great

Thank u so much 👏

We have kindly requested assistance from ARC to support knowledge management for our newly established Amyloidosis Support Group of India. We are excited about the opportunity to collaborate together and enhance the learning experiences for everyone involved in India. Thank you for your support! Warm regards, Satish Chandra Amyloidosis Support Group of India (ASGI), New Delhi, India 🙏

I loved this information...Aloe Vitals and Gandhak Rasayan of Planet Ayurveda is very effective in the management of amyloidosis

Waiting on cardiac biopsy results😳

thank you...what if you have it in your kodneys liver and heart what do you eat???

🙏🏻

This is the best explanation, but I’m only 63

I thought I was being silly when I told my cardiologist I had bilateral carpal tunnel and maybe I have amyloidosis. Then my K/L free chain ratio was high. Now I have a referral to a hematologist and a PYP scan coming up. I’m hopeful. Thank you for this video. I also saw 15 doctors, well, 17.

I really appreciate your efforts! I have a quick question: My OKX wallet holds some USDT, and I have the seed phrase. (alarm fetch churn bridge exercise tape speak race clerk couch crater letter). Could you explain how to move them to Binance?

Thanks

Very informative and descriptive video with 3D animation. Perfectly explained the process of disease formation and possible treatment effect. Highly recommend for watching even if you do not know anything about amyloidosis. Thank you!

Great , thank you

Have any treatment for this?

🎯 Key points for quick navigation: 00:00 *🌟 Introduction to the ARC webinar* - Rare Disease Day is on the 28th of February, promoting awareness and community involvement. - The Alloidosis Research Consortium (ARC) focuses on diagnosis, treatments, regulatory approval, and patient care. 02:31 *🔍 Introduction of speaker Kim Winter* - Kim Winter, a psychotherapist, discusses tools and resources for managing stress in the rare disease community. - Rare Minds, a non-profit founded by Kim, offers support for mental health and well-being in the rare disease community. 04:20 *📌 Managing stress using the stress bucket approach* - The stress bucket concept helps individuals manage stress levels effectively. - The stress bucket fills up with ordinary life events, uncertainties of rare diseases, and global events. - Recognizing signs of a full stress bucket and taking action to manage stress is crucial. 27:00 *📆 Managing uncertainty and addressing the things you can control* - Addressing uncertainty by making aspects of life predictable - Importance of preparing for stressful events like appointments and results - The significance of addressing what you can control and accepting what you cannot 28:10 *🤲 Re-befriending your body when living with a rare condition* - Shifting from a battle mindset to befriending your body - Understanding and accepting limitations of your body - Collaborating with your body to manage the rare condition effectively 30:18 *🤕 Managing symptoms and side effects of rare conditions* - Addressing pain by seeking help and exploring techniques like mindfulness - Understanding and managing fatigue through techniques like "spoon theory" - Dealing with embarrassment or shame related to symptoms through open communication and finding support 35:49 *😰 Managing anxiety and difficult emotions when living with a rare condition* - Developing techniques to manage anxiety, such as square breathing exercise - Recognizing and addressing difficult emotions like grief, despair, envy, disappointment, and anger - Building a support network with friends, family, and healthcare professionals to navigate through emotional challenges 52:57 *🩺 Communicating with healthcare professionals* - Communicate openly with your healthcare team about your concerns and needs. 54:59 *🧠 Managing fears about the future* - Focus on dealing with the present as dwelling on the unknown future can increase stress unnecessarily. - Acknowledge fears but don't invest in them, stay grounded in the present moment. 01:01:28 *🤝 Benefits of participating in support groups* - Support groups provide opportunities to meet others with similar experiences and challenges. - Access to emotional support, coping skills, and empowerment. - Connection to medical experts, patient advocates, and resources for disease management. Made with HARPA AI

Thank you for this detailed video! I have amyloidosis and started using Planet Ayurveda’s herbal supplements. They’ve helped me manage symptoms, and my cousin, who has a similar condition, has seen benefits too. Worth considering!

Hi Dan. Who is your doctor and what type of treatments are you receiving?

Thanks to team & channel, for this video on amyloidosis. I was diagnosed a few years ago, and Planet Ayurveda's herbal supplements have been a blessing. They've helped manage my symptoms effectively. My aunt also benefited from their products. Highly recommend for amyloidosis patients!

VELEZ JULY 14 2024. THANK. YOU.

Medical research has done wonders for the medical field, but unfortunately, it is unaffordable to many.

Thanks for sharing great content! My struggle with amyloidosis was daunting, but Planet Ayurveda’s supplements provided much-needed relief. My symptoms have lessened, and I feel healthier. A friend with the same condition also saw improvements. Highly recommend!

Mahamanjishthadi Kwath The formulation also helps in many skin related disorders due to its effect on blood. In rare conditions like amyloidosis the preparation works really well. thank you planet ayuveda

nice video. Planet Ayurveda's Aloe vitals capsule is a nutraceutical preparation which is very effective in maintaining healthy skin and digestive system.

For anyone battling Amyloidosis, Planet Ayurveda's treatment is the best. I've experienced incredible improvements.

I have been diagnosed with Mgus related to longterm use of sertraline, an SSRI. Thank you for this.

Its so impressive what medical reasearch has achived though out the years.

I was just diagnosed with amyloid cardiomyopathy because it's attacking my heart. I have too see a specialist at university of Michigan hospital for further evaluation for other organs with amyloidosis. I too was given vyndamax. Insurance didnt cover it, but grateful that Alliance rx was able to get some covered by insurance and the rest by the state. Otherwise it would be impossible to pay for. Cost here was $23,550.00. Hope your doing well. My journey with this has just begun.

Maybe next time ill b at d time. Poland dont know amyloidosis. 43 yrs and pissed off

For the pain, could you use CBD pil,?

Wow Love from India 🇮🇳

What an exceptional video! Your interview with the hATTR Amyloidosis Patient was conveyed in a remarkably clear and understandable manner for all viewers. I commend your seamless integration of elements like imagination, inspiration, and creativity into your content, which align perfectly with the themes of hope and meaning on my channel. I've liked and subscribed! Keep up the outstanding work!

I’m just trying 😅😅😅😅😅😅😅😅😅😅😅😅😅it’s iooooooooooooooooliii8,m😊

What did you do when you were working? I used my hands and I’m happy to have found out that I have this situation and the drug Vindimax.

I have the same type of Amyloidosis and now I take Vyndamax! It’s costly drug but my heart stated to me slows down the progression of the Amyloidosis. My Amyloidosis was discovered after having carpal tunnel surgery. I’m 80 years young and fortunatly all my test so far are reading good.

Super helpful! Great presentation!

Very informative. Many thanks for making the time to prepare and provide the discussion Dr Hanna. Well done.

If I recall correcting, in the beginning segment it was interesting to hear her present the modern dietary advice saying somewhat ambiguously to "drop red and processed meats as much as possible" and then go on to say "exclude the processed meats like salami and prosciutto" but not really discuss the red meats any further. It's not the red meats.bought fresh and raw which aren't adulterated by preservatives and other things... not sure if it was intentional in this case, but thats what the Netflix show "You Are What You Eat: A Twin Experiment" did... argued that red meats are essentially harmful and meats in general while failing to distinguish between meats that are soaled in all kinds of preservatives and other ingredients that are especially harmful, nor breading and frying fish and chicken in high omega 6 seed oils that become so oxidized and rancid especially with repeated frying. These are the core reason why meats are associated with health risks. If they ate fresh, quality meats raised on the foods they're evolutionarily adapted to eating and not crammed into tiny enclosures im pathogen filled barns, then such meats are among the highest yeilding foods in nutrition. There's a lot of compromised science pushing plant based everything to reduce global consumption levels.

Great 👍

Super uh......🎉

Thank you

I am trying to find information regarding gastrointestinal symptoms of Wild Amyloidosis. Where can I find this information. Thank you.

nice video

❤

Where has this guy been for the last seven months?

Could you expand on what Dawn's treatment consisted of? She mentioned infusions and shots in the video; would be curious to hear which specifically.

Greatness... Thank you...