Відео

Methotrexate is a nasty nasty drug, I done the tablets first, vomiting here n there, nausea for 5 days every week no matter how much folic acid was taken. Then done injections to bypass the gut but still nausea with it. Then tried liquid and again nauseous, 18yrs of that. Methotrexate was good for my RA, but not good for me. Then 2yr ago all the meds stopped working, now on biologics, symptoms/side effects better but still my RA is overpowering my meds. The chronic fatigue for 20yr has been horrendous, trying to hold down jobs very difficult but im still working for now but it's getting so much harder week on week. Last year it started attacking organs as well as my joints. It's a proper nasty disease and because people can't see it they have no idea how much we are suffering day to day

Thank you! This is an awesome nuance that I will share with students with disabilities that I am working!!!

This is…eye opening. ❤

Fake disability pshcyos.

Yeah how 2 cope cuz I'm 61 and I've had enuff. I don't want 2 try all these things and add other things when that quits working. It's the end of January 2025 and I've had my hands in a flare since October. I've been so limited on what I can do. You never realize how much you use your hands. You use them for nearly everything and when you can't it really wears on you. I'm so done with it.

Many doctors are not evil manipulator, but they are controlling and egotistical.

Mindfullness is great. However my highest source of stress is my doctors. Drs treat you with contempt and treat you as either a suspect or just an "anxiety" disorder.

I was diagnosed with Sjogren's , Hashimoto's and Lupus 30 yrs ago and the diagnosis are all in my records. In the last year I suffered steatorrhea. I was sent to GI who started bile acid sequestering agents. This med blocked my HRT, so then I had severe hot flashes and migraines at the age 68. During this time I developed hand tremors and was diagnosed with Essential Tremor and was started on propanolol which caused ankle edema. PCP's said my thyroid test 9 months before was NL so they refused to check my TSH. I finally found one of the nurses who ordered the TSH level and it was profoundly suppressed. I have been in a severe hyperthyroid state, for 8 months and not one of the doctors considered checking my thyroid function.

Do you get stomach upset or pain from injections? I’ve been on methotrexate for 20 years also pill form 6 per week along with 6 folic acid .. I get a lot of pain and waves of nausea through out my day

Thank you!!

Thank you, this is a good way to look at it

Yes PLEASE! Just diagnosed with psoriatic arthritis and need all the help I can get!!

i so loved chatting with you today. you are such a god send and look forwsrd to next chat. many many thanks.

I am so happy I found your channel I struggled to find real, recent stories about people with AS. I was diagnosed last year and and still in the middle of adjusting treatment but have yet to hear a whole story similar to mine! But still happy to hear about others ❤

This is tooo cute!!

So inspiring !

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Costochronditis can be squeezing nerve that is under or near rib cage very scarey goes away

I’ve been on methotrexate injection for about 5 months, once weekly. I’ve never been able to get over the bloated feeling I have for a couple days after. I burp a lot and have a lot of gas that I feel I have trouble expelling ( like trapped gas somewhere in my GI tract). Simethicone helps minimally, but I still have to do methotrexate on Fridays because all the next day I’m in bed. 😞. Anyone else experience this?

I'm just starting my methotrexate injections, not sure how to measure though. I'm hoping to use insulin syringes instead of the 18 gauge needles they sent with the medicine.

So true with autoimmune diseases

i love this, i wish i could have one of those !!!

I have Sjogren's, Small Fiber Neuropathy, Raynaud's, Hashimotos and currently PMR. My first sign was bi-lateral trochleitis of the eye area. A few shots in the eyes did not relieve the pain. They say I have to cure the autoimmune causing it. Well, I don't think that is so simple.

Said a lot and gave nothing

I went to an internal medicine Dr. Did all the testing. At the appointment he just began talking about treatment. I had to make him pause after a while and just say what is my diagnosis you never did say. He looked back to my chart. He seemed uncomfortable. He said I have polymyalgia rheumatica and just kept talking. I had to stop him again to explain it to me. 🤷🏻‍♀️

Hi! Thank you for your content. I take metotrexate and lab results show "normal". recently stopped taking prednisone and pain is coming back. Even so I have tried yoga, weights, biking etc but still i get pain the day after. I told my dr and he said theres not much to do since the lab results show alright? 😢 Any recommendations anyone?

Hi, Cheryl! Just curious, would you know how people can know they have seronegative RA? I had scans with small erosions and mild inflamation, but I don’t know if that means it’s for sure and I’m just denying it or if I need to push to keep looking.

What supplement help?

I love his group!! He’s the inspiration for the start of my Group 💙

Love it!! So happy to see you both talking to each other!

can i use ur video for marketing purpose?

I self diagnosed myself with Sjogrens. Then had a positive lip biopsy. I had emergency GI surgery for an obstruction and rupture of my large intestine. I also had an inpatient admission for interstitial lung disease from Sjögren’s and I am now experiencing cognitive decline. Sjögren’s has been desvastating to my body and mind. I am declining rather quickly.

My ra doctor prescribed methotrexate Nd never did blood work. Always said next time. I dont drink or smoke or do illegal drugs 79. I got to where i didnt eat lost alot of weight. Went to gastric doctor who did liver biopsy etc. I havemeyhotrexate induced cirrhosis. Methtrexate has black box warning for cirrhosis. Told ra doctor and all she said was well get better. U dont get better u die

Technically, gingerbread houses arent meant for eating because the gingerbread is meant to build, so, using hot glue works, but make sure it doesnt heat up the house too much

Thank you. Wonderful and useful. Newly diagnosed

... some of these Dr.'s are BRUTAL !!! : ( Just Horrible ! I'm so sorry you went through soooo much : ( Anyways, Thank-you ladies, lots of Great info shared here : )

Webinar

good stuff

I lost all my teeth to Sjogrens. I had beautiful teeth so it was heartbreaking. I have dentures now but my mouth is always raw due to Sjogrens. So it hurts to wear my teeth. I'm so frustrated.

5 years later and your still helping folks with this video. Did my very first self injection just now with this as my support and had zero issues! Didn't even really feel it either. ❤ thanks, Lady! ❤🎉

I definitely wonder sometimes if women would be down marrying a guy who was just diagnosed with PsA and most likely will need double hip and knee replacements by age 50

My dad was diagnosed at age 7 in 1962. Destroyed his body since they had no treatments back then. Wreaked havoc on his heart and other organs, too, so even though he went into full remission in his 20s, he ended up passing in 2012 from heart disease. My grandfather (his dad) got it 30 years later than my dad in 1992, so I watched it destroy two people close to me. My brother and I were sure we weren't going to get it, since We'd already reached our 30s, but I was diagnosed with psoriatic arthritis last year at age 37. It's already damaged multiple joints and some flares are so bad I can't do physical work Also, I totally relate with most people not understanding or even taking it seriously. Makes you feel alone and unsupported. Growing up, I always wondered why my dad never tried to explain his health conditions to anyone. Now I understand - he must've learned early that most people either don't believe you or don't care.

Is Sjogrens disease hereditary?

I also had a double hip replacement at age 41 about 8 months ago...and I am currently starting to run! Good for you!

Good one.❤

Well explained! Thanks!

True Love! This is the first item I ordered because of your recommendation, about two years ago I think. I'm grateful to you every time I take it out of the drawer and plop it on a can. The arthritis in my hands has gotten worse over time, and this one tool has made a huge difference.

Omg! I have a red one. It was one of my first buys when diagnosed with RA in 2019. It is a lifesaver. ❤🙌🏽

I want to listen to this a few more times to harvest all the goodness out of it. Thank you so much for what you do. I listen, I take notes. I learn more with each bump in the road and I come here to find you and learn more tools.

How's your diet? ARE you limiting sugar intake or zero sugar?