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overcoming-together by Jayne Rachael
United States
Приєднався 19 січ 2020
Calling all Floxies, maladaptive daydreamers, chronic pain sufferers or anyone else who has experienced symptoms or diseases that doctors/mental health professionals didn’t understand or couldn’t treat. For those of you who understand that having all medical tests come back normal isn’t always a good thing; this website is for you, written by one of you.
Recovery from Fluoroquinolone (Cipro, Levaquin) Antibiotics is Possible!
Yes, you can, and most likely will, recover from the Fluoroquinolone (Cipro, Levaquin and many others) antibiotics and their dangerous side effects! Hear Chuck's inspiring floxing-fluoroquinolone toxicity recovery story and learn about some myths and recovery tips to help your healing journey.
Переглядів: 832
Відео
Side Effects Dangers of Cipro and Levaquin/ Floxing of two Ellies part II
Переглядів 1,1 тис.2 роки тому
Watch Part 2 of the inspiring story of how two friends named Elie are both overcoming horrible side effects from Fluoroquinolone antibiotics. They want to spread the word so others don't take these medications unnecessarily and also show people who are in the midst of experiencing these side effects that there is huge hope for recovery. They are recovering and so will you!
Part II Side Effects Dangers of Cipro and Levaquin/ Floxing of two Ellies part I
Переглядів 1,1 тис.2 роки тому
Watch the inspiring story of how two friends named Elie are both overcoming horrible side effects from Fluoroquinolone antibiotics. They want to spread the word so others don't take these medications unnecessarily and also show people who are in the midst of experiencing these side effects that there is huge hope for recovery. They are recovering and so will you!
Kema overcoming and giving back while managing Lupus
Переглядів 752 роки тому
Hear Kema's story of dealing with multiple autoimmune disorders, including Lupus, in the midst of a global pandemic. Despite struggling with major health issues, Kema still manages to give back through her work helping young people experiencing homelessness, while also finding time to enjoy life. Kema has Lupus, but Lupus doesn't have her!
Fluoroquinolone Toxicity-Recovery Story Part II
Переглядів 3,6 тис.2 роки тому
In this inspiring video, Chuck explains how he is healing after experiencing wide spread side effects from the antibiotic Cipro/ Fluoroquinolone Toxicity. Time is the best healer and those damaged by this medication almost always get better.
Floxie chuck 1
Переглядів 5192 роки тому
Meet Chuck-another person whose life was derailed by Cipro-a fluoroquinolone antibiotic. In this video he will explain his symptoms that occurred after taking a three week course of Cipro for a sinus infection. The FDA has warned doctors not to prescribe fluoroquinolones for things like sinus infections as there are much safer antibiotics that do the trick.
Hear Katie's inspiring story of overcoming Gallbladder Disease.
Переглядів 4,1 тис.3 роки тому
Katie fought back against gaslighting doctors who didn't believe a thin young woman could have gallbladder disease. After experiencing excruciating pain and nausea for several months, doctors refused to listen to her pleas to test her for gallbladder disease. This is despite the fact that her father had experienced similar symptoms years earlier before his gallbladder diagnosis. So she ate the ...
One woman's experience overcoming and conquering chronic Urinary Tract Infections (UTIs)
Переглядів 1983 роки тому
Monica shares her experiences with suffering from one UTI after another. Doctors either didn't believe her or kept prescribing the same antibiotic over and over. She ended up with a UTI almost every time she had sex which caused her physical pain and put stress on romantic relationships. Finally, a primary care doctor tested her for ureaplasma and a different antibiotic greatly reduced the freq...
Mental health and Maladaptive Daydreaming, ( MDD, Immersive and normative Daydreaming Part II)
Переглядів 1543 роки тому
Hear from a panel of daydreamers including a 'normative daydreamer,' two people who have experienced MDD and two people who consider themselves 'immersive daydreamers.' Panelists discuss potential links between Maladaptive Daydreaming, OCD, ADHD, depression, anxiety, and social anxiety.
Differences between normative, immmersive and maladaptive daydreaming Part I
Переглядів 1403 роки тому
A panel discussion with one "normative" daydreamer, two people who have experienced maladaptive daydreaming (including an administrator on the Reddit MDD Group) and two people who consider themselves 'immersive daydreamers." The discussion spreads light on the entire spectrum of daydreaming and can help explain the differences.
Fluoroquinolone Toxicity: A dangerous line of antibiotics that includes cipro and Levaquin
Переглядів 3,9 тис.3 роки тому
Who knew that a commonly prescribed family of antibiotics that includes Cipro and Levaquin can cause tendon rupture, mental health issues, including dissociation, peripheral neuropathy as well as wide spread muscle pain and weakness to the point of paralysis? This line of antibiotics now has several back box warnings on it and the FDA has recommended that it not be prescribed for things like UT...
Positive Toxicity
Переглядів 1113 роки тому
Hearing friends, family and others say things like 'you need to focus on the positive,' "it could be worse' or 'everyone has something wrong with them' is toxic to people who live in chronic pain and absolutely the wrong thing to say. Learn why in this video with nurse and fibromyalgia survivor Kathy Moran and what you should say instead.
High School Junior Chloe overcomes both severe Scoliosis and Lupus
Переглядів 1173 роки тому
17 year old Chloe gives advice and inspiration as she shares how she overcame severe scoliosis at age 9 and now manages the autoimmune disease Lupus. Despite join pain and fatigue, she manages to juggle academics, a social life while still finding time to give back.
A Mental Health Conversation Part 2: Permission to Make Mistakes
Переглядів 473 роки тому
Three smart, well-educated and talented young women in their late 20s are crushing their careers and their lives. Yet why for so many years, despite all of their success, did they constantly say they are sorry and worry that everyone will think they are dumb if they make a mistake or say something silly? In this interview, see what they have done to overcome this self-doubt and how giving thems...
A Mental Health Conversation Our Journeys Part 1
Переглядів 323 роки тому
Three smart, well-educated and talented young women in their late 20s are crushing their careers and their lives. Yet why for so many years, despite all of their success, did they constantly say they are sorry and worry that everyone will think they are dumb if they make a mistake or say something silly? In this interview, see what they have done to overcome this self-doubt and how giving thems...
Chronic Migraines, IBS, Covid and College
Переглядів 693 роки тому
Chronic Migraines, IBS, Covid and College
Overcoming Maladaptive Daydreaming Disorder in the age of COVID.
Переглядів 1,4 тис.3 роки тому
Overcoming Maladaptive Daydreaming Disorder in the age of COVID.
Managing chronic illness as a college student
Переглядів 793 роки тому
Managing chronic illness as a college student
Overcoming Pancreatic Cancer- Stephen Bigelsen
Переглядів 3,5 тис.3 роки тому
Overcoming Pancreatic Cancer- Stephen Bigelsen
Maladaptive Daydreaming Panel Discussion
Переглядів 4,9 тис.3 роки тому
Maladaptive Daydreaming Panel Discussion
Communicating with a loved one or friend with a chronic condition.
Переглядів 803 роки тому
Communicating with a loved one or friend with a chronic condition.
My adult son had adverse reaction to Cipro along with Flagyl almost 8 yrs ago. It affected him from head to toe. My son hasn't been the same since. He is homebound/bedridden
So sorry to hear this! I just spoke with someone who got 100% better at year 12 so there is still hope! What are his symptoms? And what tests has he had done?
7 years out, almost died, still daily pain but I can walk now even if in terrible pain
I'm so sorry to hear that you are still in terrible pain after all these years. I still have lots of aches and tightness but I wouldn't call it terrible pain anymore. Do you find that you get a little better each year? I know someone who completely recovered at year 12 so there is still hope! Sending healing thoughts your way!
Keep plugging away! It can still get better even after all these years
the video is kinda too positive... of course I'm very happy that you improved a lot and there are people who heal from this but I was poisoned when I was 19 now i'm 30 and i'm getting only worse... And I didnt have any health problems before..... I lost everything...... Can you tell please what exactly helped you the most?
I think the passage of time, physical therapy and training to build back muscle helped me most. But everyone has different symptoms, we werent' all hurt in the same way. The other thing that helped was figuring out what was wrong with me and what autoimmune diseases I had. In addition to causing side effects of its own, I believe these antibiotics also unmask diseases that we might have had such minor cases of that we didnt know or that we were predisposed to, in my cases it was autoimmune disease. If it set off a specific disorder in you, you may not get better until you get treatment for that disorder. What are your remaining symptoms?
We are talking about excruciating pain.
Yes the pain was excruiciating. Doctors think I probably had Guilliane Barre those first few years
The Dr’s take no responsibility with this either
Agreed! They should NOT be presccribing these antibiotics at all unless there is no other choice!
It’s like taking a chemo treatment when you don’t have cancer. Over 2 million affected by this.
I am 7 years out from levaquin. Almost died, I got really sick head fever. Went to Dr. He did a x ray and CTScan of my lungs. Came back and said I was really sick with pneumonia and asthma. He prescribed levofloxacin and prednisone. I said you think this is ok to take together. I had a check about. I should have listened to myself. Dr said you’re really sick just take it. I took two doses that day and my life changed that day. Next morning woke up to my body being bombed in night. I could not walk , knee blowed and whole body shot, to much to share here. It almost took my life. Come to find out my lungs were perfect , no pneumonia or asthma. This took me on a journey of being mocked and ridiculed by Drs and family. 24-7 terrible pain head to toes. Lost job, family, friends. Found u are never to give these antibiotics with a steroid. No discipline or repercussions with Dr. I relate so much to this man. I still have major issues with my body and walking etc.
ugh! this is so awful, yet so familar. I too blew out my knee and legs felt like dead weight and I couldn't walk. Doctor should NEVER let someone take both a steroid and a quinolone (and shouldnt be prescrdibing a fluoroquinolone at all unless there is no other choice and it's life and death) What Chuck and I were saying is that it is fine to take a steroid years out from taking the antibiotic. We both had steroid shots that helped us, but it was years after taking the Fluoroquinolone. I'm so sorry to hear that you are going through this-as I personally know how awful it is. And the doctors dismissing us just makes it so much worse. Do you find you are gettng better? I hope so. I am much better than I was six years ago-but still not where I want to be. Doctors now think I could have Rheumatoid Arthriits. My legs are a lot better but still have pretty bad neck and back weakness. I do find that mild excercise, stretching and strength training is working and so is being treated for RA and other autoimmune diseases
I am 7 years out from levaquin. Almost died, I got really sick head fever. Went to Dr. He did a x ray and CTScan of my lungs. Came back and said I was really sick with pneumonia and asthma. He prescribed levofloxacin and prednisone. I said you think this is ok to take together. I had a check about. I should have listened to myself. Dr said you’re really sick just take it. I took two doses that day and my life changed that day. Next morning woke up to my body being bombed in night. I could not walk , knee blowed and whole body shot, to much to share here. It almost took my life. Come to find out my lungs were perfect , no pneumonia or asthma. This took me on a journey of being mocked and ridiculed by Drs and family. 24-7 terrible pain head to toes. Lost job, family, friends. Found u are never to give these antibiotics with a steroid. No discipline or repercussions with Dr. I relate so much to this man. I still have major issues with my body and walking etc.
Ugh-so sorry to hear this. First, we go through all the pain and limitations, which is hard enough on its own to bear. But then the doctors not believing adds another layer of pain and trauma. Are you getting any better? Have you had your hormones, vitamins, iron and an autoimmune panel done? these might all be able to provide some clues on what you need to improve further.
New to this topic/video bt been to ER & GP several times. Everyone says anxiety. Heart & everything always checked out. Just last night went to ER for sudden loss of breath goin up stairs at work. Never happened before. Lately been suffering from right side pain under ribs and between my shoulder blades. Not one Dr has mentioned gallbladder. Kidneys tho. I will be mentioning this to my GP to have mine checked when they do the renal ultrasound
So sorry that you are going through this! sending positive thougths your way. If it is your gallbladder please keep us posted.
One month ago I was prescribed 250 mg twice a day for 5 days pe3 days after I stopped. I felt like I could not walk every muscle in my body. Ached especially lower back and where I. Tore my rotator cough years ago. That seemed like it was possibly tearing again. I started on something called Sonny's detox would recommend that it gets stuff out of your tissue and then get on vitamins, magnesium potassf.M check what you need to revitalize your body
It sounds like the detox worked and you are feeling better-that's wonderful. How long after taking the antibiotic can this detox help and where can I find more information about it? Thanks!
Google, sonny's 7 detox
Drink alit of h20 after, to flush,gets it out of tissue
I've been a vigorous dancer, had surgery, took this drug were talking about, now my legs feel like dead wood, or logs. I'm so tired.
ugh-how awful-so sorry! How long ago did you take it? Keep in mind most people heal in time!
@@overcoming-togetherbyjayne3857 still going through difficulty breathing after using Levoflaxcin. still also having UTI and scared to use another antibiotics
just make sense to take probiotics and prebiotics I just think the antibiotics killed our good bacteria and that's why we get all these problems and that's just my human brain thinking I'm no doctor or anything I have no credential whatsoever other than having taken this antibiotic.
I took doxycycline for 6 days for a UTI I got from some girl and then the doctor switched me to ciprofloxacin that was 7 weeks ago and I'm still dealing with gastro problems and chronic insomnia. Every night I go to bed I worry that I'm not going to sleep. I feel like these idiot doctors have no idea what they're prescribing. I don't know what to do everyday I worry about sleeping my life has become a living hell😢. I've been to the ER two times, the gastroenterologist, the urologist two times, I've had my A1C checked, I've had my blood checked for everything and everything looks good. But yet I still struggle to sleep at night and still having weird pain in my abdomen what seems to be related to I assume dysbiosis. I'm taking probiotics pills, Greek yogurt, sauerkraut, kefir, and anything that I can to help my gut biome. For the last 2 weeks I've been doing this to no avail still having problems sleeping 🤦 it's like they didn't even believe me I had to beg my primary care doctor to prescribe lorazepam to help me sleep.
Insomnia is so awful-and it's terrible that you and everyone else are suffering so much because of doctors' ignorance. The good news is that everyone I talked to with the stomach symptoms eventually got better with time. Magnesium and Melatonin can help with sleep. I'm not sure if it's available where you live, but I found that medical marijuana really helped with sleep. Of course, the the best thing to help with sleep, which is so hard to do, is to try to not care about it. Because the more you try to sleep, the harder it becomes. So, if you can't sleep, getting up and reading a book or doing something else to take your mind off slep can really help
Today’s doctors are overloaded with patients and few take any time to listen. You really have to do your own research, I could write a book on how many times I’ve been right and the doctors were wrong.
About 10 years for me. I still have a lot of pain.
ugh-I'm sorry to hear that. Have you gotten somewhat better? I wonder if the antibiotic unmasked an autoimmune or other illness in you-in which case you will need a diagnosis and treatment to get better. What are your current symptoms?
I took 3 pills of cipro 8 years ago and have gone through hell. Haven't worked since and I have the energy of a pilot light as opposed to the roaring furnace of energy I had prior to this antibiotic from hell. Beware!
@here Hey how much of fluvoxamine helped you i mean what was the dosage I am 30 and i want to get better i have gone to see a doctor he also prescribed fluvoxamine, i was on 150 mg a day but that did not help much.
I think I went up to about 200mg in the beginning, but if that doesn't work after you have been on it a while, there could be others worth trying. Different medications work for different people often depending on what your co-existing conditions are. Mine is OCD so Luvox worked well, but others could work better if you have anxiety, ADHD etc. would love to eventually hear what works for you!
@@maladaptivedaydreamerwithj2632 thank you for your reply. Similar to you i have had this condition since childhood and only last year i realized how much time i wasted in my fantasies and how much on life i missed out on due to this. Before that i used to think this was my super power to keep me entertained for hours on end but when it became so severe that i would image after going to sleep and would keep imagining for hours until my brain hurt and only then could i sleep. It was then i realised it was not a gift but a curse and i want to get rid of it as soon as i can.
@@maladaptivedaydreamerwithj2632 I have taken fluvoxamine 150 mg as prescribed by my doctor but that makes me very dtowsy/sleepy. I see that there is a CR version of the same medication. Can you tell me if that will help with my drowsiness/sleepiness. My normal sleep has increased from 7 hours to 9-10 hours.
Cipro is fluoride, it destroyed my thyroid and my eyes. I have arthritis in my neck because of this and pain in the side of my head and my toes are destroyed.
I'm sorry this happened to you! But I do believe healing is possible
What about dry mouth Missouri thick white saliva dry mouth all the time is that a symptom of Ciprofloxacin if it is will it go away it's really bad it has no children if I try to sleep
Please I want to FaceTime with you the talk I took it for 5 days every 12 hours 500 mg plus IV and I'm feeling really scared panic attacks how do I get in contact with you because it's nausea total loss of appetite is that a side effect loss of appetite completely can't sleep at night tired all the time
I responded to your email about setting up a time to chat. The nausea and loss of appetite should definitely go away. I needed help and medication to deal with anxiety and insomnia. I know some people in the Floxy community are against those types of medications but I couldnt have gotten through this ordeal without them. They really do help. sending healing thoughts and looking forward to connecting over Zoom
Is permanent appetite loss common with taking Ciprofloxacin
I have heard of temporary loss of appetite but not permanent no-it should get better!
Please I want to get better please contact me what do I need to do to get better I'm feeling fatigued and really scared and I took this Ciprofloxacin for 5 days every 12 hours 500 mg and I took an IV one IV with one bag and I'm just feeling really bad and I'm so sorry I took Ciprofloxacin what do I do I've been to my doctor they said that urine test normals complete blood cell count normal and then I got back and told them what happened but I'm not feeling normal
I'm so sorry you are gointg through this! How long ago did you take it? For some people it just takes a couple of weeks to months of resting and then they get better. Others take longer, but almost everyone eventuallly gets significantly better. Perhaps it could help to get all of your vitamin, iron and hormone levels tested. Regardless of the results vitamin D and Magnesium could help. Depending on your symptoms, you could have unmasked an autoimmune disease, so it might be good to see a rheumatololgist to run some antibody tests for autoimmune disease. If you are having trouble walking or feel muscle weakness, it could be good to go to a neuorlogist to get tested for myasthenia gravis and Guilliane Barre. They wont want to test you for that unless you are in a wheelchair, but if your eyes, neck, arms legs feel week insist on those blood tests. You could have a peripheral neuropathy in which case a neurologist could help and if you are struggling with insomnia or anxiety etc a psyhiatrist could help. Regardless, it could be good to speak with a therapist to help you get through this time. I wyouould try to focus on the symptoms and less on telling the doctor you were floxed. You could tell them the symtpoms started X days after the medication, but leave it at that and then focus on your symptoms. Sending prayers that you are one of the people who get better quickly.!
@@overcoming-togetherbyjayne3857 I took it on the 20th of this month that was the last pill I believe I took put a week before that they gave me an iv of it I'm walking still that I have loss of appetite completely I have to force myself to eat I feel fatigued I had low testosterone before this is at the hormone levels? My heart is beating faster I'm just so sad I'm so scared I I'm having panic attacks I really need to connect with you if possible and do a FaceTime with you or something I'm really in a battle and I feel like but this anxiety I feel like it's killing me
@@overcoming-togetherbyjayne3857 the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in
@@overcoming-togetherbyjayne3857 the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in
i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school
Hi can you let me know how are you healing from this? I took 20 pills ☹️ and now i exp weird symptom in my stomach that I havent have before , and persistent too.. plz help
I;m healing slowly but surely. I had lots of prior autoimmune issues and a gene that predisposes me to autoimmune disease, so I took much longer than most. But most everyone gets better and much quicker than I did-the stomach issues especially seem to clear up with time. I've heard that taking probiotics can help-it's worth getting checked out by a GI doctor, but time is usually the best healer. Also, keep track of if particular foods are more problematic than others-gluten and sugar can be big triggers.
@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school
@@overcoming-togetherbyjayne3857 Hello, 7 months in and still having difficulty breathing 😢
Awesome!!!! Thanks guys!!!♡
Is cipro dangerous for all ages or for to elderly people
I would love to be on this my problem is so bad
email me at jaynebigelsen@gmail.com and perhaps we can set something up!
All pharmaceuticals are deliberately designed to damage the human body (liver, kidneys, immune function, nervous system, microbiome, brain). The resulting damage increases the need for more drugs to remedy the initial drug induced injury. It's a business decision to increase sales.
Create a problem provide a solution..makes money, repeat. it's our medical business model.
@@LoriB-vc4el Spot on. No one can dispute this.
Pharma profiting from fluoroquinolone toxicity. ua-cam.com/video/uJ44KpO1aUM/v-deo.html
This happened to my 27yr old daughter, she has suffered the last four years! Please please tell us what she should do to repair her body and restore her health. She believes she will never be the same. My heart is bleeding for her.
Tell her not to give up hope! I've seen people get better 4,5 and six years out. Has she gotten any better? What are her main symptoms? It could help to get all of her vitamins, iron and hormone levels tested as well as pretty extensive autoimmune testing and maybe see a neurologist. Depending on symptoms testing for Myasthenia Gravis could be indicated. Supplementing with Vitamin D and magnesium can never hurt and PT and light exercise to build back muscle could also help. Sending healing thoughts her way! She is young which increases her chances of an ultimate recovery
These antibiotics poisoned my dog and gave her seizures. She had the worst seizure last week and I had to put her down. so sad.
How awful! This makes my heart hurt-we need a campaign to start educating vets!
@@maladaptivedaydreamerwithj2632 I agree. I did call the vet after to notify them there is a black box warning on those and they need to stop prescribing them.
If one uses people from real life as charachters in the daydreams, is it possible that then the things one immagined about the real-life people are attributed to those people in real life? Like, for example, my friend fantasizes a lot about people she barely know and I think she ends up suspecting things of them which are totally fruit of her immagination. She attributes intentions and thoughts to people's behaviour though she barely knows them.
Interesting when it starts to bleed into real life like that, I think it is a bit beyond the scope of maladaptive daydreaming. Because generally people with MD know what is real and what isn't but i have seen that bleed over happen particularly when MD is comorbid with other mental health issues like it usually is.
@@overcoming-togetherbyjayne3857 Thank you so much for your answer!
my dog was poisoned by fluoroquinolones. It caused seizures
So sad!!! I guess we need to educate vets too!
@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school
Where did you get stem cells? I was on 4 different antibiotics for 5 months and I started getting neuropathy all over idk what to.do I wanna end my life
I know what you are feeling but please don't act on it-it will get better. There are some pretty good medications for neuropathy-please see a neurologist. You might have to experiment to see which medication works best but one should reduce the pain-sending healing thoughts-know you will get better! And promise me you will call someone if you are actually planning on taking steps to end things. There is a community of people here who have all went through what you are and have gotten better and want to see you pull through too. It's also a good idea to see a mental health professional. A new onset of painful symptoms is traumatic ad you need to have some support working through that trauma. It will get better-you just need to give ti the time to get there.
I have neuropothy from cipro. Plus im in a wheelchair being psrsplegic. I have to be able to use my arms, to get around.. whst I have found that has stopped alot of the pain is to start with a better diet. No sugars , magnesium, CoQ10, K2 +D3, B12, E, fish oil, curcumin, and a good liver detox like milk thistle with dandelion, and lemon juice with cayen pepper. Go eady on the Cayen.. i was at the point just a month ago were I could hardly get out of bed, had to have people drive me around. Im now still in pain but I can honstly say the pain is 1/8 of what it was , I can now wheel myself around in my manual chair, and will be going shopping by myself in the am.. please hang on, your life is very precious to you, and all who know you im sure. Message me back anytime. Sam.....
Oh and also I forgot to mension 90% cocoa is like a building block for your own body to build stem cells. Look it up. It is science . Sam..
@@sammaloney2499 So sorry that you are going through this but glad to hear the pain is less! I take a lot of those supplements. I get a little better every year-I just wish the recovery was more complete. But I'm still hoping to get there and I hope you will too! Thanks for all of the tips on diet and supplements
@@sammaloney2499 I'm going to try that!
I had gallbladder sludge and into my bile duct. It took me 15 months to have my gallbladder removed and the bile ducts cleaned out. Nobody should have to suffer that long. I’m still having some pain in my back right side. Two weeks in recovery, I hope it will subside soon. Take good care Everyone!!❤️🩹
That sounds miserable! So sorry you had to go through that-sending healing thoughts your way
Is there any information on the Paricalcitol dosing? 25mcg as a bolus IV injection or infused over specific amount of time?
I will ask my brother and get back to you
this is what Steve said; Most studies are using 25mcg 3 times a week infused over 15 min in a small bag of saline, but 75mcg once a week may be good if 3 times a week is not practical.
Thank you!
I am glad that I found you guys. Is there a support group? I got floxed in 2004. I have had so many symptoms that you guys described. I am thinking of doing stem cell therapy. Has anyone done this and if so, did it help? Any other methods that people have used and recovered?
So sorry that I am just seeing this now-and so sorry that this happened to you! There isnt an online support group that I know of but maybe we should create one. It would be important that we had a professional lead it though because otherwise we might bring each other down and people will give all sorts of advice (much of it expensive) that doesnt work for everyone. I have heard mixed results on stem cells-some say it' cured him but most say it didnt help and a few say it actually made things worse. Have you ruled out all autoimmune disease, vitamin deficiency, hormone and iron deficiencies? those type of tests woudl be covered by insurance and can all be unmasked or caused by these antibiotics.
You poor girl ! This PCP is as jerk!!! To have to self inflict yourself to a painful gall bladder attack to prove to this idiot that you have gall bladder disease is inexcusable!! Please give her a bad review to warn others
Also thank you for sharing your story, your re telling had me quite captivated, your calmness made me feel more at ease as I sit here with the same symptoms, the heart attack symptoms are so real for me too. One time I had also had to tell the er that i was on the verge of a heart attack and they whipped me Straight in. But the self trial and error of things is so disheartening that we have to do these inquiries on ourselves first, just to be heard
It's so awful that doctors keep gaslighting us and we have to figure everything out ourselves. But unfortunately, it seems we have to-dont give up-keep trying to figure it out! Katie is definitely an inspiration having to advocate for herself at such extreme ways so young!
@@overcoming-togetherbyjayne3857 100% thanks for the reassurance ❤️❤️
I totally agree with everything you've said. These drugs should never be prescribed, period, except for anthrax. The side effects are severe and long lasting and some never recover. Also, Motrin/ibuprofen is contraindicated and will make your symptoms much worse and which is why some never recover. ....I believe it also contributes to auto immune diseases and if research into meds taken by people in the previous two yrs of diagnosis, it would reveal that a huge number had these antibiotics. It is so underreported because its hard to make the connection.
I developed long covid badly for two years and the brain damage (yes long covid causes brain damage) seems to include my MDD getting even worse, probably because my executive function got worse and I was experiencing chronic trauma of being medically incapacitated and in shock and heartbreak at most of society abandoning and denying all of us with long COVID and cruelly declaring the pandemic over, it was medically and socially traumatic so not great for MDD.
So sorry to hear this! I think the roots of my MD also came from medical gaslighting and trauma. I had autoimmune issues my whole life starting in childhood and doctors either didnt believe me or couldnt find anything wrong. Have you been to a rheumatologist as I hear that some of long-term Covid could be autoimmune? Sending healing thoughts your way!
You are lucky to be able to sleep. Ricard Siagian took your antibiotics, and it killed his sleep. He ended up dying a few years later after being tortured by permanent insomnia. You can look him up on Google. Are u doing better now ?
Cipro, statins and the cvd shots are made of mycotoxins (fungal toxins). Side effects: muscle damage, nerve damage, neurological problems, ALS symptoms, MS symptoms, myocarditis, cancer, not being able to walk, tendon and joint problems, etc. Basically a disease factory.
I personally haven't had any problems with the Covid shot, but I know that Cipro is awful and I'm doing everything in my power to avoid a Statin
I had all my COVID shots and boosters! Got COVID anyway! Lasted only 2 and half days! THE SHOTS SAVED MY LIFE!
@@overcoming-togetherbyjayne3857 I believe statins are the cause of many of my bad problems!!😮
@@robertchilders8698 I'm immunocompromised, so I get every Covid booster I can and I havent had a problem-just because the fluoroquinolones are bad doesnt mean that all medicine/vaccines are bad
Hi Jayne do you have any recommendations for my sore feet? I took Cipro 8 months ago. Getting better little by little but my feet still feel like I've been walking on rough gravel. Thanks for any thoughts or help.
That sounds like it could be a neuropathy which Neurontin/Gabapentin is supposed to help with.. I would see a neurologist or maybe even a primary care doctor could prescribe it. wishing you a speedy recovery-please keep me posted
@@overcoming-togetherbyjayne3857 Thank you for replying. I appreciate your willingness to help people! All my best to you!
@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school
i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school
@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school
Many doctors do not understand the gallbladder, and most people do not have to have it removed.
Gallbladder sludge is not easily picked up by doctors' standard tests.
It seems a lot of things are not picked up on standard doctors' tests-they need to start considering things that aren't able to be picked up-but they rely on their tests so much and believe if none of their tests have found anything then nothing is wrong-so frustrating!
Hello how many shoots of steroids did you took ? My ANA test is always positive and I got prescribe steroids becuase doctors says I have a lot of inflammation. My question is did it help you to take the steroids?? What you think will help with lightheaded and extreme fatigue
I had a few steroid injections in my neck-they helped a bit. I didnt take any steroid medication-if you are on them too long they have long-term side effects like osteoporosis. I think they are fine to try briefly as long as you aren't or havent been on the fluroquinolone for several months. But at the end of the day, it's always best to find a diagnosis if possible instead of just trying steroids to see if it will work. Have you seen a good rheumatologist and done a through rheumatological workup. I would try a few before jumping to the steroids. Also ask your doctor about low dose naltrexone which is showing to be good for inflammation without the side-effects of the steroids
Is their any way I could get in contact with you I would like to speak about this?
@overcoming-togetherbyjayne3857
sure-just keep in mind, I'm not a doctor or an expert on how to make it better. I just know what others have experienced and what has helped me, but feel free to reach out at my personal email at jaynebigelsen@gmail.com and we can schedule a time to talk-my friend Chuck might also be good to speak with, and I can see if i can put you in contact with him
@@overcoming-togetherbyjayne3857 thank you and I emailed you
Thank you Jayne for doing these videos. I have cipro toxicity, 6 months ago. Took 2 pills. My feet are still very sore tender to walk. What exactly can I do to address my sore feet? Any thoughts?
I took cipro three times metronidazole 5 times bactrin several anxiety meds. I cant stand the panic burning and shaking.helo!!!
Ugh-so awful-I'm so sorry to hear this! I told two doctors this week to never prescribe them and they both were like why? what's wrong with them? so frustrating! How long ago did you take it? Because for many people, it can go away quicky-if you are really anxious, pls talk to a psychiatrist. For the burning and shaking, maybe a neurologist and a good internist who can check all vitamin, iron and hormone levels- some people say magnesium and vitamin D can help-I dont know if that will work, but it can't hurt-sending healing thoughts your way