Відео

So sorry to hear this! I just spoke with someone who got 100% better at year 12 so there is still hope! What are his symptoms? And what tests has he had done?

I'm so sorry to hear that you are still in terrible pain after all these years. I still have lots of aches and tightness but I wouldn't call it terrible pain anymore. Do you find that you get a little better each year? I know someone who completely recovered at year 12 so there is still hope! Sending healing thoughts your way!

Keep plugging away! It can still get better even after all these years

I think the passage of time, physical therapy and training to build back muscle helped me most. But everyone has different symptoms, we werent' all hurt in the same way. The other thing that helped was figuring out what was wrong with me and what autoimmune diseases I had. In addition to causing side effects of its own, I believe these antibiotics also unmask diseases that we might have had such minor cases of that we didnt know or that we were predisposed to, in my cases it was autoimmune disease. If it set off a specific disorder in you, you may not get better until you get treatment for that disorder. What are your remaining symptoms?

Yes the pain was excruiciating. Doctors think I probably had Guilliane Barre those first few years

Agreed! They should NOT be presccribing these antibiotics at all unless there is no other choice!

ugh! this is so awful, yet so familar. I too blew out my knee and legs felt like dead weight and I couldn't walk. Doctor should NEVER let someone take both a steroid and a quinolone (and shouldnt be prescrdibing a fluoroquinolone at all unless there is no other choice and it's life and death) What Chuck and I were saying is that it is fine to take a steroid years out from taking the antibiotic. We both had steroid shots that helped us, but it was years after taking the Fluoroquinolone. I'm so sorry to hear that you are going through this-as I personally know how awful it is. And the doctors dismissing us just makes it so much worse. Do you find you are gettng better? I hope so. I am much better than I was six years ago-but still not where I want to be. Doctors now think I could have Rheumatoid Arthriits. My legs are a lot better but still have pretty bad neck and back weakness. I do find that mild excercise, stretching and strength training is working and so is being treated for RA and other autoimmune diseases

Ugh-so sorry to hear this. First, we go through all the pain and limitations, which is hard enough on its own to bear. But then the doctors not believing adds another layer of pain and trauma. Are you getting any better? Have you had your hormones, vitamins, iron and an autoimmune panel done? these might all be able to provide some clues on what you need to improve further.

So sorry that you are going through this! sending positive thougths your way. If it is your gallbladder please keep us posted.

It sounds like the detox worked and you are feeling better-that's wonderful. How long after taking the antibiotic can this detox help and where can I find more information about it? Thanks!

Google, sonny's 7 detox

Drink alit of h20 after, to flush,gets it out of tissue

ugh-how awful-so sorry! How long ago did you take it? Keep in mind most people heal in time!

@@overcoming-togetherbyjayne3857 still going through difficulty breathing after using Levoflaxcin. still also having UTI and scared to use another antibiotics

Insomnia is so awful-and it's terrible that you and everyone else are suffering so much because of doctors' ignorance. The good news is that everyone I talked to with the stomach symptoms eventually got better with time. Magnesium and Melatonin can help with sleep. I'm not sure if it's available where you live, but I found that medical marijuana really helped with sleep. Of course, the the best thing to help with sleep, which is so hard to do, is to try to not care about it. Because the more you try to sleep, the harder it becomes. So, if you can't sleep, getting up and reading a book or doing something else to take your mind off slep can really help

ugh-I'm sorry to hear that. Have you gotten somewhat better? I wonder if the antibiotic unmasked an autoimmune or other illness in you-in which case you will need a diagnosis and treatment to get better. What are your current symptoms?

I think I went up to about 200mg in the beginning, but if that doesn't work after you have been on it a while, there could be others worth trying. Different medications work for different people often depending on what your co-existing conditions are. Mine is OCD so Luvox worked well, but others could work better if you have anxiety, ADHD etc. would love to eventually hear what works for you!

@@maladaptivedaydreamerwithj2632 thank you for your reply. Similar to you i have had this condition since childhood and only last year i realized how much time i wasted in my fantasies and how much on life i missed out on due to this. Before that i used to think this was my super power to keep me entertained for hours on end but when it became so severe that i would image after going to sleep and would keep imagining for hours until my brain hurt and only then could i sleep. It was then i realised it was not a gift but a curse and i want to get rid of it as soon as i can.

@@maladaptivedaydreamerwithj2632 I have taken fluvoxamine 150 mg as prescribed by my doctor but that makes me very dtowsy/sleepy. I see that there is a CR version of the same medication. Can you tell me if that will help with my drowsiness/sleepiness. My normal sleep has increased from 7 hours to 9-10 hours.

I'm sorry this happened to you! But I do believe healing is possible

I responded to your email about setting up a time to chat. The nausea and loss of appetite should definitely go away. I needed help and medication to deal with anxiety and insomnia. I know some people in the Floxy community are against those types of medications but I couldnt have gotten through this ordeal without them. They really do help. sending healing thoughts and looking forward to connecting over Zoom

I have heard of temporary loss of appetite but not permanent no-it should get better!

I'm so sorry you are gointg through this! How long ago did you take it? For some people it just takes a couple of weeks to months of resting and then they get better. Others take longer, but almost everyone eventuallly gets significantly better. Perhaps it could help to get all of your vitamin, iron and hormone levels tested. Regardless of the results vitamin D and Magnesium could help. Depending on your symptoms, you could have unmasked an autoimmune disease, so it might be good to see a rheumatololgist to run some antibody tests for autoimmune disease. If you are having trouble walking or feel muscle weakness, it could be good to go to a neuorlogist to get tested for myasthenia gravis and Guilliane Barre. They wont want to test you for that unless you are in a wheelchair, but if your eyes, neck, arms legs feel week insist on those blood tests. You could have a peripheral neuropathy in which case a neurologist could help and if you are struggling with insomnia or anxiety etc a psyhiatrist could help. Regardless, it could be good to speak with a therapist to help you get through this time. I wyouould try to focus on the symptoms and less on telling the doctor you were floxed. You could tell them the symtpoms started X days after the medication, but leave it at that and then focus on your symptoms. Sending prayers that you are one of the people who get better quickly.!

@@overcoming-togetherbyjayne3857 I took it on the 20th of this month that was the last pill I believe I took put a week before that they gave me an iv of it I'm walking still that I have loss of appetite completely I have to force myself to eat I feel fatigued I had low testosterone before this is at the hormone levels? My heart is beating faster I'm just so sad I'm so scared I I'm having panic attacks I really need to connect with you if possible and do a FaceTime with you or something I'm really in a battle and I feel like but this anxiety I feel like it's killing me

@@overcoming-togetherbyjayne3857 the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in

@@overcoming-togetherbyjayne3857 the last time I took it was the 20th of this month and I've been feeling fatigue since weakness, complete loss of appetite having to force myself to eat is that normal with this? I am walking so far.im definitely have panic attacks really bad ..I really need to connect with u FaceTime..I really need your help..I feel like I'm dying or something I'm very afraid 😨 my heart beats fast the last pill I took was on the 19th I believe of this month we are in

I;m healing slowly but surely. I had lots of prior autoimmune issues and a gene that predisposes me to autoimmune disease, so I took much longer than most. But most everyone gets better and much quicker than I did-the stomach issues especially seem to clear up with time. I've heard that taking probiotics can help-it's worth getting checked out by a GI doctor, but time is usually the best healer. Also, keep track of if particular foods are more problematic than others-gluten and sugar can be big triggers.

@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school

@@overcoming-togetherbyjayne3857 Hello, 7 months in and still having difficulty breathing 😢

email me at jaynebigelsen@gmail.com and perhaps we can set something up!

Create a problem provide a solution..makes money, repeat. it's our medical business model.

@@LoriB-vc4el Spot on. No one can dispute this.

Tell her not to give up hope! I've seen people get better 4,5 and six years out. Has she gotten any better? What are her main symptoms? It could help to get all of her vitamins, iron and hormone levels tested as well as pretty extensive autoimmune testing and maybe see a neurologist. Depending on symptoms testing for Myasthenia Gravis could be indicated. Supplementing with Vitamin D and magnesium can never hurt and PT and light exercise to build back muscle could also help. Sending healing thoughts her way! She is young which increases her chances of an ultimate recovery

How awful! This makes my heart hurt-we need a campaign to start educating vets!

@@maladaptivedaydreamerwithj2632 I agree. I did call the vet after to notify them there is a black box warning on those and they need to stop prescribing them.

Interesting when it starts to bleed into real life like that, I think it is a bit beyond the scope of maladaptive daydreaming. Because generally people with MD know what is real and what isn't but i have seen that bleed over happen particularly when MD is comorbid with other mental health issues like it usually is.

@@overcoming-togetherbyjayne3857 Thank you so much for your answer!

So sad!!! I guess we need to educate vets too!

@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school

I know what you are feeling but please don't act on it-it will get better. There are some pretty good medications for neuropathy-please see a neurologist. You might have to experiment to see which medication works best but one should reduce the pain-sending healing thoughts-know you will get better! And promise me you will call someone if you are actually planning on taking steps to end things. There is a community of people here who have all went through what you are and have gotten better and want to see you pull through too. It's also a good idea to see a mental health professional. A new onset of painful symptoms is traumatic ad you need to have some support working through that trauma. It will get better-you just need to give ti the time to get there.

I have neuropothy from cipro. Plus im in a wheelchair being psrsplegic. I have to be able to use my arms, to get around.. whst I have found that has stopped alot of the pain is to start with a better diet. No sugars , magnesium, CoQ10, K2 +D3, B12, E, fish oil, curcumin, and a good liver detox like milk thistle with dandelion, and lemon juice with cayen pepper. Go eady on the Cayen.. i was at the point just a month ago were I could hardly get out of bed, had to have people drive me around. Im now still in pain but I can honstly say the pain is 1/8 of what it was , I can now wheel myself around in my manual chair, and will be going shopping by myself in the am.. please hang on, your life is very precious to you, and all who know you im sure. Message me back anytime. Sam.....

Oh and also I forgot to mension 90% cocoa is like a building block for your own body to build stem cells. Look it up. It is science . Sam..

@@sammaloney2499 So sorry that you are going through this but glad to hear the pain is less! I take a lot of those supplements. I get a little better every year-I just wish the recovery was more complete. But I'm still hoping to get there and I hope you will too! Thanks for all of the tips on diet and supplements

@@sammaloney2499 I'm going to try that!

That sounds miserable! So sorry you had to go through that-sending healing thoughts your way

I will ask my brother and get back to you

this is what Steve said; Most studies are using 25mcg 3 times a week infused over 15 min in a small bag of saline, but 75mcg once a week may be good if 3 times a week is not practical.

Thank you!

So sorry that I am just seeing this now-and so sorry that this happened to you! There isnt an online support group that I know of but maybe we should create one. It would be important that we had a professional lead it though because otherwise we might bring each other down and people will give all sorts of advice (much of it expensive) that doesnt work for everyone. I have heard mixed results on stem cells-some say it' cured him but most say it didnt help and a few say it actually made things worse. Have you ruled out all autoimmune disease, vitamin deficiency, hormone and iron deficiencies? those type of tests woudl be covered by insurance and can all be unmasked or caused by these antibiotics.

It's so awful that doctors keep gaslighting us and we have to figure everything out ourselves. But unfortunately, it seems we have to-dont give up-keep trying to figure it out! Katie is definitely an inspiration having to advocate for herself at such extreme ways so young!

@@overcoming-togetherbyjayne3857 100% thanks for the reassurance ❤️❤️

So sorry to hear this! I think the roots of my MD also came from medical gaslighting and trauma. I had autoimmune issues my whole life starting in childhood and doctors either didnt believe me or couldnt find anything wrong. Have you been to a rheumatologist as I hear that some of long-term Covid could be autoimmune? Sending healing thoughts your way!

I personally haven't had any problems with the Covid shot, but I know that Cipro is awful and I'm doing everything in my power to avoid a Statin

I had all my COVID shots and boosters! Got COVID anyway! Lasted only 2 and half days! THE SHOTS SAVED MY LIFE!

​@@overcoming-togetherbyjayne3857 I believe statins are the cause of many of my bad problems!!😮

@@robertchilders8698 I'm immunocompromised, so I get every Covid booster I can and I havent had a problem-just because the fluoroquinolones are bad doesnt mean that all medicine/vaccines are bad

That sounds like it could be a neuropathy which Neurontin/Gabapentin is supposed to help with.. I would see a neurologist or maybe even a primary care doctor could prescribe it. wishing you a speedy recovery-please keep me posted

@@overcoming-togetherbyjayne3857 Thank you for replying. I appreciate your willingness to help people! All my best to you!

@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school

i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school

@@overcoming-togetherbyjayne3857 i sincerely really don’t know where to start from i’ve had an underlining digestive problem which i wasn’t sure if it was IBS or SIBO , i lost a lot of weight had heat intolerance also problem digesting food and all, this made my immune low and me suspecitable to re occurent UTIs until i had a kidney infection and was given levoflaxcin. this happened in november i was prescribed the medication by a nurse because i was tired of going to the hospital to treat a UTI i was told to take the Levoflaxcin (500mg )I.V for 3 days morning snd evening . since that my life changed. This happened in november last year and till now i’m still not fine at all. i had serious heart palpitations, rain drops feeling, pinching nerves sensations, pins and needles, electrical like sensations round my body , Difficulty swallowing, serious shortness of breath. i didn’t know it was a side effect and kept on treating UTI and all. i just started making my research after almost seven months to see that it was a side effects of the Levofloxacin. palpitations comes once a while , shortness of breath is seriously hightened coupled with chest pains . i don’t have energy to work from my sitting room to my room. nerve pinch ,pin and needle,electric like feeling , different sens on my head if i try to smile or laugh , cold legs or body urinary hesistancy , constant urination. headaches, weight loss. and all don’t even know where to start or what supplements to use and is it possible to get better and can the damage be reversed. by the way i’m also just 24years old , currently home bound and can’t go to school

It seems a lot of things are not picked up on standard doctors' tests-they need to start considering things that aren't able to be picked up-but they rely on their tests so much and believe if none of their tests have found anything then nothing is wrong-so frustrating!

I had a few steroid injections in my neck-they helped a bit. I didnt take any steroid medication-if you are on them too long they have long-term side effects like osteoporosis. I think they are fine to try briefly as long as you aren't or havent been on the fluroquinolone for several months. But at the end of the day, it's always best to find a diagnosis if possible instead of just trying steroids to see if it will work. Have you seen a good rheumatologist and done a through rheumatological workup. I would try a few before jumping to the steroids. Also ask your doctor about low dose naltrexone which is showing to be good for inflammation without the side-effects of the steroids

@overcoming-togetherbyjayne3857

sure-just keep in mind, I'm not a doctor or an expert on how to make it better. I just know what others have experienced and what has helped me, but feel free to reach out at my personal email at jaynebigelsen@gmail.com and we can schedule a time to talk-my friend Chuck might also be good to speak with, and I can see if i can put you in contact with him

@@overcoming-togetherbyjayne3857 thank you and I emailed you

Ugh-so awful-I'm so sorry to hear this! I told two doctors this week to never prescribe them and they both were like why? what's wrong with them? so frustrating! How long ago did you take it? Because for many people, it can go away quicky-if you are really anxious, pls talk to a psychiatrist. For the burning and shaking, maybe a neurologist and a good internist who can check all vitamin, iron and hormone levels- some people say magnesium and vitamin D can help-I dont know if that will work, but it can't hurt-sending healing thoughts your way