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Love these videos I so wish doctors in the UK did alot more about looking into this! Rather than ignoring it

I wish Dr Lowestein had done my migraine surgery, his support and aftercare is amazing. I have had so much pain after surgery including new trigeminal face pain and my surgeon just doesn’t care.

This was brilliant so in detail I hope to get this surgery one day I have suffered for 11 years wondering if this will also help dizziness

As I’ve been on this journey it seems that insurance companies dictate treatment from least costly to most.

My daughter has severe migraines for past 10 years. She had Botox treatment which worked a couple of times and later had no effect. How do you identify candidates and impacting nerve. Any estimated cost and is it insurance covered?

How are migraines treated post op?

What is padding, is it fat?

Love these videos! Gives people who suffer hope

Hi do you excise the nerves to? I have spoken to alot of people who ended up needing this after decompression came back with pain. Appreciate some help

I think this is what is happening to me. I had an occipital nerve block 4 days ago and I’ve had a migraine for 3 days with nothing helping to stop the pain. Tylenol Advil Sudafed etc. how long will this go on if it’s the irritated nerve from the nerve block that is causing my pain?

I’ve just been diagnosed after 3 years of electrocution to my face in all 3 branches. I’m not presenting with headache at all but Trigeminal pain. Nothing was working in the end even Carbomazepine. I told the Neurologist I get the worst neck pain and sleep with ice as I can’t take it. It reduces the attacks during the night. My sternocleidomastoid muscle swells every time too. I always feel like I can’t drop my left shoulder. I’ve just had an occipital nerve block although I knew it wouldn’t work. To my surprise it’s took it away after two weeks. I can brush my teeth using my electric toothbrush and cleanse my face without attacks. The Neurologist said the Occipital nerve can be trapped and refer pain to the Trigeminal pain. I’ve never felt a pain like this as I feel every bit of the current through my face and it burns. I can’t believe it’s worked and nothing I look up shows this but headaches. I had to be different! 🍃

I’m not sure if I had a stroke or what happened I had Covid three times and I felt my brain swelling down like my neck area. My school plates had moved and overlapped over each other my scalp for a year. I couldn’t really speak right my eyes were glossy, my leg was kind of like dragging it still does, though I used to rollerskate but I mean it’s a lot better now . I’m trying to get back to work. I’m gonna go back to work. It’s been three years. I want to try to get this done. Try to get some sort of a life back. Thank you for posting these videos.

And steroids build and stay in the body forever. Not many doctors disclose that.

I just want to have a rhizotomy done every 5 years in the places where it hurts I'll take the 6 weeks of healing where it hurts worse at first

I have been constantly dizzy for 11 years now after a concussion is this something surgery will help??

I thought i was going to die physically the worst pain etc...never, ever again. I would die first!

Are there ever cases where this may be related to Chiari malformation?

This absolutely makes sense. I have chronic migraines. Thank you for putting out these videos. The more I know, the better informed decisions I can make.

Nerve blocks never gave me any relief. Severe DDD.

I have pain in the front of my neck that started behind my head behind my ear and traveled down my neck to back of head.one side..and to my collarbone. The first neurosurgeon mentioned occipital neuralgia because I would cry when the front and of my neck muscle would spasm. He could actually see it happening. This is all one sided pain..I don’t have migraines. I also developed Allodynia later on under my neck, front of one side of neck and chest. I get a sensation that goes all the way from my occipital nerve behind my ear down my arm into my thumb. I’ve had head mris and Ct scans which show I have issues with c-3 c-4 but I get the feeling that that not really causing this. I’ve seen two neurosurgeons that are stumped. I was offered ACDF surgery if a diagnostic cortisone injection in that area gives me relief. Does this sound like I could have occipital neuralgia?

How do I get this surgery? I’m so tired of living with this pain. I honestly can’t concentrate anymore as it activates the pain

Can this help with dizziness??

Wow thankyou so much for sharing. As a migraine sufferer this is invaluable

Can this help with dizziness?? Vestibular migraine?

I have been dealing with a headache issue for a number of years and I just want to thank you for making these videos. They are so informative and they have helped me have hope for the future. Thank you so much.

Can this treat vestibular migraine?

Thank you for being honest about your recovery!!! I have had 2 decompression surgeries (NOT by Dr. Lowenstein) and experienced that same horrific recovery. Some part of every single day, is spent in bed in the dark w/the terrible pain. I can literally understand your recovery!!

Having patient updates after a full year of recovery would be great! It could be something as simple as they submit a video by phone, or do a FaceTime call with them! That is the true test = seeing how patients do in the long run of recovery. Thanks so much for your info today!

I can empathize w/the patient w/several diagnosis. I have several headache diagnosis also!

I wish there was a way to see these trapped nerves on an MRI. I know the nerve blocks are available

It doesn’t matter if you office is hectic - we just want to hear from you and your valuable information!!

Do you have an update on how this patient is doing now? Would love to hear if the monster pain stayed away!

Do you offer consultations to see if someone is a candidate for surgery? I need to see what that entails. Thank you

Couldnt treating the teeth clenching resolve the issue? Can temporal neuralgia cause pain in the center of the forehead?

Dr Muehlberger did my surgery in Jan of 2021, for the decompression and resection of the occipital nerves. I take my hat off to him with gratitude and can happily say after several years of miserable pain from the peripheral headaches and other issues, I am happily pain free. He has given me my life back, and I can recommend to people who are eligible for this procedure, it is a life changer :=)

I had 5 February my operation. When i wake up the pain was gone 🙏 !! This operation is a Miracle 🙏 !!

What could be the causes of migrane headaches after resection of temporalis muscle and placement of a medpor prosthesis with Titanium screws??

If the nerve blocks don’t work does that mean the surgery isn’t an option?

Are there any ndph patient testimonials?

Oh RIGHT. Surgery. Injections. “Other things”. Instead of just a very effective prescription like Fioricet. 🤡. Gaslight, label and slander people who benefit greatly from a prescription. 🤡

Can you tell me something please! I had surgery in September and they put a nerve block in my elbow. Because my elbow was blocking my nerves going to my left hand. Now, my whole left side like I’m getting sharp electrical shock in my leg and hand. Can you please explain why

Awesome! Congratulations!!

Do you treat NDPH with only forehead pain? Tension type with severe photophobia? 6/10 pain all the time

This is such a power story. Thank you for sharing! Your words will help so many people understand what living with migraine is like. I’m so happy for the transformation for you!!!!

It does matter what we “call it,” b/c insurance companies will allow for some treatments for some diagnosis and not others. I’ve been through this game for decades!

I had a session in hospital last Thursday arvo . PROLOTHERAPY. Wasnt 2 bad 4 2days . Mainly 3/10 . With some periods of time around 5/10 for the fri /sat . Sun Mon & 2day Tuesday back 2 my old screwed up life of 6++++++/10 . Just put on some pain patches 2 assist me Headaches and Migraines.

What a beautiful woman and supportive husband. I am looking forward to having this procedure for my lovely wife of 50+ years. We have suffered the same situation for the last 50 year and are reaching out to Doctors to give us help. Thanks for sharing your life.

I feel everything she's saying here, especially when she said the pain drains everything out of you. As a daily headache "sufferer" myself, I pray the day will come when I can actually do things with joy, just like what Christa says. :)

Wow.. I resonate so much with this but I'm 28 now and have had migraines since I was a baby.. They affect my vision, coordination, speech, and balance..

have you tried botox injections?, also find a neurosurgeon and neurologists to both agree nothing is helping you, your insurance should cover any out of network procedure. I am in nyc and I had 2 out of network surgeries and I get meds and botox injections. don't give up , annoy these people (insurance company) the same way the migraines annoy you