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Long COVID and IACC Care Today and Tomorrow: Solutions, Technology, and Access
Watch this insightful webinar on the current state of care for Long COVID and other related Infection-Associated Chronic Conditions (IACCs). As clinical trials and treatments continue to evolve, we focus on actionable steps to improve care for patients navigating these challenges.
In this session, our expert panel discusses the current state of care for Long COVID and IACCs, key areas that need improvement, the role of technology and innovation in expanding access, and the barriers faced by marginalized communities in accessing care. They also explore how organizations are contributing to solutions and whether the current healthcare system is compatible with this evolving care.
Meet Our Panelists
Jaime Seltzer, MS, Scientific Director at MEAction
Angela M. Vázquez, MSW, Health Justice Activist
Ilene S. Ruhoy, MD, PhD
Ashanti Daniel, BSN, RN
Jennifer Curtin, MD, RTHM Chief Medical Officer and Cofounder
This is an important conversation that explores how we can better support patients now and in the future. Watch the full replay to hear their expertise and insights.
Important Links:
-Concise Clinical Review and CME:millionsmissing.meaction.net/treatME
-Direct link to Concise Clinical Review: www.mayoclinicproceedings.org/article/S0025-6196(23)00402-0/fulltext
-Anki Flashcards: millionsmissing.meaction.net/teachME/
Chapters:
00:00:00 - Welcome & Panel Introductions
Ashanti Daniel, BSN, RN, introduces the webinar, panelists, and sets the stage for the discussion.
00:02:45 - What Changes Have We Seen in Care Since COVID?
Jamie Seltzer discusses how the pandemic has shifted physician awareness of IACCs and ME/CFS.
00:08:30 - Challenges in Long COVID Diagnosis
Angela Vazquez shares her insights into the difficulties long COVID patients face in primary care.
00:14:15 - Optimal Care for Long COVID in 2024
Dr. Jennifer Curtin outlines what ideal care looks like today and its impact on patients.
00:20:50 - Has There Been a Paradigm Shift in Medicine?
Dr. Ilene Ruhoy explores the cultural and professional changes in how the medical community views IACCs.
00:28:10 - Standardizing Care Without Clinical Trials
Dr. Curtin and Dr. Ruhoy discuss implementing standard care using available evidence.
00:36:25 - Policy Opportunities for Improving Care
Angela Vazquez talks about the role of federal and state policies in advancing care for long COVID.
00:44:40 - Tech & Innovation in Chronic Illness Care
Dr. Curtin introduces RTHM Direct and discusses its impact on treatment accessibility.
00:50:30 - Bridging Gaps in Healthcare with Platforms
Dr. Ruhoy gives her perspective on innovative platforms like RTHM Direct.
00:57:15 - Advocating for Change Through Data
Angela Vazquez and Jamie Seltzer explain how data and patient stories drive systemic healthcare shifts.
01:04:40 - Finding Knowledgeable Providers
Jamie Seltzer shares resources like the MEAction clinician tool to connect patients with experienced doctors.
01:10:50 - Final Takeaways & Q&A
The panel answers key audience questions, including improving off-label medication coverage and addressing long-term illness concerns.
Переглядів: 370

Відео

Lessons from the US: Treating ME and Long COVID
Переглядів 346Місяць тому
We’re excited to share Episode 15 of The Long COVID Clinic's Fireside Chats on our RTHM UA-cam channel! In this episode, Dr. Binita Kane and Helen Oakleigh welcome Dr. Jennifer Curtin, Chief Medical Officer and Co-founder of RTHM and they discuss innovative treatment approaches for ME/CFS and Long COVID, covering both medical and non-medical interventions. Channel Tags: ‪@LongCovid19Foundation‬...
The Why Behind RTHM Direct: Affordable, Research-Backed Treatments
Переглядів 1194 місяці тому
Discover RTHM Direct, the digital health platform providing access to affordable, research-backed treatments for complex illnesses. Join Jennifer Curtin, MD, Co-founder and Chief Medical Officer of RTHM, as she shares the WHY behind RTHM Direct. Sign up today and begin your journey to better! direct.rthm.com/ Chapters: 00:00 - 00:06 Introduction to RTHM Direct 00:07 - 00:13 Expanding access to ...
Navigating ME/CFS: A Clinician’s Personal Journey, Insights & Hope for the Future
Переглядів 4737 місяців тому
May is ME/CFS Awareness Month! Dr. Jennifer Curtin, co-founder and Chief Medical Officer at RTHM, shares her journey as a patient with myalgic encephalomyelitis/chronic fatigue syndrome and its role in shaping RTHM's approach to patient care. In this presentation, Dr. Curtin provides insight into the challenges of living with ME/CFS, the importance of pacing, and shares advice on how to track s...
Mitochondrial Health: A Key to Combat Long COVID
Переглядів 10 тис.8 місяців тому
In this video, Dr. Stuart Malcolm, RTHM Medical Director, explores the crucial function of mitochondria-often called the cell’s powerhouse-in preserving our overall health and well-being. He examines research that sheds light on a possible connection between the SAR-CoV-2 virus and mitochondrial dysfunction. Additionally, he emphasizes the importance of mitochondrial health, especially in the c...
Webinar - Long COVID + Disability hosted by Pandemic Patients
Переглядів 7768 місяців тому
On March 15, 2024, Pandemic Patients hosted an event titled "Long COVID Disability." This webinar brought together the legal, medical, and patient perspective to discuss issues related to long COVID and disability. Viewers learned how they can effectively document their disabling symptoms, how to access critical resources and support, and the importance of having a patient advocate. RTHM Medica...
2 Years On - Lessons From Being A Long COVID Doc with Dr. Stuart Malcolm
Переглядів 5 тис.8 місяців тому
RTHM's Medical Director, Dr. Stuart Malcom focuses on how the SARS-CoV-2 virus has affected the mitochondria and how this damage is contributing to many of the symptoms patients experience, including post-exertional malaise. Drawing upon his extensive experience as a Long COVID physician, Dr. Malcolm delves into the latest research on Long COVID and provides valuable advice for patients, caregi...
How RTHM's GPCR+ Autoantibody Panel Can Benefit You
Переглядів 434Рік тому
How RTHM's GPCR Autoantibody Panel Can Benefit You
Which Air Purifier Should I Buy to Reduce the Risk of COVID Reinfection?
Переглядів 134Рік тому
Which Air Purifier Should I Buy to Reduce the Risk of COVID Reinfection?
Antihistamines, Nasal Sprays, and Oral Rinses To Fight COVID-19!
Переглядів 894Рік тому
Antihistamines, Nasal Sprays, and Oral Rinses To Fight COVID-19!
What is Nattokinase and Why You Should Take It If You Have COVID-19!
Переглядів 6 тис.Рік тому
What is Nattokinase and Why You Should Take It If You Have COVID-19!
Dysunderstood Conference 2023 - Dr. Jennifer Curtin on Complex Care
Переглядів 170Рік тому
Dysunderstood Conference 2023 - Dr. Jennifer Curtin on Complex Care
Can the Aspirin In Your Medicine Cabinet Help Prevent COVID Microclots?
Переглядів 1,3 тис.Рік тому
Can the Aspirin In Your Medicine Cabinet Help Prevent COVID Microclots?
What Would a Long COVID Clinician Do If They Got COVID-19?
Переглядів 2,8 тис.Рік тому
What Would a Long COVID Clinician Do If They Got COVID-19?
Top 2 Drugs Recommended By A Long COVID Doc For The Treatment Of COVID-19: Paxlovid & Metformin
Переглядів 1,7 тис.Рік тому
Top 2 Drugs Recommended By A Long COVID Doc For The Treatment Of COVID-19: Paxlovid & Metformin
John's Journey To Long COVID Remission
Переглядів 958Рік тому
John's Journey To Long COVID Remission
Diagnosis and Treatment of CCI, Chiari & Tethered Cord in Long Covid and ME/CFS
Переглядів 140Рік тому
Diagnosis and Treatment of CCI, Chiari & Tethered Cord in Long Covid and ME/CFS
Do you have CCI, Chiari or Tethered Cord? The Symptoms to Look Out For with Long Covid or ME/CFS
Переглядів 115Рік тому
Do you have CCI, Chiari or Tethered Cord? The Symptoms to Look Out For with Long Covid or ME/CFS
The role of CCI, Chiari and Tethered Cord in Long Covid With Dr. Jennifer Curtin and Gez Medinger
Переглядів 490Рік тому
The role of CCI, Chiari and Tethered Cord in Long Covid With Dr. Jennifer Curtin and Gez Medinger
Part 3 of 3 - Measuring Microclots and Microclot Testing
Переглядів 2,6 тис.Рік тому
Part 3 of 3 - Measuring Microclots and Microclot Testing
Part 2 of 3 - Anti-Coagulation Treatment for Microclots
Переглядів 3,8 тис.Рік тому
Part 2 of 3 - Anti-Coagulation Treatment for Microclots
Part 1 of 3 - What Are Microclots in Long COVID?
Переглядів 7 тис.Рік тому
Part 1 of 3 - What Are Microclots in Long COVID?
Preventing Yourself from COVID Reinfection
Переглядів 308Рік тому
Preventing Yourself from COVID Reinfection
Potential Treatment Options Show Promise for Long COVID Fatigue and Brain Fog
Переглядів 1,9 тис.Рік тому
Potential Treatment Options Show Promise for Long COVID Fatigue and Brain Fog
RTHM Chief Medical Director, Dr. Stuart Malcolm Shares Long COVID Data
Переглядів 338Рік тому
RTHM Chief Medical Director, Dr. Stuart Malcolm Shares Long COVID Data
How Your Mask Fits Affects the Level of Protection
Переглядів 59Рік тому
How Your Mask Fits Affects the Level of Protection
COVID Reinfection and the Benefits of a CO2 Monitor with Dr. Jennifer Curtin
Переглядів 134Рік тому
COVID Reinfection and the Benefits of a CO2 Monitor with Dr. Jennifer Curtin
Air Purifiers and Reducing the Risk of COVID Reinfection
Переглядів 85Рік тому
Air Purifiers and Reducing the Risk of COVID Reinfection
Long COVID: The Role of the Endothelium with Dr. Stuart Malcolm
Переглядів 1,9 тис.Рік тому
Long COVID: The Role of the Endothelium with Dr. Stuart Malcolm
Microclotting Triple Therapy an Effective Option for Long COVID with Dr. Stuart Malcolm
Переглядів 2,5 тис.Рік тому
Microclotting Triple Therapy an Effective Option for Long COVID with Dr. Stuart Malcolm

КОМЕНТАРІ

  • @sfn-life
    @sfn-life 21 день тому

    This webinar was excellent, and I want to thank all ofyou for putting it together. I have been sick for years. One main triggering event in my life was the development of CRPS in 2009 after a spine surgery in which there was malpractice. Later I caught Lyme and Rocky Mountain Spotted Fever and other co-infections, and that let EBV, HHV6, HSV1, and CMV (at a minimum) to evade immune surveillance and I developed CFS/ME around 2015....I had also developed small fiber neuropathy in 2011 but it wasn't confirmed until 2017 due to providers not doing their jobs. I later developed Sjogrens and narcolepsy with cataplexy, and then later long covid with microclots, mcas, worsening dyspnea, much more....including chronic venous insufficiency. Doctors where I live have refused to take appropriate care for people like me, including myself, and have vastly failed to meet even the lowest standard of care expectations. Thankfully, I do have a handful of good physicians on my team, however, I am dealing with other major stressors such as being accused of munchausens despite having multiple verifiable gold standard objective medical tests on record at this point in time. The Kentucky Board of Medical Licensure refuses to take any action. I need much less stress in my life, but the state of Kentucky continues to harm me in this, and many other, ways. I continue to have difficulty getting the care that I need, and ANY kind of timely response. Kentucky is, right now, (Kentucky Medicaid), withholding many medically necessary treatments and violating federal medicaid law. I just don't know what to do anymore to try to not get worse while I have to deal with so much mistreatment.

  • @LYJManchesterUnited
    @LYJManchesterUnited 11 місяців тому

    May I ask if long covid causes, swelling at the base of the neck and lymph nodes enlargement!!? Please help!

  • @Kim-vf7rw
    @Kim-vf7rw Рік тому

    Also...can Long Covid due to micro clotting, create high blood pressure? Is micro clotting one reason for so much fatigue?

    • @teddybearroosevelt1847
      @teddybearroosevelt1847 Рік тому

      Yes, the microclotting can cause fatigue. See the paper by Pretorius and colleagues on the triple anticoagulant therapy

  • @Kim-vf7rw
    @Kim-vf7rw Рік тому

    What a great presentation and info. I work in a vitamin shop and we recommended your supplements here with great success. You are so open and that creates change! I personally had great success for myocarditis with Ivermectin. It was miraculous! In 5 short days! I am curious as to why you have not mentioned it today? Perhaps legal reasons? Thank you so much!!!

  • @djmcnerney
    @djmcnerney Рік тому

    Here we have the manipulation of language. The term “long covid” implies that all of these negative effects are the result of covid infection and not vaccination. If individuals get vaccinated, that data must be included in the assessment.

  • @huh_really
    @huh_really Рік тому

    Any medical provider recommendation for north Idaho near Spokane WA? Desperate to find help. I've paid for most of my tests out of pocket.

    • @RTHM_Health
      @RTHM_Health Рік тому

      @huh_really, we see patients in WA. Please fill out our patient application at rthm.com/.

  • @sherineuman
    @sherineuman Рік тому

    I tested positive May 3, 2023. I am still sick and found out I have blood clots and low thyroid hormones. I have fatigue, head aches, light-headed, brain fog, and I lost my job. So, I just wanted to say Thank you for understanding and all your hard work!!!

  • @PatrickSullivan-6462266133

    All should take DAILY low dose Lithium

  • @Lori-kv4ue
    @Lori-kv4ue Рік тому

    it is 2 years and 2 months I still have headaches on the top of my head with pressure , my period is still not the same yet, sometimes right eye floaters, I can no longer see nothing up close no more, my fingers on my left hand go numb while sleeping and when waking up

  • @cpt_kirkwood
    @cpt_kirkwood Рік тому

    Thank you for this. I was a long hauler with very mild abs hardly noticeable symptoms which became much much worse a few minutes after vaccination to the point where u was bed bound in 2021. I’m going to try the augmented NAC. Tried regular NAC before and also liposomal glutathione and I think it was helping. At the time my sx were so bad I was desperate. Maraviroc gave me an allergic reaction. Statin made me so tired k switched to Finofobrate for a while and no longer taking it. One thing you didn’t mention was low dose naltrexone. I started that a few weeks ago and seem to have more energy and less intense flares. Can you include LDN in your next chat? Thanks :)

    • @dbulat
      @dbulat Рік тому

      Tried LDN and just finished yesterday my Augmented NAC bottle, none of them help

    • @LestoFremo
      @LestoFremo Рік тому

      @@dbulatmaybe u don’t have long covid then.

  • @mamaslomba
    @mamaslomba Рік тому

    Hi Dr. Malcolm - I'm a CoVid long hauler (18 months in). When you stated that long CoVid is not a psychological (psychosomatic) disorder yes you are 100% correct. Thank you for making that very clear. When you went on to say that this patient was taking Paxil and you said that it's not helping the underlying problem but that it's helping with depression caused by being a long hauler. I have to say from what I have learned that you are right and wrong on that point. Paxil as you know is an SSRI. Many long haulers are taking an SSRI and they help. I am included in this group of long haulers. I take Zoloft. Interestingly, I started taking Zoloft to help with the feelings of despair from being chronically ill for over a year with no answers when before getting CoVid I was perfectly healthy. What I did not expect was for some of my long CoVid symptoms to improve because of my taking Zoloft. I've learned now that SSRIs actually have an anti inflammatory effect (research shows that depression is actually caused by inflammation not by a lack of neurotransmitters). CoVid is HIGHLY inflammatory. Bottom line: there is something else good going on with the SSRIs and long haulers than just relieving our depression.

  • @tracymcgrath1192
    @tracymcgrath1192 Рік тому

    It’s been a month and I’m still suffering. My elderly dad just had a cough and I was very sick. Love this channel. I had mono and pots

    • @michaelmyerrs9795
      @michaelmyerrs9795 Рік тому

      Mono from COVID? How? Sorry to hear your sick stay hydrated ,walk ,walk ,walk ,breathing exercises ,immune boosters. Take care

  • @EduardoBohrer-wq7ej
    @EduardoBohrer-wq7ej Рік тому

    I miss Dr. Malcolm's chats!!! Bring more!!

  • @5000NATE
    @5000NATE Рік тому

    I am in Oregon how can I register?

    • @RTHM_Health
      @RTHM_Health Рік тому

      Thanks for commenting! You can register to become a partner at: www.rthm.com

  • @mrstudio8237
    @mrstudio8237 Рік тому

    Do any of your patients have extreme heat intolerance? I can’t take five minutes outside. Very upset.

    • @RTHM_Health
      @RTHM_Health Рік тому

      Thanks for sharing. Since Long COVID affects every system in the body, the symptoms vary like heat tolerance.

  • @bradsalz4084
    @bradsalz4084 Рік тому

    Do you have any specific recommendations for NAC, i.e. brand and dosing? I see a lot doing a simple google search and I'd like to narrow down the choices. Thanks in advance!

    • @RTHM_Health
      @RTHM_Health Рік тому

      We recommend: NAC: 600-900mg once daily Pure Encapsulations. There is some chatter about Augmented NAC augmentednac.com/en on spike binding/degradation.

    • @dbulat
      @dbulat Рік тому

      @@RTHM_Health I've been taking this one 3 capsules a day together with nattokinase and also 4 capsules of ivermectin, also nicotine patch because some nicotine theory which binds to ace2... etc, nothing helps. this is an auto-immune disease the body produces spikes and spikes causes metabolic dysfunction and inflammation all over the body. Also tried LDN 3mg daily

    • @teddybearroosevelt1847
      @teddybearroosevelt1847 Рік тому

      Check out the FLCCC protocol for dosing recommendations and what to take

  • @scoontaquex3388
    @scoontaquex3388 Рік тому

    Thank you so much. I'm not your patient but I am immensely grateful for people like you who help us suffering feel less alone and a renewed hope for things to get better. Thank you!!

  • @cathompson58
    @cathompson58 Рік тому

    Thank you for treating these patients .. I treat them too .. but good Lord this talk is all over the place and almost free association.. would be nice to have a structured approach to the talk and how to approach these cases

  • @mamdudsh
    @mamdudsh Рік тому

    Hi, I am from South Carolina. I tried to register for RTHM. Unfortunately, RTHM is not a provider for South Carolina. The redirection letter link did not work either. What I find out there is almost no doctors here working on Long COVID. Is there any chance in future there might be options available to include patients from other states?

    • @andrewstrakele6815
      @andrewstrakele6815 Рік тому

      Dr. Yusuf (JP) Saleeby MD of Carolina Holistic Medicine is located in South Carolina. He was recently interviewed by Dr. Mobeen Syed MD of Dr Been Medical Lectures. He treats Long COVID as well as other chronic dysfunctions of the Immune System such as Chronic Lyme Disease and sounds very knowledgeable. Good Luck on your Journey to Recovery.

    • @RTHM_Health
      @RTHM_Health Рік тому

      Currently, we offer care for patients 18 y/o and up in California, Washington, Oregon, Arizona, New York, Florida, and Virginia. We are working diligently to expand our services to all 50 states. Our providers have license applications submitted in Texas, Colorado, Illinois, Massachusetts, North Carolina, South Carolina, and Maryland. Stay tuned!

    • @huh_really
      @huh_really Рік тому

      ​@@RTHM_Health Thank you for the update! 👍🏼 Please add your neighbor state, Idaho. We in the panhandle are minutes from Spokane and can participate. Also, please lower the monthly membership fee, $1000 per month is a lot for us who are devastated and had to cut back in work hours.

    • @blueslover1711
      @blueslover1711 Рік тому

      I am in SC see Dr Devolld or Dr R. Jackson or Dr. Greismer for long cvd

  • @vincenttelfer4206
    @vincenttelfer4206 Рік тому

    tingling is from circulation or pinching the bloodstream

  • @SeekingBoston
    @SeekingBoston Рік тому

    Nice Talk Dr. M. Appreciate all you and RTHM does.