Відео

Ah, but be careful about the order of events here! I would rephrase that to "barrier damage can also be found in patients who have been diagnosed with Celiac's disease". 'Celiac's disease' is just a word and drives nothing, however once barrier damage has occured, Celiac's becomes one potential diagnosis.

@@ScottTheScientist yes, gluten (or glyphosate on the gluten) is the chemical that causes barrier permeability)

@@MESteve85 I used to do consulting work. If you want to send me an email or DM, I’m happy to discuss

I'm so sorry to hear that! Yes, renovations are extremely toxic, and probably the most common cause of Multiple Chemical Sensitivity that I've heard of. It's definitely downplayed how toxic and harmful they can be, we need to develop safer renovation practices with safer building materials, and higher living standards.

@@ScottTheScientist We definitely need to look at this from a public health perspective!

In the lab I worked in, everyone developed weird symptoms while there... lazy eye, hair loss, etc...

Thank you! Sorry about the poor video quality, but they made the timer take up 90% of the screen so that's the best I could do haha.

@@ScottTheScientist all good, you got the point across…what do you use to record? I recommend OBS it works great for me

@@MidwestCynic the NIH recorded it and I just downloaded their recording. At least the audio is clear is the big thing

Hi Chris! I just made a short video on personal care products I recommend for MCS, and I mention bedding right at the very end, you should check that out! ua-cam.com/video/0Vwi9tuAyHk/v-deo.htmlsi=HtYsAR2E_UxQtEYv

I appreciate your comment very much! I am always happy to hear people are being aware of what they're putting in their homes and breathing in every day. When you search for Valspar paint, be sure to search for "Signature Tintable" paint. It says "scuff shield technology" on the label. I don't know if there's anything comparable because these companies don't like to disclose their ingredients. But I think the scuff shield paint is great because it hardens to strongly, it likely traps all the ingredients in the surface really well. Do not just get any paint that says latex, you will go through a nightmare when you can't tolerate it and have to move constantly. If you're going with white paint, please please please do not use pure white. Use a slightly off-white or light color. And yes, avoiding any matte paint is critical. It's better to have pure white semi-gloss than it is to have off-white but still matte. I highly recommend buying a small sample of the paint, then painting a small piece of drywall and see how it dries. Rub your finger across it and be sure there is no grainy/textured feel or any white residue that comes off on your finger. It's really worth doing it the right way I promise, and once you find a paint that works for your and is safe, then you have it forever!

Oh thank you so much for your detailed reply, I really appreciate it. I will forge ahead and follow your advice 100%. It feels like a nightmare at times as I have cfs, long covid and allergies, including mould. Also just found out about your titanium dioxide warning in face creams etc. I have been using it for years and will change that too! Some of my deoderants and moisturisers contain zinc oxide and magnesium oxide. Are they also very bad for nano content/health? Seems like it’s all around us 😧

@@natasam9170 That is an excellent question! Although I have no proof of the hazards of zinc oxide or magnesium oxide, I think that their properties would be very similar to titanium dioxide so I would avoid it. Zinc and magnesium are lighter weight than titanium so they might be removed from the body slighter easier, but I think the safest thing to do when you're already chronically ill is to avoid suspect substances if there's no need to be using/consuming them. It's a good thing to stop using in face creams, but the scientific literature shows that absorption by topical use or ingestion is lower than inhalation, so inhalational exposure is going to be the top concern for these particles. Please keep in touch and let me know how your journey goes!

Thanks for explaining that Scott. I will let you know if I make any significant progress or have a breakthrough so we can share ways to come through all this with the community… 🤗

To be clear: what I am sharing is not a theory, but observations based upon experiences, that I use scientific understand to propose smaller theories as to the mechanism of why that relationship exists. This is a research review, so it's required to be this length to get a good understanding of it. If you are interested in learning about it without having the spoons to watch the full thing, your options are: watch in small segments, skip ahead to relevant sections on the slider, read the transcript, or read either the written outline or figures in the description. Thank you.

Steve - my heart goes out to you and your family, I know exactly how tough and horrible finding safe housing can be. I can try to help you as best I can. What type of sheen was used? If you used flat/mate paint, then the particulates are going to be a problem even with "zero VOC paint". My parents had renovated their basement 3 years ago with white mate paint and I've taped off the doorway and even if I smell around the gaps of the door, my head feels like it clogs up and my pain gets worse, so it's something that doesn't really go away over time. I think the particulate issue is worse with zero VOC paint than regular paint actually. Also, I think the darker colors of paint will have more VOCs as well. I won't use white paint or dark paint so I feel safest around a very light shade. FYI - zero VOC paint is not actually zero VOC, it just means the paint doesn't offgas a known list of approximately 20 chemicals deemed hazardous in paint. So VOCs can sometimes be worse in zero VOC paint than regular (it's criminal frankly). Given it's still a problem over a year later, it sounds like a particulate issue more than a VOC issue because VOCs from paint usually go away in a couple months. I think the only option would be to first repaint the place. I recommend Valspar Tintable Latex Interior Paint + Primer because it has a 'scratch resistant coating' that will trap all the particulates on the surface. Then air the place out with lots of fans for a few weeks to flush any particulates out of the area. The tile work should be fine, although I recommend lining up the tiles outside, wiping them down, and letting the wind blow any particulates off of them for at least a few days before you install them. Definitely don't cut any inside the house. I hope this helps you.

Thank you for your feedback! I've heard so many people resonate with these experience, I hope I can find a way to share this with researchers en masse so that we can properly study this subject area.

I appreciate that you have long covid, but are willing to listen to this vide on environmentally driven symptoms! Many people with LC have "tunnel vision" on the virus being the scapegoat, but I really do believe that even viral triggers can lead to environmental susceptibilities! I've heard so many people with LC complain about mold sensitivity, so I know this environment susceptibility is something happening for LC patients too. Titanium dioxide exposure was the most damaging/dangerous exposure I've had since noticing my environmental sensitivities so please protect yourself from it! Avoid all areas with matte white paint; it doesn't hurt to be cautious

​@@ScottTheScientist research has said that LC or ME/CFS could have been caused by viral infection, environmental toxin exposure, bacteria or parasite exposures....any of which could 'turn on the Epstein Barr virus' that had been held dormant until it was triggered again. Navauix lab (UCSD) found that the danger response cell in the mitochondria is stuck in the on' switch'. TILT (toxicant induced loss of tolerance) by Claudia Miller out of U TX-santo antonio. The toxicant induced the malfunction of the mast cells. You should hear Lawrence Afrin talk about mast cells and how unlucky it would be for all these patients to have x, y, z. LC is probably diagnosed for the statistical group so they can keep track of what was possibly caused by the virus itself or been a side effect of vax. Also to apply for disability they need a documented diagnosis. Researchers who have treated LC and ME/CFS...say there are some differences that they see. (Not the same treatments they say.)

Thank you very much for sharing your story! I hope that other researchers notice this and begin to study this relationship.

If you're going to have MCS, Texas in one of the best places to have it. The Hoffman Foundation specializes in research, there is a treatment center at 'The New You Medical & Infusion Clinic', and you're not too far from Snowflake, AZ, which is the only legitimate housing community for people with MCS, where a lot of people have recovered. Unfortunately, outside of that there is basically no resources or help at either local, state, or federal levels. You can try applying for disability, but it's almost impossible to get. MCS requires more lobbying, research, and funding support than any other disease, it's a major problem.

Hi Jamie, this is an excellent question thank you for asking! I have tried all the "eco friendly" paints and they do not work! Paint is such a major issue. I've been exposed to VOCs of all kinds as well as several different kinds of nanoparticles and the nanoparticles are WAY worse. I would not risk being exposed to them for even 1 second for any reason. So to protect you from that, I would recommend: Valspar Tintable Latex Interior Paint + Primer. It is made with "scratch resistant technology", but what this does is hold nanoparticles together MUCH stronger than normal paint so it doesn't fall off and contaminate the air (it's reasonably cheap too). Yes, I would agree with your friend that said dark paints have more VOCs so you should go lighter, but also stay away from pure matte white paint (make sure you only use glossy). I haven't been exposed to every color paint so I can't recommend a particular color, although I did have a positive experience with teal, that it did not bother me even with a short drying time. I hope this information is helpful to you.

Also, I've heard great things about ECOS, being a zero VOC paint. It's on my to-do list to try some outside this summer. The Valspar may bother you more when applying the paint, but long term is safest option if you can tolerate the VOCs because it protects from nanoparticles. If you can't tolerate the Valspar at all, the ECOS is probably your best bet, just make sure to stick with glossy.

Thank you for your informative reply. Is ECOS free of nano? And the products you recommended from Valspar (primer and paint) is low or zero VOC and won’t trigger MCS after it’s dried and aired out? Also, the Valspar is tintable… but do you agree that the darker pigments added that the higher the VOC level? Thank you again! I’ve shared your work in both MCS groups I’m in, as well as other places.

@@jalanovio ECOS is not free of nano (in fact I've never seen a paint that is). However, it is OK to have this in paint. The question is, once it is dry, will these NPs flake/fall off or will it hold solid? You can test it by first running your finger over the paint when dry and see if it has a grainy feel to it (if it does its no good), and then secondly try to scratch it with your fingernail. If it scratches/falls off easily, then it's no good. The goal is to make a surface that is smooth, hard, and durable so all the NPs in the paint will stay trapped and not enter air circulation. Valspar is not low/zero VOC, however there is no smell once it is dried (although depending on how much/which color you use that may change). ECOS is low/zero VOC, but it doesn't have the hard/protective coating that the Valspar does and may cause NPs to be released (I don't know because I haven't used it). That's why the Valspar is my #1 recommendation and ECOS is my #2.

No, thank YOU for taking the time to listen to my research! Also, if you could pass along this video/info as you have the opportunity I would greatly appreciate the help! I''m trying to raise more awareness. Thank you again!

Thank you for sharing! Yes, we desperately need research in this area!

No offense taken, that's an excellent question! I touch on this subject a bit at the end, so my answer is yes and no. Yes, in the way that all conventional treatments and pharmaceuticals will be totally ineffective. Pharmaceuticals are toxins that block or turn on pathways, and that is not beneficial because the body is already operating the best it can to compensate for the damage. But no, in the way that there are potential treatments that may be beneficial. In terms of epithelial barrier, I would say VOC avoidance is KEY (regardless of trigger), nebulization of placental stem cells could potentially help repair/regenerate, and I've also heard of this inhalable antioxidant mixture for CFS that could also be beneficial, but I'm less confident in this. However, because the barrier is what is impacted, I think that if some treatment is found, topical treatments are likely to be more effective. In regards to removing these nanoparticles, the key will be increasing bioavailability (through lymphatic massage) and then removing them with blood draws being the only way I currently know how, although some plasmapheresis like system could be developed at some point, but it's not even worth trying that now because we don't know the size, shape, and properties of these particles yet. Theoretically, some type of binding agent that binds titanium dioxide and signals for it's removal could be beneficial, but it's not clear if this would have any degree of benefit for particles that are clogged in lymph nodes and such.

@@ScottTheScientist would you agree that it could or would still be helpful to do as much as possible to reduce toxin overload and assist the body’s lymphatic system as much as possible? Beyond avoidance of VOCS, uch as avoiding all processed foods, eating fresh organic foods as much as possible, taking multi vitamins and other supplements and sweating to help the body detox as much as possible? I have been living with MCS for about a decade now and I’ve found that while I’ve considerably worsened in the past 2 years, I feel much better physically when I avoid all processed food and ingredients including sugar, gluten, soy, dairy, alcohol, corn, and other filler ingredients. I’ve also switched to the most natural hygiene products can possibly find.

@@Husker94 Actually not all of that is beneficial. MCS and ME/CFS have a lot of overlap and most people with MCS deal with CFS like symptoms which means this particle exposure is an extremely common occurrence for people with MCS. People with ME/CFS live in a 'hypometabolic state' that is done purposefully. Anything that is done to speed up metabolism/exertion will cause a worsening in condition. That's why people with CFS will initially feel better after taking supplements and find they crash later on. So these supplements and even high sugar organic foods might initially feel good, but they will "turn the machinery back on" and feel good initially but long term cause worsening. This is bad for MCS because it will increase respiratory rate which will increase VOC exposure and it's bad for CFS because it will cause sympathetic activation which will tighten muscles and increase particle-mediated mechanical damage. Avoiding processed food will be good, but I would recommend the keto diet. In regards to sweating, use of things like sauna (from experience) will "move particles around" in the body, but it doesn't really get rid of them. I advise against sauna unless you're going through a bad low point that day and you need something to get you out of it. Avoiding processed food and sugar will be good though, but getting yourself in better air quality is always going to be the #1 most beneficial thing.

​@@ScottTheScientistDo you think putting a high quality air purifier in the house would be beneficial?

@@sleeverobot Theres essentially two types of air purifiers out there: 1) one with extremely small pore size (like Air Doctor 3000) that is really good at removing all the dust and pollen in the air, but its not good enough to remove nanoparticles or VOCs. 2) one with extremely high carbon content, like 30 pounds of carbon that is large and expensive. this might be able to remove some VOCs in the house, but keep in mind theres no way it can remove all of them, and also VOCs are constantly offgassing so it would need to be constantly running. So theres a marginal benefit from using one of the higher end ones, but its a very limited benefit. If it were good enough to make people better, more people would be using them

I'm glad you did thank you! I plan on putting out some shorter videos in the future, but I wanted to start with a very long, thorough initial one for people to reference back to as they visit the channel.

​@@ScottTheScientist if you put shorter vids, pls number them in a sequence or by topic and also number. Cant tell you how many times i started a vid out of sequence and went back n forth trying to figure out when it started. Sometimes i just gave up, patience ran thin.

@@maryr7593 Hi Mary! So this particular video is a research review and this length of time is required to cover the subject, many other research reviews are the same length. Also, many people like to have a deep dive an understand all the different aspects so my UA-cam channel is the place for them to do that. I labeled all the different topics of each part of the video with time points, you can read the transcript if that’s easier, and I included links to written outlines in the description. I post some shorter videos to my instagram and TikTok pages, but this is where I like to be more in depth! Thank you for your interest in this subject :)

Thank you so much for your extremely kind words I am very appreciative! It's because of people like you that I wanted to push myself to do this research. I sincerely hope scientists will begin to study environmental aspects of disease. I wish you the best in health and hope that you will continue to help support recognition for environmental illness!

@@ScottTheScientist 🤝💯 thank you Scott the Scientist I hope there is a place well being homes built we can live as toxic free in the near future 🖼🏕🏞🏖🏘🏡🤍🕊

Hi, thanks for your feedback! Yes I was prepared for this, I am aware that it is long. Unfortunately, because it is a research review it must be long in order to get all the points out there. Also, because there's a lot of soft, suggestive evidence, I don't think it would be as convincing in a shorter version. However, in the future I may make a shorter version, and have people reference back to this longer version, but this is my first video. However, feel free to skip ahead sections that are labeled on the slider, or use the "transcript" button to read the transcript, or you can click the google doc in the description to see the figures and some main bullet points!

@@ScottTheScientist Thanks, Scott! I appreciate the work you're doing!

You can do what I'm doing, watching in small chunks at a time. Also you could scroll across the bottom time stamps and go to the sections that might interest you the most.

It is a lot to take in but I stopped & come back to it , but you now can do small videos, I don't remember what is said but I have looked at medical stuff and going on my history and my family health issues history I did think we have ED'S pots, with out going into all , I think we have been damaged from Vaccines since 1958 my older brother Autistic my younger brother mental illness in care , I got dx with Autism in 2018 , my sister had the C19 jab she's got many health issues, changed her personality, I have fillings that have damaged my teeth, gums, I have a metal allergy nickel, I said to family members don't get c19 jab you will end up like me , 🥵🤒🤮🤕🤯😰😭

Take some notes of what you watched and take note of the time stamp you leave off at. Chunking is what most ppl do...determine what you can manage. Sometimes you may have to rewatch the vid to review but it should sound familiar esp with your notes. Another idea is to listen to the first part while doing a monotonous brainless task (folding clothes, matching socks, dishes, etc) and then watch the next chunk. I find that though I can go for a long time but if my hands arent busy with a brainless task...mind will wander or I will literally fall asleep. My brainless task is online window shopping...just locating what items were at what location...no reading descriptions, etc. Others do knitting or crafting...it helps them focus on what was said. Some ppl use the rate of speech tool...to take in a but more chunk at a time. Hope it helps.

Yes, I even heard from someone a couple days ago who got substantially worse after drinking mineral water (has a very high silica content). You should look up the lawsuit thats been going on against Skittles for not removing TiO2 in their food. I think it's just all corporate lobbying/manipulation.

That's an excellent question. It's impossible for us to say right now "how much" of it is due to any one particular chemical or substance. In all likelihood, the types of chemicals people are exposed to that cause long covid or CFS are likely different from person to person, which also explains some of the variation we see in symptoms between people. But we also don't know because no study has ever been done on the subject, nor are researchers aware of that being a factor. So the objective right now is to put pressure on researchers to study environmental factors in diseases such as Long COVID or CFS.