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Patient Empowerment Network
United States
Приєднався 4 чер 2018
Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s mission is to fortify cancer patients and care partners with the knowledge and tools to boost their confidence, put them in control of their healthcare journey, and assist them in receiving the best, most personalized care available to ensure they have the best possible outcome.
To learn more about PEN, please visit: powerfulpatients.org
To learn more about PEN, please visit: powerfulpatients.org
What Are Potential Impacts of Artificial Intelligence on AML Patient Care?
How might acute myeloid leukemia (AML) patient care be impacted by artificial intelligence? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School shares his perspective on potential risks and benefits of the impact of AI on AML patient care.
Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s mission is to offer trusted information to empower anyone impacted by cancer, through health equity, health literacy and shared decision-making. Subscribe now to receive the latest news on cancer treatment and research: powerfulpatients.org/connect
Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s mission is to offer trusted information to empower anyone impacted by cancer, through health equity, health literacy and shared decision-making. Subscribe now to receive the latest news on cancer treatment and research: powerfulpatients.org/connect
Переглядів: 18
Відео
What Is the Role of Bone Marrow Biopsies in AML Treatment?
Переглядів 612 годин тому
What part do bone marrow biopsies play in acute myeloid leukemia (AML) treatment? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and and Harvard Medical School discusses the value and information gained from bone marrow biopsies, how AML characteristics can vary, and his hopes for the future of bone marrow biopsies. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organiz...
Why Is Shared Decision-Making Important for AML Patients?
Переглядів 1212 годин тому
What makes shared decision-making vital for acute myeloid leukemia (AML) patients? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School discusses his approach to shared decision-making, the roles of patients and families, and proactive patient advice for the practical side of treatment risks and benefits. Patient Empowerment Network (PEN) is a 501(c)(3) non-prof...
Do AML Bone Marrow Biopsies Show Racial and Ethnic Variances?
Переглядів 612 годин тому
Are racial and ethnic differences shown in acute myeloid leukemia (AML) bone marrow biopsies? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School discusses what early AML studies are showing and proactive patient advice for bone marrow biopsies. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s mission is to offer trusted informati...
How Bone Marrow Biopsies Impact Acute Myeloid Leukemia Treatment and Care
Переглядів 3612 годин тому
How are acute myeloid leukemia (AML) treatment and care impacted by bone marrow biopsies? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School explains the role that bone marrow biopsies play in AML diagnosis and monitoring and how they help guide informed treatment decisions. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s missio...
Novel AML Therapy Use | Impact of Socioeconomic Status and Other Factors
Переглядів 2012 годин тому
How do socioeconomic status and other factors impact novel acute myeloid leukemia (AML) therapy use? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School discusses major factors that impact novel AML therapy use, solutions to decrease the disparities in novel therapy use, and support resources for patients. Patient Empowerment Network (PEN) is a 501(c)(3) non-pr...
Underrepresented AML Clinical Trial Groups | What Solutions Are Underway?
Переглядів 1012 годин тому
What steps are being taken to help underrepresented acute myeloid leukemia (AML) clinical trial groups? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School discusses an important approach that is being utilized to dismantle AML clinical trial barriers for underrepresented groups and proactive patient advice to work toward clinical trial engagement for all patie...
Why Is Post-Access Enrollment Vital in AML Clinical Trial Participation?
Переглядів 1112 годин тому
For acute myeloid leukemia (AML) clinical trial participation, what makes post-access enrollment essential? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School discusses factors that play into post-access enrollment and patient advice to help decide about clinical trial participation. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN...
What Are Key Acute Myeloid Leukemia Care Barriers and Solutions?
Переглядів 1512 годин тому
What are key barriers and solutions to acute myeloid leukemia (AML) care? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School discusses factors that create AML care barriers, solutions to overcome barriers, and proactive patient advice to help ensure optimal care. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s mission is to offe...
What AML Clinical Trial Inequities Do Minority and Ethnic Groups Face?
Переглядів 2612 годин тому
Do minority and ethnic groups face acute myeloid leukemia (AML) clinical trial inequities? Expert Dr. Andrew Hantel from Dana-Farber Cancer Institute and Harvard Medical School discusses research study results of NCI-designated cancer centers of AML versus other cancers and proactive patient advice for clinical trial access. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organizati...
Dr. Andrew Hantel: Why Is It Important for You to Empower Patients?
Переглядів 3612 годин тому
How does Dr. Andrew Hantel empower his patients in their treatment decisions? Dr. Hantel from Dana-Farber Cancer Institute and Harvard Medical School explains how he engages patients by understanding their personal values and the importance of making medical decisions in the context of their lives and communities. Patient Empowerment Network (PEN) is a 501(c)(3) non-profit organization. PEN’s m...
What Are Myeloma Risk Factors for Veterans and First Responders?
Переглядів 1512 годин тому
Veterans and first responders may come into contact with myeloma risk factors, but what are they? Expert Dr. Krina Patel from The University of Texas MD Anderson Cancer Center discusses environmental risk factors for 9/11 first responders and veterans, average age of onset for different veteran racial groups, and proactive patient advice.
What Are the Advantages of Seeking Care With a Lung Cancer Specialist?
Переглядів 512 годин тому
What are the benefits of seeing a lung cancer specialist? Dr. Thomas Marron discusses the key advantages of specialty care, the value of a second opinion, and options for seeing a lung cancer specialist via telemedicine. Dr. Thomas Marron is Director of the Early Phase Trials Unit at the Tisch Cancer Institute at Mount Sinai Hospital. Dr. Marron is also Professor of Medicine and Professor of Im...
Lung Cancer Treatment Plan Advice | Where Do Clinical Trials Fit In?
Переглядів 1312 годин тому
What questions should patients ask about a lung cancer treatment plan? Lung cancer expert Dr. Thomas Marron shares key considerations when choosing therapy and discusses where clinical trials fit into planning. Dr. Thomas Marron is Director of the Early Phase Trials Unit at the Tisch Cancer Institute at Mount Sinai Hospital. Dr. Marron is also Professor of Medicine and Professor of Immunology a...
Expert Perspective | New and Emerging Progress in Lung Cancer Treatment
Переглядів 112 годин тому
What’s the latest in lung cancer research? Dr. Thomas Marron from the Tisch Cancer Institute at Mount Sinai Hospital discusses the advances in targeted therapy and immunotherapy and what this progress means for patients with lung cancer. Dr. Thomas Marron is Director of the Early Phase Trials Unit at the Tisch Cancer Institute at Mount Sinai Hospital. Dr. Marron is also Professor of Medicine an...
Antibody Drug Conjugates for Lung Cancer | Advances in Research
Переглядів 112 годин тому
Antibody Drug Conjugates for Lung Cancer | Advances in Research
How Has Lung Cancer Molecular Testing Evolved?
Переглядів 1312 годин тому
How Has Lung Cancer Molecular Testing Evolved?
Advances in Targeted Lung Cancer Treatments | What You Should Know
Переглядів 712 годин тому
Advances in Targeted Lung Cancer Treatments | What You Should Know
Dr. Christina Baik: Why Is It Important for You to Empower Patients?
Переглядів 716 годин тому
Dr. Christina Baik: Why Is It Important for You to Empower Patients?
Understanding Oncogene-Driven Lung Cancer: Targeted Therapy Advances and Challenges
Переглядів 2016 годин тому
Understanding Oncogene-Driven Lung Cancer: Targeted Therapy Advances and Challenges
Newly Diagnosed Non-Small Cell Lung Cancer | Key Advice for Patients
Переглядів 516 годин тому
Newly Diagnosed Non-Small Cell Lung Cancer | Key Advice for Patients
Advancing Lung Cancer Treatment: Bridging the Gap in Personalized Care?
Переглядів 5016 годин тому
Advancing Lung Cancer Treatment: Bridging the Gap in Personalized Care?
Lung Cancer Patient Expert Q&A: Dr. Christina Baik
Переглядів 5116 годин тому
Lung Cancer Patient Expert Q&A: Dr. Christina Baik
How Has Advanced Prostate Cancer Treatment Evolved?
Переглядів 4День тому
How Has Advanced Prostate Cancer Treatment Evolved?
Prostate Cancer | Advances in Research and Technology
Переглядів 4День тому
Prostate Cancer | Advances in Research and Technology
When Should Prostate Cancer Patients Consider a Clinical Trial?
Переглядів 11День тому
When Should Prostate Cancer Patients Consider a Clinical Trial?
Overcoming Barriers | Advice for Accessing Prostate Cancer Clinical Trials
Переглядів 36День тому
Overcoming Barriers | Advice for Accessing Prostate Cancer Clinical Trials
Understanding Prostate Cancer Treatment Options and Care Goals
Переглядів 11День тому
Understanding Prostate Cancer Treatment Options and Care Goals
Questions to Ask About Your Prostate Cancer Treatment Plan
Переглядів 4День тому
Questions to Ask About Your Prostate Cancer Treatment Plan
Advanced Prostate Cancer: What You Need to Know About Evolving Treatment and Research
Переглядів 4114 днів тому
Advanced Prostate Cancer: What You Need to Know About Evolving Treatment and Research
You make it sound so feel-good and easy, but if stem cell was the thing that saved you, instead of your happy music you should be calling for that kind of treatment to be available to people who don’t have $100,000 for such procedures not covered by health insurance . I’m sure you spend at least $100,000 on stem cell transplants, because they’re not covered by insurance.
Dios te dé más vida gracias por el video que nos inspira a luchar
Nothing is documented...it's a nightmare out here. Las Vegas,NV.
Unfortunately, find a doctor that cares. You give up. It's exhausting trying to find to care. WEEK 5 ...still waiting to get scheduled for iron infusions for not absorbing ferritin. The fatigue and pain makes one not able to plan things. It's a life I've never known.
It is a very humanistic approach. One can have a dozen silent strokes, e.g., but in the end, he or she gets a real stroke and does not need to be treated anymore. It is really beneficial. Patients do not need to worry; they are not aware of it. The cost of treatment is also optimal. Just relax.
Why is I’m stage 4a hpv 16 jaw cancer but no spread is it because of tumor size
Can you get pain in the knees? I have been diagnosed with SMM
So many more questions… specifically about treatment of Primary refractory disease.
Very useful video. It was exactly what I was looking for. Thanks.
I was diagnosed in April 2021. I live in the Philippines where access to MM medicines is limited, unlike in the US and UK, I understand. I responded to Velcade, Lenalidomide and Dexa after almost a year of therapy, was in remission for 10 months and relapsed. I have no insurance and was subsidized by my siblings. (I'm 66 yrs old, no regular income, depleted savings,with minimal pension from the government.) It took another 3 months before I had my next round of chemo with Ninlaro, Thali and Dexa. After 4 months, tests showed I was not responding, do my doctor discontinued the Ninlaro. For the 3rd round of chemo, my doctor prescribed daratumumab with pomalidomide and dexa. The cost of dara is prohibitive for my siblings to subsidize and even pomalidomide costs $400 here, much more than Lenalidomide. As of this time, since September, I have had no major chemo (dara) and erratic treatment with Lenalidomide/Poma/Dexa). Having said all these, my concern is how can we expand the limited access to MM new treatments and drugs here in the Philippines and also make them more affordable? Can an international MM foundation help us with this?
Very informative. Excellent
and bone marrow?
Hello, I was just diagnosed with ET.. my question is why can’t I extract platelets if it’s too high?
Great Presentation. Thank you Dr. Landgren and Lisa.
Thank you. This was helpful.
What is your phone number doctor. Nee you helpl
Very helpful. Thank you
😭 hate the fact that he is right 🤯☠️
Dr. Yacoub is great. I am so glad I went to him.
Is it curable
Great info thanks!
thanks
Thank you for this explanation of ET.. 62 healthy otherwise avid walker and runner daily .. are there supplements I can take to lower my inflammation? I don’t consume sugar or alcohol .. non smoker..Thanks Again
Thank you for this video. I too live in the Charlotte NC and had a suspicious spot in my lower left lung, this was in October 2023. I immediately went to an oncologist and he referrer me to a pulmonologist to perform a biopsy. To make a long story short, I went to 3 pulmonologists before I found one I trusted. I had my biopsy in January of this year, I was diagnosed as stage 3a with KRAS g12v mutation. I'm now going through chemo and immunotherapy treatments. If anything has changed I will be scheduled for a lobectomy at Levin Cancer Institute. Your story gives me hope.
My mom has primary myelofibrosis, she gets these purple like spots on her skin and easy bleeding, I'm from India where should I get her checked? She's 51 and I'm scared to lose her, please reply
U r wonderful Dr. Philips. I am happy. I am Dr. Jyoti from India Pune.
I am diagnosed case of Follicular Lymphoma. Received RCHOP in 2014 inMumbai. Now Recently in 2023 I received six cycles of BR. I have treatment complete now. Taking Inj. Rituximap 600 mg in Nacl infusion maintainence dose. Can you sir help me to stop Recurrence of Lymphoma. 🙏Please😊
This man is divinely inspired. God bless him
Gracias
What if the jak2 617f is positive and the quantity is 8%
why can’t I find an information on Non-Hodgkins Follicular Lymphoma???? Extremely frustrated
We are sorry you can't find any information on Non-Hodgkins Follicular Lymphoma - we know how frustrating this can be. Feel free to check our website for a few resources - powerfulpatients.org/help-by-cancer-diagnosis/non-hodgkin-lymphoma-nhl/
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Excellent discussion. Thank you from patient recently diagnosed with PV.
Thank you
This is a really helpful and succinct review of side effects. Thank you!
Thank you Lori for your encouraging video. I have a question: if I am diagnosed with asymptomatic multiple myeloma and my hematologist refuses to perform FISH should I insist or not? Please I need an authoritative opinion. Thank you
I was diagnosed in October 23. Asymptomatic and on watchful waiting. Currently getting bloodwork every three months. Based on my bone marrow biopsy I have 40% effected. Would be interested in establishing a community for discussion. Good luck
Very good explanation!
This was excellent info. Really enjoyed listening to this Doc. The guy looks like Josh Groban.
Thank you for sharing this! I have to have one soon. I’m really scared. I’m supposed to be lightly sedated.
Being scared is completely normal! Please feel free to browse our additional resources for some support!
Very good advice from Dr Gaballa - thank you! - and I can't agree more about staying hydrated and walking say an hour daily when having chemo - I think that made chemo quite easy for me and I had few side effects.
AML post BMT my problem chronic skin gvhd in face please 🙏 help what treatment tell me
THANK YOU, told me things my doctor never told me.
You are so welcome!!
Thank you Dr. Jamy!
Felicidades 🎉 mi madre esta siendo tratada por el mismo padecimiento, Azaditidina y Venetoclax la ha mantenido ver este vídeo me da esperanzas
That old chestnut - hot showers …. Hmmmm. No nothing to do with showers. That’s aqua Pruritus. I’ve had PV FOR 6 years and with it random Pruritus. Will occur anytime in 24 cycle, but not whilst sleeping (as far as I can tell), lasts between 2 and 6 hours usually affecting limbs. Aqua Pruritus occurs after showering and towelling down i e when sweat glands become active, affects chest and legs, lasts 40 mins. Hope this helps other PV patients as the there is virtually no accurate info on this symptom.
Thank you,
My mom had CML. She passed in ‘97, at 51 years old. I started showing scary signs in the last year, (I’m 48) and if there’s no blood in my stool, I have to get a BMB. I remember when my mom had gotten them, and she said it was extremely painful. I was wondering if you could get sedated bc I’m terrified. I know I don’t have blood in my stool so I’m so glad I can ask for twilight sedation. I don’t think I would get it if I couldn’t.
Sorry to hear about your loss. We know it is scary, but great to hear that you were being proactive in getting your BMB done! Please feel free to check out our additional resources!
Totally unexpected, feeling how it began to shrink and eventually disappear within 2 months was so liberating. I followed the steps I mentioned, and within the first 2 weeks the bloating was gone. I simply go'ogled Tilly Strankten's Ovarian Cyst Guide and it's like I hit the feel-good reset button lol.