Epilepsy Awareness Day EADDL
Epilepsy Awareness Day EADDL
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The Hardy Family - Epilepsy Awareness Day at Disneyland Resort 2019
The 7th Annual Epilepsy Awareness and Education EXPO brought over 5000 registered guests, including 120 exhibitors and over 100 Epilepsy professionals to speak to families and educate the community.
On Nov. 6th, the 8th of 2019 Annual Epilepsy Awareness Day at Disneyland filled the park with our “Sea of Purple” T shirts. We sat over 500 guests in our morning group photo at the castle, and we filled the Mark Twain Riverboat with our supporters for the afternoon group shot!
www.epilepsyawarenessday.org
Переглядів: 97

Відео

Epilepsy Awareness Day in Disneyland x UCB
Переглядів 4444 місяці тому
Epilepsy Awareness Day in Disneyland x UCB
EADDL 2023 | Advanced Imaging & Treating Genetic Epilepsies | Dr Matt Lallas | Niklaus Children's
Переглядів 698 місяців тому
Advanced Imaging and Treating Genetic Epilepsies Dr. Matt Lallas Niklaus Children’s Health System Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EADDL 2023 | Auto Immune & Seizures | Dr William Gallentine, Stanford Medicine Children’s Health
Переглядів 648 місяців тому
Auto Immune and Seizures Dr. William Gallentine Stanford Medicine Children’s Health Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Advanced Imaging in Epilepsy | Dr James Wheless | Le Bonheur Childrens
Переглядів 498 місяців тому
Advanced Imaging in Epilepsy How MEG can assist in surgery Dr. James Wheless - Le Bonheur Children’s Hospital Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | ASK THE PHARMACISTS Our Expert Panel led by Sunita Durgalust, Pharm D
Переглядів 348 місяців тому
ASK THE PHARMACISTS Our Expert Panel led by Sunita Durgalust, Pharm D ANSWER YOUR TOUGHEST QUESTIONS Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Ciitizen | Putting Cittizen’s at the Center of Healthcare
Переглядів 308 місяців тому
Ciitizen Putting Cittizen’s at the Center of Healthcare Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Cognitive & Behavioral Concerns | Dr Steve Chung | Banner Health
Переглядів 598 місяців тому
Cognitive and Behavioral Concerns in Epilepsy Patients Dr. Steve Chung Banner Health Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Early Onset Seizure & Infantile Spasms | Dr Adam Numis | UCSF Benioff
Переглядів 478 місяців тому
Early Onset Seizure & Infantile Spasms Dr. Adam Numis UCSF Benioff Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Effect of Sleep and Memory in Epilepsy Patients | Dr Jack Lin UC Davis
Переглядів 588 місяців тому
Effect of Sleep and Memory in Epilepsy Patients Dr. Jack Lin UC Davis Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Difficult to Treat Epilepsy Special Interests in | Dr. R. Rajaraman
Переглядів 398 місяців тому
Difficult to Treat Epilepsy Special Interests in… TSC, CDKL5, and Rare Disease Epilepsy Dr. R. Rajaraman UCLA Mattel Children’s Hospital Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Importance of Neuro Psych | Ruth Morin, PhD, Neuropsychologist
Переглядів 468 місяців тому
Importance of Neuro Psych: Testing in Epilepsy Ruth Morin, PhD, Neuropsychologist HOAG/Pickup Family Neurosciences Institute Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023| Intro to Neuromodulation | Dr Ann Hyslop | Stanford Medicine Children's
Переглядів 378 місяців тому
Introduction to Neuromodulation Dr. Ann Hyslop Stanford Medicine Children’s Health Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EPILEPSY AWARENESS DAY 2023 | Individualizing Your Epilepsy Care | Mayo Clinic Team
Переглядів 298 місяців тому
Individualizing Your Epilepsy Care Dr. Joe Sirven Dr. Matthew Hoerth Dr. Amir Mbonde Mayo Clinic Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EADDL 2023 | Epilepsy 101 - Bilingual In English and Spanish | Dr Katherine Labiner | Pediatric
Переглядів 328 місяців тому
Epilepsy 101 - Bilingual In English and Spanish Dr. Katherine Labiner Child Neurology Consultants of Austin/Pediatrix Epilepsy Awareness Day at Disneyland 2023 www.epilepsyawarenessday.org www.epilepsyexpo.org SAVE THE DATE - November 18, 19, 20, 2023
EADDL 2023| Immunotherapy for Epilepsy | Dr Katherine Labiner, Child Neurology Consultants of Austin
Переглядів 418 місяців тому
EADDL 2023| Immunotherapy for Epilepsy | Dr Katherine Labiner, Child Neurology Consultants of Austin
EADDL 2023 | Epilepsy 101 - My 1st Seizure | Dr Sonal Bhatia | Medical University, South Carolina
Переглядів 478 місяців тому
EADDL 2023 | Epilepsy 101 - My 1st Seizure | Dr Sonal Bhatia | Medical University, South Carolina
EPILEPSY AWARENESS DAY 2023 | Epilepsy 101: My 1st Epilepsy | Dr Lilit Mnatsakanyan | UCI Health
Переглядів 598 місяців тому
EPILEPSY AWARENESS DAY 2023 | Epilepsy 101: My 1st Epilepsy | Dr Lilit Mnatsakanyan | UCI Health
EPILEPSY AWARENESS DAY 2023 | ESES | Dr Stephanie Randle | Seattle Children’s Hospital
Переглядів 608 місяців тому
EPILEPSY AWARENESS DAY 2023 | ESES | Dr Stephanie Randle | Seattle Children’s Hospital
EPILEPSY AWARENESS DAY 2023 | ESES: Status Epilepticus in Sleep | Dr Pilar Pichon | CHOC
Переглядів 2618 місяців тому
EPILEPSY AWARENESS DAY 2023 | ESES: Status Epilepticus in Sleep | Dr Pilar Pichon | CHOC
EPILEPSY AWARENESS DAY 2023 | Febrile Seizures and Infantile Spasms | Dr Kevin Rathke, Duke Health
Переглядів 708 місяців тому
EPILEPSY AWARENESS DAY 2023 | Febrile Seizures and Infantile Spasms | Dr Kevin Rathke, Duke Health
EPILEPSY AWARENESS DAY 2023 | Genetic Testing in Epilepsy | Dr Katherine Nickels | Mayo Clinic, MN
Переглядів 198 місяців тому
EPILEPSY AWARENESS DAY 2023 | Genetic Testing in Epilepsy | Dr Katherine Nickels | Mayo Clinic, MN
EPILEPSY AWARENESS DAY 2023 | Investigational Product Highlight: BHV:7000 | Jason Lerner, MD
Переглядів 758 місяців тому
EPILEPSY AWARENESS DAY 2023 | Investigational Product Highlight: BHV:7000 | Jason Lerner, MD
EPILEPSY AWARENESS DAY 2023 | Genetic Epilepsy in Pediatrics | Dr Kristen Park | Colorado Children's
Переглядів 228 місяців тому
EPILEPSY AWARENESS DAY 2023 | Genetic Epilepsy in Pediatrics | Dr Kristen Park | Colorado Children's
EPILEPSY AWARENESS DAY 2023 | Genetic Testing for Epilepsy | Gene DX
Переглядів 148 місяців тому
EPILEPSY AWARENESS DAY 2023 | Genetic Testing for Epilepsy | Gene DX
EADDL 2023 | Ketogenic Therapy: Expert Panel | Beck Reyes, NP, Rebecca Legi, RD, Sarah Quon, RD
Переглядів 588 місяців тому
EADDL 2023 | Ketogenic Therapy: Expert Panel | Beck Reyes, NP, Rebecca Legi, RD, Sarah Quon, RD
EPILEPSY AWARENESS DAY 2023 | Management of Epilepsy in Childbearing Years | Dr Mona Sazgar | UCI
Переглядів 318 місяців тому
EPILEPSY AWARENESS DAY 2023 | Management of Epilepsy in Childbearing Years | Dr Mona Sazgar | UCI
EPILEPSY AWARENESS DAY 2023 | Marinus | Jennifer Hubbard, APN | Nemours Children’s Hospital
Переглядів 178 місяців тому
EPILEPSY AWARENESS DAY 2023 | Marinus | Jennifer Hubbard, APN | Nemours Children’s Hospital
EADDL 2023 | Myths & Misconceptions about Epilepsy Surgery | Dr Ostendorf & Dr Millett
Переглядів 318 місяців тому
EADDL 2023 | Myths & Misconceptions about Epilepsy Surgery | Dr Ostendorf & Dr Millett
EPILEPSY AWARENESS DAY 2023 | Nat'l Association of Epilepsy Centers | Dr Fred Lado, President NAEC
Переглядів 88 місяців тому
EPILEPSY AWARENESS DAY 2023 | Nat'l Association of Epilepsy Centers | Dr Fred Lado, President NAEC

КОМЕНТАРІ

  • @barrybenjamin8648
    @barrybenjamin8648 14 днів тому

    I wonder if there is a chiropractor in South Africa who has this level of experience?

  • @SmedleyRudolf-w4k
    @SmedleyRudolf-w4k 28 днів тому

    Martin George Jackson Linda Hernandez Dorothy

  • @okley0613
    @okley0613 28 днів тому

    I tried requesting and appt for this doctor and I was turned down

  • @garrettdyess1110
    @garrettdyess1110 4 місяці тому

    Incredible presentation.

  • @laiscecilia3137
    @laiscecilia3137 5 місяців тому

    Amo vocês também sempre estarão na minha vida e no meu coração sempre temos que ajudar sempre as pessoas que mais precisam isso não tem preço tenho muito orgulho e muita gratidão por ter vocês na minha vida.❤❤

  • @Jessicab-u7c
    @Jessicab-u7c 7 місяців тому

    In the past 2 years it's become a weight loss fad unfortunately causing people to see the Ketogenic diet differently.

  • @Steven-gr4hb
    @Steven-gr4hb 7 місяців тому

    *Promo SM*

  • @bbaxter9171
    @bbaxter9171 7 місяців тому

    how many people have had PVNH?

  • @ShonMardani
    @ShonMardani 7 місяців тому

    This is the document I obtained from Merck for the issues my child developed. These symptoms are similar to "febrile seizures" and STDs.VARIVAX [Varicella Virus Vaccine Live] Post-Marketing ExperienceThe following adverse events have been identified during post approval use of VARIVAX. Because theevents are reported voluntarily from a population of uncertain size, it is not always possible to reliablyestimate their frequency or establish a causal relationship to vaccine exposure.Body as a WholeAnaphylaxis (including anaphylactic shock) and related phenomena such as angioneurotic edema, facialedema, and peripheral edema.Eye DisordersNecrotizing retinitis (in immunocompromised individuals).7Hemic and Lymphatic SystemAplastic anemia; thrombocytopenia (including idiopathic thrombocytopenic purpura (ITP)).Infections and InfestationsVaricella (vaccine strain).Nervous/PsychiatricEncephalitis; cerebrovascular accident; transverse myelitis; Guillain-Barré syndrome; Bell's palsy;ataxia; non-febrile seizures; aseptic meningitis; meningitis; dizziness; paresthesia; syncope.Cases of encephalitis or meningitis caused by vaccine strain varicella virus have been reported inimmunocompromised and immunocompetent individuals previously vaccinated with VARIVAX months toyears after vaccination. Reported cases were commonly associated with preceding or concurrent herpeszoster rash.RespiratoryPharyngitis; pneumonia/pneumonitis.SkinStevens-Johnson syndrome; erythema multiforme; Henoch-Schönlein purpura; secondary bacterialinfections of skin and soft tissue, including impetigo and cellulitis; wild-type or vaccine strain herpes zoster.Herpes ZosterThe vaccine virus (Oka/Merck strain) contained in VARIVAX may establish latency of varicella zostervirus in immunocompetent individuals, with the potential for later development of herpes zoster.

  • @jedheart8059
    @jedheart8059 9 місяців тому

    Great talk.

  • @Bekynd2Mankynd
    @Bekynd2Mankynd 10 місяців тому

    I’m in the EMU and I see a girl with 6 poisons along with pharmaceutical cbd and her parents arnt there for here.But I will say the nurses do try to comfort her. I say the nurses give up a lot and should be payed as much or more then the doctors.I only get 5 minutes or less with the doctor and feel like I’m just a test rabbit 🐰.They see if my seizures are stable off the 2 medications and now she’s trying to put me on the new one that’s out wtf.Thank you Jason and Jayden for the wisdom.Keep Blowing that Train 🚂 horn at these medical and pharmaceutical corporations.I will fight the war with you.They took my life and turned it into something that I couldn’t imagine. And when I blare this video out in the hallway of the hospital the hospital employees get rattled lol😊

  • @audreyvernick4950
    @audreyvernick4950 10 місяців тому

    Inspiring and heartbreaking. Thanks for sharing your story.

  • @michaellaforte6964
    @michaellaforte6964 10 місяців тому

    Thank you Dr West, for showing us that we have to do our own due diligence and take our own actions as necessary and as best informed as we can be. If even someone in your position and credentials has to rail against the menagerie of mis- and/or dys-information in pursuit of creative solutions, we can see what a profound challenge this is for those of us with less resources or capacities. My heart’s with you and your family. Your daily operations are truly challenging and I hope you find the resources you need to manage daily as well as long term. ❤

  • @synapsegurl7
    @synapsegurl7 11 місяців тому

    Dr pinchon thank you for your presentation. I really appreciate how you explained everything you talked about such as giving explanation of terminology you used. I hope you will continue to talk about more about pediatric eeg

  • @allievinci
    @allievinci Рік тому

    I never had met a brilliant brain surgeon until I met him. He saved my life

  • @thelewisfamcolorado
    @thelewisfamcolorado Рік тому

    This is great!!! Thanks so much for sharing the video! We missed the live call and so glad this is available. Thanks for all that your entire team is doing to make this as easy peasy as possible for our families 💜

  • @shirleyqueen2332
    @shirleyqueen2332 Рік тому

    Wish you was my Dr .♥️🇺🇸🦅🇲🇺🦤

  • @jadaPcn630
    @jadaPcn630 Рік тому

    What is the best stimulator for primary generalized tonic clonic epilepsy?

  • @allievinci
    @allievinci Рік тому

    Dr Vadera saved my life from having seizures 🎉

  • @shaalamkhondokar3467
    @shaalamkhondokar3467 Рік тому

  • @JenniferWells-k4b
    @JenniferWells-k4b Рік тому

    Can I get a copy of the presentation slides to view while watching the video?

    • @michaellaforte6964
      @michaellaforte6964 10 місяців тому

      Likewise! We can’t see it on here!

    • @michaellaforte6964
      @michaellaforte6964 10 місяців тому

      At around 35:30, Dr Labiner says Vimpatis not used in the treatment of ESES as it’s not an anti-convulsant, that it’s used with focal epilepsies. Is it not used as a release medication or not used at all with ESES as ESES is emerging from multiple regions and therefore it’s not used in the management because it’s just not effective in these wide area type seizures? Hope I’m interpreting this correctly. Is there a research report that you can point us to to learn more about this particular issue specifically? If we were operating under an assumed focal epilepsy but upon latest EEG the new diagnosis is ESES/CSWS, would we expect to migrate off the prior regime, especially the Vimpat if it’s a misaligned medication? I’ll get clarity with our next appointment, but I’m curious of other expert opinions as it seems there may be a lack of concensus among neurologists

  • @Andrescampos-op5eb
    @Andrescampos-op5eb Рік тому

    Andrés Alfonso campos

  • @fatihtopac9520
    @fatihtopac9520 Рік тому

    Comprehensive presentation with plain English. Thanks a lot Dr. Hussain 🙏🏻

  • @toddroberson9316
    @toddroberson9316 Рік тому

    PERFECT"nice work!! This channel needs SMZeus.

  • @brysonsanders
    @brysonsanders Рік тому

    Hey!, keep at the work. You might be interested in this channel 👉 #drjohnaking. I find him encouraging and insightful.

  • @mindstax
    @mindstax Рік тому

    Bless them!

  • @paulg6142
    @paulg6142 Рік тому

    Seizure free since 2020. Thank you doctor.

  • @davidr4523
    @davidr4523 Рік тому

    I would of asked the following questions if I attended, what seizure medication has the highest efficacy rate for 1. frontal lobe seizures. 2. nocturnal seizures. 3. gaging motion seizures How many years does a patient need to be seizure free to take them off of the medication? What role do intense/painful migraine headaches play in seizures?

  • @davidr4523
    @davidr4523 Рік тому

    Dr. Sankar is clearly one of the foremost pediatrics Epileptologist experts in the world. Unfortunately this lecture was too rambling and not informative for the average lay person. I wish he would have named the seizure medications with the highest efficacy rate per seizure type. For example, what is the best seizure medication for a young adult with frontal lobe seizures? If this message gets to Dr. Sankar, I would be grateful for his answer to this question.

  • @carlabishop5322
    @carlabishop5322 Рік тому

    Wow, watching my hives inflammation fade day after day until they completely vanished was such a relief, I went with what I pointed out and within the first 10 days or so the urticaria/angioedema was barely visible! I just go'ogled the latest by Shane Zormander and after 20 days my skin has never been healthier!

  • @Carolyn-l3e
    @Carolyn-l3e 2 роки тому

    very poor sound quality

  • @TT-vd7sf
    @TT-vd7sf 2 роки тому

    The problem aren't just biomarkers or new drugs. The problems are that NOBODY in the pharmaceutical industry and research, including the academia, has interest in dieting or exercising. I have worked with clinical cases for over a decade, and every single time junk food and excessive carbs were removed from patients' diet, magically, seizures went drastically down. Report after report, MDs ONLY ignored it. Why? Because they'd rather kill patients to advance their careers rather than actually doing real patients oriented work. In schizophrenia research continues to ignore the great results with omega fatty acids and how well they work for negative symptoms. Why!? Again, you can't patent them! So, thousand of SZ patients continue to commit suicide and live a very poor quality life. Good work you pale, ALWAYS male and stale scientists. As a STEM student I feel depressed by ALL of you and your lies.

  • @caihongji6051
    @caihongji6051 2 роки тому

    nice lecture

  • @Chris-jx3br
    @Chris-jx3br 2 роки тому

    Great talk. I learned so much.

  • @patrickdrummond7956
    @patrickdrummond7956 2 роки тому

    Awesome talk!!

  • @ashvinsood7614
    @ashvinsood7614 2 роки тому

    Well done! Fantastic work!

  • @VSPtx
    @VSPtx 2 роки тому

    who exactly are you addressing?

  • @chetagracious9556
    @chetagracious9556 2 роки тому

    Dr Omar on youtube is the best option for any epileptic patient out here or a child suffering from infantile spasms! His medication is the best and highly recommended. ua-cam.com/video/L_sbqN_My7w/v-deo.html

  • @ruthpaul7391
    @ruthpaul7391 2 роки тому

    after multiple attempt to find a solution to my herpes outbreaks #DrSusanOduwa came through for me and cure me of herpes. I thank God for using a kind woman like Dr Susan Oduwa to save me.

  • @anitamorris5959
    @anitamorris5959 2 роки тому

    Thank you for sharing this. I was at Disneyland during the conference and SERIOUSLY missed the conference. I have questions from this that I can take to my now adult daughter's neurologist.

  • @01Goldenpig
    @01Goldenpig 2 роки тому

    Great speech!

  • @Isabella-qi1me
    @Isabella-qi1me 2 роки тому

    Contact Dr Joah on UA-cam to help you eliminate herpes simplex virus 1&2 with herbal root supplements within two weeks of medication

  • @liamschubel4739
    @liamschubel4739 2 роки тому

    Great work Dr. TULLIUS!

  • @harrietisrael8351
    @harrietisrael8351 2 роки тому

    #DRALAHOOLU.

  • @harrietisrael8351
    @harrietisrael8351 2 роки тому

    Having HSV type 1&2 is not the end of life, I got cured after using Dr Alaho Olu on UA-cam herbal supplement…..

  • @Joyhtx
    @Joyhtx 3 роки тому

    God bless you Dr. Wilfong ❤️

  • @latoyadaniel8226
    @latoyadaniel8226 3 роки тому

    Dr Omar of (dromarsolutionhome@gmail.com) got you and can be off great help to you all epileptic patient reading this. His herbal meds is quite good, powerful, safe and it works perfectly.

  • @saklee1777
    @saklee1777 3 роки тому

    what on earth is even the point of all this? have a stupid day celebrating ppl with epilepsy? i myself have epilepsy and i find this humiliating and insulting.

  • @silviacastro8753
    @silviacastro8753 3 роки тому

    Thank you for the great information that you shared. My teenager daughter has Myoclonic epilepsy and I like to have her under chiropractic care, we live in Pennsylvania. What is the key factor/speciality to look for a chiropractic who will offer this type of care to her?

  • @yeseniaquintero6517
    @yeseniaquintero6517 3 роки тому

    This man is right on the money with what his saying I’m doing Jayden juice for my son right now