Відео

30 years dealing with it. Currently 9 days and possibly 3 more weeks. Its hard and people dont understand what we go through. Keep up❤

I get cluster headaches with tinnitus and diplocausis. Pure O2 treatment provides relief for me. Indomethacin also brought the cluster to a stop. I go through remission. The condition sucks.

Jackie, you DO NOT have to take a dose enough to go "tripping" to have that effect to help with CH. Please do some research. 🙂

"This is a very serious thing" Yes, it is. I'm a CH sufferer &, it is VERY serious. 😕

I'm also a CH sufferer, it's been going on for me [suffering] since in my 20's [I'm now 63]. To watch & hear this breaks my heart. :-(

I’m sorry the previous video before they stopped

How long was it before you made this video that you tried the mushrooms and the LSD

I’m crying with you. I don’t know your pain but my dad has been suffering with clusters for 25 yrs. We have tried everything. If you are not a member of clusterbusters go to the website. Bob Wold , the founder is an amazing human being and has been helping us get through a lot.

I feel like this comment section is monopolized with terrible one sided stories of the effect this goddamn disease has done to us. I see Jackie is a great singer with dreams and aspirations bigger than that. I bet people on here have kids, hopes and dreams and that's how you defeat that monster. Hope the best to all and remember you are not the headache.

Sorry Jackie I’m having my episodic episodes for 2 weeks now after them being gone for 3 years & 9 months. Started for me at age 27 I’m now 53. I use O2 tanks high flow regulator non rebreather mask. 6 to 10Lpm. The other morning I woke up to one in a panic and set the flow to 10LPM and apparently the flow was too high. It knocked out the pain finally after about a half hour BUT inhaled too much 02. Overdosed on 02 and it took a hour & a half to get it out of my system and feel straight again. To all of you suffering BE CARFUL NOT TO TURN THE LITER FLOW TOO HIGH. I almost called 911 I was so frightened because the weird feeling of too much 02 was not going away. Anybody else experience this??!

Happy for you. Look at the Wim Hof method God bless

Two hours! this poor girl doesn't deserve this. My heart goes out to anyone dealing with this horrible condition.

It’s so much pain in my head right now

I don't get them every day, I don't even know what triggers them. I'm google this because I get them every year and it's so painful and I don't want them lol

I’m 55. Been suffering since 18. Experience is exactly how you explained. Steroids and oxygen are the things that help. Never alleviate, but help. Always up for a new suggestion… currently in a cluster. No fun.

I’ve had this condition since I was 15. I’m 34 now and I’ve been dealing with this for a long time . Stay strong I feel your pain.

I’ve been going thru this for over 25 years!!! And like her, trying to explain to others or jobs it’s like no one gets it!!! I cry even watching a video or someone talk about it. Sometimes I wonder can I even live through another one… I just keep praying.. praying… praying… praying.

I know your pain going through it as well not fun

I'm also there in the troop....

This is me. Not diagnosed but I have been researching to find out what’s happening to me. The exact symptoms everything you said is true

Hey I hope you’re doing okay. This is helping me get through an episode right now. Thank you for your vulnerability 💖

I’ve had these for over 23 years now, I’m going through a season (fall) and oh my days, it’s the worst I’ve had ever. 😢

i was reading that breathwork and yoga can help. Has anyone tried and what is the result?

oh my gosh. Thank you for posting. I am so sorry. watching your video is so moving I had headache since i was a kid. i was told it was migraine, it was dehydration, etc etc. I only found out 2 weeks ago after all these years of suffering that it was Cluster Headache. It is the worst pain EVER!!!! Going through menopause, the heated weather with this condition is totally horrible. I had the worst case of it over 3 weeks ago (i am still having it after almost 4 weeks) where i could not open my eyes for more than 2 seconds. Let's hope more research and treatments can be done because WOW!!!! its horrific😭

I get them as well. Do a sumatriptan injection right when you get one, it will take it out within 10 minutes. Get a neurologist to prescribe you Emgality. It works within 3 weeks to completely eliminate the cluster. When you start getting a headache, have some coffee, and stick an ice cube in your mouth and try to give yourself brainfreeze. It works (sometimes). Hope this helps. Hang in there

What helped me was having a bucket of ice water always ready and I put my hands till they are numb and I open and close them and it drives the blood out of the brain and into your hand.

Horrid trash

I also stopped working in Cancer Radiation where I was treated for Cancer myself; it was my dream job. I had to give up working in every sense from the age of 43 & I'm 66 now. I'm from the Bay Area like you so there are many resources for us; however, no matter what I use, even shots to prevent Migraines, nothing seems to work after a while of using. I chase the cluster pain that moves all over my head, temples, eyes & nasal passages by using ice packs & pressure or massage devises at their highest intensity. I have also had to get on my knees, push the top of my head into the wooden frame of our couch as hard as I can - that pressure at the top of my head seems to help for at least a little while. Please hang in there & don't give up!! You can contact me if you need someone to just talk to about this awful experience that only we would understand. Blessed Be to Thee, as we Wiccan Witches say. Love & hugs, Emma

Thank you for doing this! I am right there with you & feel you are describing my entire life! I get Migraines as well & have Trigeminal Neuralgia . . . so . . . it is awful, right?

Please please watch Nancy Dufresne “Jesus the Healer”. You will be healed, your life will change drastically

You will probably not notice my comment but your video made me feel I am not alone…

I feel like this perfectly illustrates the other side of living with them, which is the emotional toll it takes on you going through an attack and the fear and dread of "when is it going to come back?" It's so draining trying to get through an attack and not worrying about the next

Omg girl, feel for you badly! Please stay strong ❤️ I've had my CH for about 12 years now. For the first 8 years, I was told and thought that it was just a migraine. But with my own research, I found that it is actually a CH. Nothing have helped to treat it, I just suffer with it and you know the rest. I consider myself luckier than others as mine cluster headache cycle is really weird and has at least 1 year break between them, some get it as often as every 3 months

Love you sister for sharing your life experience with ClusterFucks! Good skillz for sharing the awareness to others without a scooby doo. You have been spot on with your statements which brought tears to my eyes to hear your anguish. It's painful when nobody understands when it becomes life changing. In case you wasn't aware that Bufo 5MeO will abort an attack within a split second and Ayahuasca can put the beast into remission for a year+ in my personal experience. Wishing you pain freedom, and hope you found your solution in life to resume to normality. Take care and wishing you a beautiful life journey.

Ketamine. It’s a game changer

Hi Jackie, thanks for all the tips. Been trying most of the techniques from your previous video but I will try out some of the tips you mentioned in this video. Thanks for the post. 😊

I wonder if it is connected with epileptic seizures.

I had my first cluster headache when I was 19 years old and i did know what is happening to me better yet my eyeball, I’m 35 now and bin through all kinds of treatments. Those 5 months every year are terrible!! I get them 7-12 times a day. I know what you are going through, I feel your pain. Stay strong!!

How to treat Cluster Headache.Pain Killers don't work.

I have them too and just got out of cycle 3 days ago. I call them Facial Nerve Attacks (FNAs). A few things I learned from this last cycle: 1. I overdid it on sumatriptan injections and had awful rebound headaches, I recommend only 1 shot a day. 2. A high flow regulator (over 15) works better for Oxygen. 3. Emgality has coupon card on their website and I got mine for like 15$ and took it and it seems to be helping. 4. Psychedelics only work for me like 40% of the time. I recommend going hiking on them and not being in your room. 5. Count. I count to 4 over and over during my attacks and it helps. sounds simple, but it helps inhibit the pain from hijacking my inner voice. 6. gell ice packs on rotation help, not regular ice pack as much. 7. Take this awful time and take care of yourself, these will make you stronger, more isolated for sure, but more in tune with your warrior spirit. 8. describing the pain in art helps, paint the pathway. 9. Keep sharing. THANKS FOR YOUR BRAVERY> !

Hi im jeff and i do know your pain. Everything you have said is so true. No one will understand unless thay suffer like us, u cannot explain pain. The only help i could find is sumatriptan injections. I also have a H oxygen tank. A very large tank that welders use. 15 liters a min. I'll pray that someone finds a cure for us all.

Your not alone

Bc powders help just don’t take to many. I feel your pain, I like cherry flavored

Have you tried microdosing psilocybin mushrooms?

I have this feelings no one understood my feelings ......but not like your pain level...God bless all of Us😢

Have they come back , it’s been 3 years

Sucks aye , 20 years . Yes brain freeze X 10 2 for 3 times a day for weeks on end .somebody get this girl some Sumatriptan injections .

Currently going through them right now. My eye is completely swollen shut my voice is gone from screaming and crying. I literally get suicidal with these and I can't take it. I am so helpless but I gotta pull through for my daughter. Don't cry mama we r strong.

Have you tried microdosing long term? You dont have to actually trip. You take a subperceptual dose, but long term. Some people take it once every three days, others find 4 days in, 3 days off. Ive never known someone with cluster headaches, but i know several with migraines that have found relief through consistent, long term microdosing. Good luck!

I've never had any major headaches in my life and i hope i never do. My heart goes to everyone who battles with them truly. I can't imagine the pain