RareBoost
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Dr. Sevim Çakar- Alagille Sendromu
Alagille Sendromu Farkındalığını artırmak için Dr. Öğretim Üyesi Sevim Çakar' bu hastalık hakkında bilgiler paylaşmıştır.
#alagillesendromu #alagille #nadirhastalıklar #farkındalık
Переглядів: 9

Відео

Prof Dr Semra Hız Kurul 24 Ocak Moebius Sendromu Farkındalık Günü
Переглядів 2319 годин тому
Prof Dr Semra Hız Kurul 24 Ocak Moebius Sendromu Farkındalık Günü sebebiyle sizler için hastalık ile ilgili bilgiler paylaştı. Kendisine çok teşekkür ederiz. Nadir hastalığı olan bireylerin yanındayız. #rarediseases #moebiussyndrome #awareness #farkındalık #moebiussendromu #İBG
RareBoost hosted 2024 TEKNOFEST Biotech award winners in an impactful meeting
Переглядів 1614 днів тому
On January 10th, we were honored to host the FUSion Team -the winners of TEKNOFEST 2024’s Biotechnology Innovation Competition. The day started with a tour of the IBG facilities and brief introductions of the RareBoost project, by Prof. Uğur Özbek, and IBG-Nadir, by Prof. Pınar Gençpınar. Next, Assoc. Prof. Elif Yılmaz Güleç introduced the rare disease activities carried out at Istanbul Medeniy...
Application of iPSCs in Disease Modeling and Therapeutic Development’ by Dr. Yavuz Oktay
Переглядів 57Місяць тому
The presentation discusses the fundamental information about induced pluripotent stem cells (iPSCs), their applications in research and therapeutic potential. #iPSCs #diseasemodeling #research #education #science Please like and share. Follow us: RareBoost: rareboost.ibg.edu.tr RareBoost IG: rareboost_tr RareBoost LinkedIn: linkedin.com/company/rareboost RareBoost X: R...
IBG Teaching & Training presentation "Authorship and Reproducibility of Science"
Переглядів 61Місяць тому
On this training for IBG Teaching & Training Initiative Dr. Gerhard Wingender discussing ‘Authorship and Reproducibility of Science’. This interactive presentation covers two questions: (1) Who should be an author? Please think about what criteria you would choose to judge whether someone should be listed on a scientific publication. (2) Do we have a reproducibility crisis in science? Please th...
Rare Eye Disease- Prof. Canan Aslı Yıldırım /Nadir Göz Hastalıkları
Переглядів 1463 місяці тому
In our exclusive interview with Prof. Dr. Canan Aslı Yıldırım, a faculty member at the Department of Ophthalmology at Dokuz Eylül University, we discussed rare eye diseases, their symptoms, genetic counseling, preventive measures, and the importance of early diagnosis. Rareboost project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agr...
Interview with Deniz Yılmaz Atakay- Deniz Yılmaz Atakay Röportajı
Переглядів 303 місяці тому
In this interview with Deniz Yılmaz Atakay, Head of the Rare Diseases Federation, we talked about the establishment process of the federation, the situation of rare diseases in Turkey, and the importance of collaborations. Nadir Hastalıklar Federasyonu Başkanı Deniz Yılmaz Atakay ile gerçekleştirdiğimiz bu röportajda, federasyonun kuruluş sürecini, Türkiye'deki nadir hastalıkların durumunu ve i...
Rare disease experts visited IBG - a special interview with Helene Cederroth on undiagnosed diseases
Переглядів 93 місяці тому
#RareDiseases #NadirHastalıklar In June 2024, RareBoost Scientific & Ethics Advisory Board met with IBG rare disease researchers and discussed the progress of the RareBoost project and future goals. Founders of Wilhelm Foundation, Helene and Mikk Cederroth, also joined the meeting. We had a chance to interview Mrs. Cederroth on undiagnosed diseases and the work of Wilhelm Foundation to bring di...
#workshop #interview RareBoost Projesi Çalıştay Röportajlar - Prof. Dr. Haluk Özsarı
Переглядів 63 місяці тому
On December 22, 2023, at the "Rare and Undiagnosed Diseases Research Area, Stakeholders Status and Needs Assessment Workshop" held at IBG - Izmir Biomedicine and Genome Center, participants discussed the relevant topics at the tables, which was devoted to a different topic, and reported their opinions. We interviewed some of the participants and asked them questions. Prof. Dr. Haluk Özsarı answ...
What are Rare Eye Diseases? - Nadir Göz Hastalıkları nedir?
Переглядів 403 місяці тому
What are rare eye diseases? We visited the Pediatric Ophthalmology Clinic at Dokuz Eylül University and interviewed Asst. Prof. Özlem Ural Fatihoğlu to discuss these rare conditions and their impact on children. This year, World Sight Day prioritize children's visual health with the global campaign #loveyoureyes Nadir göz hastalıkları nedir? Dokuz Eylül Üniversitesi Çocuk Göz Hastalıkları klini...
Rare&Undiagnosed Diseases Research Area, Stakeholders Status and Needs Assessment #Workshop
Переглядів 149 місяців тому
On December 22, 2023, at the "Rare and Undiagnosed Diseases Research Area, Stakeholders Status and Needs Assessment Workshop" held at IBG - Izmir Biomedicine and Genome Center, participants discussed the relevant topics at the tables, which was devoted to a different topic, and reported their opinions. The topics of the sessions included: * Research studies in diagnostic processes * Research st...
What is RareBoost's Mission? I RareBoost Projesinin Misyonu Nedir?
Переглядів 1111 місяців тому
The RareBoost ERA Chairs project at IBG is on a mission to revolutionize the research and understanding of rare and undiagnosed diseases. IBG'deki RareBoost ERA Chairs projesi, nadir görülen ve teşhis edilemeyen hastalıkların araştırılması ve anlaşılmasında devrim yaratma misyonunu üstleniyor.
What is RareBoost? I RareBoost Nedir?
Переглядів 4311 місяців тому
IBG'deki RareBoost ERA Chairs projesi, nadir görülen ve tanısız hastalıkların araştırılması ve anlaşılmasında devrim yaratma misyonunu üstleniyor. The RareBoost ERA Chairs project at IBG is on a mission to revolutionize the research and understanding of rare and undiagnosed diseases.