PSC Support
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PSC Support Ask the Expert with Jennifer Towey, PSC and Diet
This video was taken from Jennifer Towey’s Ask the Expert live Q&A, originally broadcast on Zoom.
Jennifer Towey is a Specialist Hepatology and Transplant Dietician based at the Queen Elizabeth Hospital, Birmingham.
Recording date: 16 December 2024
Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/
Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Переглядів: 390

Відео

What is the ASP-PSC Clinical Trial?1:59What is the ASP-PSC Clinical Trial?
What is the ASP-PSC Clinical Trial?
Переглядів 78Місяць тому
Prevention is better than a cure. Recent studies have suggested that taking aspirin may reduce the risk of developing certain cancers in patients without PSC. The ASP-PSC study will look at whether people with both PSC and IBD who take aspirin have a lower risk of developing a PSC-related cancer and a lower risk of needing a liver transplant. Could you be one of the 968 PSC-IBD patients needed ...
PSC Support Ask the Expert Prof Tarik Iqbal, What is PSC-IBD29:23PSC Support Ask the Expert Prof Tarik Iqbal, What is PSC-IBD
PSC Support Ask the Expert Prof Tarik Iqbal, What is PSC-IBD
Переглядів 2742 місяці тому
This video was taken from Prof Tarik Iqbal’s Ask the Expert live Q&A, originally broadcast on Zoom. Prof Tarik Iqbal is a Professor of Clinical Microbiome at the Queen Elizabeth Hospital, Birmingham. Access NHS Psychological Support by: • Self-referral to NHS Talking Therapies Service: www.nhs.uk/service-search/men... • As for GP Referral to local community mental health service • Ask local hep...
PSC Support Ask the Expert Patient Perspective with Clinical Trials36:58PSC Support Ask the Expert Patient Perspective with Clinical Trials
PSC Support Ask the Expert Patient Perspective with Clinical Trials
Переглядів 2533 місяці тому
This video was taken from the Patient Perspective Ask the Expert live Q&A, originally broadcast on Zoom. Mark Chatterley is the PSC Support Administration Manager who has participated in clinical trials and had a liver transplant for PSC in 2023. William Williams and Maria Robertson are both PSC patients who have participated in clinical trials and share their experiences. Recording date: 23 Se...
PSC Support Ask the Expert: Dr Lucy Gorvin, Managing the Psychological Impact of PSC59:41PSC Support Ask the Expert: Dr Lucy Gorvin, Managing the Psychological Impact of PSC
PSC Support Ask the Expert: Dr Lucy Gorvin, Managing the Psychological Impact of PSC
Переглядів 2624 місяці тому
This video was taken from Dr Lucy Gorvin’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Lucy Gorvin is a Loren Smith is a Clinical Psychologist at the Royal Free Hospital. She specialises in working with liver transplant patients. Access NHS Psychological Support by: • Self-referral to NHS Talking Therapies Service: www.nhs.uk/service-search/mental-health/find-an-nhs-talking-therap...
PSC Support Ask the Expert with Loren Smith, Top Advice from our Helpline41:24PSC Support Ask the Expert with Loren Smith, Top Advice from our Helpline
PSC Support Ask the Expert with Loren Smith, Top Advice from our Helpline
Переглядів 2265 місяців тому
This video was taken from Loren Smith’s Ask the Expert live Q&A, originally broadcast on Zoom. Loren Smith is a Hepatology Clinical Nurse Specialist at John Radcliffe Hospital Oxford and the PSC Support Helpline Nurse. She is also in the unique position of being a PSC patient herself. Recording date: 31 July 2024 Check out our completely re-written, comprehensive PSC information, fully referenc...
Kieron Dyer: Football, PSC Diagnosis, Liver Transplantand Recovery31:18Kieron Dyer: Football, PSC Diagnosis, Liver Transplantand Recovery
Kieron Dyer: Football, PSC Diagnosis, Liver Transplantand Recovery
Переглядів 1,7 тис.5 місяців тому
Kieron Dyer, footballing legend and PSC patient, joined Nick Kane and Paula Hanford from PSC Support in between training sessions at Chesterfield FC. This video covers: - Getting a PSC Diagnosis - Living with PSC - Journey to Transplant - Life After a Liver Transplant Trigger Warning: This video contains content that may be distressing for some viewers, including discussion of PSC disease progr...
PSC Support Ask the Expert: Dr Emma Culver, updates from the International Liver Congress43:16PSC Support Ask the Expert: Dr Emma Culver, updates from the International Liver Congress
PSC Support Ask the Expert: Dr Emma Culver, updates from the International Liver Congress
Переглядів 5396 місяців тому
This video was taken from Dr Emma Culver's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Emma Culver is a Consultant Hepatologist & Senior Lecturer, John Radcliffe Hospital Recording date: 25 June 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Paralympian and Parasurfer Hannah Dines shares her experience with PSC22:53Paralympian and Parasurfer Hannah Dines shares her experience with PSC
Paralympian and Parasurfer Hannah Dines shares her experience with PSC
Переглядів 1,7 тис.6 місяців тому
This video was taken from a conversation with Hannah Dines held via Zoom on 21 March 2024 with Paula Hanford, PSC Support CEO. Hannah is a decorated Paralympian and Parasurfer who was born with cerebral palsy and was later diagnosed with PSC as an adult during the COVID-19 pandemic. She kindly shares her experience with PSC, discussing extreme PSC fatigue and her coping mechanisms. Check out ou...
Oxford Man's Midnight Ride for a Cure for PSC2:16Oxford Man's Midnight Ride for a Cure for PSC
Oxford Man's Midnight Ride for a Cure for PSC
Переглядів 966 місяців тому
In the early hours of July 5th, 2024, Oxford resident James Lawton and his two friends, Tim and Al, will embark on a unique cycling journey. Starting at 1:30 am from Oxford, they will ride to the Royal Free Hospital in London, retracing the exact timeline of James’s call for a life-saving liver transplant two years ago. The trio aims to arrive by 11:00 am, coinciding with the time James was tak...
PSC Support Ask the Expert: Dr Simon Rushbrook, PSC Symptoms and Routine Care59:41PSC Support Ask the Expert: Dr Simon Rushbrook, PSC Symptoms and Routine Care
PSC Support Ask the Expert: Dr Simon Rushbrook, PSC Symptoms and Routine Care
Переглядів 9797 місяців тому
This video was taken from Dr Simon Rushbrook’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Simon Rushbrook is a Consultant Hepatologist and Clinical Lead for Hepatology, Norfolk and Norwich University Hospital. Recording date: 16 May 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare pr...
PSC Support Ask the Expert: Alice Freer - Fatigue in PSC: What it is and how to manage it57:47PSC Support Ask the Expert: Alice Freer - Fatigue in PSC: What it is and how to manage it
PSC Support Ask the Expert: Alice Freer - Fatigue in PSC: What it is and how to manage it
Переглядів 8258 місяців тому
This video was taken from Alice Freer’s Ask the Expert live Q&A, originally broadcast on Zoom. Alice Freer is a senior physiotherapist at the QE Hospital, Birmingham Recording date: 10 April 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
PSC Quality of Life1:31PSC Quality of Life
PSC Quality of Life
Переглядів 1879 місяців тому
This video was created by PhD fellow Ryan James who is running stage 2 of the PSC Quality of Life Study. pscsupport.org.uk/research-weve-funded/psc-quality-of-life-measure/ This study has been funded by the British Liver Trust and PSC Support. Special thanks to Professor Douglas Thorburn, Professor Shivani Sharma, Professor Keith Laws and Dr Emily Beadle and supporting universities Aston Colleg...
PSC Support Ask the Expert: Dr Palak Trivedi and Dr Sarah Al-Shakhshir, PSC Research - FARGO Trial56:57PSC Support Ask the Expert: Dr Palak Trivedi and Dr Sarah Al-Shakhshir, PSC Research - FARGO Trial
PSC Support Ask the Expert: Dr Palak Trivedi and Dr Sarah Al-Shakhshir, PSC Research - FARGO Trial
Переглядів 5289 місяців тому
This video was taken from Dr Palak Trivedi and Dr Sarah Al-Shakhshir’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Deepak Joshi is a Transplant Hepatologist and Lead for Pancreatico-Biliary Medicine (King's College Hospital, London) Dr Sarah Al-Shakhshir is a Clinical Research Fellow at University Hospitals Birmingham NHS Foundation Trust Recording date: 19 March 2024 Check out ou...
PSC Support Ask the Expert: Charlene Oke - Managing Chronic Conditions at Work58:52PSC Support Ask the Expert: Charlene Oke - Managing Chronic Conditions at Work
PSC Support Ask the Expert: Charlene Oke - Managing Chronic Conditions at Work
Переглядів 28910 місяців тому
This video was taken from Charlene Oke’s Ask the Expert live Q&A, originally broadcast on Zoom. Charlene Oke (BSc Hons, MA Merit FCIPD) is an established global HR practitioner with over 15 years experience across several industries. She is also HR Trustee at PSC Support. Recording date: 19 February 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www...
PSC Support Ask the Expert: Dr Deepak Joshi - PSC Q&A58:16PSC Support Ask the Expert: Dr Deepak Joshi - PSC Q&A
PSC Support Ask the Expert: Dr Deepak Joshi - PSC Q&A
Переглядів 54911 місяців тому
PSC Support Ask the Expert: Dr Deepak Joshi - PSC Q&A
PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC56:18PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC
PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC
Переглядів 583Рік тому
PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC
PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC52:31PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC
PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC
Переглядів 683Рік тому
PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research51:45PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research
Переглядів 465Рік тому
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research
Research Update from PSC Support (Martine Walmsley)4:20Research Update from PSC Support (Martine Walmsley)
Research Update from PSC Support (Martine Walmsley)
Переглядів 199Рік тому
Research Update from PSC Support (Martine Walmsley)
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?2:02Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
Переглядів 253Рік тому
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn25:05PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
Переглядів 368Рік тому
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC51:57PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
Переглядів 605Рік тому
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC1:00:58PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
Переглядів 452Рік тому
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free1:13James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
Переглядів 221Рік тому
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
PSC Support Ask the Expert: Dr Emma Culver - PSC Research1:01:48PSC Support Ask the Expert: Dr Emma Culver - PSC Research
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
Переглядів 747Рік тому
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin1:03:13PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
Переглядів 667Рік тому
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?55:38PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
Переглядів 500Рік тому
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)8:33Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Переглядів 212Рік тому
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)1:45Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
Переглядів 204Рік тому
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)