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PSC Support
United Kingdom
Приєднався 10 бер 2014
PSC Support is the leading organisation for anyone affected by primary sclerosing cholangitis (PSC)
PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.
The PSC Support UA-cam channel features the latest talks and live Q&As from leading PSC authorities as well as carefully curated liver and research videos.
We are registered with the Charity Commission: 1175427
PSC is a rare, immune-mediated liver disease that can affect anyone, at any age. PSC is complex and current evidence suggests that people with a genetic makeup may be susceptible to some sort of (as yet unknown) environmental trigger, which causes their immune system to effectively 'attack' the bile ducts.
The PSC Support UA-cam channel features the latest talks and live Q&As from leading PSC authorities as well as carefully curated liver and research videos.
We are registered with the Charity Commission: 1175427
PSC Support Ask the Expert: Dr Lucy Gorvin, Managing the Psychological Impact of PSC
This video was taken from Dr Lucy Gorvin’s Ask the Expert live Q&A, originally broadcast on Zoom.
Dr Lucy Gorvin is a Loren Smith is a Clinical Psychologist at the Royal Free Hospital. She specialises in working with liver transplant patients.
Access NHS Psychological Support by:
• Self-referral to NHS Talking Therapies Service: www.nhs.uk/service-search/mental-health/find-an-nhs-talking-therapies-service/
• As for GP Referral to local community mental health service
• Ask local hepatology/transplant team if they have access to health psychology service
Recording date: 19 August 2024
Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/
Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Dr Lucy Gorvin is a Loren Smith is a Clinical Psychologist at the Royal Free Hospital. She specialises in working with liver transplant patients.
Access NHS Psychological Support by:
• Self-referral to NHS Talking Therapies Service: www.nhs.uk/service-search/mental-health/find-an-nhs-talking-therapies-service/
• As for GP Referral to local community mental health service
• Ask local hepatology/transplant team if they have access to health psychology service
Recording date: 19 August 2024
Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/
Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Переглядів: 168
Відео
PSC Support Ask the Expert with Loren Smith, Top Advice from our Helpline
Переглядів 157Місяць тому
This video was taken from Loren Smith’s Ask the Expert live Q&A, originally broadcast on Zoom. Loren Smith is a Hepatology Clinical Nurse Specialist at John Radcliffe Hospital Oxford and the PSC Support Helpline Nurse. She is also in the unique position of being a PSC patient herself. Recording date: 31 July 2024 Check out our completely re-written, comprehensive PSC information, fully referenc...
Kieron Dyer: Football, PSC Diagnosis, Liver Transplantand Recovery
Переглядів 1,3 тис.Місяць тому
Kieron Dyer, footballing legend and PSC patient, joined Nick Kane and Paula Hanford from PSC Support in between training sessions at Chesterfield FC. This video covers: - Getting a PSC Diagnosis - Living with PSC - Journey to Transplant - Life After a Liver Transplant Trigger Warning: This video contains content that may be distressing for some viewers, including discussion of PSC disease progr...
PSC Support Ask the Expert: Dr Emma Culver, updates from the International Liver Congress
Переглядів 4192 місяці тому
This video was taken from Dr Emma Culver's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Emma Culver is a Consultant Hepatologist & Senior Lecturer, John Radcliffe Hospital Recording date: 25 June 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
Paralympian and Parasurfer Hannah Dines shares her experience with PSC
Переглядів 9842 місяці тому
This video was taken from a conversation with Hannah Dines held via Zoom on 21 March 2024 with Paula Hanford, PSC Support CEO. Hannah is a decorated Paralympian and Parasurfer who was born with cerebral palsy and was later diagnosed with PSC as an adult during the COVID-19 pandemic. She kindly shares her experience with PSC, discussing extreme PSC fatigue and her coping mechanisms. Check out ou...
Oxford Man's Midnight Ride for a Cure for PSC
Переглядів 712 місяці тому
In the early hours of July 5th, 2024, Oxford resident James Lawton and his two friends, Tim and Al, will embark on a unique cycling journey. Starting at 1:30 am from Oxford, they will ride to the Royal Free Hospital in London, retracing the exact timeline of James’s call for a life-saving liver transplant two years ago. The trio aims to arrive by 11:00 am, coinciding with the time James was tak...
PSC Support Ask the Expert: Dr Simon Rushbrook, PSC Symptoms and Routine Care
Переглядів 6593 місяці тому
This video was taken from Dr Simon Rushbrook’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Simon Rushbrook is a Consultant Hepatologist and Clinical Lead for Hepatology, Norfolk and Norwich University Hospital. Recording date: 16 May 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare pr...
PSC Support Ask the Expert: Alice Freer - Fatigue in PSC: What it is and how to manage it
Переглядів 6824 місяці тому
This video was taken from Alice Freer’s Ask the Expert live Q&A, originally broadcast on Zoom. Alice Freer is a senior physiotherapist at the QE Hospital, Birmingham Recording date: 10 April 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
PSC Quality of Life
Переглядів 1615 місяців тому
This video was created by PhD fellow Ryan James who is running stage 2 of the PSC Quality of Life Study. pscsupport.org.uk/research-weve-funded/psc-quality-of-life-measure/ This study has been funded by the British Liver Trust and PSC Support. Special thanks to Professor Douglas Thorburn, Professor Shivani Sharma, Professor Keith Laws and Dr Emily Beadle and supporting universities Aston Colleg...
PSC Support Ask the Expert: Dr Palak Trivedi and Dr Sarah Al-Shakhshir, PSC Research - FARGO Trial
Переглядів 4575 місяців тому
This video was taken from Dr Palak Trivedi and Dr Sarah Al-Shakhshir’s Ask the Expert live Q&A, originally broadcast on Zoom. Dr Deepak Joshi is a Transplant Hepatologist and Lead for Pancreatico-Biliary Medicine (King's College Hospital, London) Dr Sarah Al-Shakhshir is a Clinical Research Fellow at University Hospitals Birmingham NHS Foundation Trust Recording date: 19 March 2024 Check out ou...
PSC Support Ask the Expert: Charlene Oke - Managing Chronic Conditions at Work
Переглядів 2246 місяців тому
This video was taken from Charlene Oke’s Ask the Expert live Q&A, originally broadcast on Zoom. Charlene Oke (BSc Hons, MA Merit FCIPD) is an established global HR practitioner with over 15 years experience across several industries. She is also HR Trustee at PSC Support. Recording date: 19 February 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www...
PSC Support Ask the Expert: Dr Deepak Joshi - PSC Q&A
Переглядів 4517 місяців тому
This video was taken from Dr Joshi's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Deepak Joshi is a Transplant Hepatologist and Lead for Pancreatico-Biliary Medicine (King's College Hospital, London) Recording date: 27 January 2024 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare profession...
PSC Support Ask the Expert: Dr James Ferguson - Liver Transplantation for PSC
Переглядів 5008 місяців тому
This video was taken from Dr Ferguson's Ask the Expert live Q&A, originally broadcast on Zoom. Dr James Ferguson is a Transplant Hepatologist, Queen Elizabeth Hospital, Birmingham. Recording date: 6 December 2023 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscsupport.org.uk/ Key information for healthcare professionals www.pscsupport.org.uk/HCPs
PSC Support Ask the Expert: Dr Palak Trivedi - All Things PSC
Переглядів 6019 місяців тому
This video was taken from Dr Trivedi's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Palak Trivedi is a Consultant Hepatologist at the Queen Elizabeth Hospital, Birmingham, Chair of the BASL Immune Special Interest Group, and Chief Investigator for UK-PSC. Recording date: 29 November 2023 Check out our completely re-written, comprehensive PSC information, fully referenced at www.psc...
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research
Переглядів 43810 місяців тому
This video was taken from Dr Trivedi's Ask the Expert live Q&A, originally broadcast on Zoom. Dr Palak Trivedi is a Consultant Hepatologist at the Queen Elizabeth Hospital, Birmingham, Chair of the BASL Immune Special Interest Group, and Chief Investigator for UK-PSC. Recording date: 23 October 2023 Check out our completely re-written, comprehensive PSC information, fully referenced at www.pscs...
Research Update from PSC Support (Martine Walmsley)
Переглядів 18810 місяців тому
Research Update from PSC Support (Martine Walmsley)
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
Переглядів 20710 місяців тому
Dr Simon Rushbrook - Should I see a specialist if my PSC is complicated?
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
Переглядів 35611 місяців тому
PSC Support host A Conversation With: Professor David Adams and Professor Douglas Thorburn
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
Переглядів 57711 місяців тому
PSC Support Ask the Expert: Dr Deepak Joshi - All Things PSC
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
Переглядів 428Рік тому
PSC Support Ask the Expert: Dr Jess Dyson - All Things PSC
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
Переглядів 208Рік тому
James' Liverversary and stair climb challenge one year after his liver transplant at The Royal Free
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
Переглядів 694Рік тому
PSC Support Ask the Expert: Dr Emma Culver - PSC Research
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
Переглядів 604Рік тому
PSC Support Ask the Expert: Dr Nabil Quraishi - PSC and Vancomycin
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
Переглядів 489Рік тому
PSC Support Ask the Expert: Dr James Ferguson - Waiting for a liver transplant?
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Переглядів 205Рік тому
Dr Andrew Yeoman - Managing your Healthcare (PSC Support)
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
Переглядів 194Рік тому
Dr Deepak Joshi - Clinical Trials in the UK (PSC Support)
Dr Andrew Yeoman - Managing care and delays to appointments and test results (PSC Support)
Переглядів 67Рік тому
Dr Andrew Yeoman - Managing care and delays to appointments and test results (PSC Support)
Dr Andrew Yeoman - Does PSC run in families? (PSC Support)
Переглядів 115Рік тому
Dr Andrew Yeoman - Does PSC run in families? (PSC Support)
Dr Andrew Yeoman - What is IQILS and why is it important? (PSC Support)
Переглядів 90Рік тому
Dr Andrew Yeoman - What is IQILS and why is it important? (PSC Support)
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research: FARGO and the Microbiome
Переглядів 600Рік тому
PSC Support Ask the Expert: Dr Palak Trivedi - PSC Research: FARGO and the Microbiome