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Terminal Yet Purposeful
Приєднався 15 гру 2021
Support group for younger people living with advanced and terminal illness.
Share your story:
terminalyetpurposeful@gmail.com
Share your story:
terminalyetpurposeful@gmail.com
Being Honest About Living With The Bad Days (Cholangiocarcinoma journey)
Hi friends! Welcome back to TYP. As anyone with a longterm or terminal illness knows, there is often a pressure to put our best faces forward ... both for ourselves and for those around us. But, even when treatment is going well, there are often lots of awful side effects and challenges that pop up. And it's important to acknowledge that we all have bad days where we feel discouraged. In this video, I talk about some of my recent immunotherapy side effects and the physical, mental, and emotional struggles I'm currently working through.
Remember: It's okay to not feel brave and strong every day! You are allowed to feel upset and be vulnerable. You are also not alone, as so many of us are fighting a similar battle.
Want to join our new community for younger people with terminal illnesses and their loved ones? Email Megan at terminalyetpurposeful@gmail.com
Remember: It's okay to not feel brave and strong every day! You are allowed to feel upset and be vulnerable. You are also not alone, as so many of us are fighting a similar battle.
Want to join our new community for younger people with terminal illnesses and their loved ones? Email Megan at terminalyetpurposeful@gmail.com
Переглядів: 12 969
Відео
I’m back! Clinical Trial and what’s been happening
Переглядів 4,8 тис.Рік тому
It’s been way too long since my last video, so I wanted to get out this update even though the video quality is terrible and I don’t look great. But the saga continues, and now we’re on our second clinical trial.
Update! Cholangio Clinical Trial
Переглядів 1,9 тис.2 роки тому
It’s been way too long since my last update! My video recording equipment is currently down, so please excuse my rough phone recording. But I’m now in a clinical trial at UPenn which I talk about. Thanks for sticking with me!
Aug 2022: Update On My Bile Duct Cancer (Cholangiocarcinoma) Journey
Переглядів 2,7 тис.2 роки тому
Hi friends! Welcome back to TYP. As I await more information about potential treatment with PARP inhibitors and clinical trials, I've just finished my fourth course of FOLFOX-one of two FDA-approved chemo "cocktails" for the treatment of cholangio-and all that comes with it. In this video, I talk about some of the side effects associated with FOLFOX treatments, as well as the different ways thi...
June 2022: Latest Update On My Bile Duct Cancer (Cholangiocarcinoma) Journey
Переглядів 6 тис.2 роки тому
Hi folks! Welcome back to TYP. About every three months, I attend a "re-staging" appointment with my oncologist to review my progress and treatment regimen. Today's appointment was a tough one, with the not-entirely-expected news that I'll need to change treatment regimens in order to better fight my bile duct cancer (cholangiocarcinoma) in the months ahead. It's not all bad news, though, as I'...
What to Expect: My Experience Working With A Terminal Illness
Переглядів 9032 роки тому
In part 4 of our "What To Expect" series, I share my experiences working full-time while fighting intrahepatic bile duct cancer (cholangiocarcinoma). While I'm fortunate in many ways to have support from loved ones and an understanding employer, it can be a challenge battling cancer while still being able to afford my bills. In this video, I discuss my experiences with the financial side of the...
What to Expect: My Experience with Pain Management
Переглядів 1,1 тис.2 роки тому
In part 3 of our "What To Expect" series, I share my experiences in managing pain while fighting intrahepatic bile duct cancer (cholangiocarcinoma). For me, a mixture of traditional medications and alternative solutions has helped out so much. But, as always, this is just my own experience as a cancer fighter-please consult your doctor to see what treatment(s) will work best for you. Want to jo...
An Update On My Bile Duct Cancer (Cholangiocarcinoma) Journey
Переглядів 4,7 тис.2 роки тому
Hi folks! Welcome back to TYP. It's me, Megan, here with an update on my cancer-fighting journey. Every three months, I attend a "re-staging" appointment with my oncologist to review my progress and treatment regimen. Today, I'm here with an update from my latest re-staging appointment. In this video, I'll talk about CT and MRI scans, my new chemotherapy regimen (including expected side effects...
What to Expect: Possible Chemo Side Effects
Переглядів 5492 роки тому
In part 1 of this new series, "What To Expect," I talked about some of the common experiences surrounding chemotherapy and what you might expect when you're starting out. In this video, I share some of the common side effects that I and others have experiences due to chemotherapy, while also offering some tips for managing those same side effects. Please share if you find this helpful! Want to ...
What to Expect When You're Starting Chemo (My Experience)
Переглядів 5342 роки тому
Are you starting chemotherapy soon? Know and love someone else who is? While no two experiences or cancer-fighting journeys are exactly alike, there are some things that are fairly common regardless or where or when you're getting chemo. In this video, I share my experiences over the last year and a half of chemotherapy and offer some tips for those early sessions. Want to join our new communit...
First Steps to Fighting Bile Duct Cancer & Other Rare Cancers
Переглядів 5422 роки тому
Since we've been hearing from some folks recently diagnosed with cholangiocarcinoma, I wanted to give some tips for how to cope with that initial diagnosis and where to turn for potential support. As always, you'll want to seek treatment from a doctor who is knowledgeable in the area of the disease you are fighting. But remember: You're never fighting alone! Want to join our new community for y...
Letting Go of Regret (Abridged Version)
Переглядів 3992 роки тому
Lately, I've been spending a lot of time thinking about this topic. How do we find fulfillment in where we are in life? This is a shorter version of my most recent video, which is a little more organized and to the point. I hope you find some information and ideas here that you might find useful. And, if you'd like to hear more, be sure to check out the "Radical Honesty" version, also on this c...
Letting Go of Regret (The Radical Honesty Version)
Переглядів 7032 роки тому
Lately, I've been spending a lot of time thinking about this topic. How do we find fulfillment in where we are in life? This is LONG, but I hope you find some information and ideas here that you might find useful. And, if not, check out the Abridged Version, also on this channel. Want to join our community? I'd love to hear from you! Email Megan at terminalyetpurposeful@gmail.com
Starting Infusion Treatments? Here Are 5 Helpful Tips
Переглядів 2672 роки тому
In this episode of TYP, I talk about the things I've learned from getting weekly and biweekly chemo infusions-from preparing for your appointment to staying healthy afterward. Want to join our new community for younger people with terminal illnesses and their loved ones? Email Megan at terminalyetpurposeful@gmail.com
6 Tips for Staying Positive with a Terminal Illness
Переглядів 2902 роки тому
In the latest episode of TYP, we're focusing on the power of positivity, which has been proven to be very important for anyone who is facing a longterm illness. Keeping a good attitude helps us become better suited to face the day and keep fighting. Here, I share my own top six tips for staying positive. Want to join our new community for younger people with terminal illnesses and their loved o...
What Should I Do After Being Diagnosed?
Переглядів 3202 роки тому
What Should I Do After Being Diagnosed?
What Do We Mean By Terminal? (And How Do We Cope?)
Переглядів 1,3 тис.2 роки тому
What Do We Mean By Terminal? (And How Do We Cope?)
The Story of My Bile Duct Cancer Diagnosis
Переглядів 21 тис.2 роки тому
The Story of My Bile Duct Cancer Diagnosis