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Blind Focus with Rob Sears
United Kingdom
Приєднався 12 сер 2023
Welcome to Blind Focus with Rob Sears: my story of living with Retinitis Pigmentosa. I'm sharing my journey living with retinitis pigmentosa to continue raising awareness about this rare eye condition.
Join me as I navigate through the challenges and triumphs of living with vision loss, and learn valuable tips and resources for managing daily life with RP. Through personal stories, informative videos, and interviews with experts, I aim to shed light on the impact of retinitis pigmentosa and empower others facing similar struggles.
Subscribe to stay updated on my journey and help spread awareness about this often misunderstood condition. Let's come together to support and educate each other in our shared experiences with RP.
Join me as I navigate through the challenges and triumphs of living with vision loss, and learn valuable tips and resources for managing daily life with RP. Through personal stories, informative videos, and interviews with experts, I aim to shed light on the impact of retinitis pigmentosa and empower others facing similar struggles.
Subscribe to stay updated on my journey and help spread awareness about this often misunderstood condition. Let's come together to support and educate each other in our shared experiences with RP.
7 Facts About Retinitis Pigmentosa You Should Know
7 Facts About Retinitis Pigmentosa You Need!
Hey everyone, welcome back to the channel! In today’s video, I’m going to give you 7 facts about RP, or retinitis pigmentosa. Whether you’re newly diagnosed, a long-time RP-er like me, living with someone who has RP, or just curious, this video is for you.
RP is Genetic: It's a disorder causing a breakdown of cells in the retina. I have X-linked RP, but there are many variants. At its core, RP is genetic, and there's not much we can do about that currently.
Symptoms Vary: Symptoms can include peripheral vision loss, tunnel vision, night blindness, and light sensitivity. Everyone experiences RP differently, so connecting with others can be very helpful.
No Cure Yet: There's no cure for RP today, but lots of research is ongoing. Managing your condition and preserving your eyesight are key until a cure is found.
Track Progression: Tracking your RP progression is important, even if it's tough. It helps in understanding and managing your symptoms better.
Low Vision Aids: Use tools and apps to help with daily tasks. Whether it's magnifying glasses or smartphone apps, these aids are essential in preserving your eyesight.
Genetic Counseling: This helps understand the genetic aspects of RP, especially if you're considering having kids. It’s something I plan to explore more.
Research and Clinical Trials: Stay updated with the latest research. Participating in trials can contribute to finding a cure. While I'm cautious, many of my friends have found it beneficial.
Understanding these points will help you manage RP better and make informed decisions about your health. If you found this video helpful, please share it with others who might benefit. Thanks for watching!
#RetinitisPigmentosa
#EyeHealth
#VisionFacts
#GeneticDisorders
#EyeDisease
#RPResearch
#BlindnessAwareness
#VisionCare
#MedicalFacts
#EyeCondition
#RP #RetinitisPigmentosa #VisionLoss #GeneticDisorder #LowVisionAids #ClinicalTrials #GeneticCounseling #EyeHealth #ManageRP #SightLoss
Hey everyone, welcome back to the channel! In today’s video, I’m going to give you 7 facts about RP, or retinitis pigmentosa. Whether you’re newly diagnosed, a long-time RP-er like me, living with someone who has RP, or just curious, this video is for you.
RP is Genetic: It's a disorder causing a breakdown of cells in the retina. I have X-linked RP, but there are many variants. At its core, RP is genetic, and there's not much we can do about that currently.
Symptoms Vary: Symptoms can include peripheral vision loss, tunnel vision, night blindness, and light sensitivity. Everyone experiences RP differently, so connecting with others can be very helpful.
No Cure Yet: There's no cure for RP today, but lots of research is ongoing. Managing your condition and preserving your eyesight are key until a cure is found.
Track Progression: Tracking your RP progression is important, even if it's tough. It helps in understanding and managing your symptoms better.
Low Vision Aids: Use tools and apps to help with daily tasks. Whether it's magnifying glasses or smartphone apps, these aids are essential in preserving your eyesight.
Genetic Counseling: This helps understand the genetic aspects of RP, especially if you're considering having kids. It’s something I plan to explore more.
Research and Clinical Trials: Stay updated with the latest research. Participating in trials can contribute to finding a cure. While I'm cautious, many of my friends have found it beneficial.
Understanding these points will help you manage RP better and make informed decisions about your health. If you found this video helpful, please share it with others who might benefit. Thanks for watching!
#RetinitisPigmentosa
#EyeHealth
#VisionFacts
#GeneticDisorders
#EyeDisease
#RPResearch
#BlindnessAwareness
#VisionCare
#MedicalFacts
#EyeCondition
#RP #RetinitisPigmentosa #VisionLoss #GeneticDisorder #LowVisionAids #ClinicalTrials #GeneticCounseling #EyeHealth #ManageRP #SightLoss
Переглядів: 252
Відео
Blind Focus Milestone Celebration: The Blind Poet’s Special Poem
Переглядів 8119 годин тому
Blind Focus Milestone Celebration: The Blind Poet’s Special Poem 🎉 We Did It - Thanks to You! 🎉 Hey everyone, Rob here! I’m absolutely thrilled to share that we've just hit two massive milestones for our channel: reaching 1,000 subscribers and accumulating over 4,000 hours of watch time. Hitting these numbers is not just about the stats; it's a pivotal moment for us because it means we can now ...
Understanding the Challenge: A Parent’s Perspective on Retinitis Pigmentosa
Переглядів 26914 днів тому
"Understanding the Challenge: A Parent’s Perspective on Retinitis Pigmentosa" Hi everyone,! In today's video, I’m going into what it’s like growing up with Retinitis Pigmentosa (RP) and sharing crucial advice for parents who are navigating this journey. I’ll outline 10 key tips to help you support your child, from understanding RP and fostering independence to creating a safe environment and ma...
Retinitis Pigmentosa and Relationships | Love Beyond Vision
Переглядів 45821 день тому
Hey everyone, welcome back to my channel! Today's video is really special because you'll get to meet my incredible wife, Loren. We're diving into the world of relationships and dating with RP (Retinitis Pigmentosa), sharing our own journey and tips to help make it a bit easier for you. Dating with RP definitely has its challenges, but with the right mindset and a bit of confidence, we've learne...
Highlights from the World Para Triathlon Series | Featuring Joslyn Sky
Переглядів 1,6 тис.28 днів тому
Hey everyone! Join me on this exciting journey as my guide Andy and I take on a triathlon in Swansea - captured and interviewed beautfully by Wales own @TreeTopFilms and edited by @kjgmedia1, with permission from the@BritishTriathlon Federation (BTF). This event is part of the British Triathlon Super Series at the World Triathlon Para Series, aimed at promoting adaptive sports like triathlon fo...
Shocking Stats About the Visually Impaired | Ft. The Blind Poet
Переглядів 251Місяць тому
Shocking Stats About the Visually Impaired | Ft. The Blind Poet In this video, I'm inspired by a recent chat with Dave Steele, 'The Blind Poet,' to discuss our personal journeys with visual impairments. I share the challenges and solutions we've encountered, from using a white cane to deal with Retinitis Pigmentosa and use this to explain why so few of us use a white cane. I explore some of bro...
Triathlon Training with Retinitis Pigmentosa | Part 3 | Running
Переглядів 240Місяць тому
Triathlon Training with Retinitis Pigmentosa | Part 3 | Running
Triathlon Training with Retinitis Pigmentosa | Part 2 | Cycling
Переглядів 359Місяць тому
Triathlon Training with Retinitis Pigmentosa | Part 2 | Cycling
Triathlon Training with Retinitis Pigmentosa | Part 1 | Open Water Swimming
Переглядів 366Місяць тому
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Retinitis Pigmentosa: My Journey From Triathlon To Paratriathlon
Переглядів 1,8 тис.2 місяці тому
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From Pets To Guide Dogs: Which Of Our Dogs Will Be The Best?
Переглядів 3142 місяці тому
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The Blind YouTuber: A New Direction | My Journey with Retinitis Pigmentosa
Переглядів 4782 місяці тому
The Blind UA-camr: A New Direction | My Journey with Retinitis Pigmentosa
BlindCAN Film Festival 2024 - New Filmmaker Of The Year !!
Переглядів 3572 місяці тому
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Life with the White Cane: Boosting Confidence and Success
Переглядів 5363 місяці тому
Life with the White Cane: Boosting Confidence and Success
Dream Under Stars: Sleep Stories Around the Fire
Переглядів 3353 місяці тому
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Adapting to Blindness: Resilience in Action
Переглядів 5423 місяці тому
Adapting to Blindness: Resilience in Action
Emotional Intelligence Unleashed: Strategies for an APEX Mindset
Переглядів 1413 місяці тому
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Fearless Living: Why Life's Too Short to Play It Safe
Переглядів 3344 місяці тому
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5 Min Fix: Embrace Failure & Risk-Taking for Success
Переглядів 1,6 тис.4 місяці тому
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5 Min Fix: Unleash Your Inner Motivator & Inspire the Masses
Переглядів 1,6 тис.4 місяці тому
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APEX Mindset: Thriving Through Adaptability
Переглядів 2184 місяці тому
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5 Min Fix | Unlocking Your Path to Greatness
Переглядів 1,7 тис.5 місяців тому
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Navigating the World: Living With Retinitis Pigmentosa
Переглядів 1,6 тис.5 місяців тому
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Rapid Mindset Shift For Success: Be RESILIENT. NEVER quit!
Переглядів 1635 місяців тому
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Unlock Success with Deep Relaxation: Mindful Hypnosis & Positive Action
Переглядів 4955 місяців тому
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Blind Focus: Using My Retinitis Pigmentosa To Inspire Others
Переглядів 1,5 тис.6 місяців тому
Blind Focus: Using My Retinitis Pigmentosa To Inspire Others
Embrace A Positive Mindset: Achieve SUCCESS!
Переглядів 3506 місяців тому
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APEX Mindset: Enhancing Resilience For Success
Переглядів 2906 місяців тому
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Deep Sleep Hypnosis: Effortless Relaxation & Total Stress Relief
Переглядів 1,7 тис.6 місяців тому
Deep Sleep Hypnosis: Effortless Relaxation & Total Stress Relief
The POWER of never giving up: always PERSEVERE.
Переглядів 3146 місяців тому
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Great Video. No one should shy away from their disability but they should remember it makes you who you are. Everyone is worthy of being loved so by taking just one step of confidence could take you on a new path with someone showing you love and understanding. Your heart is as big as your disability and so is theirs Xx 😊
Video has some great advice 🙏🏼
❤️
Great video mate, really interesting, helps people without RP as well, understanding what our friends/family dealing with!
Thanks my friend! Really appreciate that! ❤️
Thank you for this!
You are welcome! If it helped then please take a look at some of my other useful videos ❤️
Yet another great video
Thank you!! ❤️
Your tips are very helpful and informative especially in the world of computers which do put added strain on the eyes. When someone receives their diagnosis from either their parents if a child, or Specialist they may also go into denial for many years as they may only suffer from one or two symptons to start with and believe the inevitable will not happen. RP is progressive so whether you are a parent or someone who has just been told they are a sufferer of RP dont be afraid to reach out and obtain as much information as possible as there are people that can help with support and guidance. Remember someone has been in the same place as you are now. We all pray that one day a cure will be found xx
Absolutely. What a brilliant and in depth comment. Thank you ❤️
These are excellent tips Rob especially for young or early diagnosed sufferers. I hope this is reaching folk. Keep up the good work!!
Thank you! Will do!!
Very informative video!
Thank you!!
Top tips 🙏🏼
Thank you!!
Yayyyyy
Thanks JSky! ❤️
@@BlindFocusRS of course ! This is awesome and informative !!!
Love this so much!
Why thank you!! ❤️
Well done Rob, you are awesome. Great poem A A x x
Thank you so much ❤️
great going Rob, well done man!
Thanks pal ❤️
well done mate, no easy feat, you should be proud!
Thank you for that! Really appreciate it.
Congratulations Rob, you've worked so hard to reach this milestone. The future of this channel is bright :) Also, that poem was brilliant, and made me quite emotional :)
Awww thank you for being a huge supporter from Day 1! I appreciate that and always will!
Keep climbing!!! This channel is amazing!
Thanks so much guys - you too ❤️
Congratulations Rob!! Very well deserved!!!
Thank you so much Colin! Hope you’re well?
Wow what an amazing poem about an amazing guy.
Thank you!
Omg I love how you added Dave !!! That’s super cool!!! Love this !!!!
I’m glad you like it!!
Firstly, congratulations Rob. What an incredible poem, I shall be reading Dave's books. You both are shining lights to any person with RP and other forms of sight loss.
Thank you!
Amazing Video. Amazing poem. So proud of you Rob in what you have achieved through sheer resilience and detetmination. I know it has not been an easy road but you have never given up. Well done and celebrate. You have reached such a milestone in your journey X Your poems are amazing Dave. I have your books that are so inspiring and heartfelt. X
Thank you!!
Oh wow, congratulations on the milestone, so well deserved 🎉 And the poem is perfect, a talented man describing a fabulous human ❤
Mind blowing, amazing, well done Rob
Thank you!!
That was an awesome poem!
Thank you!! ❤️
🎉🎉🎉🎉😊
🙏🏼
Great Video - even when things dont go to plan you still manage to complete the race. What resilence and mindset you have. Well done. Check out the full Video x
❤️
Great Video - it is so important to try and engage your child/children in sport no matter what they enjoy doing. This will not only build their confidence but will help them focus and become part of a wider family to avoid them feeling isolated and alone. Sports will also help build confidence and lead to a more fulfilling and independent life. Recommend watching the full Video x
❤️
Great tip and great advice!
❤️❤️
Nice recovery!!
💪💪🙏🏼🙏🏼
Love your RP brother!!! ❤❤❤🎉🎉🎉 keep on following your dreams and don’t let our condition prevent you from doing it.
100%! You’ll love my next 2 videos!!
@@BlindFocusRS can’t wait !!! Stay tuned !!!
Great short - Loren's advice is really brilliant as it gives hope to people with RP to live an independently life but also offers help in which to achieve this xx Watch the full Video x
Thank you!!!
Great advice!!
Thank you!!
I really hope this reaches far & wide in the RP community. Your Mum & Dad were brilliant, testament to where your determination comes from I bet! ❤
Me too. They did really well!! ❤️
This video was brilliant, very informative.It was so interesting to see Loren's perspective.I learnt a lot from watching this video.Ron and Loren are so inspiring,well done x
Awwww thank you and thanks for such a wonderful comment! ❤️
Your parents aced it mate! Self care all round is a key tip! Keep up the good work!
Thanks Matt! Appreciate that and agreed/ self care is so important.
I reckon that if anyone watching this video, finds some help or inspiration from one or more of the points raised, then Blind Focus has achieved a gold medal. Excellent Rob.
Take a bow for helping me!
Amazing parents Rob, amazing video
Thank you! We hope it helps lots of RP parents xx
Brilliant Video and with Rob's information I really hope you parents out there find some help and guidance in this Video. It is heartbreaking at times knowing the challenges your child will have and suffer but you will also have lots of good times, laughs and fun seeing your child develop into a strong independent person. You will never stop worrying but that is what a parent is all about. Xx
Take a bow though!! X
Your parents did such a good job :)
Absolutely they did!
This is a great video both & I'm sure it will give other people with disabilities the confidence to go out on dates & hopefully, develop a relationship like yours. If everyone could meet a "Loren", they'd be well away. Loren has taken Robs RP in her stride, supported him 100% & their relationship has flourished. You two make a great team, full of love & respect for each other. Here's to many more years of triathlons, travel, fun & dogs!! Love you guys.... Auntie Al x x
Wow!! Comment of the year! Thank you. See you next week in Wells x
@@BlindFocusRS 😂😂 I suddenly thought, with my user ID, you wouldn't have a clue it was me commenting. Looking forward to seeing you lovelies next week x x
And I've no idea how to change my user ID!! X
Mick and Sandie smashed it!
As did you last week. Thank you all!!
Amazing debut Mick and Sandie!!
My parents deserve to go viral!!
Watch the full post. It's really helpful for all folk plus Rob and Loren are a wonderful couple 💑
Thank you!! ❤️
This is a very special Video so if you havent watched the full Video do so as it may be helpful to you. Dont despair if you think you may always be on your own as this Video will give you hope and an insight to how to go about having a relationship with someone with RP. You may be that special person who can see the person through their disability. X
Absolutely!! ❤️
❤❤
Great to finally see her!
Great video guys. Was lovely to hear how you met. Such an awesome couple <3
Awwww thank you Emma! Q❤️
I also do not like nightclubs or dark areas as I have to shine my phone light at people to see their faces or what they are wearing
It’s tough to function in those situations!
That was soo Beautifully said. I too struggle with one day finding a good soul to help me with my sight loss journey and I get afraid to let them know I see with one eye and some sides in my right as it’s discouraging but my eyes look beautiful but still they think blind girl or visionally impaired and they think do I want to help her like that? But then I think who can I trust before it all goes away. I truly hope I find someone like you have and Molly has and Paul has and Dave has and every other person I see with a significant other
You absolutely will - they just haven’t shown up yet!! ❤️
This amazing 💪💚 I've definitely found my new running tunes! Joslyn just wow 🙌🎵
It’s a great track!!
Thank you !!!!
This is one of my faves ❤ I'm so proud to have met Rob and become friends and then also see his relationship with Loren she truly is a superwoman and partnered with Rob they are a formidable team 💚💪thank you for sharing xx
Awwww thanks Shelley. That’s a really nice comment ❤️
I just love you two. Always giving back and always meant to be ❤
Awww thank you!! ❤️