Відео

Just got my VNS implant on day 11, there’s no pain but the implant is so uncomfortable For me, do you ever get used to the feeling of having it on after a while?

مرحبا بكم انا اسمي علي من دوله العراق العربيه تشرفت بكم جميعا

Don't let the disease get the better of you

I do not know how to send a message,but our stories are too similar. I am headed to Mayo this Wednesday for Dr. Van Gomple can implant the VNS. I battled with this for 18 months and it took me being placed on life support to get answers. Seizures even in my sleep. I seized 36HRs! Never had epilepsy in my life. Would love to connect?

Thank you sweetheart your video was very heartfelt I have surgery in 3 days and am so glad that I was able to hear your voice as an example of what I been described it was a relief ❤ bless your heart

Thank you sweetheart your video was very heartfelt I have surgery in 3 days and am so glad that I was able to hear your voice as an example of what I been described it was a relief ❤ bless your heart

Does it disrupt your sleep when it's turned on?

Can I ask you what kind of epilepsy do you have and with VNS how many seizures do you have in a day or week

Thank you so much for the video I'm getting my vns in a week and I'm freaking but u made me feel so much more comfortable with this decision ur a wonderful person Thank you for sharing

I was originally looking at vns then Dr pushed me for testing for rns for reasons and things made me more nervous about the vns but now my only option is the vns thank you for doing this video it makes me feel better

I know im behind on your vids, but thank you for these videos. Im a drug resistant and was diagnosed when I was 26 with epilepsy. Even tho i had had very small auras all my life but no idea how to relay them so I just lived with small partial seizures. They grew bigger. I am now 34 no medicine has helped me and no doctor told me about this now I am going to get my initial VNS "Talk" these videos have helped me. Thank you.......... #UMM forever

How has your implant been working? We are trying to decide what route to take with our 7 year old. His epilepsy is intractable and we are desperate to find some sort of means of controlling his seizures. I want to thank you for these videos as we need every bit of info we can get.

Thank you . Your videos help me . Lurning to live with v.n.s

how has VNS been thus far for you?

you have a hot body shape .

why is your voice changing? do you still have epilepsy attacks?

Hlow mam❤️

Good morning ❤️♥️ Nice sharing ❤️❤️

Great sharing ❤️❤️❤️

Have you had problem's breathing. I have a VNS as well. Couple questions.

How are you now?

Also. Your beautiful and that scar is just fine

I have an 8year old daughter with intractable epilepsy and we are really considering this. Any thoughts?

Thank you!! I’m scheduled to get my VNS put in June 28. I’ve been feeling really unsure about it due to the scars and recovery. This was encouraging!

I have a VNS as well I've been through a lot too text me any time

Hi thanks for your information I’m going to get the VNS next week but I feel litter beat scare because they told me it is painful and my Voice turn to the horse voice what do you think??? It’s worth it???

Got my Vns about a week ago, get it turned on on the 9th! Little nervous about the voice thing, but anything is better than seizing right?

Any update since this last video? My daughter just started to get grand mals in Sept and my family is new to this space. This was a very powerful video. I’m glad that you put yourself out there to help others!

Mine makes me cough and gag when I set it off

I wish people would talk about insurance coverage & how they paid. My insurance just denied me & my surgery is scheduled for next month. I have to go through an appeal process/ peer to peer review. very stressed. plz message me

I've been thrown a curveball. Insurance said they wouldn't pay for my surgery. I hope the appeal gets approved. Im crying with nervousness if it goes south. Surgery is scheduled for next month.

that was the perfect ending.. confidence for girls to put scars on their body <3 (for all the right reasons).

Story of what?

I’m really touched by this video. I’m getting the VNS in a few weeks! I was just approved yesterday. There’s just so much emotion going through me. 🌞

Hows the VNS treatment working? Im still trying to get my insurance to authorize mine.

Thank you for the video! I have epilepsy due to brain cancer, had a tumor removed, needed a second surgery because it came back, its a long story as to why, but I had proton therapy and had a grand maul during treatment, had about four grand mauls since but have auras pretty often, been wanting to go to Mayo Clinic for about a week because I've seen all they can do for epilepsy, I go to Johns Hopkins but they really haven't helped in regards to my epilepsy... they did get me off of Keppra though...

Does your breathing change? It doesn't hurt right? I have epilepsy and doctors are recommending the VNS for me.

Hi dear 😉 How all is going? Already I get vns just week ago. What totally results you have? Thank you 😘

which model of the vns did your doctor give you my doctor gave me the sentiva

I'm about to have this done. I'm over 40 now & have been epileptic since age 9 Took me a few years to make the decision,be able to do it. Thank you for your testimonial

I'm about to have my 3rd surgery for the vns implant. My last one lasted 4 years. The first one lasted 3 years.

The scar on your neck will definitely get lighter and eventually you won't even notice

my daughter has LGS and we have tried everything. VNS is the last option I will share your video with her. How is it going now?

I had a sagittal and Transverse thrombosis that is what started my epilepsy.

Thank you so much for sharing your experience, my surgery is estimated to be the beginning of February 2021. It’s very helpful to have a better understanding and know that I’m not alone

Thank you 😊

I've been considering getting VNS for a bit over six months now - your videos and mindset have given me the answers I need and I can't thank you enough for that. It's very rare for me to comment on a video but I had to do it here; thank you for sharing your story and your experiences!!

you have such a beautiful soul. ❤️

Thank you for the shout out sissy! You forever are my hero, love you!

❤️❤️❤️❤️