PD Avengers
PD Avengers
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Holiday Greetings from PD Avengers cofounder Tim Hague Sr.
Wishing you warmth this holiday cheer,
Joy and love as the year's end draws near.
May 2025 bring blessings anew,
Health, happiness, and dreams come true!
Переглядів: 28

Відео

A Holiday Message from Larry Gifford
Переглядів 4014 днів тому
The President of PD Avengers Larry Gifford sends Season's Greetings as we all prepare for 2025! Larry also looks back on a few breakthrough moments in 2024. www.pdavengers.com
Introducing ParkiBot
Переглядів 54914 днів тому
Dan Friedman, co-founder of Composium.ai, introduced ParkiBot, an AI tool designed to assist Parkinson's disease patients and caregivers. ParkiBot is trained on over 250,000 Parkinson's disease-related documents and can search the web for relevant information in real-time. It provides detailed responses to questions, sources for claims, and suggestions for further exploration. The tool is free ...
World Parkinson Coalition "Parkinson Ready" Vancouver
Переглядів 3721 день тому
The World Parkinson Coalition designed the “Parkinson Ready” program to address these challenges for people with Parkinson's. While this program was initially offered only to cities that are selected to host our triennial World Parkinson Congresses, it is now being piloted in Vancouver, Canada and Philadelphia, PA, USA to see how the training can be utilized by any city interested in driving up...
It's the holiday season at the PD Avengers
Переглядів 92Місяць тому
In festive times, we gather near, Embracing joy, dispelling fear. Through tremors' dance and moments slow, Our spirits' strength continues to grow. With each light's twinkle, hope renews, Among the challenges we didn't choose. Together, hand in hand, we stand, Facing the future, a united band. May this season's warmth your heart embrace, Bringing peace and gentle grace. Here's to health, to lov...
Care Partner Sleep Webinar - CLIP
Переглядів 45Місяць тому
*Disclaimer: This webinar was funded by AbbVie. All content was designed and delivered by PD Avengers. AbbVie has no input into the content or creation of this material This clip from the webinar showcases the final thoughts of the panel. PD Avengers President Larry Gifford and his panel of experts explored the critical role of sleep for people with Parkinson's disease and their care partners, ...
Sleep's Impact on Parkinson's Care Partners
Переглядів 1822 місяці тому
*Disclaimer: This webinar was funded by AbbVie. All content was designed and delivered by PD Avengers. AbbVie has no input into the content or creation of this material. Larry Gifford, President of Pd. Avengers, host Rebecca Gifford, Care Partner Brian Magennis, A Parkinson's nurse and care partner from Ireland Okeanis Vaou, a movement disorder specialist and board-certified sleep specialist La...
Care Partner Awareness Month Larry Gifford
Переглядів 822 місяці тому
Appreciating Caregivers and Care Partners! November is Care Partner Awareness Month. Larry expressed his gratitude to all the caregivers and care partners, acknowledging their crucial role in supporting those with Parkinson's disease. He emphasized the importance of their steady presence and unwavering support, which transforms chaos into calm. Larry also highlighted the love and partnership he...
Care Partner Awareness Month - Tim Hague Sr.
Переглядів 862 місяці тому
November is Care Partner Awareness Month and in this video Tim shares thoughts on how to show your care partner how much you appreciate them.
Care Partner Awareness Month with Soania Mathur, MD
Переглядів 2442 місяці тому
Care Partner Awareness Month with Soania Mathur, MD
Choosing DBS
Переглядів 1633 місяці тому
Choosing DBS
Bernard Coley discusses his role in the 2025 Spark the Night campaign
Переглядів 283 місяці тому
Bernard Coley discusses his role in the 2025 Spark the Night campaign
Spinning Wheels Relay 2024 - West Coast Ride Days 2 and 3 from Vancouver to Sunshine Valley
Переглядів 575 місяців тому
Spinning Wheels Relay 2024 - West Coast Ride Days 2 and 3 from Vancouver to Sunshine Valley
Henry Gifford - Spinning Wheels - Thank You
Переглядів 365 місяців тому
Henry Gifford - Spinning Wheels - Thank You
WEBINAR SLEEP Survey Results July 8, 2024
Переглядів 5145 місяців тому
WEBINAR SLEEP Survey Results July 8, 2024
The National Plan to End Parkinson's Bill Has Passed Through the House and Senate, Now What?
Переглядів 1,9 тис.7 місяців тому
The National Plan to End Parkinson's Bill Has Passed Through the House and Senate, Now What?
Seattle Spark the Night
Переглядів 357 місяців тому
Seattle Spark the Night
New York Spark The Night
Переглядів 127 місяців тому
New York Spark The Night
Spark The Night with replaced Soundtrack "Spark the Night"
Переглядів 4297 місяців тому
Spark The Night with replaced Soundtrack "Spark the Night"
Illuminating the Night - Night Symptoms of Parkinson's - as first published by Neurology Live
Переглядів 3,3 тис.7 місяців тому
Illuminating the Night - Night Symptoms of Parkinson's - as first published by Neurology Live
Vancouver: Spark The Night
Переглядів 447 місяців тому
Vancouver: Spark The Night
Spark the Night 2024
Переглядів 1938 місяців тому
Spark the Night 2024
From Awareness to Action: The Final Episode
Переглядів 387 місяців тому
From Awareness to Action: The Final Episode
Black History Month Spotlight with Denise Coley
Переглядів 3710 місяців тому
Black History Month Spotlight with Denise Coley
Black History Month Spotlight: Tuskegee Syphilis Study
Переглядів 2210 місяців тому
Black History Month Spotlight: Tuskegee Syphilis Study
Black History Month - Why does the black community distrust the medical community?
Переглядів 4210 місяців тому
Black History Month - Why does the black community distrust the medical community?
Black History Month Spotlight: Living with Parkinson's
Переглядів 63010 місяців тому
Black History Month Spotlight: Living with Parkinson's
Dialing in DBS and Sorting Through the Data with Rune Labs CEO Brian Pepin
Переглядів 367 місяців тому
Dialing in DBS and Sorting Through the Data with Rune Labs CEO Brian Pepin
DBS: I Helped Surgeons Operate on my Brain
Переглядів 207 місяців тому
DBS: I Helped Surgeons Operate on my Brain
PD Avengers Partners Meeting Nov 2023
Переглядів 125Рік тому
PD Avengers Partners Meeting Nov 2023

КОМЕНТАРІ

  • @shakymedia_UK
    @shakymedia_UK 15 днів тому

    Thank you for all you do for the Parkinson’s community and drive towards a cure. We wish you all a happy Christmas and New Year. May the New Year bring many more moves towards preventing and an eventual cure for Parkinson’s.

  • @stacey1994
    @stacey1994 18 днів тому

    I went and checked this out, I liked that it gives straightforward answers, but then allows you to go a little deeper and expand on that particular topic. So you can go as deep into answers and research as you want to, but you get the basics first so you don't have to go any further.

    • @MrJohnnyrskiwi
      @MrJohnnyrskiwi 9 днів тому

      Agree - much better than any AI I've tried!

  • @ΝέναΑ
    @ΝέναΑ Місяць тому

    Thank you !!

  • @DeboraLeung
    @DeboraLeung Місяць тому

    I so agree. My dear husband, Brian is my care partner, and he helps me each and every day. I make sure to let him know how much I appreciate every thing he does.

  • @anamariatamayoflores4729
    @anamariatamayoflores4729 Місяць тому

    💟

  • @therealkathleenkiddo
    @therealkathleenkiddo 3 місяці тому

    truth

  • @crystalh5869
    @crystalh5869 3 місяці тому

    My father rebuilt transmissions he was always elbow deep in this stuff. Now currently very deep into Parkinson's at 67. Can't really speak can't really do much super tragic. Thank you so much for this information!

  • @stacey1994
    @stacey1994 3 місяці тому

    Don't forget to like and comment so this is seen by more people. 😎🌴

  • @wadehuffaker9327
    @wadehuffaker9327 4 місяці тому

    Great information! Thanks for sharing. I'm surprised at the discussion about nicotine not being effective for Parkinson's. I was at stage 3 Parkinson's 4 years ago. I began using high dose nicotine (in pouch form) and other supplements/diet changes and I have pretty much have no symptoms since.

    • @aquestforrest6978
      @aquestforrest6978 Місяць тому

      Hi there....may I contact you regarding the nicotine usage please. My hubby has PD and it's so interesting that it could help with symptoms

    • @wadehuffaker9327
      @wadehuffaker9327 Місяць тому

      @@aquestforrest6978 New channel starting soon to explain what I do for my Parkinson's. No Dopa Parkinson's on rumble.

    • @wadehuffaker9327
      @wadehuffaker9327 Місяць тому

      @@aquestforrest6978 UA-cam won't let me reply. Not sure why.

  • @pigbin1066
    @pigbin1066 4 місяці тому

    I was exposed to this by a British powder coating company in the north east of England, Darlington.. I've now been diagnosed with MSA multiple system atrophy parkinsonism Probably gonna die in six years....

  • @robert9248
    @robert9248 5 місяців тому

    The FDA should allow Ambroxol to be approved like Europe and Asia has

  • @lindaprescott8659
    @lindaprescott8659 6 місяців тому

    Great to get a little background on Brian and his life story- will definitely follow more of his work and the PD Avengers as I advocate for all things that lead to life affirming days with PD!

  • @mxdavis
    @mxdavis 6 місяців тому

    How long do TCE-treated shirts emanate in dangerous levels from when they are purchased. At any given time I have 2-5 shirts in my closet waiting for pickup, which may take up to 5 months to be worn.

  • @henryruggles7523
    @henryruggles7523 6 місяців тому

    So, aside from spending a lot of time and money... what will be accomplished and how soon?

  • @jonathanbressler5660
    @jonathanbressler5660 6 місяців тому

    There is no plan to end PD just like there is no medicine to end PD. It’s just a bunch of hype because the cure comes from within. Don’t get your hopes up folks.

  • @Michael-he7xn
    @Michael-he7xn 6 місяців тому

    Great exchange guys. Squirrel…!

  • @RobertBrown-yb3ur
    @RobertBrown-yb3ur 7 місяців тому

    Afraid this will be like everything the govt jumps in to "solve". More govt, more taxes, less freedom. And the program (isn't there always a program?) will be inefficient, ineffective and enriching to a select group at our expense. Find an example to prove me wrong.

  • @Jjsjourney713
    @Jjsjourney713 7 місяців тому

    Well done and thank you team MJ Fox and Michael J Fox himself, a great and true pioneer and what an achiever. Kudos to you, sir for not giving up and keeping focus on main task of ultimately eliminating Parkinson and thank you for fighting forefront on behalf of all of us who are living with Parkinson ! Thank you all & god bless !

  • @KarenPatterson-y4t
    @KarenPatterson-y4t 7 місяців тому

    Let's get this done! 👍

  • @danielherlihy4685
    @danielherlihy4685 7 місяців тому

    I am so glad to hear you so positive. I recently saw a video from you and it was so dark. It scared me. Now you are so up and I am elated to hear it.

  • @tracydonaldson91
    @tracydonaldson91 7 місяців тому

    This is AWESOME ❤❤❤

  • @yesand
    @yesand 7 місяців тому

    Outstanding job, Larry! Fantastic storytelling.

  • @gregstevens5376
    @gregstevens5376 8 місяців тому

    Love this, hope to see even more lights next year!! 💙

  • @Texy04
    @Texy04 8 місяців тому

    What makes the cars roll and what kind of cars are they? What do I look for to purchase them?

  • @MyPDDaily
    @MyPDDaily 8 місяців тому

    Wow! This was super well done! Thank you so much for sharing! Beautiful pictures and videos from around the world!

  • @godardthspielwells
    @godardthspielwells 8 місяців тому

    Larry, can you update on how things are going for you? Hope you are doing well.

  • @washeyermann7178
    @washeyermann7178 10 місяців тому

    🤣 Promo sm

  • @KarenPatterson-y4t
    @KarenPatterson-y4t 10 місяців тому

    Never give up!!!! We have to come together and make ourselves heard!!! We have to love ourselves enough to care about cleaning up the world we live in.❤

  • @KarenPatterson-y4t
    @KarenPatterson-y4t 10 місяців тому

    From Maurice White to Mohamed Ali. This is a great collection of inspiring characters. I never would have imagined that so many of the people that inspired me throughout my life would contract the same ailment. Astounding. More proof of how PD doesn't discriminate. We are all equally in danger if we do not do something fast to clean up this planet. I have to give it up for the man and his band who taught me to wish upon a star at an early age. Some songs just get better with age. Yes...and having anything in common with someone who performed a favorite song. Is kinda cool. Even if it is PD.

  • @KarenPatterson-y4t
    @KarenPatterson-y4t 10 місяців тому

    Just let me know what I can do to help. Mother Nature is not pleased with the recent ruling by the EPA. Multiple times those in charge have made this cause sound unworthy of the time and effort required to read. How can this be? UNACCEPTABLE I say! We simply must find a way. 🌎🏔🌱🌳🦋💓 Thanks to both of you for this reality check. Also thanks for the great book Dr. Ray Dorsey. I'm a former long time resident of Upstate NY. I was also born and raised in the Bay Area Ca. So that book really speaks to my story. As well as to the multiple health issues suffered by my family. And other familys we know who still live in NY.

    • @KarenPatterson-y4t
      @KarenPatterson-y4t 10 місяців тому

      We may have lost the battle. I cultivate hope and determination that we shall not lose the war!

  • @JoanAvis-pi6sf
    @JoanAvis-pi6sf 10 місяців тому

    Is this stuff in Australia?

    • @PDAvengers
      @PDAvengers 10 місяців тому

      Unfortunately, yes.

  • @johneymyers5117
    @johneymyers5117 11 місяців тому

    Actually the coating and fillers play a small role in the dosing. The FDA allows a 20% difference from the standard dose. That can be 20% lower or 20% higher . So a total of 40% difference is allowed between different batches of the drug.. within its own generic company or its competitors or the brand name. So yes, pay close attention. The patient is the one who may easily notice a difference, not the doctor , or pharmacist or the pharmacy that is more concerned with profit than for your well being.

    • @invoxicated
      @invoxicated 5 місяців тому

      I found the same info. The FDA allows a 20% deviation in active ingredients. I get my Levodopa from the VA as I am an a 100% disabled Agent Orange victim of the Vietnam war. I have no control over where they get their meds from and often wonder how good they are because I've never been able to try any other brands. I currently take 15 25/100 tabs a day. This is such a terrible disruptive disease. I wonder how Sinemet brand is?

    • @johneymyers5117
      @johneymyers5117 5 місяців тому

      @@invoxicated i was introduce to agent orange in 1969 in a vietnam jungle also. i went on to college after my year in country and graduated as a pharmacist. i owned a large pharmacy for 40 years when finally as my symptoms started to rule my life i sold the store and filed a claim wih VA in 2013. of course was denied back then so i continued as is.. in 2020 i filed another claim that included my updated condition and of course was given 100% P&T... so i got a lawyer and refiled my 2013 claim. was paid back pay from 2013 , not so easily , but successfully.. thats good advice you offer on generic drugs and the importance of not changing brands of levodopa. though often it may not be so important for other drugs and conditions. my motor symptoms are controlled well at current dose and i pick up on the slightest deviation of dose. im not at 15 000 mg a day of levodopa yet, but its coming, you speak and present yourself well, maybe consider a sight to advocate for your VA claims. sincerely j myers

  • @iloveanimals1964
    @iloveanimals1964 Рік тому

    My mil and husband have PD. My Mil recently passed away. They have had genetic testing and it's not genetic. My mil never owned a washing machine,everything was done at the dry cleaners.

  • @SharonHammer-x7t
    @SharonHammer-x7t Рік тому

    Larry - thanks for this information. I’ve been taking the same generic form of carbi/levodopa for 5 years. Due to travel I had to fill my prescription at an unknown to me (but still CVS pharmacy). The pills were a slightly different shape and not scored. I was a little surprised they hadn’t informed me of the switch but I thought (besides the inconvenience of the nonscored pills) that they would be the same. I’ve been having trouble with my “off times” occurring more frequently and their onset is quite abrupt. I go from feeling ok to being in a severe off time zone immediately. I thought it was me. Now I am going to look into this more. Again thank you

  • @MyPDDaily
    @MyPDDaily Рік тому

    Best wishes!

  • @SpeedRacer24X
    @SpeedRacer24X Рік тому

    Hi Larry. So great to hear that you're doing well after your DBS surgery. Prayers for a complete recovery and it being exactly what you need now for a better quality of life. Cheers!

  • @Cure4pd
    @Cure4pd Рік тому

    just had my medtronic turned on and its great.

  • @Cure4pd
    @Cure4pd Рік тому

    i just had dbs with dr. foote and dr. okun at the university of florida, i saw dr, soania Mathur in orlando at the michael j fox talk, in watch every pd video i can and Kennedy is a ball of laughs, thank you all.

  • @peteredmondson5980
    @peteredmondson5980 Рік тому

    Having suffered from internal tremors for more than two years, I wonder whether I am with Parkinson’s, a simple test like this would make my life simple. I would love to know one way or the other

  • @lindatorrez686
    @lindatorrez686 Рік тому

    The doctor is correct. In a tall family in 1930 in Delano CA 93215 used DDT in food and spray over head 500 gallons in a aircraft over 4,000 sq foot , four times bigger than a three bedroom house 1500 SQ ft and all over the United States and Europe or London dropped DDT. And another chemical with DDT methyl bromide in pesticide and restaurants in Boston MA or New York City the tall work or own. Mexican food huevos ranchero and spices were dried DDT. My uncles are FBI agents in 1939 and 1933 and died in 1948 or 1946 or about. I was informed that ebola was military made San Diego CA Marines scientist for bio warefare and HIV Aids for bio warefare and pneumonia for FBI agents in all United States and here they died by murder in 1948. No other FBI agent Kennedy worked as honorable in CIA agency or FBI agency or in the White House and here military New York City has 241 vials of different cancers with medicine and 200 vials of cancer but no medicine and here ebola virus is still obtained for anniversary date to genocide dark tanned in south Africa by tall 9ft tall Chuy Hernandez a Saudi Arabic impersonating a Caucasian or Latin and in 1902 in Delano CA 93215 two hundred persons died of brain tumors and cancer in 1902 all dead. In 1948 all Delano CA residents died or killed by a ebola pandemic or Aids pandemic or pneumonia in 11 months in 1948 or 1949. I was in quarantine 14 days when ebola broke out in Africa and in Ohio two FBI agents died of ebola similar and two FBI agents died in Idaho of ebola similar and AIDS after 11 months was viral microorganism and CDC was notified and six fbi agents on the ebola and AIDS viral were murdered and we have the medicine for HIV Aids since 1938 and 1939 healthy with HIV Aids and medicine only at San Diego CA military base marines who won't release it to the United States, a terrorists act. So most disease is a microorganism made by New York City military base in United States by men 9' and Bob Mueller in the White House his nephews are Chuy Hernandez and Chuy Cortez Gonzalez in military base New York area who use ebola virus every anniversary of first outbreak and use COVID-19 spray and liquid all United States and countries for genocide of Caucasian and all. Bob Mueller FBI agent and Wray at the White House President of the United States office and are military since civil war and WW 1.

  • @gordonhutchison9647
    @gordonhutchison9647 Рік тому

    I worked with trico it was used to expand the rubber hand grips on golf clubs and other goods that required it, I had to turn the water tower on to help keep the fumes down when the rubber hosing was submerged. I liked the smell and you knew you'd been working near it because you'd be stoned almost.

  • @jeffreyconnor9769
    @jeffreyconnor9769 Рік тому

    The US is a corporate fascist dictatorship.

  • @jamesreyer1174
    @jamesreyer1174 Рік тому

    All talk and no resolution. No with the Republicans 😅😅😅😅

  • @MyPDDaily
    @MyPDDaily Рік тому

    Wow! I’m so glad the Levadopa works for you so well!!!

  • @clausdnk5163
    @clausdnk5163 Рік тому

    Thank you Larry

  • @gloriafriedman53
    @gloriafriedman53 Рік тому

    I used Teva than Sun and while Sun was noticeably weaker. It's probably been 5+ years since I've allowed any other brand but I 've run into rumors of shortages anyd the quality of my last two 90day supplies has been noticable decreased. I don't have the name with me but it's round with no score but luckily it cuts ok and I think it is stronger. Almost all my meds haVE changed brands recently and I seem to get dyskenesia, headaches or body aches with many of the changes.

  • @juliet-m31
    @juliet-m31 Рік тому

    💫Thank you for sharing your experience. Something that changed my life overnight and I tell everyone: 😊 I personally switched from generic cd/ld to the brand name, Rytary, last March and I have to say my side effects from severe fatigue, dizziness upon standing, dry mouth, tearfulness, and terrible dyskinesia (for me included terrible racing thoughts and anxiety!) subsided. My life improved 100%. That's just my story. 😊 Also, I must add: I also realized with the generic, I felt as if it was only getting to 70% of my body. Meaning after trying the Rytary, I could feel my shoulders and feet and hands. Sounds strange but again Parkinson's is so weird, is it not!? Thanks for all PD avengers does Larry!! ❤

  • @denjelanil2992
    @denjelanil2992 Рік тому

    😮

  • @MyPDDaily
    @MyPDDaily Рік тому

    Fabulous! Thanks so much! I needed that! 😅

  • @BruceKemper-n8d
    @BruceKemper-n8d Рік тому

    So there is no cure yet? So getting the government involved will solve it. Mmm , I’m not impressed.