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myFace
United States
Приєднався 28 бер 2018
Відео
S4E39 myFace MyStory: Two Sides to a Face: A Journey from Adversity to Advocacy
Переглядів 8221 день тому
On this month's myFace, myStory podcast episode host, Dina Zuckerberg, is joined by Chelsey Peat, born with Sturge-Weber Syndrome, and recently published author of her memoir, Two Sides to a Face. She will share her journey from childhood, marked by curiosity and challenges due to her condition, to her current achievements and advocacy work within the facial differences community. She hopes to ...
myFace is Beautiful - Anibel (revised)
Переглядів 862 місяці тому
myFace is Beautiful - Anibel (revised)
S4E38 myFace, myStory: Finding Courage, Finding Self
Переглядів 2722 місяці тому
On this month's myFace, myStory podcast host Dina Zuckerberg is joined by David Cohen, recipient of the 2024 myFace Courage Award. David talks about the dark twists on his journey of hope to acceptance of his life with Pierre Robin Sequence to who he is now. He shares what he thinks should be happening to support children and adults in the craniofacial community. Sign-up for Email Reminders at ...
A Kid Like David
Переглядів 1492 місяці тому
"myFace is a community that shows me that I'm not alone, and that gives me the ability to show others that they're not alone. If this story can help people...if this can be a contribution that I leave behind...what better service is there?" - David Cohen On Wednesday, June 5, 2024, myFace hosted its annual gala #myFaceCelebrates - A Journey of Hope: Past. Present. Future. One of the many highli...
S4E37 myFace, myStory: Stronger Together with Megan Gaydosh and Tiffany Kerchner
Переглядів 1492 місяці тому
S4E37 myFace, myStory: Stronger Together with Megan Gaydosh and Tiffany Kerchner
S3E36 myFace, myStory: Advocacy - Be The Change with Melissa Tumblin
Переглядів 1773 місяці тому
S3E36 myFace, myStory: Advocacy - Be The Change with Melissa Tumblin
S3E35 myFace, myStory: Challenging the Status Quo with Musician Austin Halls
Переглядів 1104 місяці тому
S3E35 myFace, myStory: Challenging the Status Quo with Musician Austin Halls
S3E34 myFace, myStory: Expanding the Concept of Beauty with Model Justin Stewart
Переглядів 1515 місяців тому
S3E34 myFace, myStory: Expanding the Concept of Beauty with Model Justin Stewart
S3E33 myFace, myStory: Rebuilding a Life After Facial Cancer
Переглядів 846 місяців тому
S3E33 myFace, myStory: Rebuilding a Life After Facial Cancer
S3E32 myFace, myStory: Don’t Stare, See Me: A Conversation
Переглядів 5107 місяців тому
S3E32 myFace, myStory: Don’t Stare, See Me: A Conversation
S3E31: myFace, myStory: Taking Center Stage: A Mother and Son's Journey
Переглядів 3228 місяців тому
S3E31: myFace, myStory: Taking Center Stage: A Mother and Son's Journey
S3E30 myFace, myStory: Hiding Behind A Mask: A Conversation with Mary Avela
Переглядів 1239 місяців тому
S3E30 myFace, myStory: Hiding Behind A Mask: A Conversation with Mary Avela
S3E29 myFace, myStory: Clefthood: A Conversation with Father and Son
Переглядів 11410 місяців тому
S3E29 myFace, myStory: Clefthood: A Conversation with Father and Son
S3E28 myFace, myStory: The Psychology of Facial Differences: A Conversation with Dr. Kathleen Bogart
Переглядів 24311 місяців тому
S3E28 myFace, myStory: The Psychology of Facial Differences: A Conversation with Dr. Kathleen Bogart
S3 E27 myFace, myStory: Facial Difference as an Underrepresented Disability with Sora J. Kasuga
Переглядів 174Рік тому
S3 E27 myFace, myStory: Facial Difference as an Underrepresented Disability with Sora J. Kasuga
Don't forget RLM superfan and dedicated Rich Evans instrumentalist!
I feel like he's trying to look like his doner on purpose cuz his doner had long hair too. It's creepy. He looks just like his doner. I don't like it it's weird as fuck.
Yessss he’s looks great and his nose is beautiful AF I just scheduled a consultation with the surgeon that did his work on him so I’m glad to see that’s I’m in good hands ❤❤❤❤❤❤
God bless him….
I am also a Bacchus from jamaica and would love to meet you guys
Hey, Logan, you truly are an amazing person, and and a very, very inspiring one!! We relate, you know, as I do have facial differences and blindness as well. Keep it going, my friend!
There are no words!!! Truly inspirational
You go girl!!! I'm going to donate right now and I hope you have a great turnout. Best wishes to you ❤
Beauty is the way your soul and intelligence and personality shows up in your face. People think the Kardashians and such are 'beautiful' and that's so weird. There's nothing there in those faces, it's like a mannequin.
What a Beautiful Man.
“we have been judged based on our appearances our whole life, our whole life, that is unacceptable” that really struck a chord with me
I opened this comment section fully expecting the worst scum of humanity and all their prejudices in full display, but was pleased to discover that the first two comments were of wholesome and sincere nature.
That face, that heart, that soul …I am honored to be your friend David Cohen.❤️
Love this, ladies! Thank you for sharing! My two year old son has Apert Syndrome.
Thank you for sharing your stories!
Love this! My 2 year old son has Apert Syndrome!
Hi! Pradip , Dr Anil Malik here , I remembered from our IOS conference days years back. Your Uncle introduced you to me . Proud of your Work in USA. Keep in touch.
:)
Can someone educate me as to why he speaks like that? Like it looks like he doesn't have much autonomy or control over his facial muscles.
?? Because he has foreign tissue attached to his face? Do u really think they can match every single nerve in his face to the donor tissue? These never work, tissue always get rejected, they can only slow it down and the life expectancy is really bad, 10 years or so. These stories make the public go "wow" but try to get an update after 5 years... you will find none until the obituary eventually pops up.
Девочки, спасибо за ваши истории. Они вдохновляют. Моей девочке с синдромом Аперта всего 4 года. И я рада была на вас посмотреть! Удачи вам и счастья! Дина - у Вас не Аперт?
I have a disabled child. Shes so beautiful 🎉 Shes been so abused,by her own family all of them.Makes me sick!
This excites me sooooo much ! I cant wait to see it :)
Great Conversation...
Wonderful mission. Truly inspirational. Thanks for all you do myFace!
Great discussion! So important to hear and learn about your perspectives and research Dr. Bogart!
Mary - thank you for sharing all your wisdom! You are incredibly brave, courageous, and you articulate your challenges so well. Thanks for helping so many others through your own journey.
❤❤❤❤❤❤❤❤❤
Why did a attempt suicide get this and not a US veteran who lost their face in war?
Because a US veteran would commit war crimes AND attempt suicide.
Это история о любви и вере в своего прекрасного и талантливого сына ❤❤❤. Успехов !!!
So so so proud of Logan.❤❤❤👍👍👍
You are looking great!!
Right.
🦘
Cameron. You look amazing and you are so brave with everything you have been through ❤
Will he ever regain the ability to talk normal in a couple years?
No
This is so heartwarming and sweet ❤
No está lindo, pero pa lo que estaba...
Dude you look great.
How can I make contact with u guys
Hello guys
Really appreciated this podcast. Y'all bring up so many points that resonate with my experience and is helping me a lot during a difficult time of self-doubt. Thanks so much for sharing your stories!
I heard that about me, that my smile change, and they found me weird, the older siblings. I'm the youngest child.
As a parent, you can only control a few basic things, and at the end of the day, your child is going to be who they are going to be. The only thing you can do is love the child as much as you can and hope for the best. There is nothing you can do to with a why, as this is not going to change the situation. I had a small fear of having children as a result of heredity, but once they were born, you love them just the same. I stopped testing after the first child. LOL
nice
reply plz
hii
thank you girls for sharing your stories. My son just turn 1 he has Apert. Hearing about the siblings and the parent advice was great
Very cool doctor and great guy…
Hey Morgan!! Small group girls foreverrrr