Відео

After 18 years I quit rebif and will be starting ocrevus soon

Look into parasites. Some doctors found that the lesions in your brain are caused by parasites. Please look into it

Hi, I ended up in the ER April 16 of this year 2024, thinking I was having a stroke. My left side of my face up to my head went numb and I felt completely off, I almost felt like I was going to fall to the floor. My husband took me to the ER they did CAT scans and then they did an MRI on my brain, the doctor came back and said that he saw some white matter on my brain, but it wasn’t anything unusual that he didn’t see quite often in the ER so while I was there, I had three bad anxiety attacks. He told me to follow up with my doctor, but he wanted to diagnose me with severe anxiety. So I went to my primary care physician, she sent me to Neurology. They did all of the testing, blood, BAERS. I was sent to a heart doctor so that he could rule out anything with my heart which it turned out completely. OK there. So today I went back to Neurology after I have been through all of these different doctors that were set up for me to see, from physical therapy, to rheumatology, which I was extremely high on my titers and the AA was over the chart. The rheumatologist told me I had Sjogren’s disease. I got that diagnosis yesterday July 31. So today I’m in the Neurology following up with all of the things that have been done to bring me back to her office to discuss, and she says that she wants me to do a spinal tap which I’m scheduled for soon, and that will definitely determine if I have MS. She did say the autoimmune disease could be the main issue at hand but the lesions on my left side of the brain being her to conclude that I need a spinal tap. So I guess I’d like to know why you chose to not have a spinal tap? To be honest I’m scared stiffness of this whole thing. My right leg has this weird pain off and on, but it doesn’t do a lot of people with MS does, give out and I haven’t had that experience on a regular basis. It did do it that one time I felt like my legs were gonna go out from under me during the facial numbness. to be honest at that time I thought I was having a severing anxiety attack, but it was just very different than the ones I’ve had in the past. I know I’m kind of rattling off on this comment, and I’m sorry but again I guess the final question I have for you is why didn’t you have the spinal tap?

I was diagnosed with multiple sclerosis in 2008 at age 32 I've been dealing with ms for 16 years now im 48 ive had weaknesses in the left leg fatigue blurry vision short term memory loss bladder bowels cold weather and warm weather

I hope you're going well

I hope you're doing well

What about seeing random flashes of light? Lately I've been seeing random flashes of blue or green for maybe a split second and I think I'm just imagining things as it goes away quickly. I get my eyes checked every year and have no concerns expressed by my doc. I've had symptoms related to MS, told my Rheumatologist and she has ruled my symptoms more aligned to Fibromyalgia. I saw a neurologist first and she referred me to a Rheumatologist after I tested ANA positive. I did that nerve test and everything came out fine just a little weakness with my left side of my body. Blood tests ruled out no autoimmune issues nor nutritional deficiencies. Should I ask to be tested for MS?

Yes I have Ms of the spinal cord in my back at sixteen years old I have to s

My Neuro started calling mine dystonic spasms and tried to convince me they weren’t seizures, but now I’m having full blown tonic clonic seizures. Mine are brought on by nausea and vomiting episodes that have been chronic. We assumed it was due to rapid fluid loss but now we think the nausea and vomiting is connected to seizure like activity in the same area of the brain. Friday nobody was home and I was alone. It happened while getting out of the tub. My second to occur this way. This time I lost consciousness, for awhile it seemed. I kept trying to get to the next room to my ipad to text my mom since my phone was too far away. It took 5 tries to type “Seizure” I couldn’t move at all for about 30 minutes. I’m now looking into a life alert type system and I’m overwhelmed by the choices but I think it’s a must for anyone having seizures. Thanks for sharing your own challenges with us. I hope you are doing well right now.

It took you 5:26 to get that out where as someone without Ms would have been able to say it in 30 seconds. That’s the issue with us MSrs. Our brain isn’t working well. I noticed since I got diagnosed only 6 months ago I find myself confused and not as sharp as I once was.

Youre not silly. (EVER) Youre a Trooper & an Angel for sharing knowledge while Going through all this. You give validation to many anonymous sufferers. Thanks. I get Myoclonic Seizures caused by Heat. I only learned recently that Random HICCUPS are part of this type of Seizure Activity. Its a TELL for me when I get Hiccups. That I'm not in good shape.

It always worries me that MS drugs suppress immunity and ability to fight infection given that I was told that 85% of Cancers are Born from Infections. As Such ~ Double Edged Swords? Don't know if that's True

OMG Sara. Much Love to you.

⚠️ I have No Filter today as I'm Sick n Tired of being Sick n Tired. Anyway! 🫴ALWAYS listen to The Patient. I hear Veterinarians ALWAYS saying, If Only the Dog or Cat or Bird could 🗣️ It Would make Diagnosis a Lot Easier. Yes Doctor! If the Hot Bath method was still an accredited alternative Tool for those who CANT Have an MRI, then I Think someone 🩺 would have prescribed Copaxone® ages ago. Because my (Full On Warp Speed) First Exacerbation was in a Hot Tub in 2007. And the Young Woman in there WITH ME was more concerned for My Welfare that Day, than any other Elite Professional has ever been. Thanks "Dr Bambii" (Not her real name). See! No Filter & 100% Honest like a Cööl Finn

@Sara wouldnt the correct vocab be have? not of??

PT I found was not very helpful.

I love this so much I have been fighting MS for 18 years and been on several different medications then I found my magic juice!!! I was on it for 4 years then due to insurance reasons I was out of a neurologist and Tysabri for about 7 months I had a flare up that turned my world upside down 😢 I'm just starting to feel better after IV steroids and a wean off. The neurologist wants me to start Ocrevus but I think I want to go back to Tysabri my magic juice

Correct me if I'm wrong, it sounds like these drugs are not very effective. I remember years ago taking Rebif ,the needle jab in the gut, I quit that one quickly as it made feel like it was simply killing me. I have only taken medications since to try to alleviate pain. Hang in there girl!😁

Thank you.

I am noticing that people that have had covid 19 vaccine shots are getting MS

I used to get sores on my upper back and shoulders really ugly, and they would pit and get deep and have like a Puss drainage for a while & they took forever to heal up. I had went to the doctor for another problem and when he was listening to my heart, he also listened on my back and he saw the sores and he ask if I had MS I ask him why and he said oh I saw your sores do people with MS get soresI’ve had sores for years and they’re nasty ones. I do have a few of the other symptoms but the doctors always look at me and say oh you’re fine.

I had many of your symptoms, and more. My right leg was paralyzed for a couple of months, then came out of it. Have lesions on brain scan, have the same sense when walking, that my legs will just give out and I won’t make it back. Have incredible sensitivity to heat. They finally figured out my illness is late stage Lyme disease, I’ve had it 34 years now.

In 2017, The right side of my body went numb from the chest down. I was scared that it was diabetic neuropathy (since diabetes runs in my family), but after my glucose test came back normal, my PCP believed it might have been a pinched nerve causing my numbness… Fast forward to Oct 2023, I had a really bad case of COVID and started losing vision in my left eye. The minute my optometrist said I needed an MRI on my eye and BRAIN, I knew something was wrong. After I had those scans and met with the doctor the next day, that’s when I was diagnosed. When I think about it now, I feel like I’ve had for a much longer time, likely towards the end of high school/early college? That’s when I started having cognitive/memory issues. As odd as this might sound, I feel a sense of relief from this diagnosis because I struggled to understand my issues. I’m just happy I have answers now and can work towards managing this disease!

Can you provide an update? 🥺 Even if you don't film a video but a community post. I hope you're well.

I have vague weird symptoms for literally two decades and doctors think I am still in too good shape for it to be MS. So, sometimes, it's probably a neuropathy or something. My symptoms lasted from couple of days to couple of weeks and were quite sudden on onset: vertigo, dizziness, really overactive bladder (can't do without bathroom literally 2 minutes), a bit more blurred vision than usual, face twitching and twitching on other body spots, weird unexplained pains mostly in neck (real bad), also ankles, wrists, feet, back, and the one I have the longest: unexplained itching, mostly in lower legs, that got worse and worse in time and sometimes it's borderline pain (does not last long though). So it kind of can be nothing, but I don't know, it's weird.

I hope you are doing well. It's been long since you posted. Sending prayers and love 🙏🏾❤️

Get checked for hidden infection s Dr Richard Horowitz if in America

Thank you for the information and sharing your life with us

You are such a strong person. You truly are an inspiration. Stay strong, my love 🩷

I am currently in the process of getting a diagnosis. It was your videos that gave me that push to stop suffering alone and get help. I appreciate the work you do, and I appreciate you ❤ I wish you and your family all the very best for the future ❤

You're doing great work. I've no doubt you will help many people, suffering in silence. Thank you ❤

I just went through the whole comment section. SMH! All those Dr. Alaho Ohu ads. Anyway, can you believe I (a male) developed MS after a bicycle accident? I was 34 at the time. Symptoms started showing 5 days after the accident with middle back pain and numbness in the tips of my toes. I was diagnosed with MS two months later. The neurologist professor Dr. said I had a dormant gene and the accident triggered the illness.

Oh Sara it has been a while you posted anything so i am hoping you are alright...Sending you strength and love❤

It's been a minute i hope she is still doing as best as she can be.

Thank you.

Thank you Sara. Now I know 👍🏽❤️❤️❤️❤️

Oh my goodness!!! Our stories are nearly identical except for the vision part! I AM having issues with my vision but not like yours. My best friend has had MS for quite some time and she keeps telling me I need to be checked out but I also have “fibromyalgia” (yes I know it’s not a real dx but the description of symptoms) and other things yet every.single.time my blood work is tested I am always within range of whatever they’re testing for. I also DO actually have some other dx but they are basically ignored though I continue to ask for help with them. Never been tested for MS to my knowledge though. It’s hard to hear visit after visit, year after year, decade after decade that even though my life is physically INCREDIBLY hard and I can’t do what ppl my age should be doing that “we didn’t find anything”, “you just need to be more active and loose some weight”(which is next impossible bc of PCOS) or my favorite 🙄”there’s nothing wrong with you and you should be ashamed for having pity for yourself. There are people out there with health issues much worse than yours”😢😢😢 Yep, a real rheumatologist said that to me. Anyway, I just figure, what’s the point. Nothing ever comes of anything yet I, my mom and aunts all have these same issues. I’m just so tired of feeling like crap and being told I’m a hypochondriac (by my mother who was experiencing the exact same symptoms), lazy, fat, unmotivated etc.

My Mom was a quadriplegic, died at 55. MS SUCKS!!

Everyone with MS should check to see if it started with Lyme disease. DNA connexions test is a urine test at home. It will check your urine for the DNA of Lyme.

I think about you often and hope you are doing well 🙏🏻💞

I have had it from 2019 and it is murder

_I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplements🌿🌿_

_I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplements🌿🌿_

_I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplements🌿🌿🌱.._

_I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplements🌿🌿🌱.._

_I am so happy for my Sister, she got cured of her Multiple Sclerosis just few weeks of using Dr Madida Sam herbal supplements🌿🌿🌱._

DR ALAHO OLU on UA-cam Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES…………

DR ALAHO OLU on UA-cam Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES…………

DR ALAHO OLU on UA-cam Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES..

DR ALAHO OLU on UA-cam Channel you’re indeed a great and trusted traditional and holistic herbalist, he cured me and my wife from Multiple Sclerosis, he also has cure for HPV, HSV, HIV, FIBROID, ALS, CANCER, LUNGS DISEASES..