Відео

This is a collection of testimonials from the PKU (phenylketonuria) community in the UK about the work of its National Society, and how the NSPKU helps.

PKU (phenylketonuria) was first described in 1934 and first treated in 1951. In 1973 the NSPKU (National Society for Phenylketonuria) was formed and now celebrates its 50th Anniversary - here we show a timeline of PKU and NSPKU progress. Please share this film far and wide with all your family, friends, workmates, schools and more, to raise awareness of PKU and the NSPKU.

This is a 73 page photobook shown as a video/slide show. The photobook is kindly made and shared by Anita MacDonald and the metabolic dietitians at the Birmingham Children's Hospital. Thank you for this great resource.

This is an 82 page photobook shown as a video/slide show. The photobook is kindly made and shared by Anita MacDonald and the metabolic dietitians at the Birmingham Children's Hospital. Thank you for this great resource.

Explaining exactly what are protein substitutes, why they are vital in the PKU diet, how to take them and more. You can replay and re-watch this as many times as you want

Everything you need to know about reading food labels and working out exchanges if you have PKU. Replay and re-watch all or part of this as many times as you want.

Join us in understanding and appreciating the effect John Noble-Nesbitt had towards how PKU is today

Come hear Susan answer questions from the PKU community

Join Christine with a trip down memory lane to the PKU diet in the 1960s

Come join Professor Protein and his amino amigos for some fun and games!

Join Louise and helpers in a fun filled exercise session on International PKU Day 2021 Comment below your thoughts!

MPs Question Time

Liz Twist MP Awards Ceremony

Cary Harding - International PKU Day 2020 Presentation

Sheila Jones - Unlocking the Diet for PKU - Anne Green Presentation

Cameron's Thoughts on PKU

Sheila Jones - Unlocking the Treatment for PKU - Anne Green Podcast

The patients priced out of orphan drugs BBC Newsnight

PKU : Hungry for Change

NSPKU 2019 Conference | Tom Chimiak | Me & PKU

House of Commons 21/03/19 - NICE Appraisal Debate

The Legacy of Professor Horst Bickel

Patient Voices - Elizabeth & Louise - PKU

Patient Voices - Elizabeth - PKU

Patient Voices - Denise & Jack - PKU

Patient Voices - Amy & William - PKU (Kuvan)