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Having epilepsy, seizures and EXTREME depression lately, I feel this SO deeply in my core... I can't even explain it 😣😣 thank you so much for sharing this... it was incredibly helpful 🫂❤️

Can doctor diagnose its epilepsy without seeing the scan report?

Also a great thank you to tell about epilepsy. I have myself epilepsy for almost 30 years and not much help from the neurologist and the society and that makes me sad that I not get any help. Okay I get 5 forms of antiepilepticum and for safe Stesolid Rectal 10 mg. Thank u for reading

Hi , what happened to Carlos from chanell Electric Epileptic? Maybe you know?

I also have had epilepsy ..( from birth ) to the best of my knowledge , although it was not diagnosed until I was 12 ... Meds are not always enough to control the episodes , If it's controlled by meds - Always count yourself lucky ......

Had first time seizure in December.Been on meds ,levetiracetam since.Need to come off them slowly there making me groggy all the time.Horrible not knowing when my next seizure will happen.Keep safe.

I just got my first seizure two days ago on the 01-01-2024 and was admitteded in ICU for two days doctors were not able to find out the reason why I got the seizure and now I am on medications.

Thank u for making this video. I know its a few years old now, and i hope you’re doing ok. I just had my first 2 seizures a couple days ago (im 28) and im still really scared. They dont know what caused it but its nice to know someone else went through something similar

Thanks for this video 🙏🏻 I resonate with a lot, anxiety and depression is entangled with epilepsy for me and lots of levels, because of fear of death/seizure/my life isn't gonna change, Because of the medication causing a bit depression and brain fog, frustration from memory issues classic for epileptics, and depression from limitation in life. However i don't believe it's a game over like you say. CBT, meditation, TRE, sport, cold showers, yoga, therapy, mandalas, dancing, sharing with friends, all are useful May we all accept ourselves as we are with the epilepsy and in the same time heal Peace and all the best!

You got to sleep during yours? Lucky you! I had 2 EEGs in my mid-teens, and I was awake for both of them. The first one wasn't successful because it was set it up for children, so they had to try again a few months later but set it up for adults. Neither were a picnic

I have had epilepsy pretty much my whole life other 8 years without having one

❤

I’m 25 years old and I just had my first seizure about 5 days ago. I can’t really remember any of what actually happened but I have low key been freaking out since. Especially since I have to wait about 3 weeks before I can see neurologist and figure out what’s going on.

I’m an epileptic too, and I hope it gets better! 💯

Hey, I don't know if I should say this but I'm just leaving this here. First thing is, you are so much more than your epilepsy. Having thoughts around these things is completely valid and inevitable during times like the pandemic where you don't have this that engage you away from overthinking. But trust me you have an extremely likeable personality. Also, if he leaves you because of epilepsy or because of anything else, you just dodged a bullet right? The one who is meant to be will accept you the way you are. People without epilepsy are in no way more perfect. Don't think of yourself like that babe. I know I'm just a person online giving you unsolicited advice, but please always come back here and leave me a comment if you feel dull? Okay? :)

I’m not sure if this is the Epilepsy I was diagnosed with when I was 2 but I’ve been photosensitive as far as I remember. I had my Seizure Tumor surgically removed when I was 8.

I was diagnosed with Epilepsy when I was 2 and had my Seizure Tumor surgically removed when I was 8. I’m still Photosensitive at 30.

Hi can you help about the seizure?i am a pilipino person or live in the Philippines.

You absolutely bloody rock!

I have to get one in 3 weeks and im so scared

I got my mother to accompany me to mine ( pre Covid ) and she didn't take one single picture of me ( with permission ) during the process - just a load of selfies because she forgot to flip the image round 😁 Hope your results are favourable. Take care 👍 ☺

Heya, ive had two grand mal seizures in the past year, the first ones, (skull fracture as a kid as well) and also have PTSD. this channel is really good and if your aim was to help at least one person then youve done that. its good to relate.

Nice to see you after so long! I'm also vaccinated because of my epilepsy and it's so exciting! I got the Oxford AstraZeneca vaccine and was fine for the day... right up until the evening when I started shivering quite intensively and got a heavy night sweat while sleeping. The next day felt like shit in the morning, where I was disoriented and fatigued. Still managed to get a 45 minute walk done so it wasn't too bad.

I watched cartoons after my one too 😁❤️ glad it was a positive experience for you too!

Hi! I'm a brand new subscriber. Watching from London.

Sorry to hear that you won't be uploading as often, and I am truly disgusted by some of the stories around that you mentioned. I wish you all the best with your health and your ambitions. Take care!

Epilepsy just plain and simpley sucks big time, and people might think oh your depressed because you pull seizures but they don't know there is much more to pulling seizures, I suffer big time depression from taking the medications for epilepsy it really takes a toll on you from taking it a long time , the side effects i suffer from it is terrible, I have epilepsy 11 years this year and like when you first get diagnosed with it, it's just like all new to you and don't see it as a big deal but as the years go on you can feel your mental and physical health changeing, so you do start looking at epilepsy a different way, but sure what can we do, we have it just may take the bullet and get on with it 😕 anyway hope I didn't depress ya to much my names stephen from Ireland 🇮🇪 love your video your not alone trust me on that one

Thank you for speaking about this.

I love you zoe keep going x

growing up my little sister had seizures and the first one was horrifying. none of my family had any experience with it. im glad you are bringing awareness and knowledge to people about it. keep it up and stay awesome :)

I'm certainly a depressed person. I woke up from a seizure and they told me a similar thing "your seizures just wouldn't stop you were hospitalized and you could have died" it wasn't my first seizure. For some reason this didn't scared me though. It kind of made me feel like less scared of death? Like I've never been scared of dying. Like I would never kill myself. I'm not suicidal. But I'm super depressed. But death I'm fine with. Anyways. depression is the worst. I feel the same about my epilepsy it can make me really depressed cause I just can't do quite as much as anyone else. I tried to go to college but I just couldn't do it my brain fog and in general I just couldn't handle it. I've been depressed for quite a long time. I can't drive, cant be alone and all that. My anxiety is quite out there has been since I was a small child. Thanks for the video about being emotion crying is something I did as a child and now I rarely do cause I was so pushed against cause I'm male so of course not I have recently more. It's hard to though. I feel like I've meant to be sad but I just can't sometimes, i rarely get happy but I guess thats depression. All the medications I'm on make me just feel like I'm like half awake or exhausted all day and I can't switch any of em sadly. I hope my rant like thing made since to everybody. Thanks a ton for the video it's really helpful

I take Keppra (Levetiracetam) and Lamotigine its fun that I'm on both lol cause I took keppra for a while and knew that caused the mental effects you said. Being on both makes me even more drowsy sucks. My short term memory sucks but I've read from a lot of fellow epileptics that it's common with just epilepsy in general. A lot of these medications will slow down your brain from what I understand to and I can have a harder time recalling words like a feeling of it being on the tip of my tongue. To anyone out there who feels similar it's quite normal don't worry. I understand I've had epilepsy for quite awhile it be quite a pain but we're in it together dw educate yourself and your family. Hopefully I've explained that well. Much love to all.

i loved seeing the more soft/sensitive side of duncan. and seeingthe relationship that you both have is so sweet and loving. I love that you're using this platform for awareness. I see you doing great things <3

I’m so happy to see a channel that does stuff on spreading awareness for medical conditions and mental health. I suffer from mental health issues myself and this brings me joy. Btw great vid

This was such a great watch. As someone from America with Epilepsy I can confirm our medicine is not cheap by any means. As far as the noise when you were younger I believe I had similar experiences, as well as experiences of feeling like being a burden due to epilepsy. Epilepsy does suck but it makes no one a burden, that’s how I view it even though I have to be reminded lol. Again great video and I can’t wait to see more!

I've had almost the exact same experience with lamotrigine! Glad to know it's not just me :)

Please always stop lamotrogine immediately if you develop a rash. It can be fatal, it’s called Steven Johnson’s syndrome. Doctors will tell you to stop immediately in that case and also seek medical help ASAP.

I got quite emotional watching this! Im so proud of you for being so brave and facing what I realise was an immense fear for you sweetheart - I can relate very well to that intense anxiety you feel in certain areas x

Music is an excellent and empowering therapy. Bon Iver helped me out of so many holes in my life, I feel skateboarding is probably your escape for this too. We’ll all beat this one day.

well done zoe <3 even just going to a skatepark is scary enough on its own let alone having PTSD surrounding it. Proud of you xx

I'm so happy for you that you went back! So proud 💜 every moment counts and even "little" victories that may seem small to others can be so big and amazing in our hearts when its such a breakthrough 💕 I smiled so much through this 😊 congratulations on 3 months and to many more 💜

Did you read the side effects before taking the meds, as sometimes it is mental. I just started with lamotrigine and nothing yet, hopefully I don't get any after watching your video.

I have a mix of lamotrigine and valproate. Lamotrigine hasn't really given me a noticeable side effect, but valproate sucks. Hair loss, weird dreams, weight gain (but I controlled it now), and general cognitive impairment. It really sucks when you're a student.

Yea I’ve had a lot of those side effects as well. The emotional control hits hard. Always feel angry about something or get a very short temper. Also, the tired aspect is horrible, it feels like you’re always somewhat sedated. Although not a listed side effect, the medicine has given me terrible short term memory. I never actually realized back pain and clumsiness were side effects but it makes so much sense now. Thinking back on it I never noticed them until I kept getting higher dosage on the meds. I completely agree, this stuff does take a toll on your mental health.

It was a genuine pleasure to talk to you! I hope we can collaborate at some point again in the future :) x

Hahaha that brought a smile to my day 😄 love your humour

Thank you so much for sharing! 💜 I'm 25 and just under 2 years since my first seizure. It is scary and sometimes it's unbearable, I'm gladly luckily seizure free for 2 months now which is awesome but the side effects of my medication are crap and this whole condition is crap The more people -especially people who got diagnosed in around teen-twenties like I did- that share stories it helps me to read and hear. So thank you! I hope its worth making any of your content because you at least helped me 🙂 Here from the epilepsy subreddit 💜

Yea, I know exactly what your story is like. My experience of my first seizure and the effects it’s had on me is very similar. I’m also taking Lamotrigine for 900mg a day

I was around the same age when I had the first one. You're right... things just aren't the same after that.

I have epilepsy and I subscribed as soon as I saw this video. I agree with you that not enough people talk about these kinds of conditions, and they're often misunderstood as well. I find myself having nobody to speak to who actually understands what I feel and go through.