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Two Disabled Dudes
United States
Приєднався 25 лип 2018
Insightful, authentic and humorous conversations about living beyond our circumstances, no matter what those may be.
Sean Baumstark and Kyle Bryant are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities.
However, both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM).
Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Their guests include leaders in the Rare Disease community, Paralympic athletes, notable Psychologists and accomplished public speakers and authors. This podcast is about setting sights beyond the challenges in life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster and practical thoughts that app
Sean Baumstark and Kyle Bryant are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities.
However, both dudes have completed several long distance bike rides including “The World’s Toughest Bike Race” - Race Across America (RAAM).
Kyle rode his trike to the top of the highest paved road in North America and Sean ran with the Olympic Torch. Their guests include leaders in the Rare Disease community, Paralympic athletes, notable Psychologists and accomplished public speakers and authors. This podcast is about setting sights beyond the challenges in life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster and practical thoughts that app
260 - Our Perceptions of Disability Were Wrong
In this final episode of 2024, Sean and Kyle reflect on their evolving perceptions of living with Friedreich’s Ataxia (FA) and how their expectations and outlooks have shifted since their diagnoses. They dive into topics like adaptive technologies, changing friendships, and how urgency influences their goals and priorities. Wrapping up with heartfelt thank-you notes, the duo celebrates the impact of community and innovation.
Listeners are invited to embrace reflection, celebrate their progress, and prepare for a new year of possibilities. Email us: thedudes@twodisableddudes.com or comment on Instagram ( 2ddpodcast) or Facebook ( TwoDisabledDudes) .
Listeners are invited to embrace reflection, celebrate their progress, and prepare for a new year of possibilities. Email us: thedudes@twodisableddudes.com or comment on Instagram ( 2ddpodcast) or Facebook ( TwoDisabledDudes) .
Переглядів: 9
Відео
259 - If Sean & Kyle Won The Election
Переглядів 82 місяці тому
In this thought-provoking episode, Sean and Kyle discuss what laws they would institute if given ultimate power. They each introduce three laws that would benefit individuals with disabilities and promote greater understanding among all citizens. These ideas spark a powerful reflection on the need for empathy, inclusivity, and social responsibility. Listeners are encouraged to join the conversa...
258 - Navigating Setbacks: 4 Tips for Gaining Momentum
Переглядів 53 місяці тому
In this candid and deeply personal episode, Sean and Kyle tackle the emotional and mental struggles that come with setbacks-whether from injury, burnout, or life's unexpected challenges. Sean opens up about his difficult recovery journey after a recent injury, where even though surgery wasn't required, the road to getting back on track has been much longer and tougher than expected. With vulner...
2DD Podcast | 248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
Переглядів 103 місяці тому
The Two Disabled Dudes Podcast is about cultiating the courage to live life beyond circumstances. Available wherever you find podcasts. twodisableddudes.com
257 - Journey to the World's Highest Road, Part 2
Переглядів 33 місяці тому
In this episode, we recount a challenging experience during our cycling trip in the Himalayas. Sean shares the story of his accident, where he was forced to brake hard on the trike, causing it to flip and throwing him to the ground. The impact left him with severe pain in his shoulder and hip, making it difficult to breathe initially and leaving him unable to continue the ride. Despite his init...
256 - Journey to the World’s Highest Road, Part 1
Переглядів 23 місяці тому
This episode kicks off Season 12: An abbreviated season. After eight years of consistent publishing, the Dudes are scaling back for the rest of 2024 in order to fine tune the show, focus energy elsewhere, and just catch up on life. This season will consist of five episodes, one for each month through December. Regular, weekly episodes will resume in February 2025 with Season 13. The reflection ...
255 - Season Finale - We’re Riding the World’s Highest Road
Переглядів 23 місяці тому
In the final episode of season 11, The Dudes discuss their major upcoming event: a challenging 200-mile bike ride in the Himalayas - to the top of the world’s highest paved road - over 19,000’. They talk about the logistics, the elevation challenges, and their preparation, including the use of altitude training masks. They also address concerns about food, accessibility, and health, highlightin...
254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment
Переглядів 103 місяці тому
This episode (254) features an interview with John Crowley, who shares his journey into the rare disease space. John's involvement started in 1998 when his daughter Megan was diagnosed with Pompe disease, a rare form of muscular dystrophy. Determined to find a cure, John and his family embarked on a journey of research and entrepreneurship, ultimately founding a biotech company that developed a...
253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases
Переглядів 43 місяці тому
Rob Long shares his journey with Uplifting Athletes, an organization dedicated to leveraging the influence of athletes to support those impacted by rare diseases. Rob and Brett Brackett took over leadership in 2018, revitalizing the organization's mission. They have several powerful initiatives including The Young Investigator Draft, Lift for Life, Leadership Development, and Uplifting Experien...
2DD Podcast | Rare Resilience - Nathan Peck
Переглядів 508 місяців тому
Nathan Peck recently shared a glimpse of his personal journey with #VCPdisease and his work through the patient advocacy organization he co-founded, Cure VCP Disease • Meet Nathan in this week’s Rare Resilience segment (ep252), made in partnership with #RAREis The Two Disabled Dudes Podcast is about cultiating the courage to live life beyond circumstances. Available wherever you find podcasts. ...
252 - NFL Plans Crushed, His Response Changes Lives
Переглядів 43 місяці тому
In episode 252, Rob Long, executive director of Uplifting Athletes (www.upliftingathletes.org/) , revisits his rare disease journey. He recounts his college football days at Syracuse University and the abrupt onset of symptoms during his senior year. Rob shares the initial confusion and fear surrounding his diagnosis of a brain tumor, leading to surgery and a challenging recovery process. He re...
251 - From Canes to Canines: Linda's Path to Mobility
Переглядів 133 місяці тому
In episode 251 we welcome our dear friend Linda Snyder! Linda shares her personal journey living with a rare genetic type of ataxia and discusses how she discovered the benefits of having a mobility service dog named Cedric. She talks about the rigorous process of applying for a service dog, the extensive training Cedric underwent, and the various tasks he assists her with, including laundry! A...
250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation
Переглядів 63 місяці тому
Our friends at Jett Foundation invited us into their community once again for a conversation with 5 panelists on Rare Disease Day. We were honored to moderate the discussion with these friends: • Race Martinez - Architecture Student, living with Duchenne • Kris Napper - Graphic Designer/Illustrator, Business Owner, living with SMA • Chris Schlechty - Software Engineer, Jett Foundation Board of ...
249 - 20 Years in the Making: REATA's Story of Skyclarys
Переглядів 293 місяці тому
This episode delves into the journey of Skyclarys, the first FDA-approved treatment for Friedreich's ataxia (FA), a rare genetic disorder. The discussion features Dr. Colin Meyer, former executive at Reata Pharmaceuticals, who shares his experiences from the inception of Reata to the acquisition by Biogen. The conversation offers a compelling narrative of resilience, innovation, and collaborati...
248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
Переглядів 73 місяці тому
In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA) (curefa.org) , we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and collaboration. Also in this epis...
247 - Tenacity and the Power of Persistence
Переглядів 53 місяці тому
247 - Tenacity and the Power of Persistence
246 - Empowering Accessibility, One Review at a Time
Переглядів 368 місяців тому
246 - Empowering Accessibility, One Review at a Time
2DD Podcast | 246 - Empowering Accessibility, One Review at a Time
Переглядів 79 місяців тому
2DD Podcast | 246 - Empowering Accessibility, One Review at a Time
245 - Settle or Soar? Embracing Uncertainty
Переглядів 159 місяців тому
245 - Settle or Soar? Embracing Uncertainty
244 - Change & Consistency with Progressive Disease
Переглядів 159 місяців тому
244 - Change & Consistency with Progressive Disease
2DD Podcast | 244 - Change & Consistency with Progressive Disease
Переглядів 4510 місяців тому
2DD Podcast | 244 - Change & Consistency with Progressive Disease
243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum
Переглядів 710 місяців тому
243 - EveryCure and the Power of Collaboration w/ Dr. David Fajgenbaum
Interview from Ep. 243: EveryCure & David Fajgenbaum
Переглядів 3110 місяців тому
Interview from Ep. 243: EveryCure & David Fajgenbaum
242 - Dave Lynch: 27 Years, 700+ Patients, and the First Treatment
Переглядів 9010 місяців тому
242 - Dave Lynch: 27 Years, 700 Patients, and the First Treatment
241 - Feeling Helpless? Here Are 4 Ways To Help
Переглядів 1710 місяців тому
241 - Feeling Helpless? Here Are 4 Ways To Help
239 - Season Premier - Are You a Doer or a Talker?
Переглядів 1610 місяців тому
239 - Season Premier - Are You a Doer or a Talker?
238 - Season Finale - The Dynamics of Friendship
Переглядів 610 місяців тому
238 - Season Finale - The Dynamics of Friendship
237 - The Vital Role of Caregivers in Rare Disease Advocacy
Переглядів 310 місяців тому
237 - The Vital Role of Caregivers in Rare Disease Advocacy
236 - A Mom's Perspective on Devastation and Gratitude
Переглядів 610 місяців тому
236 - A Mom's Perspective on Devastation and Gratitude
Exercise is not the answer, agreed! But the disabline just to "do it" with intention makes just about everything (trust the process) line up a little bit better!
The weather show - NICE! Today it was 90'S, tomorrow they say upper 60's, but a week later its back in the 90's ... TEXAS ... we keep you on your toes!!! Dave Ramsey !!!
How long ago was this interview? If it's recent then he is sounding so much better!
Great to hear that they are making travel by airplane better. It did make me wonder if public transport is already easily accessible for people with disabilities in the US? I know that Americans fly a lot, but for everyday things, public transport will be more important for many. In my country the UN Convention on Disability must be adhered to. But in practice, not everything is accessible. Hope you both have a great week.
I like these three guys so much that I had to watch their conversation again. It's always a pleasure to hear the three of you.
😂😂😂neither on 2pac or biggie is a first for my ears
👨🏻🦽👨🏻🦽😎👍
Yup, by any means, cane, scooter, wheelchair - wanna keep going! Great podcast.