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Head and Neck Cancer Alliance
United States
Приєднався 22 січ 2016
We save lives through prevention, early detection and research of head and neck cancers.
Healing Smiles: Long-Term Dental Strategies After Head and Neck Cancer
Moderator:
Cecelia E. Schmalbach, MD, MSc, FACS,
David Myers, MD Professor and Chair, Department of Otolaryngology-HNS; Director, Temple Head and Neck Institute
Lewis Katz School of Medicine at Temple University; Chief, Head & Neck Division, Fox Chase Cancer Center
Medical Experts:
Maria Fornatora, DMD, Associate Dean for Academic Affairs, Temple University, Kornberg School of Dentistry
Dr. Mehran Hossaini, DMD, Professor of Oral and Maxillofacial Surgery, Temple University, School of Dentistry
Survivor Panelist:
Alliance Ambassador Eva Grayzel, Survivor of Tongue Cancer
Link to slides: headandneckcanceralliance.sharepoint.com/:b:/s/partnersharing/EY3K09xKN3ZJjYjnvYOsfH8BnWQGWjxUYj3tTQHhKtA-KQ?e=aXlnvN
Cecelia E. Schmalbach, MD, MSc, FACS,
David Myers, MD Professor and Chair, Department of Otolaryngology-HNS; Director, Temple Head and Neck Institute
Lewis Katz School of Medicine at Temple University; Chief, Head & Neck Division, Fox Chase Cancer Center
Medical Experts:
Maria Fornatora, DMD, Associate Dean for Academic Affairs, Temple University, Kornberg School of Dentistry
Dr. Mehran Hossaini, DMD, Professor of Oral and Maxillofacial Surgery, Temple University, School of Dentistry
Survivor Panelist:
Alliance Ambassador Eva Grayzel, Survivor of Tongue Cancer
Link to slides: headandneckcanceralliance.sharepoint.com/:b:/s/partnersharing/EY3K09xKN3ZJjYjnvYOsfH8BnWQGWjxUYj3tTQHhKtA-KQ?e=aXlnvN
Переглядів: 80
Відео
Mindful Healing: Sustaining Mental Wellness Through and Beyond Head and Neck Cancer Treatments
Переглядів 1912 годин тому
Moderator: Arielle Thal, MD, Assistant Professor, Department of Otolaryngology-Head and Neck Surgery, Thomas Jefferson University Hospital Medical Experts: Dr. Brooke Worster, MD , Associate Professor of Medicine, Enterprise Director Supportive Oncology, Medical Director, MS in Medical Cannabis Science and Business, IEHP, Thomas Jefferson University Hospital Greg Garber, MSW, LCSW, Administrati...
Life Beyond the Diagnosis: Navigating Long-Term Survivorship of Head and Neck Cancer
Переглядів 7912 годин тому
Moderator: Steven B. Cannady, MD, Associate Vice Chair of Quality; Director Head and Neck Reconstruction; Director Division of Head and Neck Surgery; Department of Otorhinolaryngology, University of PA Medical Experts: Allison Paisley, CRNP, Nurse Practitioner, University of Pennsylvania Robert Brody, MD, Assistant Professor, University of Pennsylvania Survivor Panelist: Gini Monson, Survivor o...
Fueling Resilience: Optimizing Nutrition for Head and Neck Cancer Patients and Survivors
Переглядів 5612 годин тому
Moderator: Akina Tamaki, MD, Associate Professor Dept. of Otolaryngology-HNS, Lewis Katz School of Medicine at Temple University, Fox Chase Cancer Center Medical Experts: Linda Goldsmith, MA, RD, Outpatient Oncology Dietician, MD Anderson Cancer Center at Cooper Liane McCarroll, MS, CCC-SLP/L, Senior Speech Pathologist, Assistant Research Professor, Fox Chase Cancer Center Shelby Burns, MA, RD,...
Head & Neck Cancer is a Pain in the Neck: Methods to improve Pain & Function During/After Treatment
Переглядів 7112 годин тому
Moderator: Lara Roseman, MSN, APN-C, Advanced Practice Nurse/Palliative Medicine, MD Anderson Cancer Center at Cooper Medical Experts: Ian Lawrence, MS, CCC-SLP, Speech-Language Pathologist, MD Anderson Cancer Center at Cooper Angela Capriotti, MD, Assistant Professor of Medicine/Palliative Medicine Physician, MD Anderson Cancer Center at Cooper Jamie Wigton, DPT, Physical Therapist, Cooper Reh...
2025 Head & Neck Cancer Alliance Survivorship Symposium
Переглядів 6912 годин тому
Welcome from Philadelphia, PA on October 5, 2024
Festive, Flavorful, & Swallow-Friendly Holiday Cooking
Переглядів 104Місяць тому
Join us for a live holiday cooking demonstration designed for head and neck cancer patients, survivors, and their caregivers. Spend time with two leading national dietitians as they share tips on preparing delicious and nutritious holiday dishes. You can choose to cook along or simply enjoy the experience! We’ll provide you with a variety of recipes to help you celebrate the upcoming holidays. ...
Thriving as a Laryngectomee: Finding Joy and Embracing Hobbies
Переглядів 1885 місяців тому
Thriving as a Laryngectomee: Finding Joy and Embracing Hobbies Monday, August 19 | 7 - 8 pm ET Join us for an insightful webinar tailored for laryngectomy survivors and their loved ones. This empowering session will delve into the multifaceted journey of life post-laryngectomy, offering invaluable guidance and inspiration from three remarkable survivors who have traversed similar paths. Communi...
Guiding Light: End Of Life Care For Head and Neck Cancer Patients
Переглядів 3807 місяців тому
Join us for a compassionate and informative webinar tailored to individuals and families facing the challenges of end-of-life care for head and neck cancer. Led by a panel of experts, including a head and neck cancer surgical oncologist, a chaplain, hospice nurse, and a surviving spouse who has walked this journey, this webinar promises valuable insights and support. We'll cover vital topics su...
Head and Neck Cancer: What To Expect the First Year
Переглядів 5598 місяців тому
May 2024 Webinar: A head and neck cancer diagnosis is daunting, and the initial year of treatment has its challenges. To help you navigate through this initial year, leading medical experts, a HNCA Ambassador survivor and caregiver will share their insights and experiences to assist patients and caregivers facing the initial months of the head and neck cancer journey. Moderator/Medical Presente...
Parenting Through A Head & Neck Cancer Diagnosis, Treatment, and into Survivorship
Переглядів 185Рік тому
Parenting through a cancer journey impacts the whole family and can profoundly affect children. Parenting Through A Head and Neck Cancer Diagnosis, Treatment and into Survivorship webinar will provide guidance on how to have simple and open communication with children. You will learn from a Child Life Specialist and three parents on how to maintain a sense of connection and provide opportunitie...
Becoming A Head and Neck Cancer Survivor Champion
Переглядів 511Рік тому
HNCA Survivor Ambassadors Moderator Kris Molnar, Executive Director, Rural Emergency Trauma Institute, Farm Owner, Survivor of Tonsil Cancer, Wheeling, WV Panelists Itzhak Brook, M.D. Msc. Physician and Professor of Pediatrics, Georgetown University School of Medicine and HNCA Board Member, Survivor of Throat Cancer, Washington, DC Hank Deneski, Proud Husband, Father and Survivors of Stage IV T...
Managing Stress During Head and Neck Cancer Treatment and into Survivorship
Переглядів 554Рік тому
Managing Stress During Head and Neck Cancer Treatment and into Survivorship
The Importance and Impact of Oncology Rehabilitation for Head and Neck Cancer Patients and Survivors
Переглядів 461Рік тому
The Importance and Impact of Oncology Rehabilitation for Head and Neck Cancer Patients and Survivors
Dental Care and Oral Complications of Patients with Head and Neck Cancer
Переглядів 940Рік тому
Dental Care and Oral Complications of Patients with Head and Neck Cancer
Nutrition, Swallowing & Feeding Tube Challenges
Переглядів 846Рік тому
Nutrition, Swallowing & Feeding Tube Challenges
Managing Head and Neck Cancer Radiation Side Effects
Переглядів 8 тис.Рік тому
Managing Head and Neck Cancer Radiation Side Effects
SURVIVORSHIP SYMPOSIUM 2023 - WELCOME AND AWARD
Переглядів 488Рік тому
SURVIVORSHIP SYMPOSIUM 2023 - WELCOME AND AWARD
Caregivers - How to care for yourself and your loved one with head and neck cancer
Переглядів 427Рік тому
Caregivers - How to care for yourself and your loved one with head and neck cancer
Open Forum Discussion on Oral Cancer - Treatments and Side Effects
Переглядів 677Рік тому
Open Forum Discussion on Oral Cancer - Treatments and Side Effects
We're in the homestretch for Move-A-Thon!
Переглядів 50Рік тому
We're in the homestretch for Move-A-Thon!
Rob Paulsen - Yakko's World Countries
Переглядів 1,8 тис.Рік тому
Rob Paulsen - Yakko's World Countries
Navigating Head and Neck Cancer Clinical Trials
Переглядів 692Рік тому
Navigating Head and Neck Cancer Clinical Trials
Rob Paulsen talks about our Move-A-Thon fundraiser and his cancer journey
Переглядів 375Рік тому
Rob Paulsen talks about our Move-A-Thon fundraiser and his cancer journey
Sharing Your Head and Neck Cancer Diagnosis & Managing Ongoing Communications
Переглядів 9792 роки тому
Sharing Your Head and Neck Cancer Diagnosis & Managing Ongoing Communications
Rob Paulsen invites you to MOVE with us!
Переглядів 2,4 тис.2 роки тому
Rob Paulsen invites you to MOVE with us!
Consider Head and Neck Cancer Alliance in your end of year giving
Переглядів 722 роки тому
Consider Head and Neck Cancer Alliance in your end of year giving
I have added a link to this to the Lary's Speakeasy website.
❤
No comments says an awful lot about this horror.
First of all, Thank you for your service. Secondly Thank you for sharing your stories and for providing this very informative video.
You're welcome. We should be posting all our videos from our 2024 Symposium by the end of the month, and have many webinars planned for 2025. If you want to stay up to date with us, visit our website and sign up for our newsletter - the link is right on the homepage!
I'd try ivermectin and laetrile before this nightmare treatment.
I am alone in the world so I will just have to let the cancer take its course without treatment. I can't make it on my own
You are not alone. You will have a team of people that care for you and your health. Even if they are strangers to you today, they can become your support and community if you allow them to help you. Sometimes we feel alone, but we are the ones limiting ourselves.
My right tonsil is swollen and have a swollen lymph node on the same side along with ear ache . Doctors keep saying it’s postnatal drip and allergies but it’s been on going for 3 months .. going back to the doctors tomorrow and get a ent referral
Any updates?
What was the result? I'm currently waiting on a blood test, but I'm terrified I've got something worse
Very good story. If you are an adrenalin addict, accustomed to over-the-top effects, loud noises and constant action, then this movie will be too cerebral for you, but you should try it anyway. ❤
Omg ! I applaud all of you,especially you Candace !
Very helpful, thank you
As a stage-4 HPV-16 positive base of tongue cancer survivor all of this is very good information for those facing the treatments. After 35 rads and 2 big chemos, my biggest issue is getting back to normal food after 7 months on a PEG tube. Everything stills tastes rancid preventing me from eating orally.
I found Thad's insights very useful forme. how can i getting touch with him?
And Lens kids love him.
🙂
He will always be TMNT 2012 Donnie to me
Thanks I came here so I can check if have neck cancer bc I had a lump on my neck from when I was very young so I just checking
Rob Paulsen is amazing, AND loving. 😄💕
Please have a concert in Japan please please 🇯🇵
He will go with Green day next year!
I love jason
Some superheroes wear capes. Mine does funny voices into a microphone. ❤❤
Facebook has a wonderful head and neck support group. Several of them, all good. I didn't feel like going during treatment but these groups uplifted me greatly and we were able to share and help each other.
Look up Real Food Blends. They have a variety of pureed blends with all food groups in each pack. My insurance approved it after I was not able to tolerate high calorie milk/soy products.
These hospitals don’t tell you anything, cure the cancer, destroy your teeth and tell you to figure it out! Anyone starting treatment, please remove your teeth first! I trusted the best cancer hospital in NYC and my teeth are fried, and no one will help me! The pain from this is awful. Dentists are not equipped to treat you. You need specialists and there are none! Also after treatment please check your heart, they don’t warn you about the heart damage and how many survivors die of heart attacks! It’s all about the money folks! I’ll never trust these hospitals again!
That was awesome.
I had really bad taste coming down from gut and also smells really bad. Does anyone know what it is?
Ever find out?
Very informative, thank you
I have spasm neck stiffness and CBD cream is good
Man, I'm just one treatment away from being done with radiation. Nobody has really outlined these fibrosis related symptoms that may arise YEARS from now for me. Good, yet concerning, information. Thanks.
I lost all ability to swallow 4 years after treatment they never told me it could happen that long after treatment!
Peter was the coolest of the four because he was the first one to leave the group. He was also a highly talented musician. R.I.P. ❤
I had cancer in my parotid gland and had it removed and radiotherapy(IMRT) 20sittings an year ago and have recovered a lot. I have been told that irritant foods like onion, pepper, black pepper, garlic and ginger can cause lymphedema and I have been told to avoid red meat and oil in my diet is there any study to support this? Can anyone help me regarding this?
So sad to watch this knowing it came back and ended up killing him. Fly high Peter Tork… and the other 2 in Heaven with you… 😢
I’ve never had cancer but I’m glad all the people out there are recovering.
That is so cool. I also went to Animaniacs Live and he is the funniest person on planet earth.
Thank you so very much for these symphonion
Thankful that they all got to see that all of us fans were still out here and still loved them. ❤
Awesome!
I am a 72 year old female. I am 11 years out. Left tonsil cancer caught early by my GP at a yearly exam. Seven hour surgery to remove left tonsil with neck dissection on both sides. Robotic surgery at Barnes in St Louis. Lost 80 pounds in 4 months with the surgery and radiation. The radiation was much worse than the surgery. I continue to have dry mouth and chew no sugar gum constantly. Have just recently started having neck/shoulder spasms and developed cervical dystopia which Botox did not help. At year eight my teeth started crumbling and now have crowns on most my teeth despite using fluoride. Because I was diagnosed at Stage 1 with only one lymph node involvement I had the option of chemo or radiation or nothing. I chose the radiation. I wish I had not had the radiation for a Stage 1 and would have waited. Recently I started having issues with my left eye blurriness that comes and goes on a different level every day. Eye specialists have done numerous tests and they cannot figure out why it came on suddenly or why it varies from day to day. My eye is supposedly healthy. Do any of your panelists know if this could be another gift given to me by the radiation? This was an excellent presentation! Thank you.
Thank you so much for posting this. The audio is clear! The information is so important for me. Thanks!
You're welcome!
Excellent interviews. Thank you. I’m 11 years out. Still have dry mouth and swallowing issues. I lost 80 pounds during treatment with no feeding tube. Had my surgery at Washington Hospital in St. Louis. Also had neck dissection on both sides with only one lymph node involved. My GP caught it at a regular check up appointment when she saw one tonsil enlarged. Interestingly now none of my docs ever look in my mouth. I still go to regular cancer check up appointments yearly in Celebration Florida. I have had 10 crowns on my teeth within the last two years as all of a sudden they started to crumble. It’s a rough road to travel but if caught early enough the outcomes are very positive. Blessings to all of you.
At what point did your teeth start crumbling? I am 7 years out and need a tooth extracted. I am 20 days into hbo. Surgery in a couple weeks. Did you have to have any teeth pulled?
@@plattapuss5844 I was 9 years out. Absolutely do not have a tooth pulled without going through one week of hyperbaric before and a week right after no matter what your dentist says. Get your oncologist to order the hyperbaric so your insurance will pay.
My boyfriend was just diagnosed with Squeamus cell carcinoma. He has a mass in his neck and 2 lymph nodes affected. The lymph nodes are right next to the mass and small, but so far, that's all I know. We have no idea what stage and are waiting to get a PET scan but as far as we can see on the CT, it hasn't spread. His last visit left me with more questions than answers and I am scared to death. He has been chewing tobacco for 30 years so I'm sure that's what caused it. I'm desperate for any information that anyone can give me. Idk what his chances are of beating this. I have an idea of what to expect because my aunt and sister both beat cancer. My sister had lymphoma and my aunt had melanoma that went to her lung and had to get half of it removed. I know the staging for his cancer is different once it affects the lymph nodes. Any advice or answers would be appreciated.
I just love medical professionals' approach-- be tough with yourself-- think of swallowing as doing a chin-up-- good exercise. Patients do better when they force themselves to eat. Oh boy. Spoken right out of academia fairyland. I have a friend going through chemo-radiotherapy for stage 3 pharyngeal and lymph node cancer. He is 50, trim, athletic and previously healthy. Five weeks into treatment he is like a little old man. He vomits continually, has lost his voice, gags on liquids, neck is burned and hair on the back of his head has burned off, his mouth is full of sores from mucositis, his throat is raw, he has GERD, and is constantly expelling mucous. He is so weak he can barely stand, He was underweight a bit when he started, now he has lost 18 lbs. He is getting periodical IV hydration and resisted getting even that because of his 'team'. He is resisting a feeding tube-- also because of his team. Easy for them to say force yourself to eat and drink. Many of them have never even experienced illness let alone cancer. I've had extensive stomach and esophageal surgery. I needed a feeding tube but was afraid of it. I did not know I was starving until my kidneys started shutting down and I became extremely weak. I didn't know you could starve with as much weight on as I had. My surgeon brought me back into hospital and ordered a tube whether I wanted it or not. I FELT SO MUCH BETTER!! Listen you trained professionals! When you want to die like my friend currently does, FEELING GOOD IS EXTREMELY IMPORTANT!! Ever think of that? Or is all your consideration saved for studies and empirical data?? I was getting consistent nutrition. I was no longer vomiting and retching (I even cracked a rib, I crawled to my bed). I slept better and my mood improved. I cannot describe the relief. I want my friend to have this relief. I don't want to watch him cry in agony and want to give up. But his over-educated young life-experience-deficient team wants him to 'hang in there and keep trying to force the stuff in orally'. WHY? He can do his swallowing exercises with the tube in and even take stuff 'recreationally' if he feels up to it. Risk of infection can be monitored. Mine was. I survived because of that tube. I had COMFORT for the first time in months. I didn't forget how to swallow. STOP ASKING OTHERS TO BE SUPER HUMAN because of your data. Or until you can prove you could do it if it were happening to YOU. Some people may be super human. Some are not. In this case my life experience overrides your empirical data which is usually skewed anyway by patients trying to please their doctors and be positive and brave. I'm ashamed of our health care people. First, do no harm.
I am also an oropharyngeal cancer induced by HPV+, had 2 surgeries, one of them was for 9 hours, I am now a worrier, and willing to share my journey
So happy for Rob that he fought and won this battle ❤ One of my favourite people in the world ❤
Wonderful man ❤ you are a true gift to us all Rob
I’m 11 years post submandibular cancer still get worried about recurrence
God bless you.
i love jason
i love jason
Praying for everyone fighting this 🙏
Mine took 2 years to diagnose. It was in the ear canal and it was so painful I was swallowing codeine like sweets. I didn't care if the pills killed me. I just wanted the pain to end. So with RADS and extensive surgery I got better. Better but still affected by the treatment. I can no longer hear well or walk due to balance. I'm posting this as a warning. If you have any symptoms, pain, hoarse voice etc please pester your doctor until you are tested. Don't give up, keep speaking up. And spread the word - while you can still talk. I am a lifetime non smoker and have not drunk alcohol for 30 years. This doesn't just effect smokers.
Excellent information ..Thank you