![Head and Neck Cancer Alliance](/img/default-banner.jpg)
- 88
- 191 055
Head and Neck Cancer Alliance
United States
Приєднався 22 січ 2016
We save lives through prevention, early detection and research of head and neck cancers.
Guiding Light: End Of Life Care For Head and Neck Cancer Patients
Join us for a compassionate and informative webinar tailored to individuals and families facing the challenges of end-of-life care for head and neck cancer. Led by a panel of experts, including a head and neck cancer surgical oncologist, a chaplain, hospice nurse, and a surviving spouse who has walked this journey, this webinar promises valuable insights and support.
We'll cover vital topics such as pain management, financial planning, emotional support, spirituality, and practical advice for patients and their loved ones. Whether you're a patient, caregiver, or healthcare provider, this webinar aims to provide essential information and foster a sense of community during this difficult time.
Come share your experiences, ask questions, and find solace in knowing you're not alone. Together, we'll explore ways to provide comfort and dignity during the end-of-life journey with head and neck cancer. Register now to reserve your spot in this supportive and empowering exchange.
June Panel
Moderator
Susan McCammon, MD
John W. Poynor Endowed Professor in Otolaryngology | Director of Head and Neck Oncology Division | Assistant Director
The University of Alabama at Birmingham (UAB), School of Medicine, Gerontology, Geriatrics, and Palliative Care
Panelists
Moneka Thompson, MDiv
Spiritual Care Manager for the UAB Center for Palliative and Supportive Care
Jackie Palmore, RN, BSN, CHPN
Palliative Care Coordinator | UAB Hospital, Gerontology, Geriatrics, & Palliative Care
Surviving Caregiver Panelist
Ellen Bernstein-Ellis, M.A. CCC-SLP
Caregiver for her late husband Steve | Director Emeritus, Aphasia Treatment Program | Norma S. and Ray R. Rees Speech, Language and Hearing Clinic | Cal State East Bay
We'll cover vital topics such as pain management, financial planning, emotional support, spirituality, and practical advice for patients and their loved ones. Whether you're a patient, caregiver, or healthcare provider, this webinar aims to provide essential information and foster a sense of community during this difficult time.
Come share your experiences, ask questions, and find solace in knowing you're not alone. Together, we'll explore ways to provide comfort and dignity during the end-of-life journey with head and neck cancer. Register now to reserve your spot in this supportive and empowering exchange.
June Panel
Moderator
Susan McCammon, MD
John W. Poynor Endowed Professor in Otolaryngology | Director of Head and Neck Oncology Division | Assistant Director
The University of Alabama at Birmingham (UAB), School of Medicine, Gerontology, Geriatrics, and Palliative Care
Panelists
Moneka Thompson, MDiv
Spiritual Care Manager for the UAB Center for Palliative and Supportive Care
Jackie Palmore, RN, BSN, CHPN
Palliative Care Coordinator | UAB Hospital, Gerontology, Geriatrics, & Palliative Care
Surviving Caregiver Panelist
Ellen Bernstein-Ellis, M.A. CCC-SLP
Caregiver for her late husband Steve | Director Emeritus, Aphasia Treatment Program | Norma S. and Ray R. Rees Speech, Language and Hearing Clinic | Cal State East Bay
Переглядів: 154
Відео
Head and Neck Cancer: What To Expect the First Year
Переглядів 3482 місяці тому
May 2024 Webinar: A head and neck cancer diagnosis is daunting, and the initial year of treatment has its challenges. To help you navigate through this initial year, leading medical experts, a HNCA Ambassador survivor and caregiver will share their insights and experiences to assist patients and caregivers facing the initial months of the head and neck cancer journey. Moderator/Medical Presente...
Move-A-Thon Starts Today!
Переглядів 614 місяці тому
Nanci Bonfield from HNCA invites you to join the Move-A-Thon
Parenting Through A Head & Neck Cancer Diagnosis, Treatment, and into Survivorship
Переглядів 1496 місяців тому
Parenting through a cancer journey impacts the whole family and can profoundly affect children. Parenting Through A Head and Neck Cancer Diagnosis, Treatment and into Survivorship webinar will provide guidance on how to have simple and open communication with children. You will learn from a Child Life Specialist and three parents on how to maintain a sense of connection and provide opportunitie...
Becoming A Head and Neck Cancer Survivor Champion
Переглядів 45110 місяців тому
HNCA Survivor Ambassadors Moderator Kris Molnar, Executive Director, Rural Emergency Trauma Institute, Farm Owner, Survivor of Tonsil Cancer, Wheeling, WV Panelists Itzhak Brook, M.D. Msc. Physician and Professor of Pediatrics, Georgetown University School of Medicine and HNCA Board Member, Survivor of Throat Cancer, Washington, DC Hank Deneski, Proud Husband, Father and Survivors of Stage IV T...
Managing Stress During Head and Neck Cancer Treatment and into Survivorship
Переглядів 43510 місяців тому
Moderator - Maie St. John, MD, PhD, Professor and Chair, Department of Head & Neck Surgery; Thomas C. Calcaterra, M.D., Chair in Head and Neck Surgery; Co-Director, UCLA Head and Neck Cancer Program, UCLA Health, Los Angeles Medical Expert Susan McCammon, MD, PhD, FACS, FAAHPM, John W. Poynor Professor of Otolaryngology, Director, Division of Head and Neck Surgical Oncology, Director, Pat and J...
The Importance and Impact of Oncology Rehabilitation for Head and Neck Cancer Patients and Survivors
Переглядів 41910 місяців тому
Moderator Cherie-Ann Nathan, M.D., F.A.C.S., Jack Pou Endowed Professor & Chair, Dept. of Otolaryngology/HNS, LSU Health-SHV, Director of Head and Neck Surgical Oncology Feist-Weiller Cancer Center, Shreveport, LA Medical Expert Julia Porter, MSP, CCC-SLP, MPH, CLT, Speech-Language Pathologist, Team Lead, Oncology Rehabilitation , IU Health North Hospital, IU Health Schwarz Cancer Center, Carme...
Dental Care and Oral Complications of Patients with Head and Neck Cancer
Переглядів 77010 місяців тому
Moderator Joel B. Epstein , DMD, MSD, FRCD(C), Certified Specialist Oral Medicine (BC), FDS RCS(Ed), Dipl American Board of Oral Medicine. Professor and Director, Cancer Dentistry, at the Samuel Oschin Comprehensive Cancer Institute, Cedars-Sinai Health System Los Angeles. Medical Director, Dental Oncology at the City of Hope National Medical Center, Duarte CA Medical Experts Steven M. Roser, D...
Nutrition, Swallowing & Feeding Tube Challenges
Переглядів 71010 місяців тому
Moderator Beverly Garber, NP, CORLN, Nurse Practitioner III, UC Davis Health, Department of Otolaryngology, Head and Neck Surgery, Sacramento, CA Medical Expert Beth Kirsch, RDN, CSO, LD, Clinical Dietitian - Senior, IU Health Clinical Nutrition Services; IU Health Simon Cancer Center/Radiation Oncology, Indianapolis Heather Starmer, MA CCC-SLP, BCS-S, Clinical Associate Professor, Otolaryngolo...
Managing Head and Neck Cancer Radiation Side Effects
Переглядів 6 тис.10 місяців тому
Moderator Tony Eskander, MD, ScM, FRCSC, Adjunct Scientist, Institute for Clinical Evaluative Sciences; Assistant Professor, University of Toronto, Sunnybrook Health Sciences Centre, Toronto, Canada Medical Expert Sue Yom, MD, PhD, MAS, FASTRO, Professor and Vice Chair, Strategic Advisory, Department of Radiation Oncology; Professor, Otolaryngology-Head and Neck Surgery, University of Californi...
SURVIVORSHIP SYMPOSIUM 2023 - WELCOME AND AWARD
Переглядів 47310 місяців тому
Head and Neck Cancer Alliance (HNCA) Welcome: Executive Director Amanda Hollinger HNCA Board President Dr. Michael Moore, M.D., Professor and Vice Chair of Academic Affairs, Department of Otolaryngology-Head and Neck Surgery, Indiana University School of Medicine, Indianapolis HNCA Board Member and Ambassador Jason Mendelsohn, co-founder and President of Ashar Group, LLC., Survivor of Stage 4 H...
Caregivers - How to care for yourself and your loved one with head and neck cancer
Переглядів 38111 місяців тому
Being a caregiver can be challenging due to the emotional, physical, and mental demands involved in caring for another person. Caregivers often experience high levels of stress, exhaustion, and burnout. This webinar will provide ideas on self-care, how to recharge, reduce stress, maintain health, and ultimately provide better care to loved ones. MODERATOR Michelle Chen, MD, Assistant Professor ...
Open Forum Discussion on Oral Cancer - Treatments and Side Effects
Переглядів 622Рік тому
Upcoming: Open Forum Discussion on Oral Cancer, Its Treatments & Side Effects June 6, 2023 - 6-7 pm ET We are offering an open forum for all head and neck cancer patients, survivors, and caregivers to ask questions and converse with some of the US’s leading experts in oral oncology, oral oncology dentistry, and speech-language therapy. Be prepared to ask your specific questions to our expert pa...
Move-A-Thon Closing Celebration
Переглядів 325Рік тому
A celebration of our 1st national fundraiser featuring Rob Paulsen (voice actor) and Jason Green (guitarist for Green Day)
We're in the homestretch for Move-A-Thon!
Переглядів 49Рік тому
We're in the homestretch for Move-A-Thon!
Rob Paulsen - Yakko's World Countries
Переглядів 1,3 тис.Рік тому
Rob Paulsen - Yakko's World Countries
Navigating Head and Neck Cancer Clinical Trials
Переглядів 626Рік тому
Navigating Head and Neck Cancer Clinical Trials
Rob Paulsen talks about our Move-A-Thon fundraiser and his cancer journey
Переглядів 351Рік тому
Rob Paulsen talks about our Move-A-Thon fundraiser and his cancer journey
Sharing Your Head and Neck Cancer Diagnosis & Managing Ongoing Communications
Переглядів 929Рік тому
Sharing Your Head and Neck Cancer Diagnosis & Managing Ongoing Communications
Rob Paulsen invites you to MOVE with us!
Переглядів 2,4 тис.Рік тому
Rob Paulsen invites you to MOVE with us!
Consider Head and Neck Cancer Alliance in your end of year giving
Переглядів 70Рік тому
Consider Head and Neck Cancer Alliance in your end of year giving
Clinical Trials and Immunotherapy for Head and Neck Cancer
Переглядів 1,1 тис.Рік тому
Clinical Trials and Immunotherapy for Head and Neck Cancer
Head and Neck Cancer: Survivorship and Aging
Переглядів 1,9 тис.Рік тому
Head and Neck Cancer: Survivorship and Aging
Nutrition, Swallowing & Feeding Tube Challenges For Head and Neck Cancer Patients and Survivors
Переглядів 2,3 тис.Рік тому
Nutrition, Swallowing & Feeding Tube Challenges For Head and Neck Cancer Patients and Survivors
Financial Burden of Head and Neck Cancer
Переглядів 135Рік тому
Financial Burden of Head and Neck Cancer
Dental Care During and Following Treatment
Переглядів 533Рік тому
Dental Care During and Following Treatment
Head and Neck Cancer: The Importance of Comprehensive Rehabilitation
Переглядів 1,5 тис.Рік тому
Head and Neck Cancer: The Importance of Comprehensive Rehabilitation
Head and Neck Cancer: What to Expect During the First Year
Переглядів 16 тис.2 роки тому
Head and Neck Cancer: What to Expect During the First Year
Rob Paulsen is amazing, AND loving. 😄💕
Please have a concert in Japan please please 🇯🇵
I love jason
Some superheroes wear capes. Mine does funny voices into a microphone. ❤❤
Living with the disease of tonsillitis was messing up my life until I got some super herbs from Dr.Emovon on UA-cam channel, I haven’t had any symptoms for some while now, after I did a test & I’m planning to another test done. Am grateful & advise you help yourself also..😭😭
Facebook has a wonderful head and neck support group. Several of them, all good. I didn't feel like going during treatment but these groups uplifted me greatly and we were able to share and help each other.
Look up Real Food Blends. They have a variety of pureed blends with all food groups in each pack. My insurance approved it after I was not able to tolerate high calorie milk/soy products.
These hospitals don’t tell you anything, cure the cancer, destroy your teeth and tell you to figure it out! Anyone starting treatment, please remove your teeth first! I trusted the best cancer hospital in NYC and my teeth are fried, and no one will help me! The pain from this is awful. Dentists are not equipped to treat you. You need specialists and there are none! Also after treatment please check your heart, they don’t warn you about the heart damage and how many survivors die of heart attacks! It’s all about the money folks! I’ll never trust these hospitals again!
That was awesome.
I had really bad taste coming down from gut and also smells really bad. Does anyone know what it is?
Ever find out?
Very informative, thank you
I have spasm neck stiffness and CBD cream is good
Man, I'm just one treatment away from being done with radiation. Nobody has really outlined these fibrosis related symptoms that may arise YEARS from now for me. Good, yet concerning, information. Thanks.
I lost all ability to swallow 4 years after treatment they never told me it could happen that long after treatment!
Peter was the coolest of the four because he was the first one to leave the group. He was also a highly talented musician. R.I.P. ❤
I had cancer in my parotid gland and had it removed and radiotherapy(IMRT) 20sittings an year ago and have recovered a lot. I have been told that irritant foods like onion, pepper, black pepper, garlic and ginger can cause lymphedema and I have been told to avoid red meat and oil in my diet is there any study to support this? Can anyone help me regarding this?
So sad to watch this knowing it came back and ended up killing him. Fly high Peter Tork… and the other 2 in Heaven with you… 😢
I’ve never had cancer but I’m glad all the people out there are recovering.
That is so cool. I also went to Animaniacs Live and he is the funniest person on planet earth.
Thank you so very much for these symphonion
Thankful that they all got to see that all of us fans were still out here and still loved them. ❤
Awesome!
I am a 72 year old female. I am 11 years out. Left tonsil cancer caught early by my GP at a yearly exam. Seven hour surgery to remove left tonsil with neck dissection on both sides. Robotic surgery at Barnes in St Louis. Lost 80 pounds in 4 months with the surgery and radiation. The radiation was much worse than the surgery. I continue to have dry mouth and chew no sugar gum constantly. Have just recently started having neck/shoulder spasms and developed cervical dystopia which Botox did not help. At year eight my teeth started crumbling and now have crowns on most my teeth despite using fluoride. Because I was diagnosed at Stage 1 with only one lymph node involvement I had the option of chemo or radiation or nothing. I chose the radiation. I wish I had not had the radiation for a Stage 1 and would have waited. Recently I started having issues with my left eye blurriness that comes and goes on a different level every day. Eye specialists have done numerous tests and they cannot figure out why it came on suddenly or why it varies from day to day. My eye is supposedly healthy. Do any of your panelists know if this could be another gift given to me by the radiation? This was an excellent presentation! Thank you.
Thank you so much for posting this. The audio is clear! The information is so important for me. Thanks!
You're welcome!
Excellent interviews. Thank you. I’m 11 years out. Still have dry mouth and swallowing issues. I lost 80 pounds during treatment with no feeding tube. Had my surgery at Washington Hospital in St. Louis. Also had neck dissection on both sides with only one lymph node involved. My GP caught it at a regular check up appointment when she saw one tonsil enlarged. Interestingly now none of my docs ever look in my mouth. I still go to regular cancer check up appointments yearly in Celebration Florida. I have had 10 crowns on my teeth within the last two years as all of a sudden they started to crumble. It’s a rough road to travel but if caught early enough the outcomes are very positive. Blessings to all of you.
@@plattapuss5844 I was 9 years out. Absolutely do not have a tooth pulled without going through one week of hyperbaric before and a week right after no matter what your dentist says. Get your oncologist to order the hyperbaric so your insurance will pay.
My boyfriend was just diagnosed with Squeamus cell carcinoma. He has a mass in his neck and 2 lymph nodes affected. The lymph nodes are right next to the mass and small, but so far, that's all I know. We have no idea what stage and are waiting to get a PET scan but as far as we can see on the CT, it hasn't spread. His last visit left me with more questions than answers and I am scared to death. He has been chewing tobacco for 30 years so I'm sure that's what caused it. I'm desperate for any information that anyone can give me. Idk what his chances are of beating this. I have an idea of what to expect because my aunt and sister both beat cancer. My sister had lymphoma and my aunt had melanoma that went to her lung and had to get half of it removed. I know the staging for his cancer is different once it affects the lymph nodes. Any advice or answers would be appreciated.
I was fortunate enough to see Peter Tork and The Suede Shoe Blues. He was an extremely talented musician and a very personable man. It was a sad day when I heard he passed.
I just love medical professionals' approach-- be tough with yourself-- think of swallowing as doing a chin-up-- good exercise. Patients do better when they force themselves to eat. Oh boy. Spoken right out of academia fairyland. I have a friend going through chemo-radiotherapy for stage 3 pharyngeal and lymph node cancer. He is 50, trim, athletic and previously healthy. Five weeks into treatment he is like a little old man. He vomits continually, has lost his voice, gags on liquids, neck is burned and hair on the back of his head has burned off, his mouth is full of sores from mucositis, his throat is raw, he has GERD, and is constantly expelling mucous. He is so weak he can barely stand, He was underweight a bit when he started, now he has lost 18 lbs. He is getting periodical IV hydration and resisted getting even that because of his 'team'. He is resisting a feeding tube-- also because of his team. Easy for them to say force yourself to eat and drink. Many of them have never even experienced illness let alone cancer. I've had extensive stomach and esophageal surgery. I needed a feeding tube but was afraid of it. I did not know I was starving until my kidneys started shutting down and I became extremely weak. I didn't know you could starve with as much weight on as I had. My surgeon brought me back into hospital and ordered a tube whether I wanted it or not. I FELT SO MUCH BETTER!! Listen you trained professionals! When you want to die like my friend currently does, FEELING GOOD IS EXTREMELY IMPORTANT!! Ever think of that? Or is all your consideration saved for studies and empirical data?? I was getting consistent nutrition. I was no longer vomiting and retching (I even cracked a rib, I crawled to my bed). I slept better and my mood improved. I cannot describe the relief. I want my friend to have this relief. I don't want to watch him cry in agony and want to give up. But his over-educated young life-experience-deficient team wants him to 'hang in there and keep trying to force the stuff in orally'. WHY? He can do his swallowing exercises with the tube in and even take stuff 'recreationally' if he feels up to it. Risk of infection can be monitored. Mine was. I survived because of that tube. I had COMFORT for the first time in months. I didn't forget how to swallow. STOP ASKING OTHERS TO BE SUPER HUMAN because of your data. Or until you can prove you could do it if it were happening to YOU. Some people may be super human. Some are not. In this case my life experience overrides your empirical data which is usually skewed anyway by patients trying to please their doctors and be positive and brave. I'm ashamed of our health care people. First, do no harm.
I am also an oropharyngeal cancer induced by HPV+, had 2 surgeries, one of them was for 9 hours, I am now a worrier, and willing to share my journey
So happy for Rob that he fought and won this battle ❤ One of my favourite people in the world ❤
Wonderful man ❤ you are a true gift to us all Rob
I’m 11 years post submandibular cancer still get worried about recurrence
i love jason
i love jason
Praying for everyone fighting this 🙏
Mine took 2 years to diagnose. It was in the ear canal and it was so painful I was swallowing codeine like sweets. I didn't care if the pills killed me. I just wanted the pain to end. So with RADS and extensive surgery I got better. Better but still affected by the treatment. I can no longer hear well or walk due to balance. I'm posting this as a warning. If you have any symptoms, pain, hoarse voice etc please pester your doctor until you are tested. Don't give up, keep speaking up. And spread the word - while you can still talk. I am a lifetime non smoker and have not drunk alcohol for 30 years. This doesn't just effect smokers.
Excellent information ..Thank you
The most awesome person on the planet
Great presentation, thank you
he is so cool
I had a cancerous right tonsil removed, but it turned out to be B-cell non-Hodgkins lymphoma. At first, the doc thought it was HPV related.
Thx you for making video
Oral cancer survivors, know that every person is different, and if one thing isn't helping you, keep looking for another. There is hope for coping with the challenges of treatment for this disease. Here are the exercises I do to maintain mobility, 25 years after surgery and radiation: ua-cam.com/video/utXO_4hedTQ/v-deo.html
Thank you
How inspiring her is❤❤❤❤
Which lollypop are u talking about
Can you give us a time stamp of where you heard that mentioned? We'll try to find out for you.
30.25..?@@HeadandNeckCancerAlliance
National Treasure Rob Paulsen ❤
Waheguru ji
rw:oh that was clever RP .LOL! 😀😃😄😁😆🤣😂
Rob paulsen mundo. Anime Animaniacs. Warnerstoka. 1992-1993-1999-2024