Відео

thanks for the encouraging words. dealing with this for 20+yrs. choose your battles, stay happy

I have functional neurological disorder and I'm wondering where you are getting the stem cell therapy from because I would like to undergo stem cell therapy because nothing else I have tried has been helping me

I wish this was availabe for us people who have FND in the Eastern side of the USA

FND almost killed me in Oct 2023. Thank you for sharing. We are all survivors!

I am sorry you going through it. I just found i have FND

I felt this with you pal. I was diagnosed with FND in February. It sucks! I also get the dystonia and paralysis. It's does hurt. Sending hugs!

Your buddy is so cool.

Do they treat the anxiety that's causing the problem?

Looks familiar.

I have FND and get paralysis on the left side of my body , it is so horrible . Some doctors and people look at you as what the heck is going on / dont understand . so debilitating .Bless you Sir and Keep Fighting , you matter . hugs

What type of FND? I’ve got Functional Tremors

😮😮😮😢😢😢😢❤❤❤❤❤❤❤❤❤

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Listen to ruqya

I have FND to hang in there brother 🙏

I just got diagnosed with it but I have other autoimmune conditions it effected my vision for 9 days they used steroids and stuff I think they say it's psycho cause they aren't God they can't explain it but I feel it's cause they don't know if they did know how to solve it theyd done fixed it they say it's something else when they have no other explanation

Thank you for sharing. Fnd here too I'm in constant spasms and weakness means alot you putting it out there

I have FND as well. since 2012. I get them several times a month. They're not as bad as they use to be. And it does depend on what stress is going on in my life at the time. I can have them going into sleep and also waking up. I had one last 12 hours in the emergency room.

Devi farla tutti i giorni,così quando arrivano le crisi sei pronto

man you make me very proud and like i can do it. I have FND too. its been destroying my life.

My husband has been having with seizures for 15 years and nobody has ever tried to help him with fnd my husband has been staying away from doctors because he's frustrated embarrassed and never feels good enough to get out of bed. My children and I beg him to keep trying and he shuts us down. I have heard him say numerous times that he can't do this anymore. Then I stumbled upon somebody's post on Facebook mentioning functional neurological disorder and I started watching your videos. I feel like every video you share is what my husband goes through and I have so much sympathy for you. I don't even know where to start to get him more help. The last neurologist cleared him after having another MRI EEG blood work. Why didn't he ever mention this to us? My children have grown up watching my husband fall downstairs and have seizures over and over and he still continues to feel this way. He definitely has chronic pain and is dealing with a shoulder injury and I can't even convince him to go take care of it because he's always down and says someday when he feels better he'll go to the doctor. I'm going to try to show him your videos.I feel like he's giving up. Thank you for letting me vent to finally someone else that lives his life.

Oh my gosh! This is what I have! FND. I was diagnosed 8 months ago and I can go from normal to having a terrible time talking and/or walking then back to normal

Someone give this man a hug!!! 😭🥺🫂 I’m so sorry for your struggles. I wasn’t aware of this condition until just now. I think I’d like to know more about it. I don’t believe it was ever covered in First Aid. I want to be be able to help people in as many situations as possible. And it seems like this is something very important to know. Thank you for sharing. Stay strong.

right there with you bro

Devi fare la respirazione diaframmatica

Devi fare la respirazione diaframmatica

I understand how you feel about your facial weakness especially on the right side, drooping eye, tremors and slurred speech - I'm FND warrior too 🙏🏾✨

My heart aches for you. I have FND and I get extremely painful bolts that go from my head all the way down my spine. They really hurt. There are too many symptoms and too many triggers. Stay strong my friend. ❤❤❤

Okay once it was finally heard someone was there it is amazing

Poor baby why is no one with you?

Are you taking any prescription medicine? If so, Have you looked into deprescribing and trying 30, 60, 90 days of beef, water, salt to taste ideally real salt vs table salt? I wish you exclusive results

Look up vagus nerve exercises to retire your brain from anxiety by Susie Baxter

Man, I don't know what the answer is, but there's gotta be some possible process to put in place for folks in such situations to get an ambulance there. I dunno, maybe "If you are unable to speak and are in medical trouble, press a number on your phone three times in a row" (a phone version of blink twice for yes). There must be instances when stroke victims, for example, can't articulate when help is needed.

To expand on something addressed here, I find that when I must use my conscious mind to control functions that are meant to be subconscious (such as maintaining motor control), it can result in less bandwidth to do life. It can also result in physical exhaustion (though I don't know the science behind that) and disorientation. So depleted bandwidth may mean, quite regrettably: less left over for chores, keeping in touch, or just thinking straight to address whatever needs to be addressed that week, albeit with still as great a desire as ever to be responsible, a good friend, a good problem-solver.

Yes, all good tips for carers. Glad you have a good bud in your life like this friend. Our host mentioned in the description bright sunlight as something that can make it worse. Wondering if anyone out there also finds that the sunlight through trees (strobe effect) can trigger episodes. I do.

This vid is so fascinating. I had just stumbled upon a suggestion that 10 hertz is helpful for PTSD. Grateful for finding your channel. When I've had episodes, I've found that overstimulation can exacerbate symptoms (ie malls, crowds, too many competing sounds around me, etc.). Hm, I wonder if that's a similar phenomenon as you experience with high hertz music. I don't know much about hertz to test that theory, but it's interesting to consider. Thanks for having passed on your music/sound tips.

Wow, this is the closest vid I've seen of similar symptoms to mine. I felt alone back when it was at its worst a few years back. Appreciate you sharing, connecting. May you find many moments of peace and other good stuff in between the episodes.

If also have it been suffering exactly the same for 10 years but only had diagnosis in January of this year.its very frustrating and painful .xx

I just finished my epilepsy testing and going into fnd testing but i felt like i was looking into a mirror and i hope you and everyone with fnd can find ways to deal with it or better have a blessed day!

Dude is the lights and fan that causes you a seizure plus you probably tired. I have fnd as well

It looks like you have a lot weight on your neck and your struggling holding yourself up. I think it wold be good for you in trying to bring awareness to feeling and weight of your back of the head, try and use your brain to calibrate the weight of your head with your neck … not forcefully, deep breaths in to the aura of the muscle kind off like instead of trying to feel the muscle directly, feel like if there’s a presence around it but don’t try to intensify that feeling. And look in to fascia massaging

You’re so strong you are a warrior for going through these. You can do it!

I am praying for you and i am so sorry that you are going through this stay strong!

I Have FND too, know how hard it is buddy! Hang in there. You're not alone. <3

All I want to do is hug you!! I keep saying it is okay breathe like you can hear me that is just my heart your loved darling

Had a rough day!!! I needed this.

Medical Paramedics, Fire, and Police are not train in this... and they thought I was faking seizures because it didn't follow typical seizures. They pinched me, looked at my pupils, and etc. And I couldn't talk and screamed when they were f***ing around with my arm that was contracted. I remember the cop opened the ambulance and ask if he needed to intervene. I am so scared that I walk drunk and slur my speech in episodes that if I call 911 or have a major relapse episode. Instead of going to the hospital I end up in this messed up story of going to jail because they thought I was drunk, I can't communicate, and etc. This FND has been so crazy messed up all ready!

I have FND as well this almost looks like Stiff Persons Syndrome

Horrible ,it seems for me emotions ,or use of my energy is a trigger .i have to try and stay calm. Cant have no negative thoughts .But also i noticed happiness triggers it too ,a good joke ,it kicks in ,mostly .Arms ,head ,shoulders ,hands ,face .Sometimes whole body .First few days , i can handle this ,not so bad .Then you realise this hurts .You got people staring at ya ,rarely go out in public . The family is ,well ya find out who is true lets just put it that way .i wouldnt give up hope quite yet ,i think the smart are getting close to a treatment .Something to do with the thalamus .Anyway a little hope ,hope you feel better .❤

Watching ur video made me break down in tears. Stay strong I feel ur pain I also suffer from FND.