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PBCers Organization
Приєднався 26 сер 2014
PBC Conference Guest Speakers
John Vierling , MD - Diagnosis and Treatment of PBC 2024 PBCers Conference Phoenix AZ
*Review key diagnostic criteria for PBC - emphasizing newer roles for PBC-specific Anti-Nuclear Antibodies (ANAS) gp210 and sp100
*Discuss the role of biopsy and alternative non-invasive ways to assess and monitor the fibrosis stage
*Define the criteria for diagnosis of an Overlap Syndrome with Autoimmune Hepatitis
*Review standard of care Therapies and the Phase 3 Clinical Trial results of elfibranor and seladelpar, the 2 PPARS being considered for FDA approval as second-line therapies
*Discuss the role of biopsy and alternative non-invasive ways to assess and monitor the fibrosis stage
*Define the criteria for diagnosis of an Overlap Syndrome with Autoimmune Hepatitis
*Review standard of care Therapies and the Phase 3 Clinical Trial results of elfibranor and seladelpar, the 2 PPARS being considered for FDA approval as second-line therapies
Переглядів: 402
Відео
Jess Schnur - Doctor / Patient Relationship
Переглядів 672 місяці тому
*Review basic and in depth questions to ask yourdoctor *Go over pre-appointment prep and follow-up after testing *Delve into the aspects of Palliative Care and how it can beuseful in chronic liver disease
Jessica Lynn and Heather Clark - Empowering Voices: Crafting Your PBC Narrative
Переглядів 512 місяці тому
Key Topics will include: * The importance of storytelling * Crafting Your Narrative * Amplifying Your Voice *Navigating challenges
Eric Gershwin, MD - Unmet Needs in PBC: How Can We Solve Them?
Переглядів 602 місяці тому
An overview of research efforts from diagnostics to therapeutics
Elizabeth Carey, MD - What to Expect When You Are Expecting ...A Liver Transplant
Переглядів 672 місяці тому
* Indications for Listing * While You Are Waiting *Understanding Donor Organs *Life After Liver Transplant How to Choose a Transplant Program
Doctors panel - Dr Gershwin, Dr Vierling and Dr Carey take questions from the audience.
Переглядів 662 місяці тому
Friday's speakers take question from the attendees.
Puneeta Tandon, MD - Mediating the Impact of Stress in chronic conditions like PBC.
Переглядів 932 місяці тому
* Introduce the related concepts of wellbeing, chronic disease distress, anxiety, depression and acute & chronic stress. *Discuss science-based interventions to manage these symptoms as an important part of a whole-person approach to PBC care * Discuss how you can get involved
Mark Swain, MD - Fatigue in PBC - Who, How, Why and What to Do?
Переглядів 4402 місяці тому
Mark Swain, MD - Fatigue in PBC - Who, How, Why and What to Do?
Nadege Gunn, MD - The Real Deal about clinical trials: You are not the Proverbial Guinea Pig.
Переглядів 992 місяці тому
* Includes information on trials, regulations, the need to participate and benefits to patients who do enroll. Also includes a panel discussion with 3 patients who have participated in trials.
Marlyn Mayo, MD - Managing PBC Itch - Let's Start From Scratch
Переглядів 1152 місяці тому
* Talks about PBC itch, tips to deal with it. *Explanation of current treatments and new ones currently in trials
Srikar Guntaka, M D Mirum Pharmaceuticals A Rare opportunity to make a Remarkable Impact
Переглядів 81Рік тому
Learn about one of the clinical trials for itching in PBC. Volixibat is an IBAT inhibitor that lowers the bile acid uptake and should reduce the itching patients suffer from
Eric Gershwin Why me ? The Long & Latent Road to PBC
Переглядів 115Рік тому
Dr Gershwin updates us on why a patient develops PBC and the latest research
Ben Kozub CymaBay Therapeutics Measuring Quality of Life in People With PBC
Переглядів 86Рік тому
Ben Kozub CymaBay Therapeutics Measuring Quality of Life in People With PBC
Ben Wildman Tobriner, MD Topic: Making Sense of the Alphabet Soup of Radiology
Переглядів 83Рік тому
Ben Wildman Tobriner, MD Topic: Making Sense of the Alphabet Soup of Radiology
Megan Beyer, MS, RD, LDN, CCTD Topic: Nutrition Needs for PBC Patients to Know
Переглядів 32Рік тому
Megan Beyer, MS, RD, LDN, CCTD Topic: Nutrition Needs for PBC Patients to Know
Leslie Stratta Well Being & Life Coach Topic: Mind * Body * Soul
Переглядів 22Рік тому
Leslie Stratta Well Being & Life Coach Topic: Mind * Body * Soul
Cynthia Levy, MD University of Miami Topic Women’s Issues with PBC-Pregnancy, Contraception, Meno
Переглядів 20Рік тому
Cynthia Levy, MD University of Miami Topic Women’s Issues with PBC-Pregnancy, Contraception, Meno
Lindsay King, MD Duke University Topic Liver Transplantation in PBC
Переглядів 140Рік тому
Lindsay King, MD Duke University Topic Liver Transplantation in PBC
Cynthia Levy, MD Topic Dealing with PBC Itch
Переглядів 53Рік тому
Cynthia Levy, MD Topic Dealing with PBC Itch
Intercept Pharmaceuticals - Marlene Vincent and Eric Ness
Переглядів 111Рік тому
Intercept Pharmaceuticals - Marlene Vincent and Eric Ness
Chris Bowlus Diagnosis and Treatments of PBC PBCers Conference October 2022
Переглядів 499Рік тому
Chris Bowlus Diagnosis and Treatments of PBC PBCers Conference October 2022
Panel Discussion - Share experiences as patients and from working with PBC patients over the years
Переглядів 68Рік тому
Panel Discussion - Share experiences as patients and from working with PBC patients over the years
Greta Wodarcyck COUR Pharmaceuticals CNP-104 Clinical Study for the Treatment of PBC
Переглядів 107Рік тому
Greta Wodarcyck COUR Pharmaceuticals CNP-104 Clinical Study for the Treatment of PBC