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HS Foundation
United States
Приєднався 30 тра 2023
People living with Hidradenitis Suppurativa are at the heart of our mission, which is to improve the lives of people affected by HS through advocacy, education, and research.
Our vision is to live in a world where no one suffers from HS.
Our vision is to live in a world where no one suffers from HS.
Biologics for HS – Who, What, When, Why and How
PRESENTER: Joslyn Kirby, MD, Program Director and Associate Professor, Department of Dermatology, Penn State University
DESCRIPTION: Who is a candidate for a biologic? What biologics do we pick? When do we know if it’s working? How do we change? How do we get it approved? Why are biologics an important part of the management of HS? All of this and more will be discussed during this session!
DESCRIPTION: Who is a candidate for a biologic? What biologics do we pick? When do we know if it’s working? How do we change? How do we get it approved? Why are biologics an important part of the management of HS? All of this and more will be discussed during this session!
Переглядів: 136
Відео
Clinical Trials 101
Переглядів 562 місяці тому
Are you ready to take control of your health journey? Listen in for an enlightening session where we dive deep into the world of clinical trials. Discover the process of participating in a Hidradenitis Suppurativa clinical trial, gain invaluable insights into what it entails, and have all your doubts and concerns addressed by Clinical Research Coordinator, John Sobjoviak.
Management of Pain in HS
Переглядів 292 місяці тому
PRESENTER: Lauren Orenstein, MD, Assistant Professor, Department of Dermatology, Emory University DESCRIPTION: Dr. Orenstein will review what is currently known about the causes and impacts of pain in hidradenitis suppurativa, self-advocacy for pain management, and treatment strategies.
What Causes HS?
Переглядів 662 місяці тому
PRESENTER: Michelle Lowes, Investigative Dermatologist, Rockefeller University DESCRIPTION: Dr. Lowes will discuss the latest ideas about the causes of hidradenitis suppurativa, including the role of the immune system.
Emotional Impact of HS
Переглядів 692 місяці тому
Living with HS affects more than the physical body. HS goes beyond skin deep creating emotional wounds as well. These emotional wounds often present as tension, somatic symptoms, anxiety, and worsening inflammation, yet it can be easily overlooked and go unattended to by healthcare providers. But, the truth is that when the pain and shame of living with HS infiltrates the skin, bodies, brains, ...
Cannabis & HS
Переглядів 1202 місяці тому
Discover the untapped potential of medical marijuana in the realm of Hidradenitis Suppurativa (HS). Join us as we delve into the uncharted territory of alternative pain management for HS patients. In this groundbreaking session, we will explore the miraculous workings of marijuana in alleviating pain and uncover why it has become a beacon of hope for our community. Don't miss out on this transf...
Wound Care
Переглядів 1192 місяці тому
Wound care for hidradenitis suppurativa can be relentless. What works best? What do all of these dressings do? What works best for your wounds? Katie Scherling, ARNP, certified wound care specialist, will talk about the dressing options for the wounds many of us deal with and will also provide live demonstrations with HS patient advocate, Brindley Brooks.
Myth Busting
Переглядів 1223 місяці тому
As an HS patient, you're constantly seeking answers to so many questions. What information is correct? How can you tell what's true from what's false? Drs. Daveluy and Roth are here to help! Drs. Daveluy and Roth will help bust myths and teach you how to identify false information when you see it during the Myth Busting session of Spotlight HS!
Complementary and Integrative Medicine for Hidradenitis Suppurativa
Переглядів 233 місяці тому
Vivian Shi, MD
Intralesional Triamcinolone, a Standard of Care Treatment for Acute HS, Does Not Prove to Be Supe...
Переглядів 173 місяці тому
Kristen Fajgenbaum, University of North Carolina at Chapel Hill School of Medicine, Chapel Hill, NC, USA
Anti-inflammatory Benefit of Levofloxacin-Metronidazole-Rifampicin in the Treatment of HS
Переглядів 303 місяці тому
Lauren Hoffman, Albert Einstein College of Medicine/ Montefiore Medical Center, Bronx, NY, USA
The Effect of Chlorhexidine Wash on Antibacterial Resistance in HS Lesions: A Retrospective Analysis
Переглядів 163 місяці тому
Paul Leiphart, Penn State College of Medicine, Hersey, PA, USA
Hidradenitis Suppurativa in Pregnancy
Переглядів 213 місяці тому
Hidradenitis Suppurativa in Pregnancy
Targeted Antibiotherapy Combined with Surgery for Remission of HS: How and Why
Переглядів 73 місяці тому
Targeted Antibiotherapy Combined with Surgery for Remission of HS: How and Why
A Retrospective Study of 39 Patients with Hidradenitis Suppurativa Treated with Dapsone
Переглядів 163 місяці тому
A Retrospective Study of 39 Patients with Hidradenitis Suppurativa Treated with Dapsone
Emerging therapies in Hidradenitis Suppurativa
Переглядів 173 місяці тому
Emerging therapies in Hidradenitis Suppurativa
Update on the Role of Bacteria and the Skin Microbiome in HS
Переглядів 93 місяці тому
Update on the Role of Bacteria and the Skin Microbiome in HS
Genetics of HS: A Systematic Review & Critical Evaluation of Reported Sequence Variants in HS
Переглядів 93 місяці тому
Genetics of HS: A Systematic Review & Critical Evaluation of Reported Sequence Variants in HS
Pathogenesis of Hidradenitis Suppurativa
Переглядів 513 місяці тому
Pathogenesis of Hidradenitis Suppurativa
From Bank to Bedside: Establishment of a Fresh Tissue Bank for Hidradenitis Suppurativa
Переглядів 63 місяці тому
From Bank to Bedside: Establishment of a Fresh Tissue Bank for Hidradenitis Suppurativa
Nicastrin haploinsufficiency increases inflammatory responsiveness in keratinocytes cell lines
Переглядів 83 місяці тому
Nicastrin haploinsufficiency increases inflammatory responsiveness in keratinocytes cell lines
The Critical Role of Macrophages and Alcohol in the Pathogenesis of Hidradenitis Suppurativa
Переглядів 293 місяці тому
The Critical Role of Macrophages and Alcohol in the Pathogenesis of Hidradenitis Suppurativa
Biomarkers in Hidradenitis Suppurativa
Переглядів 153 місяці тому
Biomarkers in Hidradenitis Suppurativa
Drug Induced Hidradenitis Suppurativa: A Systematic Review
Переглядів 183 місяці тому
Drug Induced Hidradenitis Suppurativa: A Systematic Review
The link between depression and inflammation in Hidradenitis Suppurativa (HS)
Переглядів 363 місяці тому
The link between depression and inflammation in Hidradenitis Suppurativa (HS)
HS can also be hormonal...and due to hormonal fluctuations especially in women! I'm perimenopausal and my HS is worst when I'm due on, so the week before or so!
More people should watch this.
Journals!! That is a great idea!!!!! I had this disease for 11 years before I knew really what it was. my PCP will not give me a medical card.
Thank you Ladies for this information, I'm about to buy those silicone dressings