Відео

Si se ríen es porque se salva

Pobre niño tanta cosa que le ponen ojalá sea para que se salve sino puro sufrimiento

My husband and I are doing IVF treatment and we just received our PGT testing results. Unfortunately the baby girl embryo is positive for high-level mosaic trisomy 13. And our little boy embryo is low level dup(17)(q24.2-qter) (mos). We will be speaking with the genetic testing team on Friday. Hopefully we will get positive positive news about transferring the boy embryo.

What form of trisomy 18 does Amari have? Because trisomy 13 and 18 are usually fatal before one year old

Similar story with mine

I have a daughter with Trisomy 13 Happy to see this video

I’m so grateful to have stumbled across this story. Helps me feel less alone in my very specific kind of grief. I miss “feeding” my baby too. Hiraya Ahsoka Gatchalian-Raga also was a Trisomy 13 baby, but now she’s free. I imagine her playing with our dog Chewy in heaven who passed shortly after her. 🥹🥰🤍

I'm wondering if knowing before she was born would have given you the chance to research and get some more scans would have helped. Our granddaughter has Down Syndrome which is Trisomy 21. We knew the diagnosis ahead of time. My son and daughter in law had time to know what the options were. Thank God she's a healthy little girl.

Oh I'm so sorry! I'm glad you got to be with her until the end.

Why blame the doctors for your burden

So sadden for the children who suffer and die. My Down's fetus was removed from me nearly 36 years ago. Ten years earlier, our first born live two minutes from six hours old. Premature. Respiratory Distress Syndrome. We have two living adult children. Heartaches aren't every day. I ask my baby boys to spend the night. Whatever gives you comfort, do it. When I was in my mom to be at 4 months, my eggs in me were my gifts for the four I had later on. Grandma , mother, and her baby. It truly is a SACRED WOMB. Hysterectomy was removed because of cancer, but my nuturing never ends.

I am so sorry for your loss. It is very hard losing a child. Your little girl is an Angel now she is flying high in Heaven. ❤❤❤❤❤❤

I have a friend with Trisomy 18 (Edwards Syndrome) and she is 28 rn.

I had a daughter with t18, 13.15 chromosomal 21, and I have never been the same, I had a son afterwards and I was so worried that he was going to have a health issue, but with the Kirds Grace he was just fine, my heart ❤️ is with you,

Did you get amniocentisis?

My daughter 34 has partial trisomy 13 and lives fairly normally. She is actually a unicorn with a college degree so we are lucky.

Done I am so sorry for your lost prayer

To Isabel’s mom, you have a beautiful happy loving family. Thank you for sharing your story with the world.

So very sad you lost your little girl.....

Have you had any blood test prior to baby delivery? I would like to know test will miss it?

I have been dealing with HIV for the past 5 years until i got review on UA-cam about #drabiola and I got Dr Abiola herbal medicine last month, now I am free from HIV #drabiola 🥰....

I think most of the time Dr's in hospitals have their own agenda when these kids are diagnosed. They don't want them to be a drain on the health care system because often they do have lots of health issues. They don't want the parents to have the strain on all of the families relationships etc. However it's not up to the Drs to make the ultimate choice. They need to give the parents the All of the available information to make their own choice for their child. I think it's medical negligence on a massive scale for parents to be led to believe there is no hope what so ever. Also Dr's cannot predict before birth all of the issues the child is going to have, how severe these problems will be or the IQ of the child. Yet before birth the Dr's do give the option to abort the child, when they don't know for sure whats wrong.

Good animation

Underrated video

✌️ 𝐩яⓞ𝓂𝓞Ş𝐦

I love you parents ♥️♥️♥️you are all so brave 🥲🥲🙏💜🥰

How sad and devastating to the family! I wonder if the syndrome can be diagnosed while in utero? Hugs from me.

I lost my son with the same syndrome. I agree with you to a great deal. Softer words when delivering this type of news. I thank GOD for allowing us the time with my son.

Good parents

I have a Daughter she is 26 years old. She is a lovely girl and she walks by her self. We lived in Brasil.

Great to refresh my understanding of your work. Thanks for your continued support of our children

Im sorry for your loss, I too lost a baby to this T13. I understand your pain. Thank you for your story. The stress this brings to you is beyond words. I grieve for the loss of my child and the loss of my relationship with my wife due to this T13. I caused us so much pain it broke us apart.

I qualified as an RGN in 1991 at Wycombe - I remember the consultant fondly - he was brilliant so was the other one but there was something very special about him it was a huge loss to paediatrics when he died. Interesting to hear about Saskia’s early years !